My journey with Myasthenia Gravis

Two weeks ago I was diagnosed with #myastheniagravis and this is my story.
The videos I’ve watched had been very helpful to me, to learn about myasthenia gravis and not to feel alone in this new journey. I hope this video helps you to learn about it too.
We CAN do this!
(Sorry for slurring some words, I had to stop and rest a few times)

Пікірлер: 14

  • @johnnguyen2782
    @johnnguyen278221 күн бұрын

    Thank you for your presentation

  • @cherylcarlson3315
    @cherylcarlson3315Ай бұрын

    So glad you had antibodies show so you didn't get to falling. I am triple sero negative but strong mestinon responder. Took5 yrs of falls, blurred vision, failing breathing, complete exhaustion before i demanded trial of mestinon. Being in US no job security or time off for ilness. Am only about 30%better now but was so bad thought I would die at night even with bipap and oxygen. Keep educating people

  • @germainealexis2748
    @germainealexis27482 ай бұрын

    Thanks for Sharing your journey .

  • @starcorpvncj
    @starcorpvncj6 күн бұрын

    You need to have steriods and chemo tabs to take over because thecsteriod regine is very tough on your system. You initially need to have 4 x I hour plasma blood transfusions so your excess anti bodies can be removed and your treatment can start from a fresh slate.

  • @vladislavfeldman6562
    @vladislavfeldman65623 ай бұрын

    Hope it works out for you, the most important are the first seven years. If you don't have a crisis during that time, I heard that's a positive. myself now in 6th year of MG.

  • @rachael1801
    @rachael1801 Жыл бұрын

    Love you Pedro. You’re so inspiring. ❤️

  • @user-mn1nt5tl1z
    @user-mn1nt5tl1z10 ай бұрын

    This is a well thought out, detailed and clear video. Thank you so very much.

  • @jamestammy
    @jamestammy Жыл бұрын

    Thanks for your story. I was diagnosed with MG after 6 years of doctors trying to figure it out.

  • @pdrohrtdo9756

    @pdrohrtdo9756

    Жыл бұрын

    I can't even imagine how hard it was waiting for 6 years without any answers, I hope you are so much better now. Thank you for sharing you too

  • @richarddivia2831
    @richarddivia2831 Жыл бұрын

    ❤️ you Pedro; keep getting better.

  • @live1030
    @live10304 ай бұрын

    This was helpful. I hope you have found improvement.

  • @upgradeaerialphotos
    @upgradeaerialphotos2 ай бұрын

    Thanks for sharing this! I have had a very similar story, so this really helped me. Unrelated, where did you get that great lego rainbow figure behind you?

  • @gunjangunjanpant
    @gunjangunjanpant10 ай бұрын

    Thank u dear for ur story... I was diagnosed mg in three months...i got problem in dec and in March i was diagnosed with mg