Would appreciate part 3, its been a few years but still interested in the results! Thanks.

Every video I spend 50-70% of my attention on your hair. It’s SO beautiful. The color and style is so perfect in every video. I just love it!

I'm 41 years old and have MS don't know why I ever got it TOTALLY no reason 4 me to have it biggest thing is Cronic Fatigue getting tired from doing nothing

@adamslilith-art

Жыл бұрын

well that's the thing... for none of us there's a obvious reason for why we got MS...

@frankgradus9474

Жыл бұрын

@@adamslilith-art Dead right. Btw, each and every person doing great despite having MS is a ray of hope/​light​/​comfort to me. All the best to you!

Thank you so much just got diagnosed with MS. Holding on to God bless you! Looking forward to part three.

Thank you for sharing your story. God bless you beautiful lady.

Where is Part 3? I am eager to hear the rest of the story!

@KATNYC_718

5 жыл бұрын

Rgordon...here I found it kzread.info/dash/bejne/p3uum9adqMzagNI.html

Hi there. Thank you for sharing your journey. I too, am a second generation MSer. This is the least nonthreatening label I have, for the condition that has befallen us. My Mom had it too, and my MS didn't look like anything like hers. I would just like to add to viewers that may be dealing with this condition, OR think their having similar symptoms, (1) if you have only visited your general practitioner and they are trying to diagnose and deal with your issues themselves instead of referring you to a specialist, GO TO A NEW GP. Sometimes, doctors won't confer with anyone else and you need a second set of eyes to diagnose your problems. (2) when you do see a specialist or are waiting for your next appointment with the new doctor, REMEMBER TO ASK or write down this question, what should I do if my symptoms start to escalate? What if you're not available, what do I do? Do I run to the ER? What do you want me to tell them? PLEASE Give me a printout summary of this office visit, and what Plan Of Action I need to follow if my body begins to "misbehave" and the numbness or spasticity affects me in a new area, escalating to a point where I know something is Terribly Wrong? That happened to me while I waited for my 1st appointment to see an MS neurologist. My visit to the ER generated a diagnosis of MS based on my family history and the MRI of my brain. I had no idea after I left the hospital and finished my steroid treatment for the week, I would be dealing with an escalation of symptoms almost two weeks later. My GP was away for a month and the new neuro couldn't see me any sooner because I was a "new patient." I had to make an appointment with another GP that made the rounds during my stay at the hospital. But another GP called me and understood I had been admitted to the ER for MS. He said he would give me a new prescription for steroids to get my nervous system to calm down, but I still had to come in and visit the office asap for a follow-up with the any available GP on staff. That helped for a bit. But the symptoms were hovering and I couldn't wait for my first neuro visit to come about sooner. I felt like I was flying solo in a strange body. I hope this video helps others. Best of luck to you and others who are dealing with MS or some other undiagnosed condition.

Hope your well. Can’t wait for part 3.

Not bored at all. I need to hear more. I had no lesions on my first brain MRI and its hard to see a neurologist. I cant find lots of stories like mine and yours that starts with a mystery like that. Thank you so much.

@adamslilith-art

Жыл бұрын

hey, how did everything work out for you if I may ask??

I just started my journey with MS and feel your pain.

Hope your ok! Would love to hear part 3

I love your story stay strong beautiful :) I am with you cause I have it as well which I will make a video on my story :) much love I def understand a lot :))

Hi! Do you have any changes in taste since your diagnosis? I have a metallic taste in my mouth for a large portion of the time. I haven't been diagnosed with MS, however, I see many of the classic symptoms in myself.

Hi Clumzygirl, now that about 6 years passed I hope you can tell us about you and you're ms. Really curious looking forward to something new - the 3 part maybe

Goodness you went through heck!.

That is the first time I have heard the jumping ahead thing discribed! I get this all the time. Sat in the car when it is stationary and it feels like you are still going forward. Really strange feeling.

@Sinclair80

4 жыл бұрын

It is interesting. I had a few issues where I was standing still and the floor felt like it was removed from under me at speed. Also, I would be in my car stationary and I felt like I was rolling back. I havent had this in a while but it was very scary at the time.

@dee4174

4 жыл бұрын

@@Sinclair80 interesting symptom. X

Just wondering how you are in your MS journey. I was diagnosed in 2014 as well. Hope you are well!

I would love to see more videos including makeup ones. Hope you're doing ok!

who is your neurologist? I live in North Carolina. I need a good one to go to.

hope your ok

Have you both been tested for Lyme and co-infections? There’s a movie on amazon called under our skin, there are studies that Lyme could be sexually transmitted, also they say that for the past 5 years not one single person that died bc of MS and had an autopsy, this person was positive for Lyme or co-infections. Since your husband was diagnosed with fibromyalgia, it could be Lyme. You need to find a LLMD and get tested for Lyme, and if comes back negative you still need to get antibiotics and get tested again 2 months later. I was first diagnosed with MS and ended up it was Lyme. It is pretty much the same symptoms and the mri kind of looks the same. That’s what happened to me. May God bless you!

@language8352

Жыл бұрын

What were your symptoms??

That sucks!!! My ms is horrible i have flare ups that have not went away in years im scared all the time.

I have several symptoms of MS... Lost vision in top 35% of my left eye... weak legs for last 4 months, tingling legs, muscle spasms when I stretch... fatigue....etc. MRI came back clean... I was shocked. Next stop Neurologist

@maracaszel

7 жыл бұрын

Hi what was your result?

@Jessica-iq6kj

Жыл бұрын

Any update?

@synthartist69

Жыл бұрын

@@Jessica-iq6kj thanks 4 asking. I'm clear. They discovered that I had a mini stroke do to sleep apnea. Permanently damaged optical nerve left eye..loss of some periphial vision. Weakness in legs improved.

@Jessica-iq6kj

Жыл бұрын

@@synthartist69 I'm glad it's not ms. So sorry to hear about the mini stroke though. I had no idea sleep apnea could cause that? Although, I've heard how dangerous sleep apnea can be. My cousin has that.

Listened to your video..I have MS also. How are you doing now in 2022

Ur husband is so lucky. Ur wonderful

part 3????

Part 3????

Where in South Carolina are you? Please feel free to IM me on Facebook- Candice Bouknight RN- I am trying to get a diagnosis of MS; I have seen multiple doctors, 3 of my docs say MS but I need a neurologist to diagnose. I did not care for the first neurologist bc he too was impersonal; I think he just brushed me off. I have had a lesion on my brainstem for three years and now having crazy symptoms that are progressively getting worse. Every day it's something! And I feel like I'm going crazy. Thank you for your vlog; it is so helpful. You are just a sweety pie! Hope you feel good every day!

my mri showed up clean. Would i still have ms?

@joantraywick5599

4 жыл бұрын

I’ve seen several videos where there First MRIs were clear. So possibly?

How you doing?

How are you?

It's amazing the difference a good doctor makes isn't it. There are so many shite ones out there..

try PYCNOGENOL

You dont have MS! Please contact me! Jesus Walks

@KJ-lb4tj

Жыл бұрын

What the hell??? You cannot know what someone does or does not have and this person is not Jesus.