Hey 👋🏽 Welcome to the MS journey. I’m currently on Plegridy. It’s an interferon beta subcutaneous injection that you take every 14 days. So far my only side effect is a headache and that’s only if I don’t hydrate the day of and day after my injection. It’s also an immunomodulator and not an immunosuppressant. I hope all goes well with your Ocrevus infusion. I understand that this process is completely scary, but just do the best you can. There are some neurologists on KZread that are great, they are Dr Aaron Boster and Dr Brandon Beaber (I hope I spelled his name right). MS can be very lonely, but spaces like this truly help. Take care and stay safe, and thanks for the video.

@m.sletstalk8500

3 жыл бұрын

Hey Jennifer!! Thank you so much for commenting and sharing! And you're right it really can be so lonely and scary and that's why I wanted to create this channel to connect with people so we aren't alone in this. It made my day hearing from you. :) I am hoping for the best starting Ocrevus next week, going in with a positive attitude and snacks haha since it'll take a while. They said they will also be giving me a benadryl Tylenol steroid mix to help with any infusion site issues. A lot of people have said it makes them sleeping so maybe I can nap through it. And hydrating is a great tip!! I went to give blood for labs the other day and I forgot how much harder even that can be if you aren't hydrated. I hope you are having a great day, thank you again for reaching out.

@lifewithjenniferb

3 жыл бұрын

@@m.sletstalk8500 For sure. You’ve got this!!

@m.sletstalk8500

3 жыл бұрын

Jennifer Hoskins you too!!! Stay strong ❤️

@naparish2

4 ай бұрын

You've got this. One word of caution. If you always "pretend" you're ok when you're not, you may not be taken seriously when symptoms can't be hidden anymore. However, I totally understand! I pretended to be fine for my family for 10 years. Only my husband knew how tired I was and how an activity can drain me dry. Best of luck to you! Your attitude is great!!! We got this!

I'm 68 and recently diagnosed. It will be 1yr this dec 2023 I hate it, I can't accept it. Heading to an electric wheelchair. I knew something was wrong and in 2020 I refused to investigate cause it was too crazy in healthcare. Ryt leg was not functioning. Using cane. Then in 2022 saw neuro., MRI'S Brain, cervical, thoracic have the most in my thoracic. On DMT Baclofen, LDN, Ampyra, Kesimpta for 8 mos. I got worse still not doing as well. All in my legs. I want to walk so bad.

@shawnmcanthony5724

4 ай бұрын

Daily squats help to improve walking

@jewelleryaddict

4 ай бұрын

If u can't walk u can't do squats. Walk before u run is the old slogan walk before squats is the second.​@@shawnmcanthony5724

Thank you Ashley for sharing ! So proud of you !! ❤️❤️❤️

I was diagnosed July 23rd 2023 so I'm new to all this MS stuff. Come to find out through my MRI that apparently I've had MS for the last 7 years. My neurologist recommended Ocrevus right away so I started that in October and I go for my second infusion in April. My life has completely changed since being diagnosed. It's tough but I'm still walking even if I can't cook anymore... Hopefully that changes

@m.sletstalk8500

4 ай бұрын

Hi Olivia, isn’t so wild being told you’ve had it for so long and no one knew! It sounds like you have a good team working with you to help you which is awesome. The first year was the hardest. My life definitely changed in almost every aspect but I was so hell bent on getting myself back that’s all I could focus on. I hope the treatment is helping you! You sound strong which is so hard to stay that way sometimes with this disease but we have to. I myself had a bit of a break down this morning about wanting to make sure I accomplish everything I want to do while I’m still young enough, just in case this body of mine gives out. I have never admitted that out loud and it brought me to tears this morning. But now I am getting my butt off the couch and going to work out and keep my head on straight. Can’t let this beat me! lol

Thank you so much for this video. I’m undiagnosed but I have an uncle and a great uncle that have MS and I’m concerned due to tingling/numbness in my feet. Can’t thank you enough for sharing about being afraid of what your now husband would think. I can’t even get myself to date because I’m 29 and feel like I’m broken. I cried listening to that, happy tears. You gave me hope I can’t thank you enough. I used to live in Melbourne and Fort Myers I miss Florida so much. I hope you’re well❤️

Appreciate you being so open and sharing your story❤ My mom was Type A (as I am) and it was devastating to her when she began to deal with MS. You aren’t alone. I’ve often wondered if “she brought it on herself” too as you said. And I worry I will too. Love your honestly when you met your eventual hubby- glad you have a wonderful support system. Thanks again for sharing and explaining. Sounds like a blessing you were so close to the Mayo Clinic to get diagnosed in such a short time from that major debilitating episode!! There is no shame in taking meds- they may add quality and quantity of life if they slow the disease down. My mother wasn’t listened too and believed enough to get that option. By the time we realized what it was, she was already becoming disabled by it. Stay positive! Mind over matter❤

I was just diagnosed with Ms. on October 8th, 2023. a couple of days before this, I was at work and felt drunk while walking down the hall the night I went to the emergency room I drove home a 20 min drive at the most took me 60 mins pulled Into the driveway parked my car opened my door to climb out and fell got up with my husband's help and fell again down the stairs he looked at me and said I needed to go in and I agreed thinking I had a stroke

@m.sletstalk8500

5 ай бұрын

That is so scary!! I remember that feeling when mine first really showed itself also. I was using sea sickness medicine thinking maybe I have vertigo and felt like I was drunk walking on a boat!

I just saw this Ash… sending good vibes and lots of love to one of the strongest women I know!! I remember your little salon and how hard you worked to get to the new one… im moving from OP to SS so hope to come back and support your business 😊😘love ya!!

God bless you girl! You have the same attitude that I have a had through this whole MS experience. I just had my 1st full dose infusion last week. I did get hives during the process but they gave me Benadryl and took care of it and was able to complete the infusion. I am on day 5 after the infusion and just a little fatigued. You will do great, keep your great attitude you will do find. I on my 20th year with MS and still walking and living a great life!

@m.sletstalk8500

3 жыл бұрын

Hey Danny!! Thank you so much for reaching out! yesterday was my first half dose, next is on the 18th. I have so much energy and feel so positive today. I just did another video talking about the whole thing. Its so nice to hear from other people going through it too and that you are doing well. Its quit the journey that's for sure!! But the mindset for me is where its all at too :)

@dannycruz1219

3 жыл бұрын

@@m.sletstalk8500 Glad it went well for you! Must say it was a little scary the 1st time, but now its just an inconvenience.

@m.sletstalk8500

3 жыл бұрын

@@dannycruz1219 I was terrified to be honest, but yes going forward quite an all day affair lol

@dannycruz1219

3 жыл бұрын

@@m.sletstalk8500 Got a question for you. I live in Fl also ( Lakeland) i know most MS folks can not tolerate the heat very well especially here in Florida my question how do you handle the cold. Several people I have talk to you really don’t have a problem with the cold I do. I can tolerate the heat but not the cold? My legs stiffen up and i have a problem walking.

@m.sletstalk8500

3 жыл бұрын

Danny Cruz funny you say that. I tend to only flare up major during the season change when it gets cooler. I’m usually fine all summer and just stay mindful to not just lay in the sun all day. But I do seem to do better all summer and as soon at it gets cold I end up calling the drs

Yeah Soooper Ashley, Brilliant, just found you now. I am in ur boat. I do my best, to keep going, No one else is gonna live my life, as I want to. I have not gone the med, s route yet, But I know Its time for me. Never worry about, what others think, We didn't ask for this horrible Beast of a disease. It's bloody horrible. You come across as a very happy and confident, woman. Also soooo beautiful, I wish you the very best, Keep up the good work. I first noticed ur Irish name, Kennedy. No mistaking it. Sending you, and ur family, lots of Love, Evelyn, in Dublin, Ireland. Some Irish Luck. On its way to you. ❤❤🍀🍀🍀🇮🇪💚

Great video, thank you. Ocrevus is one of the best medications for MS. I got my first dose back in November, no side effects at all. Keep that good energy, think positive, it is incredible helpful to deal with this disease. Good luck.

@m.sletstalk8500

3 жыл бұрын

Ana Cortes thank you! Just after my first half dose I couldn’t believe how much better I feel! I’m keep saying to the girls at work I feel like I’m 25 again haha ! I’m back in here today for my 2nd half and excited this time, no tears ❤️ it’s so nice to hear you’re doing well on it as well 🤗

What is the role of CCSVI Venous Hypertension and proper/improved Cerebrospinal Blood flow?? #CCSVI #BloodFlowMatters CCSVI is definitely one of the causes of MS. The novelty for some years is that we are certain that, after studying at the La Sapienza University of Rome, there are 3 types of CCSVI: * a 1 type with patients suffering from an obstacle to the endovacular venous discharge, i.e. due to congenital or acquired anomalies that restrict and block the drainage of the investigated veins (jugular, vertebral, azygos) * a 2nd type with patients suffering from an extra-vascular venous obstruction, i.e. due to external compression of the vessel * a 3 type with patients suffering from endo-vacular and extra-vascular venous obstruction So to simplify we can say that there is a CCSVI of the "hydraulic" type (1 type), a CCSVI of the "mechanical" type (2 type) and a "mixed" CCSVI of the two previous types (3 type), the 2 and the 3 type represent about 85% of cases. A patient with type 1 CCSVI will have a greater indication for angioplasty treatment, a patient with type 2 CCSVI will have a specific indication for specific physiotherapy decompressive treatment (RIMA Method), a patient with type 3 CCSVI it will have an indication for both an endo-vascular dilatation treatment and an extra-vascular decompression treatment. The RIMA Method devised by Dr. Domenico Ricci of Bari is able to release compressed veins throughout their course, as shown by a publication of June 2015 after a one-year study (Internal jugular Venous Compressione Syndrome: hemodynamic outcomes after cervical vertebral decompression manipulations-Pubmed). For information: Dr. Domenico Ricci cell.3393828399 MRI IN MS VASCULAR PATHOLOGY www.dropbox.com/s/m0yvgmufgfcys1v/MRI%20IN%20MS%20-%20VASCULAR%20PATHOLOGY%20.pdf?dl=0 This quantification of the disease pathology will help! #CCSVI Venous Hypertension >microbleedings >iron >inflammation >free radicals >neurodegeneration #multiplesclerosis M.S. - Mystery Solved Mysterious Autoimmunity = CCSVI Neurodegeneration M.S. - Mystery Solved Mysterious Autoimmunity = CCSVI Neurodegeneration Keep in mind! Also venous hypertension ➡️ impaired CSF absorption ➡️ reduced G Lymphatic drainage ➡️ interstitial peptides accumulation ➡️ NEURO INFLAMMATION #CCSVI Eliminating cause of the Symptoms of so called Multiple Sclerosis will End MS. Apparently it is unquantifiable the length of time Symptom$ can be treated! If you hadn't noticed Who Knew?? #BloodFlowMatters What is the role of proper/improved Blood flow? #CCSVI Apparently #BloodFlowMatters Stroke common occurrence in Individuals diagnosed with Diabetes, unproven autoimmune THEORY so called MS Supplying Oxygen and Nutrients to Cell in a Body. Blood Circulation through and including activity/exercise. Building Blocks of life, having made yourself what you are functioning today! #CCSVI #Healthcare game changer when the cause The doctor of the future will give no medicine, but will interest his patient in the care of the human frame, in diet and in the cause and prevention of disease. -THOMAS EDISON Best possiblity easing/eliminating cause of SymptoMS! You can relate! If your veins are blocked they should be opened if you have SymptoMS or not! MRI IN MS VASCULAR PATHOLOGY www.dropbox.com/s/m0yvgmufgfcys1v/MRI%20IN%20MS%20-%20VASCULAR%20PATHOLOGY%20.pdf?dl=0 Who Knew?? #BloodFlowMatters What is the role of proper/improved Blood flow? #CCSVI Apparently #BloodFlowMatters Stroke is a common occurrence in Individuals diagnosed with Diabetes Neurovascular Disease Multiple Sclerosis is being referred 'slow Stroke'. What is the role of proper/improved Blood flow in both conditions as much CCSVI has been Scientifically confirmed a causative factor in Symptoms of so called MS! Supplying Oxygen and Nutrients to every Cell in a Body. Blood Circulation through and including activity/exercise. Building Blocks of life, having made yourself what you are functioning today! #CCSVI #Healthcare game changer when the cause of the Symptoms of Medical conditions are eliminated! The doctor of the future will give no medicine, but will interest his patient in the care of the human frame, in diet and in the cause and prevention of disease. -THOMAS EDISON Best possiblity easing/eliminating cause of SymptoMS! You can relate! If your veins are blocked they should be opened if you have SymptoMS or not! A Vascular problem led to the crippling nightmare of Multiple Sclerosis The real Multiple Sclerosis nightmare started at the point of NeuroDx The disaster of diagnosis being made by general physical observation over time,. Especially when Time is something you can’t afford #CCSVI Multiple Sclerosis is strong and you often need help. Make you be worthy of this help, don't stand in a corner complaining, do your part! 💪 #Symptoms often ease/DISAPPEAR Facilitate Collaboration Neurovascular Disease Research! #CCSVI FB Group: MSS facebook.com/groups/4939355…!

Oh no!!!! Are you doing ok? You haven’t been on this year?

I'm sorry Ash

Hi! What kind of medical marijuana do you use? Oil? Smoke? Does it help with pain?

Granted I only had like two doses but I loved ocrevus. I take public transportation and have a baby in daycare and didn’t get more sick I don’t think. Sadly I had to stop because I became neutrophic, which is super rare. I also didn’t sick ever before I got diagnosed. I even told my husband I was a pinnacle of health lol probably should have been my first sign since my immune system was too good.

How long did it take for numbness to go away I have numbness for 6 weeks now I am scared that it will never go away I have rrms also ❤

I can see that you're very self-motivated & hope that you will look at some of the carnivore videos. Mikhala Peterson has stopped her severe rheumatoid arthritis using diet.

Where have you been since 2020

I am on ocrevus also but with no bad side effects. Thank god.

@chrisc7670

Ай бұрын

Well good for you, let's all hope your PPMS is restricted from progression (which I believe is why it was created). It's great that your own personal attitude has changed already (I'm a big believer in positive mental attitudes to help any person through difficult times. Good luck in feeling so fortunate and the benefits of Ocrevous. Long may it continue. Chrissie x ..

Have you heard about the Wahls protocol. Look it up

@RobdeKlerk-qg6lc

5 ай бұрын

Money grabber that Walsh is....my suspicion

I Love you

I have JC virus and my levels went down.

Yes, lonely. I don't have family. I was an excellent nurse.

@BernardAsagai

5 ай бұрын

Love your videos, they are so true about multiple sclerosis. If you don't have it, you don't know.

@BernardAsagai

5 ай бұрын

I am an american, but I live in South America and it's so crazy. I may have to go back to get treatment because of the price here.

Anyway, consider my previous posts. I came down with me/cfs and am now mostly over it with the help of antivirals.

@Katie-vy5rd

6 ай бұрын

Are you in a big city to get this help/diagnosis?

Meditate and Diet. That’s all