Thank you so much for including those of us with vaccine reactions. It has been a very long, very dark road for so many of us and it’s really refreshing to have this study and these researchers in our corner.

This is a comprehensive, level headed, science based discussion of long Covid that actually gives me hope that we will find answers and maybe treatments. Thank you so much.

Thank you to the Kindred and Yale Listen Study teams! We need all eyes on these groups for support and participation.

Thank you for confirming V injured. I had mild CFS long before Covid or vaccines. Never got the virus, but my 4th Booster put me in moderate CFS. Life changing & very debilitating. We need help and recovery remedies.

As someone who is part of this study and vaccine injured with reactivated EPV and has many similar symptoms of Long Covid I appreciate your hard work in studying both types of our suffering🙏🏻❤️‍🩹 I’m ready for any tests you want for post vaccine patients. I have been advocating for this type of study for a long time.

@siobhanchristine-bligh183

Жыл бұрын

Do we have any idea how reactiveated viruses causes PEM? Seems to differe from other disease types, you may not know but thought I would ask

I have been a victim of vaccine induced long covid since June'21. Narrowly escaped cardiac event by getting 2 stents installed in my heart by angioplasty. My misery is far from over because of my inability to exercise as well as the unpredictable eruption of gastrointestinal complications. Kindly help as no doctors in Kolkata, India

Thank you for including v injured.

Contrary to what is stated in this video, Radiance Diagnostics out of Chicago performs the relevant cytokine and S1 tests commercially. Bruce Patterson's group uses the results to recommend various therapies.

Amazing! fabulous, comprehensive work in such a short time! This is the future of medicine, uncensored, unbiasedl investigation and analysis and teamwork.Thank you to everyone who worked so hard to bring this pioneering work to the long suffering, Long Covid community. I'm sure your work will have applications in other chronic conditions like ME-CFS. You are all angels, a godsend! #KeepGoing

Vaccine injured here suffering like hell

@superalien4781

Жыл бұрын

We need more studies for us to be recognised and more suffering probably , we do exsist in your community and suffer in silence .

47:25 unfortunately the heart issues are not uncommon, as stated here. I've met so many older men and women who've had issues.

From Singapore. Have gotten lingering Covid symptoms Since oct 2022. But the whole health care system here are not well known about long haul covid. Hope that there are more sharing across the official medical board to help people in Singapore. Recently a device to check microclots is used. Seems promising. And the use of new imaging to detect viral persistent. Not sure if Singapore would ever adopt and try and help us out.

Hello, is there any way I could participate in this study from France?

@nicolefriedel

Жыл бұрын

Yes, it’s an international study.

ArtemiC really worked for my Longcovid

Thank you all! A lot of great information. We are all very anxious to get to the treatment phase! The recovery stories I see are sometimes antiviral, but most are "brain training" over many months. Personally, I have seen benefits from brain training. I wonder if this is due to the HPA axis, treating the problem at the source?

I am trying truvada soon to see if it helps the Cd-4 depleation

Is anybody tracking adrenalin levels in Long Covid? Particularly in children?

What are contacts to get into the stud,y? I have long covid, vacine injury and old history of CEBV Also serious problems thinking remberi g

6:50 why of all places should there be long term viral particles in the intestinal tract? These cells shed every 5 days. Are they environmentally exposed? 19:21 lower cortisol can probably be explained by the chronic inflammation, just like the exhausted t cells, cortisol production is exhausted 30:51 so couldn't it just be the covid episode led to chronic reactivation of EBV? Very similar symptoms. Calcium loss could suppress the immune system. Would explain prevalence in women Smoking gun: hair loss is a symptom of EBV Also, low calcium intake has sparingly been linked to alopeica (tellingly in rat babies, the lose hair on low calcium diet but gain it back once skeleton is done growing) 42:24 there it is I guess

can COVID bring damage to body

this is consistent with the interferon studies indicating that women having two XX chromosomes have a more sensitive immune system, meaning their natural immunity is stronger, whereas men have XY, less interferon and therefore covid would be more dangerous than the v*ccine for them, whereas with women, it's the opposite. Of course this depends on methylation status as well, amoung other things.

@suba_rally9936

Жыл бұрын

methylation.... is that related to the MTHFR gene? i was injured and am trying to put the pieces together myself because it's really difficult to find medical help for this... one of the things that i stumbled across was MTHFR and i remembered a doctor found i had a mutation in that many years ago and wanted to prescribe some pregnancy vitamins my insurance wouldn't cover. if it is that, is there any treatment for it once the injury has already set in?

Is there any way to get involved in studies from NZ?

@nicolefriedel

Жыл бұрын

Yes, it’s an international study.

Two weeks before I saw this video I had a dream that I was pulling parasitic worms out of my body. And just after 16:00 she says that instead of virus-specific cytokines being elevated in LC, they found WORM cytokines! Is this a coincidence? I have had LC for over 18 months now. I had never had a dream about worms. Probably chance but... this is a little spooky.

1/12/2022 , is COVID still around tnx

@teddybearroosevelt1847

Жыл бұрын

Yes it is

Kindred refuses all my passwords!!!!!

@hugohealthkindred

Жыл бұрын

Hi Bonnie- Thanks for you comment. So sorry to hear you're having trouble logging onto Kindred. Please contact our support team at Kindred_support@hugo.health and they will assist you with this issue.

you are still censored :) .. enjoy

Kinda strange that only "vax-injured" ppl commented

@PigeonAndTonic

Жыл бұрын

Oh no! People with an understudied illness commented on a video about said understudied illness! What horrors are to come?

@NovelNomadic

Жыл бұрын

Kinda strange that this academically and scientifically focused study is acknowledging and discussing victims of vaccine reactions and people are still questioning the veracity of our illness.

@jennysteves

Жыл бұрын

Probably because those who are mRNA Covid vaccine injured are almost never acknowledged to even exist by the medical community. Here we have a renowned researcher saying they do.