Hi Cassandra, I just watched your first vlog and I can relate to your faith being built up. I was diagnosed in 2011, first by an ER dr. who said that it was the worst he ever saw. I can also relate to your lack of major symptoms. So much for that Dr. In the hospital I wrote down the words "MS is in control". then it came to me..."My Savior is in control". What a comfort! Thank you for your testimony

Doctors often lack empathy, you'll make a beautiful Mum. People with all kinds of challenges create families that are loving and functional. You will too xxxx

@cassandra5324

7 жыл бұрын

April Sunn thank you for saying that! you are very kind.

@daltonagronomo1652

4 жыл бұрын

Here in Brazil, the painless and cheap Coimbra Protocol cures MS, in more than 90% of the cases.

You have a very bright spirit.

Thank you so much for the video and thank you for mentioning your relationship with God too - I am also thinking this way although I’m still feeling very overwhelmed! ✨

Stay strong, my wife has MS, glad you are being vocal about this

only in the good ol USA can you work at a hospital and have to go to a free clinic

@cassandra5324

8 жыл бұрын

+jackchorn haha yes. It wasn't free. I had to pay out of pocket!!! And still got the wrong diagnosis.

@jackchorn

8 жыл бұрын

Cassandra I'm going through health issues- now after losing job and therefor insurance my only choice is a local free clinic- While I'm thankful its available, I'm slowly getting worse and have been waiting now 9 months to see a Neuro. I did have imaging on my neck a couple months ago and they found some lumps- just last week a doctor was able to look at me- he poked and jammed around my mouth while talking to the Nurse as if I wasn't there- I felt like a lab rat- he was out the door in about 60 seconds- I guess I can't ask for a second opinion-ha. I'm in dire need for help- I'm barely able to take care of myself and work the part time job I have- If I continue to decline at the rate I have been- I fear that a diagnosis and help will not be available before I'm on the street. As anyone with any dignity- it leaves only one real option. I use to earn well above average and work 50 hours a week- now I clean toilets and live on 11k a year- to much for Medicaid and too little for Obama care- what a shame I wasn't born in Canada.

@helenamaria710

7 жыл бұрын

Well as a Canadian, yes, we are better off, but STILL you have to wait a LONG time for everything and need a family doctor before you can meet anyone else to help you. Who he knows and connects you to is another issue and service is not as in France or Sweden. But yes, far better than in the US - ESPECIALLY with the guy in power there now who could care less about anything to do with poor people!

@ALEXFVHS

7 жыл бұрын

jackchorn 11 months later, how are you holding up?

@brookek2

7 жыл бұрын

only in the good ol USA do you have a choice of what type of insurance plan you can have, if you want one at all. and which hospitals you go to, which doctors you see. A single payer system would take away all choice. They would charge you a rate that they choose and provide a service that you have no say in and have no ability to change or choose another type of hospital, because it's all one comany, the government.

Thanks, Cassandra. I wish you a lot of light, love and health along this journey.

Great video! Wishing you the best! May God bless and keep you always.

2/20/17 Hi, I sympathize with you. I've had a lot of the symptoms you have described. I have not been formally diagnosed with MS. I have been diagnosed with autoimmune and have an appt. in March with the Neurologist. I have lived with this most of my life, at least since my teens, possibly 9 years old. It was my normal so I didn't know anything was wrong. As I got older I started having more numbness and pain in my hips, legs, and feet. I would mention it to my doctors and it was somewhat dismissed and they said that I could see a Neurologist. For one reason or another I never made it to the neurologist. At the time I didn't even know what MS was, or for that matter what autoimmunity was. Most people didn't. This was in the late 90's and early 2000's. I only discovered what I have when my symptoms and pain got so bad and regular I couldn't tolerate it. At that point I tried going to my doctor but was dismissed worse than I had ever been. Later I decide to make a list of symptoms which ended up being 2-3 pages long. My doctor glanced at it and offered me some pain meds and dismissed me once again. These are different doctors in different cities. This forced me to do my own research to figure out what is wrong with me and why. In the process I did learn a lot including why and how certain foods do make autoimmunity, including MS, worse. It won't heal it or take it away. However, I have discovered that by giving up gluten, dairy, grains, soy and all other legumes my symptoms are much better. The severe pain has subsided and so far the only thing that activates severe pain is the heat exposure; I think cold weather does to but don't have a lot of that since I live in FL. For me, and for most based on what my research has shown me, the worst food is gluten. I had to test this idea because I didn't want to give up gluten unless I really had to. After not eating gluten for some time and feeling better I decided to test it. I don't recall how long it took but I believe it was within hours or at most a day or two. I could feel something running through my body. It felt like a current but it was in my muscles. I soon realized it was my muscles contracting and becoming stiffer throughout my body. Within days I was having spasms, stiffness, and Charlie horses again. The worst is the muscle spasm I get in my neck, shoulder and back. It is extremely painful. I also know from past experience that if I would have continued to eat gluten I would have started having excruciating all over body pain again. The only thing that has caused this severe pain with spasticity again is exposure to the sun; I had no idea. After some more research I learned how heat can exacerbate symptoms. I remember always feeling worse after a hot bath but always assumed it must be the chemicals such as the chlorine in the water. I now realize it's the heat that is making me feel worse. I still deal with brain fog, varying blurry vision, rapid eye movement, insomnia, bad headaches. I still get stabs, pins, needles, and numbness. Still have vertigo, dizziness, tremors, spasticity and many other symptoms I'm forgetting to mention as my brain fog takes over. My incontinence is completely gone with this diet. All the other symptoms are much milder and less often. I do have very loud tinnitus in my right ear I can't seem to get rid of no matter what I do. Unlike you, I did experience bladder issues, spasticity in the bladder. This caused urgency, incontinence, trouble emptying, frequency. All my bladder issues are gone since giving up gluten. I'm so glad you found Dr. Wahls and her Protocol. I don't follow it exactly but it does have good info and helps. I follow the 3rd one in her book, Wahls Paleo Plus. Gluten has been proven to cause issues. Look up molecular mimicry with gluten and autoimmunity. Not eating gluten ever again will prevent your symptoms from worsening and avoid many others. Make your gut healthy. Dairy and soy are two other ones that you should definitely give up. For me legumes, grains, and eggs are also problematic. Also, look up ThePaleoMom.com. She is amazing. Checkout The Autoimmune Summit with Dr. Amy Myers and the Betrayal Series with Dr. Tom O'Bryan. These are all great sources. My story is very long and complex. Perhaps one day I will share it. But I wanted to share some of it with you today. Your video helps and if I can help you in return or at least one other person then I am happy. Stay strong. Thanks for listening. I hope this info helps at least one person.

Dr. Wahls is the correct name of the doctor I mention who used food to reverse her symptoms.

Great video Cassandra! You are right, after hearing about your MS I read Dr. Wahls book and it has some great advice for staying healthy for everyone! Can't wait to see the next video :-)

@cassandra5324

8 жыл бұрын

+Debbie Russell Thanks lady. Your support means so much to me.

@cassandra5324

8 жыл бұрын

+Debbie Russell love you lady.

Hi Cassandra, I had a bout with Bell's Palsy about a year before I was diagnosed with MS. Being newly diagnosed is a tough time with the disease, especially with all the misinformation about MS from people who write a blog from their parents' basement, for example. I have had MS for 18 years and had been using a wheelchair for four years, but I have been able to walk since 2007. I always try to keep this in mind: Matthew 6:34.

@cassandra5324

8 жыл бұрын

+Vern Beachy yes I agree. I am blessed to have a future hubby who researches a lot for me and we've been tackling this thing together. 8 months in of knowing about MS, but it continues to get easier. God is faithful and it makes it less stressful.

So nice to hear your story. I too was diagnosed in August 2015. My symptoms had me thinking I might have had a mini stroke. Glad to see you're facing this challenge with a great attitude. Best wishes for better days.

@human-qp1mf

Жыл бұрын

Yep, they told me I had a stroke too.☹️ I'm not doing the tests. I had 2 MRIs, they should have figure it out They are doctors!!

This brought back a lot for me from my own diagnosis. I'm on Vumerity now. Been on quite a few different meds over the past eight years. Doesn't seem to help much, but I'm not letting this disease stop me! 🤟😎🤙

@martinmatko6401

4 ай бұрын

What is the role of CCSVI Venous Hypertension and proper/improved Cerebrospinal Blood flow?? #CCSVI #BloodFlowMatters CCSVI is definitely one of the causes of MS. The novelty for some years is that we are certain that, after studying at the La Sapienza University of Rome, there are 3 types of CCSVI: * a 1 type with patients suffering from an obstacle to the endovacular venous discharge, i.e. due to congenital or acquired anomalies that restrict and block the drainage of the investigated veins (jugular, vertebral, azygos) * a 2nd type with patients suffering from an extra-vascular venous obstruction, i.e. due to external compression of the vessel * a 3 type with patients suffering from endo-vacular and extra-vascular venous obstruction So to simplify we can say that there is a CCSVI of the "hydraulic" type (1 type), a CCSVI of the "mechanical" type (2 type) and a "mixed" CCSVI of the two previous types (3 type), the 2 and the 3 type represent about 85% of cases. A patient with type 1 CCSVI will have a greater indication for angioplasty treatment, a patient with type 2 CCSVI will have a specific indication for specific physiotherapy decompressive treatment (RIMA Method), a patient with type 3 CCSVI it will have an indication for both an endo-vascular dilatation treatment and an extra-vascular decompression treatment. The RIMA Method devised by Dr. Domenico Ricci of Bari is able to release compressed veins throughout their course, as shown by a publication of June 2015 after a one-year study (Internal jugular Venous Compressione Syndrome: hemodynamic outcomes after cervical vertebral decompression manipulations-Pubmed). For information: Dr. Domenico Ricci cell.3393828399 MRI IN MS VASCULAR PATHOLOGY www.dropbox.com/s/m0yvgmufgfcys1v/MRI%20IN%20MS%20-%20VASCULAR%20PATHOLOGY%20.pdf?dl=0 This quantification of the disease pathology will help! #CCSVI Venous Hypertension >microbleedings >iron >inflammation >free radicals >neurodegeneration #multiplesclerosis M.S. - Mystery Solved Mysterious Autoimmunity = CCSVI Neurodegeneration M.S. - Mystery Solved Mysterious Autoimmunity = CCSVI Neurodegeneration Keep in mind! Also venous hypertension ➡️ impaired CSF absorption ➡️ reduced G Lymphatic drainage ➡️ interstitial peptides accumulation ➡️ NEURO INFLAMMATION #CCSVI Eliminating cause of the Symptoms of so called Multiple Sclerosis will End MS. Apparently it is unquantifiable the length of time Symptom$ can be treated! If you hadn't noticed Who Knew?? #BloodFlowMatters What is the role of proper/improved Blood flow? #CCSVI Apparently #BloodFlowMatters Stroke common occurrence in Individuals diagnosed with Diabetes, unproven autoimmune THEORY so called MS Supplying Oxygen and Nutrients to Cell in a Body. Blood Circulation through and including activity/exercise. Building Blocks of life, having made yourself what you are functioning today! #CCSVI #Healthcare game changer when the cause The doctor of the future will give no medicine, but will interest his patient in the care of the human frame, in diet and in the cause and prevention of disease. -THOMAS EDISON Best possiblity easing/eliminating cause of SymptoMS! You can relate! If your veins are blocked they should be opened if you have SymptoMS or not! MRI IN MS VASCULAR PATHOLOGY www.dropbox.com/s/m0yvgmufgfcys1v/MRI%20IN%20MS%20-%20VASCULAR%20PATHOLOGY%20.pdf?dl=0 Who Knew?? #BloodFlowMatters What is the role of proper/improved Blood flow? #CCSVI Apparently #BloodFlowMatters Stroke is a common occurrence in Individuals diagnosed with Diabetes Neurovascular Disease Multiple Sclerosis is being referred 'slow Stroke'. What is the role of proper/improved Blood flow in both conditions as much CCSVI has been Scientifically confirmed a causative factor in Symptoms of so called MS! Supplying Oxygen and Nutrients to every Cell in a Body. Blood Circulation through and including activity/exercise. Building Blocks of life, having made yourself what you are functioning today! #CCSVI #Healthcare game changer when the cause of the Symptoms of Medical conditions are eliminated! The doctor of the future will give no medicine, but will interest his patient in the care of the human frame, in diet and in the cause and prevention of disease. -THOMAS EDISON Best possiblity easing/eliminating cause of SymptoMS! You can relate! If your veins are blocked they should be opened if you have SymptoMS or not! A Vascular problem led to the crippling nightmare of Multiple Sclerosis The real Multiple Sclerosis nightmare started at the point of NeuroDx The disaster of diagnosis being made by general physical observation over time,. Especially when Time is something you can’t afford #CCSVI Multiple Sclerosis is strong and you often need help. Make you be worthy of this help, don't stand in a corner complaining, do your part! 💪 #Symptoms often ease/DISAPPEAR Facilitate Collaboration Neurovascular Disease Research! #CCSVI FB Group: MSS facebook.com/groups/4939355…! - Silent Ischemia ( Myocardial Ischemia Without Angina ) .. 🫀📚🔍 --------------------------------------------------------------- # The medical definition of silent myocardial ischemia is verified myocardial ischemia without angina. Ischemia is a reduction of oxygen-rich blood supply to the heart muscle. Silent ischemia occurs when the heart temporarily doesn’t receive enough blood (and thus oxygen), but the person with the oxygen-deprivation doesn’t notice any effects. Silent ischemia is related to angina, which is a reduction of oxygen-rich blood in the heart that causes chest pain and other related symptoms ... # Most silent ischemia occurs when one or more coronary arteries are narrowed by plaque. It can also occur when the heart is forced to work harder than normal. People who have diabetes or who have had a heart attack are most likely to develop silent ischemia .. ---------------------------------------------- # Risk factors : - People who are at risk for heart disease and angina are also at risk for silent ischemia. Risk factors include : use 1- Diabetes 2- High blood cholesterol 3- High blood pressure 4- A family history of heart disease 5- Age (after age 45 for men and age 55 for women, risk increases) 6- A sedentary lifestyle 7- Obesity 8- Unmanaged stress -------------------------------------------- # To reduce your risk for silent ischemia, you should reduce your risk for heart disease in general. Here are some things you can do : 1- Stop using tobacco of all kinds - including chewing and smoking tobacco and inhaling significant secondhand smoke . 2- Prevent diabetes or manage it if you have it . 3- Prevent or manage high blood pressure . 4- Prevent or treat high blood cholesterol and triglyceride levels . 5- Exercise regularly (talk to your doctor about what type of exercise is right for you) . 6- If you’re overweight, lose weight; maintain a healthy weight . 7- Eat a heart-healthy diet . 8- Take steps to reduce stress in your life, and learn how to manage stress . 9- See your doctor regularly, have recommended heart screenings, and follow your doctor’s instructions . ------------------------------------------------------ By : Kareem Blinder Reference : www.beaumont.org/conditions/silent-ischemia --------------------------------------------------------------- #coachblinder #blinderpathology #anatomyandphysiology #diabetes #ischemia #سبحانك_لا_علم_لنا_الا_ما_علمتنا

@jjkehrley

4 ай бұрын

@@martinmatko6401 Thank you for this!

You are a true inspiration!

@cassandra5324

8 жыл бұрын

+Meg Gallert you are always inspiring me Meg!

Thanks for posting Cassandra. You are so energetic keep it going keep posting it helps. It is amazing You have had so many views and her story we have heard so common Keep rockclimbing so much fun. I was very active like yourself so enjoy.

@cassandra5324

7 жыл бұрын

Thank you Christine for your comment. I have also seen some of your videos. Thank you for sharing your story. Do you know what is going on with your body yet? Is it MS, or did they give you diagnosis?

This is an older video but I hope you are doing well. I also took copaxone after rebiff which made me feel terrible. Copaxone was fairly tolerable. I was on it for a few years until I accidentally injected into a vein in my stomach by mistake. I had a terrible reaction . I turned bright red. Nose bleed . I think kidney spasms. I laid down and thought I was going time die. I woke up 12 hours later thankfully as I was home alone. I suspect you are probably on a different med by now already. I hope so. I take ocrevus now with no side effects . I have had ms since at least 2001. I am lucky to have had a slow progression of my disease. Stay strong. You can deal with this shit if your stubborn. Best wishes from Mike in Connecticut

you've done great with this video. I had similar with the pulling pain up the side of the face followed by the eye twitching away and then diplopia... the diplopia has been a year now... getting prism glasses in 2 weeks which will make it as normalised as possible and allow me to drive (no valid insurance with diplopia). Glad you've been so proactive in managing your MS.

@cassandra5324

8 жыл бұрын

+Polly Samuel (aka "Donna Williams") Thank you Polly. I appreciate your kind words and I'm glad to hear you will get to drive soon. Life is definitely full of surprises and I'm currently trying to learn not to fear the unknown. I just recently posted a new video on my most recent MRI scans, if you are interested. I received a few new lesions on my spine. But will continue to fight for good health! I wish you the best of luck with your health and keep a positive attitude!!! :)

hello Cassandra thanks very much for sharing your story really interesting especially your thoughts on diet Good luck Terry

Hi, Cassadra I just wanted to saycThank You for making this video and sharing your story. I had dx with Bell's Palsy August of 2015 and 6 months later I was diagnosed with M.S.

@cassandra5324

8 жыл бұрын

+shana youngs I am sorry to hear you were diagnosed. But I bet it feels better knowing what is really going on with you. Good Luck with everything and please feel free to reach out for support. It is overwhelming at first, but as you do more research, you feel better prepared. Word of advice:....don't listen to the negative comments out there. People will be negative about MS, but if you have a fighting attitude, you'd be surprised how well you will do!

I loved your video. I was just diagnosed and it's very scary for me.

I think if you want a family you should have one. I have lupus that has done nothing but get worse. But this has not stopped me from being a good aunt and helping out with other people's kids. Also thank you for sharing your story. It's never easy to get a diagnosis like that.

Stay strong. I was diagnosed in ‘09.

Wow...your story is so similar to mine. Thanks for sharing your video! I was just diagnosed with RRMS about 6 months ago. I start on Copaxone (daily injections) tomorrow. I am nervous about it, but the Nurse from Shared Solutions is going to show me everything I need to learn. I too first saw a horrible Neurologist here in my city but then I switched to a awesome Neurologist in San Fransisco (UCSF) and it has made a huge difference. I wish you all the best!

@cassandra5324

8 жыл бұрын

How is Copaxone treating you? Thanks for reaching out. I'm sorry to hear of your diagnosis. However, it isn't a death notice, and life can still be wonderful. Attitude is key! During your rough days, make sure to rest and to surround yourself with those who make you happy. Good luck with everything. xxx

@lynnem.4501

8 жыл бұрын

Thanks for your reply. So far Copaxone has been working well for me. I do have some injection site reactions but nothing major. I am going to try to switch to the 3x week shot, but I read it can sting more and cause more injection site reactions. I agree that attitude is a huge part in our well being. I do have a pretty good / positive attitude about my diagnosis, even if I don't like it. I will not let this take me down. I have a great support system and a wonderful Hubby who gives me my shots and tells me daily how proud he is of me. I wish you the best of luck also. :)

Thank you for the wonderful video, you are a beautiful and wise young woman. Many hugs.XOXOXO

@cassandra5324

7 жыл бұрын

Elsa Kristian i appreciate your positive feedback!!! thank you for your kindness

I wanted to thank you for sharing. I am currently under going testing and have not received an answer now over last 6 months. Just looking forward to getting answers to tackle the next challenge.

I was diagnosed with MS in March 2008, I was 31 (just turned). I had been having symptoms come and go since my early 20's however. I finally got really sick with a ton of symptoms in 2005/2006 or so, and that eventually lead me to going off work and seeing many, many doctors until I finally was diagnosed. I'm so surprised (and relieved!) to hear another person explain the same type of facial spasm (I called it reverse Bells Palsy, face pulling up instead of drooping). I actually saw my first neuro with that symptom in full force (neuro was useless). I remember it went on for a couple of weeks, and I felt so scared not knowing at all what was causing it. I also had a bout of extreme vertigo for about 3 weeks, it wasn't room spinning vertigo, it was up and down vertigo (I'd blink my eyes and see something rise up and fall again after I blinked, it was even scarier than the facial pulling). Ironically, for me it was an ENT who ordered the MRI for me in the end, got the results, told me I had lesions in an active phase and evidence of demylenation (sure I spelled that wrong!), but couldn't say for sure what it all meant. He then referred me to another neuro, who did the lumbar puncture, tons of blood work, other random tests, and looked at 2 hallmark symptoms I had (L'Hermittes Sign and girdle band sensation), who told me it was Multiple Sclerosis. I'm now pregnant with our first (due tomorrow!) and I've enjoyed 9 wonderful months of remission with the MS. :) It's absolutely possible to have children as a person with MS! Thanks a bunch for sharing your story! xoxo

@cassandra5324

8 жыл бұрын

thank you so much for sharing your story. I am actually relieved to hear someone else having "reverse" Bells Palsy." It was definitely a scary time. This whole journey has been a roller coaster of emotions which is why ive chosen to take control. and take the best care of me that I can. congrats on the baby!!! that also brings a smile to my face. you keep slamming MS in the face. I will be praying for you!

@dmphax

8 жыл бұрын

Cassandra Thank you Cassandra! :) Yeah for sure. I've had some really wild symptoms over the years. Luckily many have resolved over time and/or after a course here or there of Solu Medrol/Prednisone taper, but some stick around and plague me day in, day out. I think I'm very fortunate in that I've had symptoms of MS for such a long time now, but still have my mobility. My MS is mostly all sensory symptoms (pain being a big part of it all). Here's to happy, healthy days ahead for us both. :) xoxo (thank you for your prayers too, much appreciated!)

@cassandra5324

8 жыл бұрын

+Laura Gud absolutely. Here is too happy days indeed!!!! :) :) :) I should be posting a new video soon of my recent visit to Chicago. I had new MRI scans and finally met w/a specialist. So stay tuned!!!

@ope4r540

5 жыл бұрын

Hi Laura. Thanks for sharing your story. I too experienced the face pulling. I walked into my neuro visit and she saw it. She said that it's due to seizure activity. I told her, "but I don't pass out, I feel everything!" She said you don't have too. All these health misconceptions I had, quickly made me realize, I need to drop all these ideas of what is what. I realized relaxing on my bed, and then reaching for something will trigger more seizure activity. This symptom has calmed down in my face, but I remain vigilant for the presentation in other areas of my body. Best wishes to you for better days. Cindy

@nataliekhalilrealtor

3 жыл бұрын

What a wonderful story. How are you doing in 2021

How are you doing today? It’s been 4 years.

Amen to your new stronger faith. God is good all the time.

To Lisa Daley: I am unable to respond to your comment. It keeps sayings fail, so hopefully you see this response: Hi Lisa. I'm so sorry to hear how rough it has been for you. Stress can definitely make MS worse. I have only known about MS since July of last year, but it doesn't take much to see that this is true. Sleep is also VERY important to get whether you have MS or not. I like that you say "screw fear" fear is just a feeling. A feeling that we can overcome. Fear a lot of times can be a lie anyways. A way for Satan to come at us and steal our joy and our hope. We cannot let him win. Attitude can change things. We are so much more strong than we realize. I'm glad you are learning to reach out for help. There is absolutely nothing wrong with asking for help. It is a sign of strength, not weakness. I'm so thankful to hear that my video had an impact on you. That means a lot to hear. Although it really sucks to know we have MS, we have to remember to stay positive. Allow yourself to relax. To take it easy, to ask for help. But don't be scared to kick MS in the butt. Research better ways to eat, stress management, etc. It is a process and it might take a while to see significant change, but it WILL come! Don't listen to the negative people in this world. They will only try to diminish your hope. Esp those who have MS and don't want to see other people believing that there is hope. So stay positive. Please feel free to reach out to me anytime! :) :)

Hi Cassandra. Thank you for sharing! I'm only about 2 years into my diagnosis, but I've learned so much in that time. When you mentioned your feet vibrating, I started laughing, not because that's funny, but I had the same thing the summer before my diagnosis. I'd walk to my college and as soon as I'd get there, I'd throw my shoes off and walk on the cold tile floor in an air conditioned room. It felt so weird! I don't get that so much now, but on occasion, I feel the vibrations in my back still. Stay strong and make sure you utilise your support network and listen to your body!!! If it says stop, do it! Learn your ms and your limits! Thank you again and if you ever need a friend or want to talk, I will be there! We are stronger together!

@cassandra5324

8 жыл бұрын

Thank you so much for your kindness. I really appreciate that. Although I hate hearing you have those symtoms, it is nice knowing someone understands that feeling. It's so hard to describe some of the issues you experience with MS. You feel silly, almost like "Is it MS really?" A year now that I've been diagnosed, but definitely learning a lot too. Strong together is so true! Let me know if you need anything. :) :) God Bless You.

I see a lot of my own MS journey in your story, thanks for sharing. I wonder how you're doing nowadays! I hope still well! Are you still on any social media channel?

Thanks for the info I just got diagnosed as well. I also put a video up explains my symptoms

You make me drool

I think knowing your own body and making healthy changes and taking medication earlier rather than waiting for it to get worse are a good strategy. Regardless of the data quality a great diet is tastier and beneficial in so many ways. Thanks for the video. How are you doing now?

I know plenty of women who have ms and went on to have children. Mid 20s to mid 30s is the best time. Too early or too late can cause an acceleration of symptoms. But it all variable depending on severity and onset age.

To Brama (for some reason I am unable to post on your comment so please see below: I'm so sorry to hear of your experience. I think you described how our world with doctors go. I rarely hear people telling me positive stories with their doctors. I'm glad you finally were able to get some answers. I definitely agree that it's frustrating when your other doctor tried telling you they were 500% sure it was a pinched nerve. I too was told this very exact same thing when my face flare starting happening. It is very sad and frustrating. As far as the medication goes, I would continue to just keep researching the best that you can. There are several different types out there and finding one that works for you can be difficult. I hate to say this, but a lot of the time (in my experience) you have to be the one to research and bring ideas to your doctor. They really don't know as much as you think. Esp with something like MS. So research, research, research. As far as Dr. Walhs. Her story inspired me to eat better because she was on very strong well known meds, and continued to decline. It wasn't until she started feeding her body the correct things, that she started to heal herself and reverse her problems. You said so yourself in your comment. You feel like it's all about being a "quick bank transaction" and that is exactly right. Doctors won't tell you eat better or to focus on a specific diet because there is no money in nutrition. If people ate well, sickness wouldn't be what it is today and the drug companies would start to lose $$. Doctors aren't trained in nutrition in medical school. They are trained in drugs. I am a good example to this idea on eating healthy because may times I have heard, "you have a lot of lesions and we do not understand why you are doing so well??!" I don't eat meat either. I don't follow Dr. Wahls diet 100%. I only try to include a lot more organic whole foods into my diet and juice raw foods. I'm basically a gluten free vegan. I exercise daily and continue to try and focus on my stress. Do the research yourself. You don't have to focus on Dr. Wahls, but do your own research on the power of nutrition and healthy eating. Watch my 2nd video. I mention a few good documentaries that are on Netflix that I HIGHLY recommend. It really gives you the inspiration and facts you need.

@jimgiraffe5253

7 жыл бұрын

ms is closely liked to mercury poisoning - how many vaccines have you had or amalgam fillings / root canal fillings ? I have had it since 2013 , had my mercury fillings removed and im feeling much better. Avoid all tomato and mushroom products and you will feel better. - these aggravate the inflammation in the spinal cord.

my mum has ms, her eyes twitch a little bit, she also sometimes cant lift her feet up very high so she trips on things alot and she cant bend over to pick things up that much because the damage on her spine. she is on meds to keep it from getting worse so she should not get any worse.

@cassandra5324

7 жыл бұрын

I 5rFoX I it breaks my heart that you have to see her like that. damage on your spine can be very serious. i will pray for her and your family. help keep her strong. and make healthy choices

Dr. Terry Wahls or Functional Medicine is the right way to go.

I have horrible dizziness for over a year. How long did you get dizziness and did MS drugs helps that? Stay Strong.

You are sooo pretty

Hope you are still doing well :) I was diagnosed officially 2-3 months ago :/

What was the facial pulling like? I've had facial twitching that I figured was just stress, but now I wonder if I have MS because I took a DNA test and I have several genes for it. I've also had my toe go numb for months which I assumed was from bad shoes, shooting pains up the back of my legs which I assumed was a pinched nerve, chronic fatigue which I assumed was from depression and dizziness which I assumed was my antidepressants. Now I wonder if it's been MS this whole time.

MS can be a horrible condition to have to live with, believe me I know, I was diagnosed Sept 2012 with RRMS which recently changed to a very aggressive Secondary Progressive MS. my symptoms worsened very rapidly and I know that lifestyle is a HUGE part of it, but I've learned to control it and keep it at bay. Thanks for sharing your experience.

@cassandra5324

8 жыл бұрын

Thank you for sharing a little bit about your story as well. Keep up the good fight! I'm sorry to hear from the switch, but I'm glad to hear you are keeping things at bay. you will be in my prayers.

@DSUASTE69

8 жыл бұрын

+Cassandra Thank you, likewise 🙏

@3336met

8 жыл бұрын

Don't give up, here are something to help you. www.molecularhydrogenfoundation.org/videos/ www.ncbi.nlm.nih.gov/pubmed/27138092

@BobbieesWorld

8 жыл бұрын

Same here. I'm in secondary now. I;m making quilts and painting dolls so the wheelchair isn't all bad.

@RobertF-

7 жыл бұрын

You might be interested in the book and website Overcoming Multiple Sclerosis.

Very brave

Hii Cassandra, My first symptoms for me before being diagnosed with MS is Bell's Palsy, That lead to the doctor to diagnose me.

Thanks for your video I’ve just had a third MRI and have not been diagnosed with ms but there are 2 new small areas of gliosis Could this be nothing ? Or are 4 areas of gliosis enough to suggest MS ?

So I am also glad some had made videos about this.. 29 year old Male and was just diagnosed. Still very surreal to me. I don't believe this is happening. Thanks for sharing hun...

@cassandra5324

7 жыл бұрын

Andrew Davis absolutely. sorry to hear you were diagnosed. jump on our fight wagon and we will fight tbis. dont let MS take over you. our spirit and minds are capable of SO much

Hi, did you get an mri 1.5T? I feel like I may have this. Please advise. Regards

Hi. I was dx June 2011 after all of the tests and spinal test. I kept falling sideways. My weak side is my left side which made it easy to write, drive. I'm no longer driving. But I'm on copaxone, too and I don't have much fatigue.

@cassandra5324

7 жыл бұрын

Bobbie Machado im sorry to hear you have MS. 1st off you sound positive and thats important. dont give up on that left side tho. we can re train our brains in many ways. hang in there. xxx

My GP tried to tell me it was an ear infection then tried to tell me it was a migraine. Migraines don't last two weeks. She also cancelled my appointment with a Neurologost because I went to the eye hospital and she said they were seeing me. Basically just got in the way.

I am from chicago. What is the name of the doctor you are seeing and that diagnosed you

I know someone who is being tested for MS, everything points towards having it. Is there something I can say or do to help them?

@cassandra5324

7 жыл бұрын

Paul Law just be very supportive and loving. MS is very unpredictable and staying positive is extremely important. :)

@daltonagronomo1652

4 жыл бұрын

@@cassandra5324 Do you know about the Coimbra Protocol?

Without the emotional support of my husband, i forged ahead n with the help of my son i went to a prof of neurology He immediately diagnosed me with ms after a mri brain scan n put me on meds which is helping It was totally shocking that in 2010 i had a mri done with white lesions visible N the other doctor couldn't or wouldn't diagnose me He left me waiting, getting worse with symptoms n brushing off a major spine operation as it wont help Cos he must have known i have this condition....didnt he study this at med school? I am fuming....

Was your MRI with or without contrast? I've had the eye twitching for over 20 years. More things occurring in past 10 and much more in past 2 years. Lupus tests negative. I have had foot/toe numbness for at least 5 years and my hands go numb too. And numbness across the top of knee and up side of leg to hip that is believed to be nerve and knee infection related. Many other symptoms that are similar to those people with MS have. I former co-worker use to tell me that I had MS 30 years ago. I decided that until something became really problematic that I was just going to live my life until the point that I had to do something. Now that there are things that are problematic but no one listens!! They treat you like you are putting on an act. Well acting has never been my thing!! Being active has been my thing and when I can't do that then there is a problem!! What kind of MD can assess for MS? I know a Neurologist would assess for this, but can other MD's assess for MS as well? Sorry TMI

Hey Cassandra! Did you ever have any type of breathing issues?

I have all the symptoms of MS . I saw my neurologist today, she never did an MRI on me. Instead she did a lumbar puncture and that came back negative. She decided to give me a high blood pressure medication, the reason was that I was having Migraines with out the actual head pain, This really left me very upset/! I work in the medical field, i'm a medical assistant, and I know the first step is to have an MRI. How many test did you have done before being diagnosed? I know my body and Know what's going on with it. So, I have decide to get a second opinion.

@cassandra5324

8 жыл бұрын

+02nanita Getting a second opinion is always a good idea, esp if you aren't feeling comfortable with the doctor you have now. I would highly recommend a MRI scan. That was the first thing that I had done, which then lead to a lot of blood tests and a spinal tap and After going through the scans, the puncture and my flare up experiences....it was decided that I had relapse remitting MS. Please keep me posted on your journey and what they end up finding out. Stay strong and remember stress is the enemy. Educate yourself and keep the faith.

@02nanita

8 жыл бұрын

+Cassandra I will keep you updated, and let you know what the second opinion had to say.! Thank you and have a great day.!

@cassandra5324

8 жыл бұрын

+Cassandra jj

Please search vitamin d protocol north America on Facebook. I have been on a high vitamin d protocol that has halted disease activity for me. Please look into it!

Copaxone does not suppress the immune system, not one bit.

I'm surprised that I hear nobody mentioning anything about Black Seed Oil I have MS and was being told about it like the black seed oil I'm taking 1tsp morning and evening this oil is helping me with my chronic fatigue which everyone with MS is suffering from

You might be interested in the book and website Overcoming Multiple Sclerosis.

@cassandra5324

7 жыл бұрын

Robert thank you! ill have to check it out

I would love to ask you if you are still able to drive with MS, like legally? ✨

@cassandra5324

2 жыл бұрын

Absolutely! I plan to make a new video soon. It’s been a long time since my last video! Excited to share what’s going on. How are you doing?

Has Dr. Wahl written a dietary book? How does one find out about her theories? Thanks.

@cassandra5324

7 жыл бұрын

She does have a few books. One that is suggested for those with MS or any other chronic illness, or those looking to live a healthier life is called "The Wahls Protocol." I'm sure you can go on Amazon to purchase this book. It's really good. Also below is a link to help get your started on your search on Dr. Wahls. terrywahls.com/

@zan1158

7 жыл бұрын

Thanks for your quick reply.

I wish I never took that Depo Povera Shot! Migraines and All the numbness in face and left foot. I can't afford the Hospital. And Health insurance

I am glad to hear that your situation is not as bad as most. What if the medical industry was looking in the wrong direction for solutions? Would it make sense to be open to a fresh way of looking at the problem? I am sorry to hear that you are having difficulty with your health. If you are interested, last July I started learning from a man that has been helping people heal themselves of every health issue under the sun for over 45 years. You probably have not heard of this man because he is not motivated by money and there are many that feel threatened by his knowledge and try to discredit him. Here is one of hundreds of his enlightening videos: kzread.info/dash/bejne/gYyXqaRup8-9nqw.htmlm31s I know now that I can take full control of my health. I wish the same for you.

please reply

Can you loose your hair if you have MS

@osaniss

7 жыл бұрын

Google it

@vanskii7900

7 жыл бұрын

Michelle Robinson I'm just trying figure out what my body is telling me.

@cassandra5324

7 жыл бұрын

Vanskii that isnt a symptom ive read about but ms is different for everyone. maybe get your blood check or check your meds if you are on any

@meganhenry5795

4 жыл бұрын

I would imagine so because it is an autoimmune disease.

I would love to talk with you I google everything and I sometimes go through ms symptoms to see if relate and yours was dead on- I thank you. Not diagnosed but have demyelination and so many other symptoms that stopped going to Er about and deal with. I love that your positive - I there is a lot to my story,but I am at a point ok take the lumbar puncture and tell me that way I know I am not crazy and can deal. It is awful - I have no idea how this shit works but I would love to cha - thanks for sharing your story - it made me feel like I am not crazy. My symptoms have started during divorce extremely stressful and now I see it today was stressful extremely - had to cry eyes out put big girl pants on and deal with friggen vertigo now experiencing and deal - it sucked six ways to sunday but I did it. I would share my story etc, but I need to know your real - I am old school 44 years this Internet shit scares me at times, but this is an area where my great friends don't get and they are great and great family. I saw earlier isolation that is me when I feel awful - that is not me I am outgoing, etc my life is an open book, but lately I am scared - today long story short had a meeting I needed to have lost sleep, weight, and so many other things lie brought on attack I don't know whew my foot is and knee buckling,but I needed to do this. My advocate to said Lisa. Look in everyone's eyes it's fear that scares everyone, well I am learning at 44 (where I am learning so much, been through ashit load but keep going) screw fear - hence I posting this blog - I am not crazy I am just a mother who went through a marriage where I knew something wasn't right and I was not crazy and with all the stress and symptoms I was having went on faith - ironically a year later dealing with similar issues I deal with the symptoms am I scared f yes. Had to stop and go home twice because the vertigo is awful new symptom, but I need I got help not for ms still working on that diagnosis, but I got help for knowing that I made the right choice in divorce it is not easy I know why woman stay, but all these flipping symptoms,etc depression, learning to reach out - I am doing good - even though I may cry like a baby - inside I am strong - ok I have babbled not sure if you will read, but than you - your post had an impact on me tonight and for that I thank you p.s not proofreading you will get rambling I write in the moment. :)

Where are these drs that diagnose people??!!! My mri.... normal.

You have to google no one else helps u diagnosis

To kill bacteria use oregano oil in capsules 180mg. caps and take it 3 times a day with food(not empty stomach) and also do a parasite cleanse . to detox your body from parasites and bacteria get the book called ; "Natural cures for killer germs" by Dr. Cass Ingram . best mother natures herbs to kill parasites and bacteria are , N.1 is Oregano oil capsule,, Wormwood (Artemisia absinthium) , Black Walnut-Nuts & Hull ,,,Cloves ,Chinese Goldthread , ,, Turmeric ,cats claw ,,zinc . spending time in hot sauna one hour a day , and alkaline organic plant base diet .watch this video for cure Multiple Sclerosis kzread.info/dash/bejne/fo6gztyvfLTclZc.html Sugar is Cancer ! if you want to lose weight watch your intake of carbs, but be careful since the equivalent of 12 teaspoons of sugar happens very quickly. For example: • 1 cup of milk = 2 teaspoons of sugar • 1 cup of rice (cooked) = 9 teaspoons of sugar • 1 banana = 5 teaspoons of sugar • 1 baked potato = 7 teaspoons of sugar • 1 sweet potato = 8 teaspoons of sugar • 1 cup of strawberries = 2.5 teaspoons of sugar • 1/2grapefruit = 2 teaspoons of sugar - Coca cola (one can) - 8.25 teaspoons of sugar - Raisin Bran cereal - 7.75 teaspoons of sugar (per 100grams) - Grapes fruit - 4 teaspoons of sugar (per 100grams) - Tomatoes - 0.7 teaspoons of sugar (per 100grams) - 1 Muffin (one chocolate chip muffin) - 4.75 teaspoons of sugar - Special K cereal - 3 teaspoons of sugar (per 100grams) - Corn Flakes - 2.4 teaspoons of sugar (per 100grams) - Alpen cereal - 5.75 teaspoons of sugar (per 100grams) - Mangos fruit - 3.2 teaspoons of sugar (per 100grams) - A cup of seedless prunes has, in effect, 25 teaspoons of sugar ! Scientists find in comparing the sugar levels in the blood after the consumption of a snickers bar that has 8.5 teaspoons of sugar the same as two bread slices ! . The sugar equivalent is of 1 large bagel a whopping 12 teaspoons of sugar ! Lastly, it is worth noting that there are many breads that a single slice of which will raise your blood sugar more than a US Snickers bar (which has a GI of 68/97)…if the Glycemic Index can be believed. You can browse the table yourself to see. I’ve included some of the more interesting ones below. Breads that have a higher Glycemic Index than a Snickers bar: Bagel, white, frozen (Lender’s Bakery, Montreal, Canada) Baguette, white, plain (France) Kaiser rolls (Loblaw’s, Canada) Melba toast, Old London (Best Foods Canada Inc, Etobicoke, Canada) White flour (Canada) White flour (USA) White flour (Sunblest; Tip Top Bakeries, Australia) White flour (Dempster’s Corporate Foods Ltd, Canada) White flour (South Africa) Wonder, enriched white bread Stay Trim, whole-grain bread (Natural Ovens, USA) In contrast, strawberries give you a big carbohydrate “bang for the buck” meaning you can eat lots of them with minimal sugar. Strawberries have lots of water in them. 1 cup of strawberries = 2.5 teaspoons of sugar Book ; The Obesity Code: Unlocking the Secrets of Weight Loss - by Dr. Jason Fung

More incompetent Dr's. Mine is ridiculous. I suspected I had MS (thanks to Google), went to the Neurologist in Feb. She said I needed MRI's and spinal tap and eventually in March she said it was definite MS. I had 7 or 8 large brain lesions and on huge spinal one. Oh, and before I saw the Neurologist I was telling my Psychiatrist that I thought I had MS and this lunatic says to me "It's a pinched nerve." I say "Oh really, and how do you know that?" and lunatic just says "I'm 500 percent sure.". So apparently that nut case can diagnose a pinched nerve with zero evidence or tests/examination and she can be 500% sure of it. I pulling my hair out from frustration with these quacks. So anyway the Neurologist said she'll start me on medication "So you don't become paralyzed". OK, so I get Tecfidera. Next month I go in for another useless several minute visit... I explain I'm getting worse. She says "Oh, well I'll have to get you started on medication.". I say "But you already did last month". DUH!!! I know she's busy, but can she at least pay the hell attention to me and what's going on? So I read about Tecfidera, talked to the specialty pharmacist about it and discover it does nothing for current symptoms, it just helps prevent future relapses. How am I supposed to have a relapse when I've been experiencing non stop symptoms for months now? And why did she offer me no medication to help my symptoms (aside form a useless 5mg daily of Baclofen for spasticity... and it's useless probably because it's only 5mg). Does any medication help repair the damage to the nerve sheaths and help stop or revers symptoms? Should I be on another med that will help? For various reasons it's just almost impossible to just find another Neurologist and who knows if they'd be any better than my current one. I'm just getting no help, no explanations... its just feels like a quick bank transaction. Now I feel like all I'm doing is waiting helplessly to see how bad I get with no hope of ever getting better.

@Soneelicious

Жыл бұрын

Alpha lipoic acid will help

Cassandra trust in Jesus and His Word rely in Him for all things HE loves you and so do i John 3:16 please read