As a type 1 diabetic with POTS, I can confirm that low blood sugars feel very similar to POTS symptoms. Although it can be tedious, you should definitely check your blood sugar whenever you have POTS symptoms that don't immediately go away upon laying down.

It's April 2020 you haven't posted any videos because I know that you're not feeling well So I've decided to go back and watch your old videos that I haven't seen yet.

You're so brave and strong everything you've been through and you still find a way to stay positive #amystrong

Miss you so much!!!

I've got similar issues with my eyes (I think)! Had an operation when I was 3 (and eye patches for years) because I had double vision but it didn't actually fix the issue so I use my right eye most of the time and not my left.

I know it's gotta be hard on you your so beautiful and so strong❤

I have problems with hypoglycemia on feeds, actually it's usually worse on continuous feeds, which never made sense to me. Luckily it's improved the longer I've been on feeds xx

how did you guys meet and how long ago how long have you both been diagnosed? how do you cope with your tube being placed? what are main struggles you both face with being tube fed? will you be doing more videos together? what is your favorite things about each other? how do you cope with going out in public with a tube (like when people stare/talk about you having your tube/asking whats wrong) how do you reply/stand up to rude/disrespectful/negative people and comments? p.s i follow you both and your both absolutely lovely and so incredibly strong and inspirational love you both keep being amazing im here if you both need me!

Cute outfit 🙈💓

You look pretty xx

Amazing Girl ♥️♥️♥️♥️🌹

you could do the strengthening with right eye ike you use do for weaker eye

Hey I have the same thing with my left eye!

i have an NG and NJ, as for the drainage NG id recommend trying every other option first as it's not the best option & i still vomit most days even with the drainage tube and zofran

@gillyana

7 жыл бұрын

I have both two and my NG is on constant drainage. I have a subcut syringe driver 24/7 of cyclizine and use zofran liquid 3 times a day. x

@gillyana

7 жыл бұрын

I actually have a ND tube not NJ as I have had my large and small intestine removed after it burst giving me a permanent ileostomy (who's called Stella lol) x

looove juicy fruit, i think they still sell them in australia

have they checked into median arcuate ligament syndrome or MALS amy? it is often associated with pots and EDS i have all 3 as well as MCAS and svt and it can definitely cause hypoglycemia, it has also caused my gastroparesis so just thought I'd share if they haven't checked you for that I would look into it

I am shocked to hear that there is nothing they can do for your eye??? I was born with lazy eyes and had to wear patches. Altenating between the left and right because one would get stronger then the other and so on. Then I got to old for the patch to be effective so I had a surgery when I was 8 years old and they reposition the muscle on your eyeballs. Please, if you have any question, feel free to ask.

@amyslife4457

7 жыл бұрын

Kym Boulay yeah I asked if there was anything that could be done and they said nothing now that your an adult 🙄

I'd recognise Swinton square anywhere lmao

nice Clip