My journey with Myasthenia Gravis
Two weeks ago I was diagnosed with #myastheniagravis and this is my story.
The videos I’ve watched had been very helpful to me, to learn about myasthenia gravis and not to feel alone in this new journey. I hope this video helps you to learn about it too.
We CAN do this!
(Sorry for slurring some words, I had to stop and rest a few times)
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Thank you for your presentation
So glad you had antibodies show so you didn't get to falling. I am triple sero negative but strong mestinon responder. Took5 yrs of falls, blurred vision, failing breathing, complete exhaustion before i demanded trial of mestinon. Being in US no job security or time off for ilness. Am only about 30%better now but was so bad thought I would die at night even with bipap and oxygen. Keep educating people
Thanks for Sharing your journey .
You need to have steriods and chemo tabs to take over because thecsteriod regine is very tough on your system. You initially need to have 4 x I hour plasma blood transfusions so your excess anti bodies can be removed and your treatment can start from a fresh slate.
Hope it works out for you, the most important are the first seven years. If you don't have a crisis during that time, I heard that's a positive. myself now in 6th year of MG.
Love you Pedro. You’re so inspiring. ❤️
This is a well thought out, detailed and clear video. Thank you so very much.
Thanks for your story. I was diagnosed with MG after 6 years of doctors trying to figure it out.
@pdrohrtdo9756
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I can't even imagine how hard it was waiting for 6 years without any answers, I hope you are so much better now. Thank you for sharing you too
❤️ you Pedro; keep getting better.
This was helpful. I hope you have found improvement.
Thanks for sharing this! I have had a very similar story, so this really helped me. Unrelated, where did you get that great lego rainbow figure behind you?
Thank u dear for ur story... I was diagnosed mg in three months...i got problem in dec and in March i was diagnosed with mg