Thank you. I had the best neurologist dr Levin in Mesa AZ. I was a textbook when I went to see him. I had double vison, couldn’t talk, eat,. I had IVIG and later Solris infusions, and right now I’m doing great. Thank you Dr Severstein

@centerforcomplexneurology

3 ай бұрын

Happy to hear you are doing well!!

Thank you for such a complete and easy to understand coverage of MG. I was diagnosed in my 20s, but probably had it before then (looking back). The diagnosis was 35+ years ago and because I was seronegative, my neurologists have been hesitant to do much more than pyridostigmine or neostigmine. The main question is always: do we treat for antibodies? Then, 20 years ago I developed CRPS. It's difficult to find anyone who will treat both, but I was successful, at least temporarily. After this very brave and knowledgeable anesthesiologist as a Pain Management doctor, and CRPS pioneer, she retired leaving me to retired life that has been tortuous. The new Pain Dr. refuses to go very far to treat pain, so the stress from the pain triggers MG symptoms. That means the Pain Dr wants to push me over to my neurologist who has not been treating CRPS. Your discussion will be useful in bringing the specialists together. Thank you again for making things so clear and accessible.

@centerforcomplexneurology

10 күн бұрын

You're welcome. Sorry to hear you've had to go through all that.

I am new on this site and only diagnosed one year ago. Thank you

Thank you for this extensive, yet understandable explanation of the varying treatments for MG. It’s the most complete and clear summation I have encountered. Frustrating to discover that I could have had a thymectomy 40 years ago, yet it was never seriously presented to me or discussed by my neurologists (at a major teaching hospital) at a time in my life when if would have been optimal. I especially appreciate your comparisons of the various modalities and their associated side effects and treatment timelines. Kudos as well for the embedded captions - so much better than trying to follow a transcript created with inaccurate speech recognition programs.

@centerforcomplexneurology

7 ай бұрын

You're welcome. We are glad you found it helpful.

@serinodiaz4140

6 ай бұрын

It seems to be a trial and guess game. How much does all this cost the patient s?

Great video on MG. Thank you so much sir for your very clear explanation about Myasthenia Gravis.

@centerforcomplexneurology

3 ай бұрын

You're welcome.

Great talk Dr.

Wonderful explanation. Thank you.

@centerforcomplexneurology

3 ай бұрын

you're welcome

Very little study on the MG Neuropsychological symptoms. It's true.

This is so very helpful!! Thank You!!!

@centerforcomplexneurology

10 ай бұрын

You're welcome!

Thank you.

@centerforcomplexneurology

7 ай бұрын

You're welcome

excellent video, thank youi

@centerforcomplexneurology

3 ай бұрын

you're welcome

Would love it when blurry vision and eye jitter are recognized by MD.commonly mentioned in support group but never by MD. Also only heard from my MD that mestinon is used in 'lots of NMD ' so being triple sero neg and being strong responder to mestinon means nothing. I still would love to regain more of lost function but with evidence based only treatment and being sero neg I am doomed to spend the rest of my life at 25% what I used to be grateful to have even the little SSDI gives.

Hi is there a support site in uk

thank you for making this video. but i am confused on one thing. And i have not got any direct answer to this. i had thymoma cancer. it was removed. 2 years later. i got MG. so the theory on the thymas gland being removed and 70% less to get issues. Seems im one of a kind on this.

More then a month ago. I have been diagnosed with MG.

@centerforcomplexneurology

5 ай бұрын

❤‍🩹❤‍🩹❤‍🩹

Does that top part say EDs & PoTS? I have those too. 😬

@centerforcomplexneurology

3 ай бұрын

Yes, it does

Lupus and Sjorens and Fibromyalgia and MGD and Myasthenia Gravis ❤ pray for me

I have double vision for about a year now with no other symptoms of MG. My doctor has prescribed 'Gravitor' 60mg thrice daily. No change in my status... is it normal. How

@centerforcomplexneurology

10 күн бұрын

Sorry to hear you're going through that. Unfortunately, without seeing you in our office, we wouldn't be able to tell you.

My brother was diagnosed with this and it's getting bad!! The health care system for neurological can't get him till u don't know when!! Its bad he can't even swallow!! I'm saying it's bad!! We need help!!

@reneegardner1742

8 ай бұрын

Go to ER

@yfa6244

6 ай бұрын

@@reneegardner1742 Right on to that advice!