"I feel like I have a whole new mindset going into 2021...hopefully...that'll probably last about five minutes." HAHAHA I FELT THAT

@Joy.Elizabeth

3 жыл бұрын

Yes!!!! Me too!

There should be special chat rooms or something for people who can’t sleep due to pain/medical issues. 😕

@Annie-A

3 жыл бұрын

I would appreciate that so much

@Joy.Elizabeth

3 жыл бұрын

Fb has awesome chronic illness groups. It def helps to have someone to talk to at 3a that understands.

@klara5069

3 жыл бұрын

Omg I need that

I'm so sorry for you Hannah. I wish you all the best for this year. Thanx 4 this update. 💕

I’m rooting for you Hannah!

Happy New Year! Hoping that this year will be better for you. What I do when I can’t sleep is listen to a guided sleep meditation video. Works great. I usually fall asleep within minutes. Blessings to you and your family.

Happy New Years 😁 I I can’t believe 2020 is already over, i love your videos and I am exited to see this one , stay strong !

@cathytestagrossa6198

3 жыл бұрын

Happy New Year. I hope 2021 brings you less pain n more happiness. At least you had time to be with your family, that's important. Im sure you'd rather be up n about. Its ok the vent your frustrations. We truly care for you. As for Christmas I was home with my kitty Cole. No presents here. Take care ❤ 2021 has to be better than last year.

Happy New Year Hannah🌠 We're all here for you❤🧡💛💚💙💜

Hang in there Hannah.. my 1 year old is also on Tpn.. and I’m praying she can wean soon.. I’m praying for you and I wish you the best. I can’t imagine what you’re going through but God has a plan for you. you’re so strong so don’t give up! 🤍

Im so sorry Hannah 🙁 you are continually in my prayers. I really hope this year will be better for u n soon!! 💜🙏🙏 praying for a good j tube, that it behaves n ur off tpn soon!!!

❤️ hoping 2021 will be your year to shine!

Happy new year 🥳 Sending you a virtual hug from England. Try not to beat yourself up for having to go on TPN for a bit, you got off it before and will again - hopefully your stomach can calm down and you can sustain yourself orally by the summer. (I’m doing so much better, I can hardly believe how far I’ve come in a year!)

I’m praying for you Hannah🙌🏼🙏🏼❤️ I hope it gets better ⭐️

Good to see you again Hannah 🙌

Hey, Hannah and Happy New Year to you and your family!!! Sorry, your not feeling well. Hope things get better for you. I know it's hard to keep a positive attitude while you're going through but, hang in there. Hopefully, 2021 be better and brighter year for you. Take care and try stay positive anyway.🤔😊🙏 🙏

Hi Hannah! I found your channel awhile back when I needed to learn how to cover my central line for showering. I really appreciate your video about that! It sounds like you’ve been through A LOT lately. I know what you mean about GJ problems always happening on the weekend! That’s when mine had problems, too - usually Friday night on a holiday weekend. The night before Thanksgiving, my GJ got kinked in my esophagus. It made a squeaky sound every time I swallowed. IR couldn’t fix it until the day after Thanksgiving. Anyway, sorry for rambling. I hope your TPN gets better, and that you can get your J tube soon!

So sorry for your sickness hope you feel better soon❤️❤️❤️

Praying for you Hannah.❤️

Rooting for you Hannah 💜

Sending healing prayers to you for a better 2021

Oh Hannah. I really hope and pray that this is sorted ASAP xxxxxxxxxxxxxxx

Happy New Year's Hannah God bless you

You have been going through it for years. I really really hope & pray things get better for you.

Please don't apologize for "negativity" or "ranting" or all that. It's actually really helpful for me to see you be honest about how much stuff sucks without having to throw it a "but it's fine" (sometimes it's just not). Your honesty makes me feel less alone. Thank you

I'm so sorry are you going to be ok God bless you 😔❤❤

I’m glad you’re uploading again! How do you feel? Sorry for the late comment it’s because I was logged on to my other account.

Hope u feel better soon. Hang in there Hannah

I am a boy watching and don’t give up keep doing what you love and keep on exploring and never ever give up

Hey I saw your channel on inside edition I hope everything will be better

Long time no see Hannah and I'm so sorry what you going through right now. I actually got a new game for my GameCube and an Xbox 360 for Christmas

Keep going Hannah!

I hope you’ll have better health in 2021 🥰

I hope you can get your J-tube soon. Thank you for talking about Drip Drop. I ordered the apple cider flavor and I’m so happy with it. I’ve wanted a hot electrolyte option other than powdered broth for some time.

@Joy.Elizabeth

3 жыл бұрын

Ooh there's an Apple cider one?! That sounds awesome! Thanks! 😊

May God bless you and make you healthy. You look like an angel😇

You are amazing! :)

God is always with the good people you are one of them so god is making a future for you and it will get okay 💖💖💖💖 keep doing what your doing

Happy New Year Hannah

@masworld9707

3 жыл бұрын

And Im Sorry To Heard That

@pameladickey3154

3 жыл бұрын

Pulling and praying for you every day. I am always so impressed with your candor and the sharing of your struggle. XXOO.

Feel better my dear friend

Hope you fell better

I got an early Christmas present of a gtube...my first one ever. I had complications and had to be admitted and have more surgery to get it replaced and close the hole in my stomach from the old one. For actual Christmas I got a tilted mattress pad for my GERD.

@guardiansanimalrescuestate7289

3 жыл бұрын

Why would they close up the other hole. They Always go thru the original hole in my stomach. I currently have a GJ tube.

@GelaMarie83

3 жыл бұрын

@@guardiansanimalrescuestate7289 it had completely detached and food and stomach fluids were leaking into my abdomen. I'm not 100% sure why, but there had to be a reason.

I’m going to subscribe because of your condition and also keep up the good work

Hi hope ur bk soon hope ur OK worry about u x

I never sleep like a normal human either . I do wish I could introduce you to my sweet grandson but he’s in Florida. Love to you Nana

@holiday-td6hx

3 жыл бұрын

Do any of us that have chronic pain issues sleep like normal humans? No, of course we don't LOL!

I hope that you have a Happy New Year? What does TPN stand for? The sad thing is that once you get a COVID-19 test and you are having medical issues and once they have determined that you don't have it or it is positive they pretty much forget about your other disabilities and you really don't get the real help that you do need because they are so focused on the COVID-19 that anytime you have a problem they don't check for other things that you could have along with testing for COVID-19?

Hello- have been going through your playlist cuz I have small fiber neuropathy and issues with circulation (though I don't have POTS). I remember a video in which you said you had venous insufficiency in your legs; what test did you say the docs ran to determine that? (I forgot which video you mentioned it in).

@SimplyHannah98

3 жыл бұрын

I had a hemodynamic & blood volume test which showed severe blood pooling in my legs. Hope this helps!!

Hope ur ok miss u on her xx

💕💜

We need to creep into 2021 like it's a new relationship... like 2020 broke everyone's hearts, and 2021 could potentially be "the" one, but we have to take it slow. I'll kick 2021's butt if it turns on us!!!

From inside edition

What kind of tube do u have?? I have a GJ and the first one came out of the stomach, but I’ve had this one for 6 weeks. If u don’t have a GJ then how can u vent to try to stop the vomiting. Why do u have to be in the hospital after a feeding tube?? Mine were outpatient. Well at least my Hickman is great. I’ve had this one for 6 months. Be careful with TPN and your Hickman. It’s very hard on lines. So I have a double lumin In which is great. I hope u feel better. Lesley and service dog Jake

@SimplyHannah98

3 жыл бұрын

I currently have a GJ tube. My surgeon only does inpatient straight J tube surgeries which is why I have to be admitted. Thank you so much!!!! 💗

So, what's a "Better" plan for a tube that flips? WHY do they flip (I'm asking because I don't know. Just found your channel. Interesting.

@SimplyHannah98

3 жыл бұрын

The plan is to place a straight J tube which won't flip however bc of COVID I haven't been able to schedule it yet (hopefully soon though). My surgeon and GI doctor both said they see it happen in gastroparesis patients who retch/vomit a lot which can cause the tube to migrate back into the stomach.

That is ridiculous they’d admit for TPN but not a less risky tube procedure. I hope you get back on feeds ASAP as it seems so silly to put you on TPN and potentially reduce GI function more.

For Christmas I got to come home from the hospital I had 8 inches of colon removed and ended up with c.diff yet again and had to go on 250 vancomycin instead of 125 three times daily but I'm thankful I survived the surgery since I've been sick now for two years

I am getting back on my TPN. I am really depress.

Have you tried the AMT GJET?

@SimplyHannah98

3 жыл бұрын

Yes, that's actually what I have now

I hope you get the medical help that you need to feel better!

I'm so sorry, I know I can't get labs, and I am "I NEED LABS TO LIVE HOW DO YOU KNOW I AM DOING WELL ENOUGH?" For me it is just, the fear of not knowing how things are going, for you it is pain and also PEOPLE NEED TO WEAR MASKS, it is shameful that people don't understand, if you don't wear masks and keep distant ... people that normally need medical care can't get in for the care they DO NEED. It's not just people with the virus that suffer, it's everyone else trying to get their normal medial care. Hugs and love.

What illness do you have that makes you unable to eat? It sounds horrible. Is it gastroparesis? I wish some doctor could treat the underlying illness in some way so you could eat normally and not have the need for a feeding tube or TPN. That would be ideal. I'm thinking about you and wishing that things improve.

@SimplyHannah98

3 жыл бұрын

Yes, it is gastroparesis. Thank you so much 💗

I’m also KZread or and I felt really bad for you

Why do you hate tpn

@cagrsarac2042

3 жыл бұрын

Because it comes with lots of risks like liver problems and line infection which can lead to sepsis

How come you only ever vlog in bed???

@SimplyHannah98

3 жыл бұрын

Bc I never get out of bed hardly lol

@rae1957tn

3 жыл бұрын

Because she’s very sick There are a lot of us with chronic illnesses and we do our best but we spend most of our time in bed. We would rather be up and going to Holiday parties and spending time with our families but we just don’t have the energy. I’m glad you have good health and energy enjoy it

@taylor.ebert35

3 жыл бұрын

What a luxury it must be to be able to pass that judgement!