Hey Hanna, don’t worry about any haters, no matter what you do or say, there will always be someone that has to put there two pence in, just delete and take it with a pinch of salt. I know it’s easy said than done but stay strong and I am keeping my fingers crossed 🤞 for you that the IVIG gives you some relief and better quality of life ❤️

I've gotten the aseptic meningitis from IVIG, makes the migraine seem like a headache... Praying for you! IV benadryl helped me a lot and now we always premedicate and run it EXTREEMLY slow. Recently started iv phenagren at home and hoping that will help with follow up. For me the follow up doses, which were smaller, were not as bad and I could function after a couple days. For me the couple days of pain a month is worth enduring because it improves the rest of the days. Of someone had told me about aseptic meningitis being so common with IVIG BEFORE I started the first time I don't know if I could have gone through It but looking back I'm so glad I did! Hooe today is a little better for you!

I’m so sorry about all of this!! Praying for you. ❤️❤️ Thanks for being real.

I love when you talk about anything. You're very real and I appreciate you sharing these moments.

You are such a strong young woman!! I love watching your videos and praying for you 💗

Please ramble away! I'm so glad to hear of your hopes and dreams, and you should feel free to vlog about any aspect of your life in your own channel. I know it's hard to put a positive spin og "hate". And yet, if you can think of hateful comments as coming from people who are just projecting, and don't know how to be real, that may help. They're just cowards. I continue to pray for you, and I admire you for keeping the faith alive.

Hi Hannah! :) I just want to applaud you for being such a fighter and staying strong through all the pain and suffering. I hope things are only going to get better for you from now on and you can start doing the things you're dreaming of, you truly deserve it. Sending you lots of love! ❤️❤️❤️

I'm really glad that you make these videos. I know it's hard to ignore the hate but it really helps as another young woman with POTS to see these videos. I'm doing better since a surgery I had to close a hole in my heart, but my doctor and I aren't ruling out IVIG as an option. I'm able to work online after the surgery and generally feel better so now that I've seen this, I'm going to think twice before doing IVIG. Even just the hangover symptoms that are common with IVIG sound awful. There really wasn't any information online about potential consequences or side effects, just people saying how much it helped them. So I really appreciate you being so candid and honest about what you're going through. I can't even imagine what that kind of pain is like. I really hope that things turn around for you soon. You've had way more than your fair share of medical complications, so I hope your doctors are able to find some solutions that work for you and you're able to pursue all of those things you want to do.

You are an inspiration to me. I've had POTS less than a year and I want my life back. I think of all you endure and you are always so upbeat. It can be such a drag when you are sick all the time. I appreciate your humor, too.

I'm so sorry, hun! It's all so frustrating! I'm praying for you to have some relief soon. 🙏❤️

Don’t let the hate get to you! Just delete the BS and ignore these people, they are terrible. You’re doing great.

Bless you Hannah, sending love and hope you feel better soon 💕💕💕

Praying 🙏 for you! I love your videos 💗

You’ve got my prayers & love!

We are here for you Hannah. 💕

I feel this in my soul. I'm not directly in your shoes, but I'm also chronically ill. Luckily, my third attempted treatment is working very well, so I'm just waiting for my next treatment. You are amazing, you rock, And I hope you're well enough to travel soon!

Hi Hannah I just wanted to say I think your beautiful and strong and that your videos definitely helped me when I had c.diff thank you for just being you 💜💜💜

Love you Hannah keep being the strong woman we all know and love❤

Awww you’re such a sweetheart. There’s always going to be haters complaining about anything and everything but that’s because they are unhappy with their own life so just remember that. You’re beautiful and stronger than that and that just means you have something they are envious of. You’re real, transparent yet positive. You’re beautiful inside and out and so strong. Keep on fighting beautiful girl! You’re amazing and inspiring. From one survivor/fighter to another ❤️❤️💪💜

Am here as your number 1 fan Because you are the bravest person in the whole world You are in my and my family’s prayers

Stay strong Hanna , I know it’s hard but we’re all here to support you .❤️🙃

Hey Hannah you would make an Awesome Cinderella at disney! We all Love your videos rambling or not don't change a thing. :-)

The haters are ridiculous. You don’t have to prove how sick you are or apologize for trying to enjoy your life while managing chronic illness. IVIG doesn’t get approved by insurance for someone faking. Insurance pays I think hundreds of thousands a year for ivig. That’s why it’s so dang hard to get approved bc they fight it no matter how sick someone is. So sorry you have to deal with those people. They are probably narcissists and get a rise out of reactions so just ignore them. Hugs Hannah. I enjoy your vlogs. Don’t apologize for venting or rambling, your supporters care for you and relate.

Hugs and prayers. You’re beautiful and REAL!! 💕

Continuing to pray for you! 💕

Your such a great person don’t let anyone get you down

Darling, just be you let the haters hate if they want to. You’re a genuine soul and those of us with EDS understand what you’re trying to do xxxxxxxxx

Peo are unreal!! I have some autoimmune diseases and some other stuff and some days I get sick & cant work. It’s def something some look down on me about, they do not understand! Screw them your one tough cookie and making the best of what you can! Your AMAZING!!!! So much love to you doll

I hope you are doing much better and feeling better

I’m glad the IV Benadryl is helping. For some odd reason opiates don’t really help my headaches no matter the type. Benadryl is my go to at this point sometimes with an NSAID. Head pain is so amazingly awful.

It’s okay I have migraines too. I feel bad for you that you have to go through all of these pains in your body but you are a fighter.

Currently recovering from Aseptic meningitis from ivig for common variable immunodeficiency. I also have hyper pots, mcas and cEDS. OMG it is so painful. Thanks for this video, I realize I am 3 years late but this is still helpful for me while recovering. Iv Benadryl helps because its an allergic type reaction. All the best.

Ohh a new video I love this I love you and your channel hope your doing better

You are so strong!

So sorry to see u suffering and don't worry you DO make sense!

I'm literally crying watching your videos. I wish I could help you Hannah. I would love nothing more to help ya. It's so hard to sit back and see someone struggling so hard. I've went threw a lot of hardships and pain in my life so I'm very sympathetic to what your going threw. I'm a recovering addict. I'm going on 8 years clean. I have Crohn's disease and IBS but it's nothing compared to what your going threw. I. The past I had to have my gallbladder taken out. I was going threw so much problems with my stomach and I couldn't figure out the cause. We'll come to find out it was because my gallbladder was three times the size and had thousands of gallstones. They ended up spilling gallstones in my stomach cavity. Then I ended up getting a horrible infection. I ended up healing up when I was hit with one of the hardest times of my life. I was taking testosterone pills and all of a sudden my doc took me off them. It was horrible Hannah. I had full on panic attacks that lasted for day. My BP was so high it would set the alarms off at the hospital. For 4 months I suffered from being super sick and having horrible anxiety where I didn't know what to do with myself. I have went threw some very tough times in my life but this is up there. I can't tell you how bad it was. No words could explain it. I felt like my body was betraying me and I was trapped. When I would have to go to the ER because I was so sick I didn't know what to do they would put me in a room 3 doors down from where I lost my little sister to herion. It made it worse going to the hospital having to relive that horrible day of seeing my sister dead in a hospital gown. The reason why I am telling you all this is to tell you that your not alone in your suffering. My heart really goes out to you Hannah. You're such a sweetheart. Your so beautiful inside and out and it's horrible you have to go threw this. I'm rambling on. I'm sorry! God bless Hannah!

Hi Hannah, I'm new to your channel and I admire your strength. You are in my thoughts. I'm sorry you are going through this. As well as my physical disability I do have stomach issues. I got an ulcer in my esophagus last year I feel nauseated more often than not. My physical disability is called cerebral palsy. I am confined to a wheelchair, but I do army crawl to get around. Most days are difficult, but I find peace in helping people feel better.

Be strong hope u get better btw i love ur videos

Hi Hannah 😊 I don't know if it is available on Hulu, but I really liked Turn. It is about Washington's spies. Keep up the good work you are doing! You always make my day with your videos. Greetings from Austria ☺

love you babe!! ❤

So sorry hun ❤️❤️

Love you're videos

Hannah stay strong and a amazing woman you are block out hate

Keep fighting sweetheart love from another spoonie with GP and multiple illnesses one is SFN and IVIG is treatment in USA & EU but no treatment in uk at all just left :( and 36 surgeries later Much Love from the uk 🇬🇧♥️🙏♥️xxxx

God bless you, stay strong.

You are so precious!! I’m late watching this. I do hope you’re adjusting better to infusions! Oh! I don’t watch scary movies or shows either. If something doesn’t bring glory to God, I steer away from it. Did you do better with your other infusion? I hope so! Thank you for sharing your videos with us! Love & prayers! ❤️😘❤️

@praisedalord58

5 жыл бұрын

Hannah, I’m concerned about your having diarrhea. I had C Diff last year but am in remission now, but hoping the doctor will test you for C Diff. I’m not trying to scare you, but I remembered you’ve had it before. ❤️🙏🏻❤️

Prayers sent hun hugs sent xx

Sending prayers.

Hugs. You deserve such a huge break.

Kim’s Convenience is funny & cute! One of my faves

I am praying for you and researching to find help and any doctors that can turn things around. You look better which is great 👍 I just saw your story in the news feed on KZread. 💜 U👑😊 FRIEND/ Young Lady keep focus on your journalism degree you’re great intelligent speaker

Here’s some good news I’m a kid I’m 11 and sure it might seem hard sometimes but you gotta push through it k and you stand out in the darkness you’re so happy and I like how you are and that’s the best

God is good keep praying he's always with you!

Stay strong girl.

Holy crap you've been through it, hope you are feeling a bit better. I have been shocked by the hate towards people with chronic illness but we should feel sorry for these people who get their kicks from spending time trolling chronic illness, what a sad and pathetic existence. Sending love x

This is what happend to me during IVIG too. I passed out each time. And was hospitalized each time after for aseptic meningitis. Drink lottttts of water to semi help the headache. We are pretty sure ive got Pots too. When I was in ER they put this med in my arm and I screamed, I'm not a screamer but it hurt soooo bad and It sucks to be in that much pain :( I'm sorry girly

Hey Hannah I hope everything goes ok I’m praying for you I know how it feels to be sick I have spinabifida it’s not so bad but I’ve had surgery for it around 10 surgeries and it’s life long

"I will not be defined by my illness" x 3. "I won't be defined by others" x infinity. I can't imagine a fraction of what you've endured lately. I can only take Tylenol or Zofran since my illness occured. The thought of even taking Benadryl scares the mess out of me. Praying this all clears up soon!

Hey Hannah I saw your story in inside edition I was really amaze and found you very strong women. Don't let any haters get in your way keep on being stronger and don't listen to them cause they are not as strong as you are Gö. Gïřl❤💕✌

I pray you feel better! Get some rest, love

Love you 😍 hope you get better god bless ❤️❤️❤️❤️❤️

Never give up!! Keep going!! ❤❤❤😁😁😀😀😀🤗🤗

hope you feel better

Hey Hanna I have to have a feeding tube too! I know it’s sucks 😕 stay strong! You’ll make it through this! Do you have any ideas of what can help the feeding tube?

I hope the doctors can find a cure Do not stop hopping You are so brave Get better

The act is is amazing

Hannah, we care about you and pray for you. Please just let us know how you are when you can, even just a brief comment. You stay in my prayers. I am a fellow GP sufferer and know the struggle is brutal.

Geez... The same darn thing happened to me. I'm a big 54 yr old male who's worked in construction my whole life and have had my share of bad injuries. Nothing brought me down like aseptic meningitis did.

Hey don’t worry about all them stupid haters your going through a lot and you don’t need to worry about anyone else hopefully you feel better and fight through this disease.

Hey I feel really sad that your not feeling good I really feel sad I hope that you get to feel better soon I am going to pray a lot so you can get better I really care a lot

I hope you get better soon

I feel ya on the being more afraid the test will come back normal. I have symptoms of multiple sclerosis and lesions on my brain but they don't wanna diagnose me just yet but my speech is getting worse so I feel ya being in medical limbo it sucks

@amandaanderson8254

5 жыл бұрын

@Senpais favorite yesss! I am going through the same thing! I will push harder. My mom really wants me to start a dmt cause my symptoms have seemed to worsen over the year. Prayers for you.

@shellcshells2902

5 жыл бұрын

Im going through the same thing!!!!! Demylenation in my spine and then transverse myelitis in the same area of my spine....2 events! Still no MS diagnosis but they put me on copaxone! Makes no sense and super frustrating!

@amandaanderson8254

5 жыл бұрын

@@shellcshells2902 yes! So frustrating I am going to demand to be put on meds I don't want what's happening to me to get any worse. It's scary when I can't walk right or talk. Prayers for you

There will always be hater. Just ignore them. I’ve had my plenty share of them

your so strong

The Goldbergs or Superstore on Hulu are some comedies you might like. I hope you get to feeling better soon!

I don’t understand how people can send hate, you’re such a lovely person. I love your rambling vlogs, I think it’s so nice to hear what’s on your heart without all the ‘fakery’ that KZread seems to be full of. I hope the symptoms of your IVIG, is just it helping your immune system to grow stronger, and everything settles down soon. I used to donate ‘blood products’ before I was on so many medications, I’m not allowed anymore. I always had a really high white blood cell count (thanks EDS!), and would be in and out in a third of the time of ordinary people! I wish I could come over and give you a hug. (I hope that doesn’t sound weirdly stalker-ish) Don’t feel any pressure to vlog if you’re still feeling horrible, I’ll be happy to just send you and your family good vibes and best wishes until I hear from you again.

Literally in the hospital 12 hours after IVIG day two with aseptic meningitis

I just had IVIG and had horrible reaction. I was so close to calling 911 in agony. The doctor said it was aseptic meningitis on my follow up, no test. Extreme chills, nausea, sensitive to light and agony pain in head throbbing splitting pain. The plan was to try again but only get one day IVIG per week. But, now after 4 days of the symptoms going away they have partially come back! Now I may not try IVIG for a while. I'm being treated for CIDP.

I was also scared that my GES would come back normal. It did. My symptoms are worse than ever but my doctor thinks I am fine because my scan looks normal. What happens with my stomach is food will stay in for multiple days then empty all at once, and that is what happened in the scan.

When I got ivig my headaches were bad so they slowed drip and much better. Always got premeds from day one. I don’t know why they didn’t do this for u

Hey hannah I have been watching catfish on Hulu it’s really good idk if u would wanna watch that other ones are the resident and the good doctor

My daughter was just diagnosed with PNH. She goes through treatment every week with weekly blood tests. I know it's tough.

Wow prayers honey

For IVIG videos you can check out Mary from the Frey Life.

definitely should watch Outlander !! very historically accurate

Amazon Prime has some good movies. 1. Six Dance Lessons in Six Weeks. 2. Railway Children. I love your videos. Ramble on

Omg headakes no fun😢😢 i get them almost every day.😢

Alright I'm texting you a show list stay tuned, it's long. I LOVE YOU

I hope you feel better Hannah. I'm praying for you. ☺😍 ....Netflix....give Maniac (2018) a try

I feel frustrated with my illnesses too. I need surgery but can’t until I completely stop fainting. I have NCS. The surgery is to help my CP.

Parks and rec is fo funny!

Zofran causes TERRIBLE rebound migraines and there’s a limit on triptans saying no more than 4 doses in two weeks. If you take it more than that, you’ll get rebound migraines. And even with that much Dilaudid...rebound migraines that feel worse than the original one. I’m sorry you were in such bad pain

Sorry to hear that the ivig caused you meningitis. That must have been terrifying! Hopefully by infusing much slower when you start back will help avoid any future issues! ❤️

Have you tried ingality it’s for migraines it’s been a life saver

I am new subscriber. Even though just found your channel I sending you my positive thoughts. I hate being nauseous and puking the most. I will have to look but I love hula and Netflix probably watch it more than I should. On Netflix recently star designated survivor it has 3 season similar to house of cards just not but not as many sex and murder sciences. You never have to justify what you are doing for your health the trolls will still complain. I have different chronic illness, IBD Crohn (other stuff) so I have had ng, j, g tubes, ports, lines, ton etc so different but relate. I use to have channel but deleted it two years ago because of trolls and security concerns. Thinking about starting again because I have recently been diagnosed breast cancer any my complex issues make this really scary. My first surgery was 1996 had bump road second surgery that did give me great quality of life for many years. I was able to go college graduate on time, internship, and financial management dream job so there is always hope. Disney is my happy place including cruise ships. Sometimes it feels like it rains when you have chronic illness and healthy people have no idea.

Hugs

My son just got IVIG yesterday and today has aseptic meningitis. Hes 2

I had meningitis in '88, SJS in '84 but I just learned that it was all due to Sjogren's Syndrome. I have been taking Low Dose Naltrexone (LDN) which is helping the symptoms of my autoimmunes. LDN is a compounded prescription that is an antagonist that helps your body to become balanced.❤️from West by-God Virginia

You should watch Lunatic on Netflix it’s extremely funny and raunchy

I start mine this week. But home health is doing it in my house. U should have a service dog. Mine is amazing ( his and my photo r my profile picture), he’s also my best friend.