This is another autoimmune condition. Like all the other AI conditions mainstream Medicine pops the symptoms affecting a particular or group of organs into a silo and treats it as a stand alone disease. It’s not a disease. It’s process just like lupus and MS and RA and many others. I have several autoimmune conditions which isn’t unusual bc this is an other process that kicks off due to an overactive immune system. We can never get completely rid of the antibodies that have been created by our immune system to keep us safe from some perceived harm but it is within our power to be our own health detective, find and then avoid the triggers that flare the immune system into over reacting to environmental triggers. Great video. All the best

And god bless u.Ive been suicidal bcuz i believe i have an autoimmune disease and no one ever believed me an it ruined my life.I am undiagnosed but these quality videos help me understand it better.

@mgathlete1431

3 жыл бұрын

I'm really glad that the videos helped you. It is very hard to explain to people what you are feeling because they cannot relate to what you are saying at all, so that is why they would think it's not true.

@enriquepflucker4991

2 ай бұрын

My father is goung nuts witg this. He is dizzy

i think after 3 years and a lot of self isolation i know what i have... bc of your video im shooooookkkk

I have occular I was just diagnosed this week. Double vision has been awful. I will cope and work through it.

This is so well explained and articulated. It’s so good to see that people can recover from this disease and be as healthy and strong as you are.

@mgathlete1431

4 жыл бұрын

Thank you Tylon! Let's hope many more people will recover!

I'm a MG victim and this is so positive for me thanks

Thank you, dear soul.🙏🔥

Thank you for sharing your journey.

Really appreciate the information, just been diagnosed myself. Thanks so much again.

Thank you very much. It is a very informational video....Love it

Thanks

thank you for the insight. I’m scheduled to go to a doctor and have him do the appropriate tests to see if I suffer from MG. I seem to have all the classic symptoms. I wish you all the best and again thank you

Excellent video. I have had MG for about 5 years, but its not a severe case and i have managed to work around it. The double vision sure makes driving a chore, though.

I am newly diagnosed and I’m so glad I came across this video! Thank you so much maybe we could get in touch ✅

@mgathlete1431

4 жыл бұрын

Hey Katie, sorry to hear about the diagnosis! I'm glad the video was useful for you. Yeah sure, how are you doing currently?

@katieenstad3441

4 жыл бұрын

MGAthlete I’m doing okay dealing with the ocular symptoms and super fatigue along with difficulty swallowing. I’m on mestinon and prednisone currently. The mestinon was helping and now it’s not unfortunately.

@mgathlete1431

4 жыл бұрын

@@katieenstad3441 Seems unfortunately to happen to most. Same happened to me. Slight improvement/stabilization after diagnosis and getting meds, but then it declines. I am going to keep doing vids on MG for now, with the aim of sharing the diet and lifestyle things I learned and implemented. So hopefully that can assist you and others, but if there's anything specific you can message my FB or Instagram: MGAthlete

Wow, so happy you are in remission. My husband is dealing with these MG issues, I will share your video. Thanks, look forward to more, may your health continue to improve.

@mgathlete1431

4 жыл бұрын

Thank you. Sorry to hear about your husband. Thanks for sharing. More coming soon

Great video Ross! You are certainly doing amazing work and are an inspiration to people facing this challenge. I will always be greatfull for your help and advice. Keep up the good work!

@mgathlete1431

4 жыл бұрын

Thank you for that Ettienne. Means a lot. I hope it will all be useful for other patients in future!

Wonderful video! Much respect to your perseverance. I was diagnosed with MG in 2012.

@mgathlete1431

4 жыл бұрын

Thanks Marvin. I hope you are doing better now?!

@leg_megro185

3 жыл бұрын

@@mgathlete1431 hey ross Wating for ur reply

How are you now? just landed on your video as i was searching how to heal double vision. It seems i have the same disease, how did you get healed?

Thank you so much for giving me hope. I thought my life will be a mess for ever. Do you think we will recover from these symptoms 😜😜😜

Looking so strong! You’ve come so far on the journey to optimal health!

@mgathlete1431

4 жыл бұрын

Thanks Ian for the support and part time filming ;)

@sjm2726

3 жыл бұрын

I’ve just been diagnosed (not ocular) which is all quite overwhelming in itself. Struggling to see what the future holds. Watching this video gives me hope and faith for some kind of future.

@rawmilkmike

Жыл бұрын

@@sjm2726 Do you like beef, butter, bacon, fish, or eggs? These are all foods one can live on. We don't need to eat plants, and we are much happier and healthier when we don't.

@stellaancimer8505

Жыл бұрын

​@@rawmilkmike carnivore? :) I started and improvment is already here ❤

I appreciate the video!! I am in the process of getting diagnosed. There aren’t a lot of personal testimonies out. Thanks for this!! I’m pretty sure I have MG. Done all the test. Just waiting on lab tests.

@mgathlete1431

4 жыл бұрын

I hope the results go well and either way that you can get an answer on diagnosis and go from there. All the best going forward!

Can you tell us how you overcome the symptoms. If you had some treatment. God bless you..

Was your diplopia constant or intermittent?

I have, was diqgnosed 2017. I used to run and i hqve to stop. U r right it can be managed now i am back to my normal life. I am now 60, I do yoga it helps me alot and i feel great ❤

How are you holding up my friend?

I been diagnosed a month ago. I have had plex/plasmapheresis and I take delta8 THC vape that prevents an attack and it adds or replaces the damaged and missing acetylcholine, so marijuana helps with controlling MG symptoms. I also get rituximab which is very powerful and last up to 6 months keeping symptoms in check. I will undergo a thymectomy to have my thymus remove which slows down the production of the harmful antibodies. Currently my symptoms are mainly fatigued, the droopy eyes, double vision. I don’t get problems swallowing or breathing. But sometimes I forget I have this condition because the symptoms are so small and doesn’t exist that I don’t feel like I have this condition. With a combination of treatment methods you can live a LONG normal life. Your attitude, diet, treatments and lifestyle makes up the big difference.

@mgathlete1431

3 жыл бұрын

Definitely agree with you - diet, attitude and lifestyle make the difference. All the best!

@vigilantesalazar2864

3 жыл бұрын

MGAthlete thanks!

My husband has had mg for four years, with no signs of improvement. Could you tell me what treatment or medication helped you improve and go into remission. We know of no doctors in SA who specialize in treating the disease.

Thanks for your input. I had symptoms after a Chikungunya virus episode in 2014. Started with intermittent diplopia , dizziness, speech slurring etc. Each time a different symptom would be first and strongest.so it took almost 3 years to get a diagnosis. It is stable now on pyridostigmine, but varies from day today and also throughout the day. At 85 it gets confused with the general aspects of aging. Choking is what fears me most and I no longer eat in front of others. ..it is not a pretty sight. It is vastly misunderstood by most doctors and several tell me they have only read of it and have never treated a patient who has been diagnosed with MS. Thanks for putting yourself out there.

@perhapsno261

4 ай бұрын

oh yeah i have MG too recently diagnosed but was suffering from it a long time ago i also stopped eating infront of others and giving presentations due to slurred speech , MG made a introvert and i am grateful for it

Have u underwent thymectomy

dude you are really brave ! you are amazing much ! like and subs .... wish you the best ... i hope one day they find more solutions for this once and for all ! hugs to you bro ....

@mgathlete1431

4 жыл бұрын

Thank you very much!

@janjankhot9317

4 жыл бұрын

@@mgathlete1431 no ty that made me happy my gf have same disease I am looking all over the world to end it for her and to make it leave I love her so much when I saw your video I cried.... You are have a perfect personality no one would dare as you did... You made me wanna do more to help my gf God bless you

@mgathlete1431

3 жыл бұрын

Appreciate that. Wishing you and your gf the best!

Did you have shortness of breath?

Thanks for this video, i was diagnosed 2018, I have two months left of weening off prednisolone. still taking azaphrphine and mestinon, I am back to the gym, started to lift light weights just this week! I also have fire in my eyes ,very determined to see a light at the end of the tunnel. As you described in the video all the same effects happened to me i also lost use of my neck now only battling with fatigue , occasional eye droop and the mess the steroids have left me with, anger outburst, 20 pounds over weight ,moon face although i am grateful steroids have bought me this far through my healing, The rest now is up to me. I can do this.We can do this stay strong warriors

@mgathlete1431

4 жыл бұрын

Thanks for sharing your story. I hope the weaning continues to go well. Slow and steady, you got this

@KMx108

2 жыл бұрын

Today, I found out my time on prednisone (which caused me to gain 20 pounds and have moonface also) caused bone death in my femur above my knee. I took the prednisone in 2018. The bone death was an incidental finding on an MRI. Pretty scary to see.

@sharmwhitter7645

2 жыл бұрын

@@KMx108 are you still taking them now? My legs play up now and again, I do wonder if it’s related.. I have now made it down to 2 mgs just a few months to go and that is the end of that!

@sharmwhitter7645

6 ай бұрын

@@truthgambit I came off preds April 2022 around about that time 4 years I struggled, this year I now and again get a slight twinge but nothing in comparison to how it was… hope you’re doing well!

@sharmwhitter7645

6 ай бұрын

Keep going do not give up also when you’re ready try intermediate fasting and just be kind to yourself let me know how you get on all the best

Nice Video Ross. I was also diagnosed with MG in 1992. My Thymectomy done in 1994, I was taking Mestinon 60 mg 7 to 8 tablets in a day. The symptoms were same e.g ptosis,diplopia, severe fatigue. But gradually it started to recover, I reduced my medicine,and even from 2001 I m leading my life without medicine. Finally i will like to say we can recover from MG by taking the proper advice from our neurologist and maintaining the strength of our mind to fight with this rare disease.

@besaranfatah9685

3 ай бұрын

Now how are you

I would like to ask: why are there no clinical trials using umbilical cord derived mesenchymal stem cells (uMSC) to treat myasthenia gravis ? I read and am told that MG is an autoimmune disease. There are many people going to Mexico to have treatments using uMSCs for their individual auto immune condition. Many clinics in Mexico, and Dr. Neil Riordan's Stem Cell Institute in Panama have listed protocols for treating myasthenia gravis. Why isn't the use of uMSCs being pursued ? Where are the clinical trials ?

Yep I've been there,

You're lucky! Most people don't go into remission...

sir i am suffering from myasthenia gravis for 22 years .please help me

Hi Very Good Video, how is your diet?

@mgathlete1431

3 жыл бұрын

Pretty good I think. But according to mainstream recommendations it may appear to be quite odd

Wonderful video, ty! May I ask you, did u have one side of your body more affected than the other? In terms of weakness and eye problems?

@mgathlete1431

4 жыл бұрын

In terms of eye issues, my one eye did droop more than the other, but in terms of general body weakness I wasn't stronger/weaker on one side over the other.

Hey man I just been diagnosed now about a year maybe and really honesty as of January we have come to knowing I have MG but for about a year the symptoms have been affecting me if you can help me out man just give me tips and some information so I could be going down the right path truly appreciate it cause I’m having difficulty dealing coping with this issue✌🏿❤️🙏🏿

@mgathlete1431

4 жыл бұрын

Hi. Sorry it's not going so well. What symptoms are facing currently? I have put out a video called "My Top Information Sources" which is where most of the information I found helpful comes from. I focused on my diet, mindset and lifestyle. I will do videos on each of those topics to try explain them further. But I would recommend going through the information and trying to see what works for you. If there's anything specific that you would like to ask let me know.

@ohmami88

3 жыл бұрын

Fellow snowflake here

I have experienced some forms of muscle failures.I used to go for running for a brief period.The first day i started and ran about 40 mins(it was a combo of 30% walk 50% jog and 10% run).When i came back home and few hours had lapsed i start noticing my muscles were giving up on me,they cudnt support me.I couldnt run for another 4 days.It took that much timr for my muscles to get back to normal condition.I felt like if i applied anymore stressed on it i wud just fall off.Not that it did happen.My legs prolly ghave up on me and caused me to fall off suddenly only 2 or 3 times so far so i wudnt call that a prominent thing but it has happened.Even with my arms all i did was 4 pushups and it started hurting around the shoulder region for the whole day.I feel like my legs and arms have gotten weaker.Same with my facial muscles .I have a hobby to rap but the more i rap the more numb my muscles get.I can no longer move my facial muscles while rapping.Is this what u described as muscle fatigue?

@mgathlete1431

3 жыл бұрын

That does sound like muscle fatigue to me. The point of being able to do anything more after exercise

Can you help me please? I'm from Myanmar ! This happened my life. now 6 months, In Our country is not enough medical for MG.

Hello 🙂 first of all thank you for sharing your experience 👍🏽 At some point of your video, you said that after adopting a healthier lifestyle, you have been able to reduce your medication. My question is what medecine do you take, is it Mestinon?

@mgathlete1431

4 жыл бұрын

No problem, thanks for the comment. Yes, I used to take mestinon. I haven't taken medicine since 2016 though.

was diagnosed with mg august 2020although all tests mri, ct and ct with that liquid showed negetive for the disease but the eylid test with ice suggested mg. Double vision , droopy eyelids and eyeballs were fixed solid would not move. been on meds since september 2020 and pleased to say one of my lids are open but close from time to time but left eye lid still closed but sometimes open for about 15 / 20 mins a day, double vision still with me like the plague. been off work for 5 mo. good to see yours cleared up and yeah cant reallyl shave yet as cant see my face properly as eyes have not fully freed up yet. can anyone give me a rough guide on how long yours took to clear up, was hoping maybe to hear i should be fine by x y z

@rawmilkmike

Жыл бұрын

@Pablo Dc I don't think that's what did it. Do you like beef, butter, bacon, fish, or eggs? These are all foods one can live on. I can't say this enough, we don't need to eat plants, and we are much happier and healthier when we don't.

@rawmilkmike

10 ай бұрын

It's interesting, it looks like somebody replied to me. But it's not visible.

Is there any correlation between this & Dystonia that anyone knows about? 😊

My right eye is beginning to not focus and drift on it's own and weakness is my eyelid, last week the doctor told me she believes I have MG and I can't explain it I walk down the street half way and my left leg feels like I worked out with heavy weights, I can't hold a book in one hand for 5 min. I go for cat scan to see if I have another eyes disorder. I hope I don't have MG and the cat scan explains my eyes issues. I have thyroid disease and take levothyroxine for 5 years now. If any one has any ideas or things to look for let me know.

positive video but it is worth saying not everyone gets to remission, and remission doesn't always last. I'm still trying to find an effective treatment, but hoping at some point to get at least someway back to normal life. Fingers crossed.

@theoriginaldeadchick2132

8 ай бұрын

exactly this, just posted the same. I do get a feeling of hope, but what I worry about is having feelings like I'm not trying hard enough to control the fact my body is still making a lot of antibodies which I have no control over. One day hopefully however.

@truthgambit911

4 ай бұрын

I have been doing meditation and yoga since my last crisis and I truly think it is helping. meditation with breathing exercises are especially helpful. This is a little crazy but a man named Joe Dispenza has meditations on youtube about how our mind can help us heal. As I started to listen to his I saw that there were many people with these kind of meditations. I feel better since I started doing these meditations. Again it sounds crazy but I think just the fact we relax our bodies intentionally helps us heal.

Hello, I was diagnosed with MG 2 years ago. What would be your recommendations(diet and exercises)? I am on meds but it seems to stop working. I am having double vision Any advise would help Thank you

@mgathlete1431

3 жыл бұрын

If you seem my video about top resources where I mention the online copy of an MG book, that is sort of the basis for my eating. Low polyunsaturated fat, lower phosphorus relative to calcium, more glycine/gelatin rich proteins over methionine proteins, and then getting manganese rich foods in too. I had a big focus on stress reduction in terms or diet (easier to digest foods), lifestyle (stopped studying and work for a bit), sleep/exercise/circadian rhythm (used to be awake at night a lot), and then relationships too I think walking is more than enough exercise for most people, and then adjusting from there depending how much strength and energy I have.

@misswonderful359

2 жыл бұрын

@Pablo Dc what herbs did you used?

How did you get into remission?

@starcorpvncj

Ай бұрын

It happens with some people only. Nothing can bring it on. MG is very varied among individuals.

thanks brother... Last question work with a doctor. I then looked into my diet and lifestyle and tried to remove as much stress as possible. I limit process foods. Mainly trying to avoid vegetable oils and eat the best quality foods i can afford. I takes time but it gets better

@mgathlete1431

4 жыл бұрын

Hs Hanif what’s the question? You just copied pasted my comment

how can MG be diagnosed? it is hard to tell if im suffering from anxiety disorder or MG..because symptoms i can feel is heaviness in my head, inability to complete satisfying yawn, heaviness in some parts of body when standing, and my left eye twitch and somehow had pressure that weak.

@mgathlete1431

4 жыл бұрын

MG is typically diagnosed by a blood test to test for acetylcholine antibodies or an Electromyography (EMG) test

@carolcook4978

2 жыл бұрын

@@mgathlete1431 z

I have Graves’ disease and myasthenia symptoms. I don’t know why but it seems that Graves/thyroid issues come hang in hand with MG. Did you test positive for MG in bloodwork?

@mgathlete1431

4 жыл бұрын

Yeah it is not uncommon to have both. Yes, I tested positive for both on anti bodies

@IvanaGirl

4 жыл бұрын

Wow I hope you’re still remission. Best wishes

@mgathlete1431

4 жыл бұрын

@@IvanaGirl I am. Thanks very much. How's it going for you?

@IvanaGirl

4 жыл бұрын

MGAthlete not good I don’t know what this issue with swallowing is. It is either neurological or a stomach thing. I will keep you posted and you keep us posted too please!

What are the steps to follow for recover MG?

@mgathlete1431

4 жыл бұрын

The's a big question. I did a lot and it's going to depend on each individual. But I learned a lot about diet, lifestyle, stress etc. and then changed a lot of things to get improvements. It takes time

SIR, I AM FROM INDIA, AND RECENTLY CONFORMED MG AND I AM AGED ABOUT 60 YEARS, CAN I RETURNED TO NORMAL LIFE,

Brother i m also a mg patient plzz help me by telling about the exercises i should do

@mgathlete1431

4 жыл бұрын

There's no specific exercises. I think lowering stress is important, so sometimes overdoing exercise isn't helpful! I think walking and getting outside was really good for me

Hi ross Please please help me I am from india The doctors neurologist are crap here My.mother has MG .but Musk antibodies I dont want her getting on corticosteroid I wanted to know did u do IVIG or Plasma And also was ur diet plant based?? Please please please reply

@leg_megro185

3 жыл бұрын

Ross waiting for ur reply

@mgathlete1431

3 жыл бұрын

I didn't use any of those meds or transfusions. I only used mestinon for a year or so. I do not follow a plant based diet. I think animal products are an important source of nutrition. The main things I try follow are really limiting unsaturated fats, removing difficult to digest foods (raw leaves etc, and nuts/seeds). More info is in my top resources video

U spoke somethin of thryoid level.Do u have even a thyroid autoimmune disease?

@mgathlete1431

3 жыл бұрын

Yes, I had autoimmune thyroid issues. I was diagnosed with Graves Disease (over active thyroid condition), but I think I actually have an under active thyroid now, and the over active symptoms/test results were just signs of extreme stress

I hope you are still doing well. I had Ptosis in my left eye that would totally close. This led to my doctor, who didn't know what the problem was, deciding to give me prednisone starting at 50mg and tapering off. The ptosis went away after eight days. About a month after that I got the double vision which was very disturbing. I had the usual tests MRI of brain and neck, blood tests and was diagnosed with MG. An ophthalmologist recommended to not use prednisone and an emergency room doc gave me an Rx for another steroid which did nothing. My drivers license was about to expire, and I was driving with an eye patch. My primary care doc, who had never heard of MG but is now quite educated about it, put me back on prednisone and referred me to a neurologist. While I still get some instability when walking and fatigue, I am better with little to no eye symptoms. I got my license renewed too. I was also getting bad leg cramps, mostly at night. A 250mg magnesium tablet before bed got rid of that. Your video shows what most MG patients go through.

@TheRealist2024

7 ай бұрын

I have been diagnosed with MG but my symptoms happened in reverse to yours, double vision first then the eyelid drop on the left. Did Prednisone clear you're symptoms and have you stopped taking medication now? How are you feeling?

Do you have take any medicine?

@mgathlete1431

4 жыл бұрын

Definitely in the beginning. I stopped taking in 2016. But until I had recovered enough I took medication.

How you back to normal vision

@mgathlete1431

4 жыл бұрын

Quite a few things all added together I think. If you find my video about top MG information sources, I mention a book and articles that I really learned from. I changed my diet quite radically, stopped working and studying to focus on recovery, and then slowly starting adding things back into my life, which I am still doing today. I focus on eating the best I can and lowering stress

Anytime I go to the hospital they tell me they can't do any diagnosis... Even when I tell them my Dr believes I have kt

Sir i had droopy eyelid in the past but now i have recovered should i stop taking medication or continue it

@animeshkumarrai3820

4 жыл бұрын

N i was diagnosed with mg

@mgathlete1431

4 жыл бұрын

That's something to decide with your doctor. And best to be under the care of a doctor when coming off medication

@animeshkumarrai3820

3 жыл бұрын

@@Surya-on1ci i take 3 distinon 6o mg 1 mycept 5oo mg and 2 tablets of tilstigmine !

@animeshkumarrai3820

3 жыл бұрын

@@Surya-on1ci 1 year and. A hf year

I was 1 1/2 in remission without any medication so yes it’s possible. I was diagnosed with ocular MG at the 12 years ago. I’m currently back one 1 60mg tablet of pyridostigmine and medrol pack. Word of advise with anyone suffering from ocular Mg. Get to know your body and your systems as well as do you symptoms improve with your medications or get worse or are you taking all your medications at one time . I have notice with taking all mg medications at once will make my symptoms worse. Also steroids ( which steroids are good for your mg symptoms and which ones are not) prednisone I have serve complications. I never got better . So what I started doing is recognizing my symptoms and figuring out what works for me . I use to take 13 pills a day . When I was in remission 0 now I’m up to 4 pills a day .

@mgathlete1431

4 жыл бұрын

Thanks for the comment Jessica. I hope you get back to remission soon!

@marlondemarco

3 жыл бұрын

Hi. I was diagnosed with Ocular Myasthenia Gravis in July. I was put on Mestinon and my diplopia went away instantly. However I still have ptosis in one eye. My neurologist suggested I’d have to experiment with my dosage to see what my stomach would tolerate and what dosage would reverse the ptosis. He stated normally there’s a magic dosage. Noticing that you once were taking 13 pills a day can you expand on your dosages. I’ve seen some people take 120mg up to 6 times a day.

@artisanwest9730

8 ай бұрын

I was given Medrol and it had no effect. I do use one 10mg prednisone daily + Pryido.

I am from Bangladesh saying brother help me I have been suffering from this disease for 1 year but did not do well. I am 18 years old Thymes Normal Anti Body Negative Please tell what to do as a groom's brother

@mgathlete1431

4 жыл бұрын

Can't say what you should do. I just keep learning and adjusting. Lowering stress in terms of foods, lifestyle and environment

It's been 3 years.. I'm suffering from MG.. it's very hard to live with this disease 😑 PLEASE.. GIVE ME SOME TIPS🙏

@mgathlete1431

4 жыл бұрын

Hey Ravi, yeah it can be very hard. It's tough to give general tips, but I looked outsides medication to improve my health by improving mentally, learning about nutrition and then lifestyle. Its takes time, I try to cut stress out, eat quality food and then took time off work and found a better job. I will post more videos about each aspect to explain the details of what I did in context. Goodluck man

@susandavis6841

4 жыл бұрын

MGAththlete touches on this in his video: You need to learn to be able to read your body. I have had MG for 11 1/2 years. When I am getting near an exacerbation, my speech starts to slur, I start feeling a little out of breath even while seated, it will then progress to a dragging of a limb while walking. I have learned to rest as soon as I start feeling that numbing sensation in my mouth. Rest means rest.., not necessarily sleep, but a period of doing nothing. Your muscles need that to recover before the symptoms worsen. Listen to your body, Adhere to what it is saying, and then you will have met half of the battle.

@antonysunil8874

4 жыл бұрын

You take Gravitor sr tablet and gravitor,doubt call 8939535548

@Ravi_Kumar19

4 жыл бұрын

@@antonysunil8874 yes..i take gravitor, mmf and wysolone

@antonysunil8874

4 жыл бұрын

You go to MUTHU NEURO CENTRE,sugankadai,kanyakumari district

Why my voice affected? I can't talk.

@mgathlete1431

4 жыл бұрын

Unfortunately that's 1 of the symptoms. I struggled with chewing and talking too. The jaw muscles get tired easily. Try rest and eat easier to chew foods

@sjm2726

3 жыл бұрын

My swallowing difficulties then a weak voice were my primary symptoms before diagnosis alongside pain in the sternum. I beginning to think that these symptoms were stress related. Thankfully my GP realised I was going down hill rapidly and stepped in. Now I’m starting my journey of finding my new normal. Whatever that maybe. Remission is just a dream that I keep clinging on to.

Sir im from Bangladesh my problam mg but only problam just eyes problam and double... 1 year runig medicin but no inbrove plz halp me

@mgathlete1431

4 жыл бұрын

Work with a doctor. I then looked into my diet and lifestyle and tried to remove as much stress as possible. I limit process foods, mainly trying to avoid vegetable oils and eat the best quality foods I can afford. I takes time, but it gets better

@hshanif3079

4 жыл бұрын

Please tell what medicine you are consuming and what food you eat

@mgathlete1431

4 жыл бұрын

@@hshanif3079 I don't use medicine anymore. I eat meat, eggs, dairy. Saturated fats (butter and coconut oil). fruits, honey, orange juice and well cooked vegetables. coffee. Mainly trying to avoid polyunsaturated fats in my diet and foods that are difficult to digest too (which can be raw foods, salads, nuts and seed, grains not properly prepared). It's going to be different for different people and depending on what foods are available and what one can afford to get

@antonysunil8874

4 жыл бұрын

What tablut you take?please take Gravitor SR

@hshanif3079

4 жыл бұрын

@@antonysunil8874 pyrodosticmine 60 mg..

I have had ptosis in one eye for 2 1/2 - 3 years. It’s not super super severe. I don’t appear to have any other symptoms. I do not have health insurance and can not afford testing. How long after I noticed the dropping eyelid would I have gotten the general symptoms? I am hoping if it is MG it is only in my eyes and doesn’t progress. What do you think??

@mgathlete1431

4 жыл бұрын

That's difficult to say. Everyone's unique in there symptoms and whether they will progress or not. I would agree that one doesnt want it to progress as the eyes are bad enough, body weakness is debilitating! It seems like you have had it in your eye for a long time and may not progress. mine progressed after 6 months

@thedavephan

4 жыл бұрын

MGAthlete thanks for the reply. Also I want to mention that my eyelid dropping is only on one eye and only very little. Most people cannot tell until I show them and they compare them.

@leg_megro185

3 жыл бұрын

@@mgathlete1431 Hi Ross this is Vivaan I have seen all.ur videos My mother has MG all over from her facial muscles to the stomach muscles It's very upsetting to see her struggle She is only 40 . I am 15 yrs old I am terrified I wanted few answers please help . Please let me know what kind of treatment did u take..IVIG ?plasma ? Food she s on a plant based vegan diet But seeing you I have hope please guide Me I am from India and trust me the Neurologist here are Crap.

When you get double vision ,sit down ,cover one eye ,you will now not see double vision, ,do the same with the other eye ,cover the other , I noticed it would then stop double vision when you do , think of the best ,you have to wife's , lol. ❤️ It helps me.

I have myasthenia gravis 10 years...

@mgathlete1431

4 жыл бұрын

I hope things have improved for you!

@behonest1463

3 жыл бұрын

Im an MG parient for 3 years.now on pyridosrigmine

@venkataramana3631

3 жыл бұрын

@@behonest1463 are you use only pyridostigmine.. How many pills per day?

@behonest1463

3 жыл бұрын

@@venkataramana3631 4 pills / day 60 mg

@venkataramana3631

3 жыл бұрын

@@behonest1463 same i use 4 pills and 8mg mendrol,azoran 50mg per day

Gone wrong .. My last question would be a problem with smoking cigarettes .. and did you consume the medicine first .. and please tell how long your problem was

@mgathlete1431

4 жыл бұрын

Hs Hanif I don’t think smoking is healthy. I took medication for a year and a half. I had symptoms for a few years

@hshanif3079

4 жыл бұрын

@@mgathlete1431 Brother Don't mind Don't be angry I'm having a very bad time You say 1 year 6 months Have you used any medications ... Brother

I m ocular MG patient from age 3 and now I am 20 years old I can not even move my eyeballs 😭 plz help me

@mgathlete1431

3 жыл бұрын

It's tough sometimes, but long term I think its possible to improve if one changes certain dietary and lifestyle factors to remove stress