Hey guys, it's been three hours since I put this video up and I can't even begin to thank you for sharing your stories and love. I am reading each comment and loving this strong community we are building together. I'm thinking about doing a how to dress when you're bloated type or video if anyone would be interested? Or maybe including something else too like how I pick yourself up? Let me know your suggestions - I would love to share anything I can :) (I have become quite the expert at dressing my basketball bloat if I may say so myself!) xxx

@riima87

7 жыл бұрын

Hi Amelia, have the doctors ruled out CELIAC DISEASE? It's a serious genetic autoimmune disorder where you are severely allergic to gluten. Even food that you are supposedly fine with can be dangerous if they were made in the same factory with gluten. Cross-contamination is a huge problem for Celiacs. That might be why it's so random, because you can't know which of your food might be contaminated with gluten. All your symptoms seem to fit, the stomach cramps, the exhaustion, the bloating. I read a story about a woman who've had stomach problems since she was little, she went to multiple doctors and none of them can find anything. They eventually told her that it's all in her head. But she eventually was diagnosed with celiac disease. I hope you feel better soon, Amelia! Love

@sheella113

7 жыл бұрын

Amelia Liana the most important we want to see is that you are happy and healthy! So please take care and we would love to see any videos you share to us

@rc2850

7 жыл бұрын

Thankyou so much for this video. I have been suffering similar issues for nearly 2 years and I am so so down about it :( but seeing videos like this really helps to know i'm not alone x

@sheella113

7 жыл бұрын

Rhianne Cutts although I do not know you, I would like to say "take care and hope you get well soon" God bless! You are not alone! =] hug!

@rc2850

7 жыл бұрын

sheella113​ thats really kind of you , thankyou:) x

So proud of you for posting this. I struggle REALLY badly with my stomach, I mean like, I cry and my family have wanted to take me to the hospital before because my bloating is so bad that I actually cannot move sometimes. I really struggle and like you, don't know what it is: some days it's pasta, some days it's bread, a lot of the time it's when I'm mega stressed but I do struggle so badly to the pointwhere my stomach is like a hard basket ball like you said and I look like I have twins, but it hurts so much right across the middle like I cannot breathe. It was so good to watch this and know I'm not alone. xxxxxxx

@yvetishere

7 жыл бұрын

i;ve got some issues too and reading this maybe see if you can cut out yeast, it's a big problem for me and when i dont eat any i feel a lot better

@Emshelx

7 жыл бұрын

+Yvette G yeh, I stick to my spelt flour and buckwheat and that doesn't seem to hurt! Annoyingly white rice makes me bloat now but as I said, sometimes it's fine and sometimes it's not so I have no idea!

@amelialiana

7 жыл бұрын

Em thank you so much for your lovely comment and sharing your story! I really appreciate it and hope we can figure it out soon :)

@Emshelx

7 жыл бұрын

+Amelia Liana we can figure it out, one day! Mum always says whoever comes up with the solution to tummy troubles will be a billionaire. It absolutely sucks - I even find water bloats me when I have too much! What are we like. Sending you so much love and you can always talk to me about this xxxx

@isahallgren9562

7 жыл бұрын

have you tried checking out IBS (irritable bowel syndrome)? i dont know much about it but i know it has something with bloating to do and it is quite an unknown thing. as said i dont know, but it may be something

Darling, i had similar problems with stomach bloating that would cause me such undue stress and pain. It sounds very very similar to yours. I couldn't work out what was causing it. Lots of people have found relief (like myself) with "The Specific Carbohydrate Diet". Wishing you so much health darling xx

Amelia! This video is so so brave. I've had digestive issues for over 10 years and none of my doctors ever wanted to help me because I was so young. Everyone's body is different, mine gets so much worse with stress and an unhealthy diet (plus I've noticed a few food items that triggered it) I've also found exercising really really helps. I was so embarrassed that I was the only one going through it and it would literally stop me from living life. I wish I had a video like this when I first started going through it. So proud of you, keep going and you will find either a diagnosis or lifestyle changes that will help you. Most importantly, don't allow this to control you. I lost SO much weight by allowing this to ruin every meal for me. It's a constant struggle but it will get better ❤️

I have 8 illnesses and have had chronic pain for 4 long years. I've had 4 surgeries since I was 16. Three of the four surgeries were for Endometriosis and one was a seven hour long splenectomy. Health issues suck wheather it's physical or mental health or both. No one else around me really understands it. It's awful to go through it alone. My mom and I feel like everyone just abandoned us because they couldn't understand what was happening. It's the worst feeling. As far as advice, I would say to keep searching for a doctor that LISTENS to you and makes you feel heard and not crazy. I've seen so so so many docors in the past 8 years. I used to go to the doctor up to 3 times per day, 5 days a week, every week. It's a full time job except I was spending money instead of making it. Also try to find chronic illness support groups online or in your area and just vent and talk and get advice and listen. Chronic illness sucks, but I promise you're not alone

@user-hn1ow4qz7p

7 жыл бұрын

Madeleine Gerlach hi there. How did your endometriosis surgery go? Was it to help w menstrual cramps? My doctor recommended it to me because I suffer from really bad menstrual cramps but I'm not v sure about it and whether it will get rid of my excruciating pains. Would like to hear how it has helped u!

@madeleinegerlach4854

7 жыл бұрын

All of my endo surgeries didn't help with the pain, but I've heard amazing results from other women. Watch the documentary "Endo What?" It's very informative and so true. The only thing that was helpful from my surgeries was the diagnosis of stage II endo. The thing that has helped me the most was a very specific kind of pelvic physical therapy done by a urologist. I did PT with actual physical therapists for like 2 years and got nowhere but Dr. Weiss helped me so much. Endo is a horrible disease, so I hope you don't have it. Do you have other symptoms besides bad cramps?

@thelubnaumar

7 жыл бұрын

Madeleine Gerlach I can relate to this ! I admire your strength!!! God bless x

@madeleinegerlach4854

7 жыл бұрын

Thanks!

@Tortnado1

7 жыл бұрын

You're not alone, Madeleine. (((( I feel your pain.

There's nothing to be ashamed about wanting a diagnosis, regardless of how sucky that diagnosis could be. I've been ill for five years this months and only last month was I actually told what was wrong with me. Test after test came back clear and I just got more frustrated because I KNEW something was wrong. I promise you, you WILL find someone who has a lightbulb moment and thinks about testing for something a little out of the box. Sending lots of love and good vibes. P.S. you will give up caring about talking about TMI things. Poop comes up all the time when dealing with GI things!!

@almoors1

7 жыл бұрын

BellaAtkins I could not agree more! A diagnosis is essential in my opinion. Without one, you are always wondering. There is also nothing wrong with "hoping" you have a particular illness, because you finally have an answer. I do not have gut issues, but I KNEW I had Multiple Sclerosis and no one would listen. I have also dealt with anxiety, panic and depression for over 25 years and all of my symptoms were dismissed as "stress related". Once doctors hear you have an anxiety disorder, forget it - they tune out and assume everything is due to stress. It took 4 years, an untold number of tests and visits to 19 different doctors and specialists, but I was finally diagnosed with MS 10 1/2 years ago and it changed my life for the better! So please don't stop seeking answers or allow others to dismiss your symptoms as stress or anything psychosomatic. I can tell you that having a definite diagnosis is life changing. Please keep trying and please stay positive, because the answer is out there. Someone will eventually have an "a-ha!" moment and all the puzzle pieces will fall into place. So much love and support to you, Amelia as well as anyone dealing with health issues be they physical, emotional or both xoxoxo

@IqraArshadBeauty

7 жыл бұрын

I completely agree with you about needing a diagnosis. It's just one of those things where you would want one. I've been ill on and off for about 3-4 years and I still don't have full answers. I have parts of the answer but I don't have the full thing and it's the worst thing not knowing what is wrong with you.

@Thea-gl9nx

7 жыл бұрын

almoors1

@mrswym

7 жыл бұрын

BellaAtkins agree so much about the TMI talk, talking about poop just becomes normal to the point you forget it's not the same for everyone...has lead to a few embarrassing conversations over the years 🙈 x

Amelia, have they tested you for Celiac Disease? I am 52 and wasn't diagnosed until I was 40. I went through all of the symptoms you are describing, including the testing for Crohn's plus endless problems with my reproductive system. Please insist that they test you and don't let them pass you off with anti-depressants. At one stage, I was put on lithium and told that I was bi-polar, only to nearly die from the medication. As soon as I was diagnosed, I was a different person within two weeks. Best of luck to you, my dear, and don't give up. ❤️

@RealJessiJackalope

7 жыл бұрын

I am so, so sorry to hear that you went through this. My sister (also celiac) went through a very similar experience. Even though she didn't show up as celiac on conventional tests, when she changed her diet as a celiac would, all her symptoms disappeared. I don't think the testing methods are sensitive enough sometimes. I really think your comment will help a lot of people so thank you for sharing X

@DollyDaydream20

7 жыл бұрын

they often eliminate this one early on when looking at intestinal issues.

@RealJessiJackalope

7 жыл бұрын

Hannah Galpin The testing isn't very sensitive though, unfortunately. My sister didn't test positive as celiac but her life and health changed when she stopped having wheat and gluten. Now doctors agree that she must have been celiac. I think it's quite a common experience.

@daniellereid01

7 жыл бұрын

Obviously, you didn't read the length of time that it took them to test me. From the age of 3 until I was 40, the medical profession turned a blind eye to my symptoms. This wasn't a case of 'old medecine' either, as I am in touch with countless people who are going through the same or similar issues today.

@isaleyvablog4522

7 жыл бұрын

I was 'diagnosed' 4 months ago, I suffered everything you suffered Amelia! I swear I was so TIRED of not having an answer and even when the doctors talked to me and said that I might have the celiac disease everything changed. I changed up my diet + got an allergy test and even though I am now really restricted on food, I feel better than ever. And don't settle for only one test, I got a negative result on the first one and a positive on the second try, because my doctors were pretty sure I had it because of my symptoms.

I have ulcerative colitis, which is a sister disease to Crohns. It's awful and I wouldn't wish it on anyone. Prayers for you, sweet girl.

@Fawnandluis

7 жыл бұрын

Jacks Lorraine I have crohns too. wouldn't wish it on my worst enemy. Hope your keeping well x

@melissahorbal8780

7 жыл бұрын

I have UC too. What diet do you follow? Also have you tried LDN, it did wonders for me.

@Devise2bWise

7 жыл бұрын

Jacks Lorraine Crohnie here! I'm on Instagram @thecrunchycrohnie... When were you diagnosed? What meds are you taking?

@melissahorbal8780

7 жыл бұрын

1999 only LDN

@Devise2bWise

7 жыл бұрын

melissa horbal how long have you been on it and how has it helped? How long did it take to work? Did you have kids and nurse on it? If I ever have to get back on medicine I will do ldn. It's so cool you answered me!

Hey Amelia. I don't usually write comments but I had a similar story to you. I got really inconclusive answers from specialist gastro consultations who ran lots of tests and found nothing, then I went to a new GP who took a regular blood test and found my liver function test came back deranged so re took the blood and found my bilirubin was spiked really high. He diagnosed me with Gilbert's syndrome. At first he said this had no symptoms bar jaundice so to me this didn't explain my symptoms (just like yours) and I was at a loss. But then I researched the syndrome and found a forum with people who also had the diagnosis. They all reported similar symptoms - IBS symptoms such as bloating and stomach pain, nausea, fatigue, foggy mind and difficulty concentrating. Apparently a lot of GPs aren't aware of these symptoms as they just learn about it through a textbook. But everyone out there with Gilbert's report the same kind of symptoms. It may not of been picked up with any blood tests you've had because it flares up and down. Triggers include stress, lack of sleep, irregular eating. There is no cure for it, mostly because as far as doctors are concerned it has no symptoms. So really the diagnosis doesn't help except for putting a name to a multitude of symptoms. You may not read this, but if you do its at least another potential option you could research. All the best

@kathyprice1674

7 жыл бұрын

Hmmm, you may have diagnosed my daughter for me. Thanks for giving this info to Ameilia, because it may help me with my daughter.

@wendybee8854

7 жыл бұрын

I couldn't see the end of your comment. But that is interesting because my husband has that and was told there were no other symptoms besides whites of eyes being a little yellow and high bilirubin. He doesn't have any other symptom, very healthy.

@kathyprice1674

7 жыл бұрын

I noticed when I read comments from any youtuber that it doesn't show the entire comment. I'm not sure which comment because I kept adding. Lol. But, a probiotic helps. I buy Primal Defense by Garden of Life. Google it for a good price.or if you have a Vitamin Shoppe brick and mortar store is where I buy also. It was recommended by my doctor and if you take it faithfully like I should, it does help. My daughter says it helps her too. Of course yogurt has the good bacteria in it, but, a probiotic I think works a lot faster. I was also saying have the doctor check your vitamin levels too because, I find that I'm low on D, B12 and I take supplements. I hope this helped. Take care.

Have you ever considered doing a full blood panel? I know you've probably already gotten one for food allergies but they can test for every type of food out there as well as medications, chemicals, ect. that you might be allergic or intolerant to. They can also test for things like hormonal imbalances or for other chemical imbalances in your body.

@nikkiponcsak

7 жыл бұрын

My friend got this done and it helped her out immensely!

@Theddrako888

7 жыл бұрын

Where do you get something like this done at?

@MegaUnfunny

7 жыл бұрын

I doubt the NHS do this, where can you have it done where it's reliable?

@lalabanana108

7 жыл бұрын

I'm fructose and sorbitol intolerant too. It took almost 18 years to found out, I went from doctor to doctor and nobody knows about that this time I guess. The last two years of not knowing about my intolerance I spend almost every night with my head over the toilet and crouched on the floor for hours. I couldn't live a normal life back then. I went almost crazy not knowing what was going on and some people thought I overacted and it is my psyche that caused my pain. And the most people I know also just know about lactose intolerance and not about fructose and sorbitol, especially 10 years ago. ( and sorry, english is not my first language ;) )

My heart breaks for you. I was diagnosed with Crohn's at 20. Even now I still feel betrayed my body and the lack of control has been as much of a challenge as the physical symptoms. I was underweight with all the symptoms you describe. I remember the doctors thinking I was anorexic because I had started to avoid food all together because it hurt. I was so relieved when I got a diagnosis. I cried when you described your disappointment at the lack of a diagnosis. I understand the food obsession. So much socialising is done over meals and food is so difficult for me. I have some foods I can eat some times and not others. I have difficulty with high fat, even good ones like avocado, and high fibre but I need enough fibre to keep things moving. TMI SENTENCE---Bloating, noises, diarrohea and constipation- not ladylike or pleasant conversation. I have all of them and they are not romantic either. Thankyou so much for making this video. I was so lucky that a girl in my younger sister's year had been diagnosed and her family supported mine. Mallory1712 has some brilliant videos on chronic illness, she had Bechet's, and Hank Green has some on his ulcerative colitis too. Just thought they are part of the You Tube family too. Take care and strange as it may seem, as with all adversity it will strengthen you. I learnt never to take good health for granted, the importance of friends and family and it taught me empathy and patience. You are in my prayers and I wish you strength for your journey and that you find answers.

@pinkhornet8737

7 жыл бұрын

A website I recommend is www.ibdsucks.org It really helped to have a place to talk "ick" stuff. It is no longer active but has links to other helpful stuff.

@Tay-ns5hf

7 жыл бұрын

Pink Hornet has she got Crohn's disease?

@abeeralsaleh9817

7 жыл бұрын

A video on how to dress if you have a bloating stomach can very useful. Love you💕

@pinkhornet8737

7 жыл бұрын

***** She tested negative for Crohn's disease but has similar symptoms.

@betterworld2958

7 жыл бұрын

Pink Hornet did you ever do a parasite cleanse or take food grade diatomaceous earth daily?!!

This video broke my heart a little bit 💛 something like this going on this long must be so painful. A suggestion to try..Have you tried a plant based diet? Before everyone jumps on this comment attacking saying I'm being a "preaching vegan", I'm really not, it just genuinely really helped my body. I used to suffer from the WORST stomach cramps..felt sick after eating and soo lethargic all the time, I also didn't go to the bathroom for days at a time (sozz, tmi) but changing to eating plant based has honestly changed my life. For myself it was eggs and dairy that effected me the most, I'd have a slice of cake or a latte then be doubled over in pain later. Doctor after doctor just said it was IBS and gave me some pills but tbh they made me feel even worse, kind of gave me that foggy feeling. I did bloat out for the first week or so after changing my diet, but after it just fixed me? It's just something I'd really recommend giving a go. I hope you find the answer soon💛 big loves xx

@ebonyrose5430

7 жыл бұрын

Same here! I used to be vegetarian but dairy triggered my IBS symptoms so going vegan really changed and improved my digestive health issues.

@ebonyrose5430

7 жыл бұрын

I still have it from time to time but it's a lottt better now!! It's also cleared my acne and helped regulate my periods so blessed :')

@jayde2707

7 жыл бұрын

+Ebony Rose oh my goodness yes! I complete feel that, my periods FINALLY became regular! & I rarely suffer from period pains etc anymore, it's definitely bettered my cycle. & my skin has never been better too! :) xx

@ebonyrose5430

7 жыл бұрын

***** stop what?

@luceknightley7128

7 жыл бұрын

Spot the vegan 😒

I met Amelia yesterday and she was honestly the most lovely, kind person! Thankyou so much for sharing your health update, it's so inspirational to hear such honesty! 💜 we love you Amelia ♡♡

@amelialiana

7 жыл бұрын

Oh my gosh Kate!!!!! You are the sweetest! Thank you so much for commenting it means the world :) And for coming yesterday! I showed Estée our video haha! Hope you had a great evening xxxx

@katepadiachy3264

7 жыл бұрын

I'm rewatching this video and absolutely blubbing! 😭 you're so lovely Amelia!! Thankyou for being so nice yesterday ☺️💜

I have gut , stomach issues as well. Last year I was just like you . I've seen so many doctors and they couldn't help me . I've tried so many things. So many diets. I couldn't drink tea , coffee for months and it was so frustrating cause its a huge part of my life. Idk what changed but I'm good now. I drink tea , coffee whatever I want. I don't do any diets. It just fly away. But that time I was so desperated and sad . I'm sure yours will be fine too. Just try your best , be positive about it.

@Zazo777y

7 жыл бұрын

what have you done to recover

@aichanoor

7 жыл бұрын

Azza Mohamed as I said I don't know what helped me. I can't say a specific thing .

@enchanted222

7 жыл бұрын

Try reading the book Tummy Love on Amazon or visit www.tummy-love.com. It has some useful information. Hope you get well soon. :)

@aichanoor

7 жыл бұрын

Clair Summer thank you!

Hi Amelia. I really hope you see this. I recently went through the exact same symptoms that you're currently suffering. I've been to a gastroenterologist and had all the necessary investigations (if you know what I mean lol), and nothing came up. No crohns, fructose intolerance or anything of the sort. Low and behold I was suffering horrendously not just physically but mentally. One day I decided to cut out oatmeal and oats in general..after a week ALL my symptoms had vanished. Turns out I have an oat (and corn) intolerance. These intolerances create what's known as 'delayed symptoms'. I've noticed in your What I eat in a day videos that you do consume oats. I suggest cutting them out and seeing what happens. You must stick with it though! As the symptoms present for a while after you stop consuming them all together. I know how mentally taxing this is but we will figure it out. I wish you the very, very best xx

@ashleebeecroft7938

7 жыл бұрын

I've also starting taking a probiotic specifically for IBS. A good probiotic is a good avenue x

@katherinec1003

7 жыл бұрын

I went gluten free about 8 years ago, and all of the recommendations in the US say "gluten free oats" are OK for celiacs. But the reality is that even "gluten free oats" aren't really gluten free. They don't have cross contamination from other gluten grains like wheat, but the protein in oats themselves is molecularity so similar to wheat gluten that some countries recommend not eating oats at all if you're gluten sensitive. Rye and Barley are the same way, and for some reason the US classifies those as gluten grains, but not oats. It's super frustrating b/c even though people are starting to understand gluten free in the US, I still have to explain "I can't eat oats, even "gluten free" oats". People often rely on the gluten free label, and since the US thinks oats are gluten free, people have gotten me lots of special food (which is super sweet of them!) that I still can't eat. It also means that unless a bakery commits to not using oats at all, even 100% "gluten free" bakeries are still probably cross contaminated (for me anyway).

@janellemonique

7 жыл бұрын

Ashlee Beecroft which probiotic are you using?

@ashleebeecroft7938

7 жыл бұрын

janellemonique I'm using Ethical Nutrients Inner Health Plus with IBS support :-)

@ashleebeecroft7938

7 жыл бұрын

Katherine Landreth it's a pain isn't it!! I can eat other gluten products (ie: I eat rye bread everyday) but that dang protein in oats is the real killer for me. At least I'm not alone!

Amelia - 10 years of me struggling with bloating, farts, pooping 40 times a day, hundreds of hospital visits, countless steroids, a diagnosis of Ulcerative Colitis- I am currently in hospital AGAIN.. this time the most serious time of all - my large bowel is now being removed.. and I never thought I would say this. But I can't wait for it to go. No more pain. No more diarrhoea. No more low iron, no more blood transfusions.. I am having this blasted bowel removed and yes I will have a stoma - a bag.. but 10'yrs of suffering will be gone. You're not alone, there are thousands of us suffering. Please push for a diagnosis. Chron's isn't what you want, neither is ulcerative colitis.. both horrific illnesses.. medication for both are awful. Whatever it is - I wish you so well my dear xx I will try and keep strong here in hospital. Whilst I await my major surgery.. Xx

@adahena89

7 жыл бұрын

Stina Egeberg I hope your surgery goes well 💕

@UGAgradRN

7 жыл бұрын

@Debbiesdilemmas

7 жыл бұрын

Stina Egeberg I completely understand what you are going through. I have Crohn's disease and have just had my fifth abdominal surgery. At 22 I got my ileostomy and it has truly been a lifesaver. I understand Amelia wanting a diagnosis no matter what it is as once you have an answer you can start the treatment. But she truly does not want to have UC or Crohn's disease. They are a nightmare. I have suffering so much over the past 36 years and I wouldn't wish it on anyone.

@carolinelvsewe

7 жыл бұрын

My daughter had ulcerative colitis and 14 yrs ago she had her colon out. She now has two children and lives a very normal life. Nobody wants to go down the surgery road.But it is amazing what can be done. She HAD been with symtoms since she was 16. in horrible pain on her wedding day. With UC eating all the best fruits and veggies are your enemy. It is a young persons disease mostly, so don't ignore it. All the best to Amelia Liana and you Smokeythelovable!

@summersalix

7 жыл бұрын

I hope the surgery goes well! I'm gearing up for my ostomy soon as well... Scared as hell and praying it'll give me relief

sending you all the love in the world!

@ssand6949

7 жыл бұрын

MrJovitageorge

dear amelia :) I have stomach issues for more than 10 years now and my cramps happen on a daily basis. A lot of it is psychological in my case but not all of it and no doctor had an explanation so far. I kind of know what you are talking about and I know that it is so deeply frustrating since it does affect your daily life in such a painful and annoying way. Stay strong though. You only get what you can burry and always know that you are never alone with your issues. Im sending you a big hug (and if your bloated belly touches me that's okay ;)) A lot of love from switzerland

@pascalew.9995

7 жыл бұрын

*carry not burry 🙈

Just want to say how amazing you are for powering through this struggle and for sharing! It honestly REALLY helps and I can't thank you enough. I'm someone that has had undiagnosed neurological problems for over a decade, and I know that sometimes the hardest part isn't even the symptoms but just the not knowing. Though I'd say the actual hardest part can be the feeling being alone, like you said. Even though each disease or disorder can be totally unique, it's so refreshing and comforting to see someone go through similar struggles and share it publically. Best of luck for a diagnosis, Amelia! And if not, you continue to be the amazing and strong you that you are.

I know exactly what you are going through. I had all of the same symptoms you do and all of my tests came back negative. I went through 4 doctors and I felt like all of them thought I was crazy! The 5th doctor finally did an endoscopy and took biopsies and I finally found out I had celiacs disease. When they had done the blood test before for celiacs it came back a false negative. It can be so frustrating. Every time a test came back negative I would break down and cry also because I just needed to know what was wrong! You are not alone ❤️

@jeviahjagers6923

7 жыл бұрын

yes! celiac disease is misdiagnosed so often, it's so sad!

@lannapeanut

7 жыл бұрын

I know quite a few people who have had the same thing happen, and had to endure years of pain and not knowing what was wrong because of it. Doctors should stop ruling out coeliacs based purely on blood tests.

@rainhamz

4 жыл бұрын

What symptoms did you have if you don’t mind me asking? Just because so have been suffering for a year and have fatigue, acid reflux, indigestion, and I’m stressing so much dunno what to do?

@rainhamz

4 жыл бұрын

And sorry I’m 3 years late 😂

Amelia, have the doctors ruled out CELIAC DISEASE? It's a serious genetic autoimmune disorder where you are severely allergic to gluten. Even food that you are supposedly fine with can be dangerous if they were made in the same factory with gluten. Cross-contamination is a huge problem for Celiacs. That might be why it's so random, because you can't know which of your food might be contaminated with gluten. All your symptoms seem to fit, the stomach cramps, the exhaustion, the bloating. I read a story about a woman who've had stomach problems since she was little, she went to multiple doctors and none of them can find anything. They eventually told her that it's all in her head. But she eventually was diagnosed with celiac disease. I hope you feel better soon, Amelia! Love

@powderandpaint14

7 жыл бұрын

I also wonder if you could have celiac disease, it would definitely be worth asking to be tested.

@olivial1743

7 жыл бұрын

That's one of the first things doctors check for though. Also, she did have a gluten free period, and I think she still eats gluten free most of the time

@powered1234

7 жыл бұрын

Also low iron and tiredness is often associated with celiac disease as well. I was just tested for celiac recently!

@aliceguy1808

7 жыл бұрын

My daughter has coeliac disease and had problems with bloating, tiredness and anaemia. It can be tested with a blood test. Even going gluten free doesn't always solve it because there is so much hidden gluten.

@lamaalkahtani5750

7 жыл бұрын

riima M yh Amelia ask your doctor to perform celiac disease tests. It's very common. Keep in mind IBD, IBS since you've got a strong family history. 💔

Last April I was diagnosed with ulcerative colitis and IBS and I had no one to talk to about it. It was so horrible. Websites can only offer so much support. It's nice to see you in your raw form because this shows me I'm not alone and that it's okay to feel this way. I will be praying for you, you are so brave. I hope you find the answers you are look for and I hope that you become healthy and start to feel more like yourself again. You're in my thoughts and prayers. Sending lots and lots of love and support your way.

@adriarichman2156

7 жыл бұрын

Hi Mia! I just read your comment and wanted to say I have ulcerative colitis as well and know how isolating it can feel to have a digestive disease that most people don't know much or anything about. Are in you the US, by chance? If so, the Crohn's & Colitis Foundation of America can connect you to local support groups where you can meet people in person to discuss what treatments you're on, what you've been struggling with, etc. I live in mid-Michigan and have found a group in my area that I've enjoyed meeting with.

@cscotcher

7 жыл бұрын

Hi Mia, I just wanted to reach out and say that I too have ulcerative colitis. I was diagnosed two years ago after a pretty arduous couple of months with no answer and some pretty serious weight loss. I completely agree with you that this disease is isolating (most people don't really like advertising their digestive problems to the public), but please know there are a lot of us out there all dealing with the same struggles. Hope you're well!

@katherinemosquera2732

7 жыл бұрын

Another UC person here! The struggle is so so real. Thank God, I'm okay at the moment but I've had some really dark times since I was diagnosed in 2013. It's so reassuring just to know that there are more of us out there. I just wish we could all be less scared to be open about it :/

@loolootee

7 жыл бұрын

Another UC person here. Diagnosed 7 years ago. It's a horrible illness and doctors are clueless and unhelpful and it's hard for people to understand because you look so normal on the outside.

@hoooooolley

7 жыл бұрын

I have microscopic colitis, bit different to UC but it's nice to know I am not the only one that feels alone with it. Not sure if that makes sense but I don't know anyone else with colitis and no one i know has any idea about what you go through because you look fine. I often can drop 5kgs (7-10pounds) in a bad time and i get so many compliments from people, but I feel like absolute crap.

I'm so sorry you've been having such a difficult time Amelia! Keeping you in our prayers and hoping for a smooth better recovery. It was so nice of you to let us know what's been going on with you, that took a lot of strength and courage. Feel better!

Heya, firstly my heart goes out to you and i hope you start to feel better about all of this soon. I'm so glad you did this video. My sister was struggling with colitis for such a long time and didn't have an answer for so so long. she felt so alone and felt that no one understood and she just wanted answers. Back then i know if she saw a video like this it would of lifted her spirits just knowing someone understood and especially a female going through a similar situation. I think you are going to help comfort so many people with this video. Thank you so much for sharing xxx

God Bless You Girl...I was diagnosed with colitis over 10 yrs ago. Luckily, with the 2 first tests, I knew what was wrong. So many people do not realize how disruptive gastrointestinal disorders are. I have to take 2 horse pills 3 times a day, my chances of getting colon cancer r very high, stomach pain daily, yearly invasive tests, always watching what I eat, & I stopped drinking alcohol - which helped immensely. I will keep u in my prayers. You are stronger than you think. XOXO

I had these symptoms and looked for answers for years. I got so many tests done and felt the same way that i wanted an answer. Eventually, and by accident, we found out that my gallbladder was infected. After removal, my stomach has slowly gotten better, even though I still eat healthy and don't have dairy (people with gallbladder issues get affected by certain foods). The thing is, no one thought it was my gallbladder, as i don't have any of the risk factors for it. It may be good to get an ultrasound higher up just in case, and sending you love and strength at this time.

@MsPoochiee

7 жыл бұрын

Grace Alberti thank you for sharing

@mifermen

7 жыл бұрын

I had exactly the same! and they removed my gallbladder and I am fine now :-)

You are SO strong!! I deal with similar symptoms (though not as extreme) due to my PCOS, so I can understand how difficult bloating, and pain to certain foods can be! Keep up the amazing work and I hope you find relief from your pain soon!!

I've had digestive issues for the longest time. I suffer from bloating, loud stomach noises, wind, diarrhoea and all of that good stuff. I really appreciate that you did this video because it is something that people are usually embarrassed to talk about and I always felt like the only one but reading the comments I can see that I'm really not. For me, I'm still doing tests but I've cut out of my diet lactose, fried food and fructose and I've found that it has helped me improve my symptoms. I also try to avoid acidic things like tomatos and soft drink. Good luck to everyone with GI issues! I feel your pain.

PLEASE DO A TIPS/OUTFITS/ HOW TO DRESS THE BASKETBALL BLOAT.

@amelialiana

7 жыл бұрын

Would anyone else like to see this? It's something I feel like I've learnt a lot about so I've been thinking about doing a video!

@madihamumtaz3389

7 жыл бұрын

+Amelia Liana Yes please

@sophiasmith6111

7 жыл бұрын

+Amelia Liana yes please !!!! Have this issue too . I have joint hypermobility syndrome and pots - which means all my organs are too stretchy and I can't digest my food ! Xxx

@carashannon7450

7 жыл бұрын

Amelia Liana yes! 💕

@SafiyaetMarwa

7 жыл бұрын

+Amelia Liana yesssss i have crohn and would love this kind of video too xx

Hi Amelia, just wanted to thank you so much for speaking out in such a raw, unedited way when it comes to your health issues. I'd been struggling for the last 8 months with my issues getting really severe in the last month and a half - two months and yesterday I was finally diagnosed with mild chrons disease and severe irritable bowel disease, separate to the chrons. I can tell you I know exactly how it feels going to each and every test and praying that's what you have to you finally have an answer and can do something about it. It is so debilitating and isolating having IBS problems, especially when you're young, and you feel so alone. I can't even tell you how much stress and fear of judgement used to affect me, but yesterday I finally opened up and told everyone about what had been going on and what I had been diagnosed with! I really hope that they do find out what's causing your issues. I was lucky enough to find an amazing specialist, I hope you do too!!

@catherineemerson8004

7 жыл бұрын

Severe irritable bowel syndrome****

@victoriabrown2437

7 жыл бұрын

It's so true, you do feel scared and alone. And out of control with what is happening to your body. I'm so grateful I found this video, and see that other people are going through such similar issues. I wish you the best! Keep going. everyday is new dear

I used to have something very similar! I changed contraceptive pills and it went away. Could it be related to your hormones or your birth control? Hope you get it sorted girl

@ebonyrose5430

7 жыл бұрын

It sounds like it could be a hormonal imbalance issue or a digestive issue like ibs to me

@alessandrawhittingham6866

7 жыл бұрын

Lucy Moon Me too! I've been in the same hell. I remember reading that going cold turkey on antidepressants gave off something (idk) but as soon as I went back on them, after six months of hell, it immediately disappeared.

@AmeliaMurrayMusic

7 жыл бұрын

Lucy Moon would you mind sharing what birth control you were on??

Thank you for sharing Amelia. I do struggle similar issues. I can say that I'm bloated everyday and this is so uncomfortable and embarrassing and it stressed me out. And the worst part is when you think of it, and your stomach bloats even more... I'm relieved to know that I'm not the only one. And I hope we will both get better! If you have any update to provide us, do not hesitate! Lots of hugs,

I'm so proud of you for posting this! You have so much courage and it's going to help not only yourself, but people that are going through something similar. Love love love love you!!!

Awe Amelia this was so brave and honest, I'm crying with you... I remember breaking down in front of my GP due to the horrendous symptoms my chronic IBS & Pernicious Anaemia gave me.. The debilitating pains and episodes, and the helplessness I felt as I went through test to test, diet to diet, seeing no improvements. They are the invisible battles I've had to live with, and fight against my entire life (mine is hereditary), so I feel all of your sadness and frustration. It is so brave of you to talk so honestly and openly about this, and let people know that they are not suffering alone! I truly hope and pray that you'll find the balance you'll need to strike, in order to be on the road of a full recovery. 💜

@VanessaTA7

7 жыл бұрын

Sorry to hear you have not been feelings well. Talk Becky Talk is also another KZreadr that lives in England and she was also miserable with stomach issues and frustrated because she didn't know what was causing her so much stomach pain until she found out she has Celiac Disease. You should go check out her videos.

@daivatenyte3198

7 жыл бұрын

Vanessa Arrazate

Thanks for sharing this, as you said it helps when you realise you're not alone. To Amelia and all the people here that are suffering from some kind of condition: don't give up, fight, be strong, we can do this! Lots of love and positive vibes from Spain.

Oh Amelia. Please let me give you a huge, huge hug. And again thanks for sharing such personal things to us, and I just want to say that it's not easy to overcome situations like this, but we're all here for you spiritually to support any time you feel weak or emotional. Go girl, you can fight this!

I am so sorry Amelia for all that you are going through. I don't struggle with gastro-intestinal issues but my husband was diagnosed with ulcerative colitis about 2ish years ago, so I can somewhat understand how you are feeling. Stress was a big cause of my husband's flare ups and and last year he was at home sick for 2 weeks and lost 35 lbs! It was incredibly scary but thankfully he has been able to manage his stress levels and hasn't had a significant flare up since. I pray that you will regain your strength and health and that you don't encounter anymore doctors who don't believe you (i bet that was SO frustrating and discouraging). Best wishes! xoxo

@loganranhofer6957

7 жыл бұрын

I forgot to say that my husband decided to not take any medication for the colitis because of the scary side effects. So if you can go the natural way through health supplements, diet, and find a great holistic doctor you can trust, I highly recommend it.

@MaddieImogen91

7 жыл бұрын

+Logan Ranhofer my sister also has ulcerative colitis. It took her years to finally get a diagnosis but unfortunately she wasn't given one until she needed an emergency ileostomy. Stress is definitely a huge factor in gastro-intestinal related illnesses! Hope that your husband is keeping well! xxx

@enchanted222

7 жыл бұрын

That is a great attitude Also, check out the book Tummy Love on Amazon or visit www.tummy-love.com. Some great info to help with digestive illness and keep you healthy. Best wishes. :)

Oh Amelia, I was diagnosed with an auto-immune disease about three years ago and I know your pain. The doctor kept misdiagnosing me and I finally broke down in the office and cried and begged them to test for anything because something was wrong and they weren't fixing it. You aren't alone. You aren't alone. You are NOT ALONE.

Bless your heart! I really do feel for you but so happy things are getting better for you. I had a similar thing, with a skin condition on my face, of all places and no one knew what it was and it just got worse and worse. I was so self conscience! Finally I found the right doctor and it went away more or less over night!! It's just finding that right person to help you xx

Thank you for making this video, I have gone through the exact same psychological roller coaster, but for headaches/migraines instead of stomach problems. For about a year I was so fixated on figuring out what was causing my migraines, and nothing seemed to be the cause. And you are so right, stressing about fixing it did make it worse and I just had to accept its just the way it is. It is very very comforting to hear Im not alone. I hope you find peace and get some answers! Sending all my love.

Thank you for this. I've been going through a similar situation with stomach issues and no one talks about it.

@MsPoochiee

7 жыл бұрын

Riseandshine same :(

@annemuth1318

7 жыл бұрын

There is a huge community that does talk about it, you just have to find them. Look up functional medicine, leaky gut, autoimmune disorders and I'm sure you will find a lot.

@18daisydoll65

7 жыл бұрын

Anne Muth I have psoriasis and I've found lots of useful advice on KZread. Even after years (35) I had never been told that what l had was an auto immune disease. The psoriasis is just the last symptom and it starts in the gut. Check out Jon Maddison's videos on curing psoriasis if you're a fellow sufferer. All the best everyone.... Also research candida

hey amelia! I had the exact same thing in my last 2 years of uni :( it was awful, and i would feel so embarrassed especially sitting in silent classrooms and your stomach starts making extremely loud noises for no reason. I too told my doctor and she said it was stress 100% which didn't help anything. but what I did found helped was taking breaks (e.g) going on holiday and actually DOING NOTHING... (I noticed, for you, even when your on holiday you're making videos and blogs online). Also, what helped (This may be WAY TMI) was getting in a regular pooping schedule, like every morning

@franthomas23

7 жыл бұрын

AND, relax on your diet! I too got soooo obsessed over things in my diet, (still am) but i've totally relaxed... However I do stay away from caffeine (this includes TEA and COFFEE... which i found out I'm allergic to! But also, caffeine interrupts with your pooping cycle, it's super annoying LOL

@Lovecove4

7 жыл бұрын

your situation sounds similar to mines. My stomach makes this crazy loud noises and I have gas all the time. :/

Thank you so much for sharing your journey. I identify by experience everything you’ve shared. It means much. You begin to question and requestion yourself, what’s wrong with me? Why can’t I stay awake or function normally, so frustrating and depressing, in addition to others not really believing you.Thank you. You’ve helped me not feel as alone and awkward.

Thank you so much for sharing this. I went through some similar issues a few years ago so I totally understand your frustration with not having a "label" to know how to solve the problem. I've found that eating gluten-free is what mainly helps me and I've definitely become that picky person ordering at a restaurant or the one who always wants to cook as healthy as possible. I'm really happy you've found a balance and that you're feeling a little stronger! xx

hi sweetheart, i feel you so much. I had a lot of horrible symptoms (feeling sick, stomache problems, feeling dizzy, depressed etc.) for 3 years and just got my diagnosis 3 months ago. It was a shock but still I was so happy to finally have a name to the problem. Its so scary not to know what is wrong with you and you kind of just wait for things to get worse so finally someone will take you seriously. My disease is called hashimoto thyreoidites which is a autoimmune disease where the body attacks the thyroid. Maybe this can help you, if there is anything I can do for you or you have any questions let me know. x you will find out Amelia, dont lose your hope. :)

Awwwwww be strong, love!!! We're always here to support you ❤️😢 always hope for the best for you and your health!!

I went through something similar to thing a few years ago. I would suddenly have the worst stomach pain, terrible bloating, gas, etc after eating. I went to a few different doctors, blood work, X-rays ... so many different tests, medications for what they thought it was but ending up not being correct. I got so frustrated not knowing what was wrong, especially because it wouldn't happen all the time! I then kept track of when I would feel sick, and what I ate. I figured out it was dairy, and at 23 I became lactose intolerant! Your so brave for sharing your story, and such an inspiration! So many people go through this struggle! Your not alone!

I've been struggling with random stabbing intenstine pain and feeling absolutely drained some days. A lot of my family members are gluten intolerant/dairy intolerant/have celiac disease and chrons as well as thyroid issues. Thank you for sharing your personal struggle - it's encouraging and inspires me to look into my own health issues and try eating healthier. I hope u get a full diagnosis soon, Amelia!

When I was 21 I went through a very similar experience with similar symptoms. No one could figure it out but I literally couldn't eat or function sometimes for days. It wasn't connect to food or really anything it seemed. Once I was out of college, it got even worse because I was job searching and didn't have a car so I couldn't even see my friends or boyfriend unless they could drive 30 mins to me. I felt like a failure on all accounts and even when I finally got a job, I was calling in sick for flu like symptoms several times a week. Finallllly I found a specialist who knows the ins-outs of IBS and immediately upon touching my stomach area knew what was going on. Turned out my family has a history of anxiety induced IBS and I just needed to learn how to deal with that in a way that worked for me. I still have bad days, but I've been significantly symptom free for 3 years now! I know you'll find what works for you

@imaneoui2494

7 жыл бұрын

i have ibs too :( it's really frustrating when i have exams , my marks dropped just because of that

@anisahussain8993

7 жыл бұрын

TotallyToastyAr

Hi Amelia, are you in or are you considering therapy? The digestive system is very related with psychosomatic disorders. I would highly recommend you do. All the best x

@miadogcorgi8638

7 жыл бұрын

somatic. histrionic person. maybe she has a eating disorder, bulimic. never mention being scoped .

I can't begin to thank you for sharing your story. Your complete list of symptoms are my symptoms. Many many doctors, many many test and no answers. I have done ever type of blood test, scan, tubes up and tube down and no answers to the pain, bloat, and sick feeling in my stomach. I have cut out all process foods and pretty much live on a vegetarian diet. Only to find the foods that are best for me are still causing major bloating, fatigue etc etc.... I am still on the hunt for answers. My issues flare up all to frequent and hold me back from living and enjoying life. I hope you do future updates !!!

I'm not going through health issues like this, but I think we can all relate in terms of almost everyone having some health issue they are dealing with, be it physical, mental, emotional or any mix. I really admire you for being so brave and open about it. It's helpful even for someone who is not fighting the exact same battle, but is seeing you being so willing to share about your own.

So proud of you for making this video!

Stay strong Amelia... Focus on getting your health back to optimum level... 2 years ago I woke up in severe pain all over my body after a severe case of food poisoning, overnight I was diagnosed with rheumatoid arthritis and was looking to spending the rest of my life on DMARDs and medication usually associated with cancer patients. I felt my whole world crumbling around me, and felt isolated and I have 2 small daughters... I was not willing to take any sort of medication and went to see a naturopath and I started my journey of completely overhauling my diet and I can tell you I am pain free and living life without any drugs I understand I was given a diagnosis, but I was so focused on getting myself better and determined I did it.... sending you love Amelia and I pray for your health and recovery xxx If you can I strongly advise seeing a naturopath Amelia it helped so much and look into Leaky Gut Syndrome (Dr Bergman on YT is great) try do as much research as you can x

I hope you are getting better every day! I totally understand what you are going through. I just recently found out I have colitis and it took forever to diagnose. They told me millions of different things and I know how frustrating it can be. I hope you get the answers you are looking for ! Love you ❤️

So proud of you for sharing your story, i have struggled with problems with my stomach as well, and the mental part is the hardest. You are so brave Amelia, thank you for bringing awareness to the problem, and for being honest. I love your channel, and i have been watching it for 2-3 years now.

I know the feeling of having something wrong with your body and doctors not giving you a diagnosis.. It's the most frustrating thing ever. You're so strong for making this video

hi amelia :) I have crohns disease and I know what it's like to suffer with stomach issues. it's rough and lonely. if you need anything or need to talk...I'm here as are many :) much love.

@daniellemg8967

7 жыл бұрын

also.....you're not offending people with crohns at all...I felt the SAME way. it took months to get me diagnosed.

@Devise2bWise

7 жыл бұрын

Danielle Grondin Crohnie here!

@betterworld2958

7 жыл бұрын

Danielle Grondin try food grade diatomaceous earth ! Chrohns may be linked to parasites that cannot be tested by a stool test

I think it's great you're being so open about your struggles with your health but know you're not alone. I think its been about three or four years now that I've been struggling with my stomach and have experimented with different diets, medication, exercises etc and I totally understand how stressful you're finding it. To be told to simply stop being stressed is hard when most of us encounter it every single day and it just can't be turned off! I hope you find your answers soon - I think I've got mine but diagnosis really is just the beginning of the journey. Stay strong!

Thank you so much for sharing what you've been going through! There are alot of us with gastro issues and it really affects every area of your life when you're going through it. I'm so glad that you're figuring things out, everybody is different so it takes time, but you'll get there - BIG hug and best of luck hon!

I may be wrong, but have you looked into or eliminated other things this could be? Such as female issues, like endometriosis. It can also often feel like stomach pain, and bloating is very common. It just seems a bit weird that you got digestive problems out of nowhere. Read up on endometriosis, it's symptoms are often tricky, and takes a long time to diagnose.

@emiliebouchard5594

7 жыл бұрын

Want to stress this advice too! Endometriosis can cause adhesions to the intestines causing symptoms similar to IBS. I know how hard it is jumping from one doctor to another as I have had to do the same with my endometriosis (one doctor even said that the ultrasound showed I had a benign tumour.....), but a good doctor knows to believe the patient and to do multiple and different tests to rule other things out.

@Keepinitreal55

7 жыл бұрын

Emilie Bouchard Yes! Sadly it's still a very ignorant world when it comes to endo, even though millions of women have it! It's a man's world! I myself was told by just a basic gyn that everything was fine. Until I went to an endo specialist who was able to diagnose it and palpate it. Endo can come with a ton of different symptoms. Some feel nothing, others get excruciating sharp pains. So I suggest everyone who has any menstrual pain at all, to be vigilant, read up on endometriosis.

@samiabamia

7 жыл бұрын

Hey hoping to get your advice! I have the worst version of endometriosis its adneymosis. But the doctors or hospitals haven't offered any treatment and just said I just need to be on pain medication when I come on my period. Is that normal? Are they meant to offer a treatment?

@samiabamia

7 жыл бұрын

I have the worst pain ever on my first day! I can't move and have to stay in bed and my period is super heavy.

@emiliebouchard5594

7 жыл бұрын

Samya Sul I'm sorry to say this, but it is difficult to give specific advice like what treatments and such since we don't know your medical history (and please don't overshare this history as it is a very personal thing!). This is because every person is different and sometimes advice from the internet can cause more anxiety and harm than good. Everyone has a different body and every endo will be different. Some people will react well to medications like Visanne and others not. It depends on the placement of the endo and a bunch of other things. Some people have co-morbidities like PCOS. Some people only need a laparoscopy for endo. It really all depends on the individual. My best recommendation would be to seek out a professional OBGYN that knows endometriosis well as that is their specialty. And if you are not satisfied with the doctor, try seeking a different one - get a second opinion. This illness is not easy and needs multiple treatments sometimes, but remember that you are an individual with individual needs. I'm sorry but that's the best that I can do. :)

Hi Amelia, honey, I am so sorry. Have you looked into endometriosis? When you get a chance, look into the symptoms - I know my SILs scaring actually went into her intestines & it was hard to diagnose, she barely had menstrual issues. I was dx with MS almost 10 yrs ago & it was frustrating with all the appts & walking out feeling confused, disappointed & helpless. Continue to be your own advocate - you're doing a great job so far. I'll be keeping you in my thoughts & prayers. I'm sorry this has been so hard for you. xo

@JennV-B

7 жыл бұрын

Jennifer Micek I had a bunch of ultrasounds (external and internal) and other tests (MRI etc) to see if I had endometriosis because of my symptoms and each doctor said nope it looks clear everything looks great. Then because of another Chronic illness my doctor decided to do exploratory surgery and guess what?!? I think you guessed, but I had a ton of endometriosis all over the place. It can attach to your organs and web together and honestly they often don't see it unless they open you up. Which sucks. My surgery was three years ago and painful to heal from since they removed and burnt off so much and apparently it could all be grown back by now so eventually I'll need another surgery. My mom had this too. More importantly though, I'm so sorry to hear about your health situation!! Wish there was something I could say... sending you lots of positive vibes!

@KissesNaomi

7 жыл бұрын

I was going to suggest the same thing - a family member of mine experienced the exact same symptoms and it was endometriosis attached to her bowel etc

@ValElle

7 жыл бұрын

That's what I was going to say. The symptoms vary.

@drina4706

7 жыл бұрын

Great suggestion!

I just found this so encouraging. Health struggles take over our lives, because we are just trying to survive sometimes! Overcoming anything is usually done one step at a time. I sincerely appreciate your open heart about this. It really does help me! Blessings to you!

So powerful to share your vulnerability with so many people this way. We all love you so much, and we're here for you ♥ I'm sure that you've been told with any type of auto-immune disorder or issues you described, one of the biggest symptoms is negative self-talk. Make sure you're taking time each day to do something powerfully kind to yourself, full of compassion -- meditation, journaling, a walk with your favorite drink. Find the support you want from others and give it to yourself as often as possible because your condition can be almost worse on the emotional mind than it is on the body. Love love love.

Oh, Amelia!! This killed me. I'm a nurse (pediatrics), definitely not an expert, but I just wanted to say that there is a widely-held misconception in medicine that GI issues can often be tied to psych issues or even drug-seeking... so I can imagine it can be difficult to find a professional who is a good listener, especially when your symptoms aren't present on examination. It's impossibly frustrating to hear from someone in the medical profession that you're "just overeating" or that it's all in your head, etc. Keep seeking other opinions, continue to do your research on professionals and find the right doctor for you. Someone who is willing to hear you out. AND KEEP TAKING PICTURES. Also, it may be a bit hard to find, but there are pockets of the internet, especially Instagram (try #spoonie), of people with chronic illness (GI included) that are very open and friendly. I follow a young woman, Sara Ringer, on social media (she has a YT channel, but does not regularly update) and she has a wonderful, personal yet well-researched blog about her journey with Crohn's, gastroparesis, and more. That may be a good place to start!

Hi Amelia, it was so consoling to view this video. I have had the same thing for years, seen multiple doctors and gotten no results except for a diagnosis of IBS. This is really frustrating because I am in medical school and can't even figure out what it is. I have tried numerous diets, cutting out grains and sugar worked for me, but sometimes I still have flare ups. I am currently trying Colostrum with is a 30% IgG immunoglobulin, you can find it at health stores. This has worked wonders for the pain and bloating. Maybe give that a try, keep in mind though that this is a more holistic approach which may not work for everyone (same with the diet). It has been a good lesson for me, someone who is so scientific minded to reach out and integrate different types of medicine. I hope you find some relieve.

@jackiesmith4167

7 жыл бұрын

Relief lol stupid autocorrect

Thank you Amelia for sharing your experience. What really hit home with me was when you were hoping it was Crohn's so you could just finally have an answer. It's so frustrating and I know the feeling... it is totally understandable. Sending love your way and I hope you continue to feel better and figure out what your body needs.

Thank you for sharing this! I, too, have struggled with undiagnosed digestive issues for the past 10+ years. And like you, there's no rhyme or reason and the severity of the symptoms come and go. Praying we both get answers someday.

I didn't know much about this. But I appreciate you, for sharing. Its so awful. But, I hope you know we are all here for you. And will continue to support you always. Keep smiling amelia 😚

I sent a mail to Amelia just in case she may miss this among all these comments. I'm also pasting the mail here so it may also help someone else. "I stumbled upon your health update video yesterday and I felt obligated to write to you and tell about my mother's story even if there is a remote chance that you have the same condition. About 7-8 years ago she began to have a really sharp pain in her stomach with a really bizzare swelling in the abdomen. It was jus like how you described, not like regular bloat, stiff like a basket ball. Also the pain was intolerable. Sometimes lasting for days. She couldn't walk or even talk. She went to at least 5 doctors. She was diagnosed with many things, infact those were not diagnosis, just guess work. They though it was her kidneys, her liver, intestines etc etc... Nothing worked. She endured that pain for 8 months. Then the 5th doctor just asked her a few questions and said that it was FMF, short for Familial Mediterranean Fever. This condition is almost impossible to diagnose with traditional testing methods. It is not even show up in ultrasound. And it is treatable. Now my mom is taking a pill everyday and she never experience any attacks. I dont know if it is your case or not and I heard you said that you gave up finding a name for your condition. But it is really crucial to treat FMF so you may consider asking your doctor about it. By the way this is a hereditary condition, doctors may overlook it in England, since it is quite for from being in Mediterranean, but since your family is originated from around here you may have this gene."

Amelia I'm so sorry about what you're going through. You are not alone! I've been struggling with stomach problems as well and I've lost 10 pounds over the past year. I'm currently facing body insecurities because I hate knowing I'm not at the weight I'd like to be. Also, my symptoms get pretty bad sometimes and luckily I got an endoscopy last week, so hopefully I'll get an answer. I hope that you find answers to your stomach problems as well because I understand how frustrating it is not knowing what's wrong with your body. Just know that we are here for you and you will get through this. ❤️

Thank you for talking about this amelia even though it was really hard! Having a serious illness when you're in your early 20s is not really relatable for a lot of people and can feel so so isolating. I'm 25 and last year I had a serious bipolar episode, was hospitalized and ended up needing to recover at my parents' house for nearly a year. It was so hard to talk about with most friends as they had nothing in common with what i was experiencing, and on top of that I had suddenly changed from my old bubbly self due to heavy medications. Thankfully I'm much better now and have gotten back to socializing and working, but thank you for speaking out, it really means a lot. We who are dealing with terrifying, heavy health stuff that is out of our control are not alone!

I know I've already said this but I really am so proud of you for posting this. 💗

So brave, Amelia! I'm sure this will help lots of people, it's really selfless of you to share your story and to talk about your health in the hopes of making others feel less alone

I'm SO sorry to hear about this! My boyfriend has been diagnosed with Crohn's two months ago after being in constant pain since march, so I totally understand how frustrating this must be for you. I'm keeping my fingers crossed for you, just know that you're never alone xxx

You poor thing I was filling up watching this. My sister has huge issues with digestion, slightly different to yourself but I can see how much she struggles with bloating and the stress of eating so I really feel for you. I'm sure your video will really help a lot of people who could be suffering from similar things. I think you're doing brilliantly dealing with this. I hope you continue to make progress and things get easier ❤️❤️

Do you have another update? I have a very similar problem and I'm currently under investigation 😞

My best wishes for you, lovely!

I am so sorry you have to be going through this. I have had stomach issues my entire life and its so frustrating and not fun at all! I found if I take a all plant and food based probiotic it helps but I do think a lot of mine also stems from stress. It's so frustrating and I am so sorry you have to be going through this. Thank you for sharing your story. You will help more people than you will ever realize.

Amelia THANK YOU so much for sharing, I have the same exact symptoms. I've had them for about 14 years (I'm 25 now) and no doctor could help me. I finally went to a nutritional therapist, so not a nutritionist but a nutritional therapist and she found ALL of my food sensitivities and a few other things. Not knowing what's wrong is the worst of it. It may be Celiac or it may not, my sensitivities and allergies don't have a name but I'm taking different minerals and it's helping- the bloating has gone an I have some more energy. I hope this helps in some way. You are amazing and an inspiration, thank you.

i'm sure you have but have you been tested for celiac disease? thank you for sharing your experience. it sounds like a lot of people are also suffering without any answers. i wish you all the best

I've struggled with this for years.

My husband has such similar symptoms!! It affected his job and he was in so much pain. We thought he had Crohns but it was ruled out so he doesn't have a name or specific way to heal it either. It's gotten a lot better recently, thankfully! A few things he's done to really help has been cutting out gluten (probably the biggest thing that's worked), juicing in the morning to slowly get the digestive system moving, eating cooked veggies instead of raw, and cutting out a lot of protein/fat because it was so difficult for his body to digest. He avoids small seeds (like in strawberries or chia seeds) because he was told they can get trapped in the stomach lining and cause pain (I think this is called leaky-gut). Also, he notices when he eats smaller meals throughout the day, grazing instead of three large meals, that seems to help a lot, too! I hope you feel better soon! Love, hugs, and prayers!! xo

I can totally relate and just hearing you talk about it even though I have been through something quite different but the not knowing what it is frustrating bit is the worst thing to go through because no one understands and there were points when because of everyone I would check with myself if it was all in my head. Then there was the misdiagnosis that only made things worse. Now finally going through treatment is scary in itself becasue its one of those things that has so many side effects that take a toll on you so you can't really tell if it's working or not untill they test you again. Feels good just venting knowing that people may understand.

Ever since I can remember I always had gas/stomach problems. I would have gas 24/7 and my stomach would make this loud obnoxious sounds. I never knew why. I live in America and both my parents are mexican. So just imagine two of the world's worst "diets" full of meat, dairy, eggs, fat, sodium, and other horrible products made with man made chemicals. It was a nightmare. Until I stumble upon the vegan diet and I'm so glad I did. It's been half a month on this new "diet" and so far compare to my old "diet", the level of gas and stomach noises has decreased dramatically. I still have a little bit of gas and stomach problems, but I do think it has to do with bad food combinations. Anyways, So far I love not having any digestive problems and I don't ever see myself going back to a damaging diet.

Please tell me you have had your ovaries and womb checked. Just from experience a friend had exactly the same issues, and it turned out to be a cyst on her ovaries, not connected to your stomach but bodies can work in very odd ways!

This video is so important! I am not alone and so are you! I've had stomach issues for years and it's so painful and uncomfortable! I understand what you mean about the diagnosis. Even though you're waiting for a diagnosis that could be bad , it would be better than not knowing.

Bless you, I know exactly how you feel! It is so frustrating not knowing what is going on with your body. And the stress of not knowing makes it 1000 times worse and you end up getting more bloated and uncomfortable! You are not alone at all, I found doing yoga and relaxation techniques really helped as tummy troubles are related to stress and anxiety. I also found cutting out gluten really helped too! Stay positive and remember you are never alone with how you are feeling!! Sending love 💕

plz search up john bergman on youtube. his videos have helped me a lot! he talks about all this and how all the problems relate to the gut. watch his videos and it will help you. we need to seriously look at what we eat and the things we are exposed to. vaccinations and antibiotics break down the immune system and pesticides also weaken the immune system. these all affect the gut. hope u get better soon x

@s.b9118

7 жыл бұрын

i have allergies caused from leaky gut due to all d antibiotocs i was on when i didnt knw theu were dangerous. i was even given a 2 month prescription for antibiotics from a well known harley street 'dermatologist' for a few spots and it wasnt even acne i had it was related to my immune system but she gavee a lot prescription which is ludicrous!!!! why would u give antibiotics for a few spots?? obv i trusted her as i didnt know any different. she is a fraud and had no clue yet is all in the magazines giving her 'advice". anyway this caused all my allergies i now have and leaky gut. also have underactive thyroid from being on d pill. guys seriously think bfre u put all these unatural things into your body. these so callled docs and specialist have no idea how to cure you they dont care its all about money to them. you need to look at the body as a whole otherwise u will never get better.

@cristhabellechua780

7 жыл бұрын

i was about to reco john bergman as well...he has a website too and a toll free number...you can try to consult him...hoping for the best amelia...be well...

@ellenbarrett8967

7 жыл бұрын

belle chua That's

This comment is going to be SERIOUSLY TMI, but i just thought it was worth mentioning. I have had nausea, lethargy and bloating for the last 3 years and i have so many different labels for what i had, until i got an x-ray on my stomach that showed i had so much backlog (poop...) in my colin that it had actually stretched and the muscles around my stomach were so weak that there was nothing that would 'move it along'... There are other problems too, but that seems to be the main issue for me. Not sure if you have been tested for this or anything but it is worth a shot

@rubyomh

7 жыл бұрын

by the way, other symptoms include, acid reflux, chest pain and inability to sleep

@MegaUnfunny

7 жыл бұрын

Do you know how it got into that state??

@rubyomh

7 жыл бұрын

I had chronic fatigue and i couldn't move much for over a year. but i apparently have a tendency for this to happen to me anyway and it can stem from other things

@melissadzaferagic

7 жыл бұрын

Ruby Herman same problem...I was having diarrhea for years because that's all that could fit around my guys full of hard stool...I take morals daily as prescribed and changed my diet a lot and has helped a ton...also tmi lol

I've been dealing with exactly the same things this entire year. It's been almost impossible to go to uni and work because of the pain and I've even avoided social activities, which is tough when you're a young adult. I've had so much blood taken, stool samples, diets, allergy tests, and ultrasounds. And frustratingly, still no results. And I felt exactly the same way with the negative Crohn's result - I just wanted an answer. It's really hard. Thank you so much for making this video. You're so brave for doing it. It's made me feel that I'm not alone. :)

Such a great video, I'm so sorry that you've been going through this & I really appreciate your honesty, I've actually been able to take some things that you have said & im going to try & add them to my lifestyle as I do have some quite severe health problems & anything that may help or make things easier can only b a good thing! So thanks for being so honest & I really do hope that u start to feel better soon & can get back to being yourself xx

My boyfriend went through a horrible time, he was being rushed to a&e because he would keel over in stomach pains, there was no pattern, he was also bloated and they told him he was having appendicitis, then another time he had gall stones, it was all to do with his intestines and gut, then he went to get a endoscopy camera down his throat and the doctor found out his vila in his stomach were all stunted and they confirmed he was coeliac and couldn't eat gluten or wheat! They went through all these horrible things and then finally it was something so manageable! Maybe ask for them to check your vila.

@mazzofazzo9030

7 жыл бұрын

He never had appendicitis or gall stones! Also he was tired all the time and skinnier in the rest of his body as the vila were stunted he couldn't take in nutrients.

@8hotchocolate8

7 жыл бұрын

that would be the villi in his intestines and that would be a camera through the back passage ...coeliac disease does not affect the stomach.

@nikcsi21

7 жыл бұрын

I had a small intestine endoscopy through my mouth for celiac... not the back passage

Your symptoms sound a lot like Irritable Bowel Disease. This is a sort of 'non specific' disorder that presents a lot like Inflammatory Bowel Disease (Crohn's and Ulcerative Colitis) but without any of the changes that they see on tests. Unfortunately the medical community know very little about what causes this and therefore there isn't a lot that can be done. The recommended management at the moment is diet (which you are obviously working hard at finding what works and what doesn't for you), so I just wanted to say all your hard work isn't for nothing!

@emilys7078

7 жыл бұрын

PS. I am a medical student and I have this condition, so I know a fair bit about it :)

@TanyaNandykazi-VelvetPetals

7 жыл бұрын

Emily, I was just thinking the same thing. I'm a dietetics student so we definitely touched base on this. I have a feeling that it could possibly be Irritable Bowel Syndrome too (if there's no rectal bleeding involved)... the chronic abdominal pain and bloating may point to this! Hope you feel better Amelia! If it could be stress, maybe try out Acupuncture. :)

@WellHello1993

7 жыл бұрын

The rectal bleeding can be from hemmorhoids, too. The bleeding doesn't have to be caused by UC and Crohn's

Oh bless you! I'm so sorry you are having to go through this! I just found out my 1 year old has a severe milk and nut allergy 2 days ago so this video really resonated with me. hang in there and I hope you feel like yourself again soon.

Hi Amelia! I'm so sorry this journey has been so frustrating. I cant even imagine! I suffered from similar stomach issues and I went to see a naturopath. I actually had bloodwork done to test for food sensitivities (not allergies but sensitivities). I tested highly sensitives towards SO many things. It was no wonder my body was so bogged down fighting to digest all of these foods. I'm sure this is something one of the many doctors you've been to have discussed - but I wanted to mention it just in case it could help because it's something that really helped me. Thinking of you and sending positive vibes!

It is most likely not this, but I wanted to mention it just in case. Have they scanned (CAT scan) for cancer? my mom had Ovarian cancer with many similar symptoms except with the addition of nausea. None of her doctors did a scan of that area so she had to take herself to the ER because she was so sick and that's where they finally diagnosed her. Like I said it probably isn't this but you may want to get scanned to rule this out

@BubblyBeebers

7 жыл бұрын

just wanted to add it had spread to her stomach which is why it caused all the stomach issues

I know exactly how you feel, I've been through the exact same thing about 3 years and remember feeling so relieved when I was diagnosed with Crohns but it is a horrendous disease and I've had to have major surgery because of it that effects me every day so please don't wish for this terrible disease 💗 I hope you get an answer and relief from your pain 💗

@hazeltetsill459

7 жыл бұрын

I have Crohns too! I wouldnt wish it on anyone but I completely agree, it's a relief when you finally have a diagnosis and a name, from then on you can focus on treatment. Hope you're well! :)

@pinkhornet8737

7 жыл бұрын

Another Crohn's sufferer. While I wouldn't wish it on anyone, I can remember feeling relief at a diagnosis.

@lchung13

7 жыл бұрын

I rather have Crohns than not knowing what she has.

Hey Amelia I am so sorry you've been struggling with this! I have acid reflux and ibs and i've been there 100%. It is a so hard to deal with when doctors and many people around have no idea how to help you. I feel for you with the bloating, my stomach gets like that for random months at a time and it is so hard to feel confident and wear clothes because they don't fit. I used to eat like you before I had to change my routine as well. A lot of people always tell me it could be worse but that the worst part about it! No one knows the symptoms you are dealing with and how they personally effect you. It's really upsetting but I'm glad you made this video because I feel less alone and I know a lot of other people feel that way too.

I have Crohns and know just how it feels to be embarrassed by symptoms and feeling "needy" around others. Its a long journey! Im so glad to hear you are starting to get there. I cannot stress the value of psychotherapy ENOUGH. Its not always fun, but therapy feels GOOD. It has helped me so much. Good luck! Reach out for support and help. Don't try to do this alone!