♡ Ehlers Danlos Learning Conference 2018!! | Vlogmas Day 10 🎄 | Amy's Life ♡

♡ Ehlers Danlos Learning Conference 2018!! | Vlogmas Day 10 🎄 ♡
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♡ MORE INFO ABOUT MY HEALTH ♡
• HKPP: medlineplus.gov/ency/article/...
• POTS: www.nhs.uk/conditions/postural...
• M.E/CFS: www.nhs.uk/conditions/Chronic-...
• FIBRO: www.nhs.uk/Conditions/ Fibromyalgia/Pages/Introduction.aspx
• EDS: www.nhs.uk/Conditions/ehlers-d...
• GASTROPARESIS: www.nhs.uk/conditions/gastropa...
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Пікірлер: 57

  • @shannybridgejeez5816
    @shannybridgejeez58165 жыл бұрын

    Yes plz make the video about the notes you took I'd love to hear what was said or what u made notes on😁

  • @sophieashby7776
    @sophieashby77765 жыл бұрын

    Who needs an advent calendar when we can have an Amy vlog every day 😍💜👌

  • @emilywilliams3385
    @emilywilliams33855 жыл бұрын

    Haha that Friday night dinner impression was. Brilliant hahaha 😂😂

  • @nos676
    @nos6765 жыл бұрын

    BTW fellow zebra's, ALL the slides from the Sydney and Perth patient days will be published on the official EDS society website soon!! so all the information will be available for all! :) Also, Sydney didn't get a chillout zone, you're so lucky. I agree, it's an amazing opportunity to be at the EDS conferences. although it's not once in a lifetime, they'll visit again, I asked Lara :P Oh also they took the badges back at the Sydney conference to use at the Perth conference. they're reusable, but you could keep the name tag paper inside, I did :) Oh and please do make a video of the notes. Also.. you zebra's at Perth got stickers on your brown paper bags? we only got brown bags, no sticker on it.... I should have gone to the Perth conference instead XD Also. there was about 300 at the Sydney conference.

  • @eduardopadilla5505
    @eduardopadilla55055 жыл бұрын

    Excellent for all the information you had in the conference Amy!!

  • @lisawinters4681
    @lisawinters46815 жыл бұрын

    Congratulations on all your wonderful news, I can't wait to your able and ready to share it with all of us... So happy you had a great day at the EDS conference!!! Sending you lots of holiday love from Oregon!!!

  • @alysonjade2461
    @alysonjade24615 жыл бұрын

    I’m so glad you had such an awesome day and were able to have some fun. I’m sure there was a lot of great information shared and although I don’t have EDS, I’m sure you sharing what you learned will be extremely helpful to others. Thank you for sharing!!!

  • @tonyajohnson6065
    @tonyajohnson60655 жыл бұрын

    It is so good to see you feeling better and happy😊. Shout out to Tom.... you are a hoot😂

  • @Alyse_bell
    @Alyse_bell5 жыл бұрын

    I felt the same way about my meds when I went to the dysautonomia international conference in the states one year. It’s awesome being surrounded by ppl with the same conditions as you. Because they all just get it. Hope you got a lot of info and potential new options for treatment for you. Stay strong fellow POTsie

  • @norajung4513
    @norajung45135 жыл бұрын

    So glad you had a good day. Hopefully you learned dome new ideas to help will your chronic illness. Tom is so fun.

  • @hiphopguest
    @hiphopguest5 жыл бұрын

    Wish You the best

  • @greenlean8890
    @greenlean88905 жыл бұрын

    Things that make you go hmm!! so good!

  • @carriganmnelson
    @carriganmnelson5 жыл бұрын

    Early! Stay strong- always here for you and so is everyone else❤️ happy holidays...🎄

  • @Ginger9304
    @Ginger93045 жыл бұрын

    A video on the conference would be fantastic!!

  • @cyndizebra6119
    @cyndizebra61195 жыл бұрын

    I would love to hear about what you learned!😁

  • @bestronglaboron313
    @bestronglaboron3135 жыл бұрын

    I would love to hear everything

  • @kerryhorrocks4453
    @kerryhorrocks44535 жыл бұрын

    Please make a video of everything you noted down amy I’m literally having all the test done at the min for eds and I’ve already just today been diagnosed with pots I’m relieved and shocked as I started watching you and found that you had symptoms loads like mine and finding your channel by chance has now found me with the same diagnosis your channel helps me more than you will ever know 💖🦓 x

  • @lizslifeoflemons3758
    @lizslifeoflemons37585 жыл бұрын

    I would love to hear about what you learned. I haven't been diagnosed with EDS, but I think I have it. I fit all of the criteria for hEDS and would love to know more about what you learned, especially the digestive issues. I have some digestive issues and brought up EDS, but was told that it doesn't cause any problems in digestion. Frustrating.

  • @sydneygordon2049
    @sydneygordon20495 жыл бұрын

    2 hours ago (at midnight) I found out a really good friend of mine was killed in a horrible accident 💔 it's currently 2:30 AM my Time I couldn't sleep so I opened KZread. I saw your new vlog so I watched it I don't know why but watching your vlog made me stop crying and I'm actually in a little bit in a better mood. So thank you for making my day a little better. ❤️

  • @MariaAndTheMachine

    @MariaAndTheMachine

    5 жыл бұрын

    ❤️

  • @amyslife4457

    @amyslife4457

    5 жыл бұрын

    Omg!! I’m so so sorry! I’m sending all my love! I hope your okay & I’m so glad I made you feel abit better, even just alittle ❤️❤️❤️

  • @darkhappiness7554

    @darkhappiness7554

    5 жыл бұрын

    My condolences. ♡♥ For you, your family & your friend's family. Lots of love from Brazil! ♡♡♡

  • @moniqueneves86
    @moniqueneves865 жыл бұрын

    Ok this may be a dumb question but can you regain stomach mobility? Much love from Brazil

  • @rachelmartin3631
    @rachelmartin36315 жыл бұрын

    People who give Amy's vlogs a thumbs down are jerks.

  • @amyslife4457

    @amyslife4457

    5 жыл бұрын

    Rachel Martin ❤️❤️

  • @TheLangleyLife
    @TheLangleyLife5 жыл бұрын

    I’m early for this upload ☺️ hope you had a good day! 💕

  • @ambertansey7903
    @ambertansey79035 жыл бұрын

    Hahahaah I didn’t even see us in the livestream!!❤️

  • @Brandi.65
    @Brandi.655 жыл бұрын

    I’m glad you had a good time there🤗

  • @hollywittenberg7031
    @hollywittenberg70315 жыл бұрын

    I’d definitely be interested in that.

  • @mariaschmidt8247
    @mariaschmidt82475 жыл бұрын

    I wasn't able to go to my EDS conference at my university in Seattle. I would love to hear all about yours.

  • @SkyStrife92
    @SkyStrife925 жыл бұрын

    I'd love to heat out the info you got from the conference ^_^

  • @Madijo70
    @Madijo705 жыл бұрын

    💜

  • @bertilleamaury5608
    @bertilleamaury56085 жыл бұрын

    Hi i from France.I want to says you're a fighter, you're a brave, you're determined.I wish you a lot of courage. You are a person who fights every day. And i have maybe the SED but i don't know it yet. Sometimes it can be painful and i can't move. I wish you a merry christmas.

  • @angelgirl6966
    @angelgirl69665 жыл бұрын

    Oh I want that information from the Gastro doctor

  • @angelgirl6966
    @angelgirl69665 жыл бұрын

    So what here all about the conference

  • @nktigger99
    @nktigger995 жыл бұрын

    Why are you doing saline at the conference when you normally never do it outside of the house?

  • @amyslife4457

    @amyslife4457

    5 жыл бұрын

    Nichole Bird because it was a really hot day and I needed the boost, plus I knew because the conference was long and it was a 12 hour day that I wouldn’t of made it through without them 😅😅

  • @Dej772
    @Dej7725 жыл бұрын

    Oh boy. Second.

  • @RohiTGm07
    @RohiTGm075 жыл бұрын

    hey u have to see dr pankaj naram.

  • @beckygriffiths
    @beckygriffiths5 жыл бұрын

    What is the difference between HSD AND hEDS

  • @amyslife4457

    @amyslife4457

    5 жыл бұрын

    Becky Griffiths I will do my best to answer it in my EDS conference video x

  • @whocares5450
    @whocares54505 жыл бұрын

    Soo hard to keep up with your vlogs Cus of the time difference I’m in the uk xx

  • @kazmc6517
    @kazmc65175 жыл бұрын

    Hi Amy, from Huddersfield, UK. Loving Vlogmas and also I have a query. It might seem personal but for a good reason! You mentioned the other day that your payments from KZread can vary and that you had a good month last month. I'm just wondering how your regular followers can increase your income. Am I right in thinking thst if people watching your channel watch all the adverts and don't skip them, that you get paid a little more each time? Just wanting to help a girl out! Merry Christmas from Yorkshire to you + Tom. P.S. Good luck with the Lactulose, I use it due to Crohns and IBD, I take it orally and find it way too sweet but effective. Kx

  • @am7063

    @am7063

    5 жыл бұрын

    kaz mc Yes, if you watch an ad all the way through, it increases ad revenue. Also, if you’re on desktop and an ad at the side or bottom of the video pops up, if you click it that also increases ad revenue! What you can also do to help is like, comment, etc on videos in order for KZread’s algorithms to realise people are interested in the channel 😊

  • @amyslife4457

    @amyslife4457

    5 жыл бұрын

    Yes exactly what Art Nerd said! Thanks for explaining ❤️❤️

  • @kazmc6517

    @kazmc6517

    5 жыл бұрын

    .

  • @zaddiegirl
    @zaddiegirl5 жыл бұрын

    Yes please to the video!! I’m so disappointed that I couldn’t get in to the Sydney one 😭😭 I also noticed my specialist was presenting there 😱

  • @alyssawssinging4039
    @alyssawssinging40395 жыл бұрын

    Hey amy❤️ my best friends name is Courtney

  • @Brandi.65
    @Brandi.655 жыл бұрын

    That’s true where is the beard Lol 😂

  • @matildaremedy3709
    @matildaremedy37095 жыл бұрын

    Y.

  • @brandonmontano7133
    @brandonmontano71335 жыл бұрын

    First

  • @gothicRaven16
    @gothicRaven165 жыл бұрын

    z e b r a z e e b r a

  • @debbiezehfus842
    @debbiezehfus8425 жыл бұрын

    I absolutely love your Christmas Vogmas openings. Is there a was for me to private message you? I have been following your vlog for quite some time, and I have many q.

  • @debbiezehfus842

    @debbiezehfus842

    5 жыл бұрын

    Many questions.....

  • @jessicawatts931
    @jessicawatts9315 жыл бұрын

    Tom was so funny tonight

  • @simplesmeerkat1665
    @simplesmeerkat16655 жыл бұрын

    Faaaaabularse

  • @motionless_horizon
    @motionless_horizon5 жыл бұрын

    Third