Hope you enjoyed this episode! I received lots of great feedback after airing it. I'd love to hear what you thought. Leave your comments + questions below :) And if you want more information on this topic, check this out → www.skinterrupt.com/?s=lichen+sclerosus

I have lichen sclerosis. I was diagnosed in my 50”s. All through the years I thought I had yeast infections but all the tests came back negative.

I was on clobetasol for 6 years, having been diagnosed with LS in 2014. In 2020 I became so weak and sick in so many ways that after 1 1/2 yrs of being sent from one specialist to another and a pile of tests, I was sent to the Mayo Clinic in MN. I tested positive for Secondary Adrenal Insufficiency. One of the endocrinologists I worked with afterward threw a fit and insisted my SAI was due to the Clobetasol ointment. It was immediately stopped & I was told never to use it again. I was left on my own, though, to find other options. I researched and use an assortment of natural ointments and creams. And my GYN doesn't even see any white patches now. I use Aquaphor, coconut oil, emu aid, several ointments from Perrins natural products - and especially their pure 'soap' (lots of women with LS use products from Perrins). No baths. Showers only. Women need to be careful about using the Clobetasol. SAI is a terrible disease to live with.

@MoonBeam0906

6 ай бұрын

I feel like the clobetasol cream makes it more painful. I’ve been icing myself every evening and when I have bad flare ups. It gives instant relief.

Im greatful i grew out of it by forth grade , my mom took such good care of me with not knowing what it was an searching for anwsers. I had to wear dresses bc of always having pain , she put creams on me , oat meal baths , an helped while i cried all the time . I pray for adults suffering with this.

@jeanluby4636

10 ай бұрын

No young child should go through this. What's with these doctors?? Because we are females we often don't count. Only the male gender is important. Just look at all that we women go through in this life!!

@lindakautzman7388

9 ай бұрын

FERMENTED FOOD IS A CRITICAL TO GUT HEALTH. BUMMER.

@jeanluby4636

9 ай бұрын

@@lindakautzman7388 Are vaginas considered a gut?

I had a biopsy done in early 80's when i was 35. It didnt bother me for many years. The last 3 years it has returned with vengeance. I have tried many topicals. I only use globe when the itch surfaces. I had labia fusing , so i saw gyno. He confirmed i have ls and wants to c me again in 6 months, because it can turn into cancer. I was celibate for many years and dr said i shouldnt have waited so long to have sex. My mother died when she was 75 and had told me she was a virgin again before she died. I wonder if she had ls also. When i was 71, i could feel there was something going on in my vagina that felt like palpations. So after that the ls showed up. Good luck to anyone who has this. I can say that there was a period of time in my 40's i did KM for my verigo and did not have any ls symptoms. I did KM for many years and at 50 i did hrt, in measured doses for 3 hormones. No real problem. It got worse with the stress of retiring and 24/7 with my husband. Ls. Has been around 10 years and has gotten worse each year. Divorced for 6. He said i was making it up to avoid sex with him. Lol. Almost wish it was contagious so he would shut up. 😅

Yes I think this is what I’ve got ,,been to the doctor nature path and even went to emergency as the pain was so bad,iam 69 and have done the boric acid now going to try the progesterone cream ,so hope this helps ,,great video

This video is literally my answered prayer!!

Can you just give us a list of what to do ? I just want to know what to do.

A great video, I have battled with this! It started with scalp issue and I was diagnosed with Lichen Planopilaris. After that upon reading info I feel I have an issue with the mucousa - mouth and vagina. No one seems to want to deal with it. I read one thing that said diet doesn't play into it and yet I know acidic/spicy foods irritate my mouth. I recently worked with functional medicine dr and eating keto, went off my Lipitor as I felt that was a source of inflammation. A lot of my body inflammation has subsided but my mucousa is still having issues. I do take Dapsone 25 MG and have various Betamethosone ointments for mouth and vagina. Clobetasol solution for scalp. My general outer skin not an issue other than being dry. I went to a new Dermatologist and she is sending me to get checked for lichen schleroderma

WHAT KIND OF ESSENTIAL OILS COULD BE USED IN THAT AREA?

I went to a low carb diet and I use Tamanu oil, Emu oil, and if I ever have itch (which is rare now) I use Sovereign Silver Gel. Sometimes I just mix it with the oil and apply everyday. I'm in remission.

Thank you! Have been diagnosed for the last 10 years after a biopsy. Im only in my early 30s and had it in my 20s

@zazaiwon87

2 жыл бұрын

Same here

@iamsewsketchy9402

2 жыл бұрын

Same. 😿

@amandabarnett1047

Жыл бұрын

Same

This disease is pure hell. I have it, and I am also diabetic, so I don't heal well.

@jenfugo

3 жыл бұрын

Thank you for sharing your experience... While I do not have LS, every woman I know with it would agree 100% with your statement. It's incredibly difficult on multiple levels to deal with

@romeliaarmstrong6143

2 жыл бұрын

I also have lots of varicose veins underneath

@Ola-1114

2 жыл бұрын

Yes I agree, it is hell.

@lenaparnell2417

Жыл бұрын

I have had it for about a yr & was diagnosed by my gyno, I’m also a diabetic too, it’s very painful & depressing. I’m 76 & am a widow so I’m not sexually active, It also has affected my mouth also (lichen planus). It’s the pits. I’m thankful for this channel & others like it.

@varishabharath3048

Жыл бұрын

I was diagnosed recently 😔 it's pure hell .... I'm also diabetic so I agree...this makes me so self conscious 😔😔😔

Is it okay to drink kombucha? There is a lot of conflicting information out there

I had never heard of Pro Biotic and my grand daughter used it I used it. After 6 months I now have LS. Just curious. ???

Retired nurse, I am suffering the worst flare up I’ve ever had, spent 2 months adjusting my diet ( which usually works) finally became so desperate on day 3 of a 30 day water fast ( not advising anyone else to do it) slowly starting to see very slow progress, made an appointment to be evaluated by a Dr who does acupuncture ( the only thing my Dr recommends is Clobetasol , which does nothing 😑

@EightySixReasons

28 күн бұрын

try diaper rash cream sold for babies but it definately helps when it becomes irritated

What is called the treatment? I understand “jova” I can’t find it on the internet.

Does apple cider vinegar work?

Ever since I started using Symbicort for my asthma I developed Lichen Sclerosis. I quit taking it for 2 weeks and Lichen Sclerosis went away. I told my gynecologist about it and she said I've never heard of that. So if anybody is taking an inhaler Even the emergency inhaler for asthma. Check into it.

@debir4111

8 ай бұрын

Very interesting. I have had asthma and allergies my entire life. I’ve ALSO had LS. I’m going to look into this!

I just found your channel and this disease is debilitating

Hi i live in the uk and to stop using topical creams all the time i use, doublebase gel, stops the itching, and adds moisture, also use pure coconut oil

@chellebelle1970

Жыл бұрын

double base gel?

@univerzaltruth6481

Жыл бұрын

Ditto😊

@jeanluby4636

10 ай бұрын

@@chellebelle1970 I too have no idea what that is

@maryblencowe

8 ай бұрын

@@jeanluby4636It is spelt as a single word and is a hydrating gel. Savlon cream works well too.

I found it hard to stay committed to listening because both women said “lady parts” early in the recording, instead of using correct terminology. Dr Cabeca also touched on the shame patients feel in even talking to their doctor about this disease. What better way to reduce shame than to normalize by using correct terminology? Nevertheless, she created a product that I know many women with lichen sclerosus have had success with so I kept listening with gratitude.

@jenfugo

3 жыл бұрын

The reason is that the main audience is moms who may be listening with young children around. While I am not bothered by using appropriate terminology, we wanted to keep the conversation where mom could still listen if the kids are around if the medical terms aren't something they want playing in front of their kids. I hope that helps you understand why this was the case

@cognossance

3 жыл бұрын

@@jenfugo it does! Thanks for responding. I know not all parents are comfortable naming or discussing body parts in front of their kids, so you found a balance for viewers.

@jeanluby4636

10 ай бұрын

Yea what does it really matter what we call it??@@cognossance

Does CDB OIL DO ANYTHING TO HEALING LS?

Are you still given advice

What is “julva” mentioned around minute 18? Thank you for this so so much

@jenfugo

2 жыл бұрын

Julva is a cream for the vaginal area. You can Google it and find out more about the product

@ashleyk9328

2 жыл бұрын

@@jenfugo is it okay if it causes some burning? I’m trying to use julva but it’s burning.

over 25 years ago .. and having gone from one doctor to another ..I was diagnosed with LS ... add in by that that time, my husband divorced me because of the inability to have intercourse. Here I am now being able to go on You Tube and find out information that I needed years ago. My mind is reeling ... after all these years .. is there any help for me after all these years? I would love to the ability to be intimate.

Must you have a script for the suppositories to be made a at pharmacy?

@jenfugo

Жыл бұрын

In the US, you can get them over-the-counter. They even sell them on Amazon like there a.co/d/dL3zES3 If you try them, please let us know how you make out and if you find them helpful!

I have been diagnosed with lichen planus on my vulva. Is this the same as sclerosis? My doctor has given a the strongest steroid but iv been suffering for over three years.I’m suffering. Please reply me. Thank you .

@letitiarussell1608

2 ай бұрын

Lichen Planus is different and harder to treat. I’ve had it since 2015. I have two gynecologists and one dermatologist who have helped me. I have vulvovaginal lichen Planus. This involves both my vulva and my vagina. I use Clobetesol once a week and Protopic twice a day on the vulva, which was prescribed by the dermatologist, and it has helped me more than anything. I use Anucort suppository in my vagina once a week for the vaginal discharge. This stops the discharge. Seek help from specialists. My regular gynecologist wasn’t very familiar with the problem. It took time to find the right people who can help. Good luck.

I have had it for a year now. I am a 48 year old male and have it under my shorts. Its so painful and I get it every 3 months. It hurts to go to the bathroom or to be intimate with my wife.

@Ola-1114

2 жыл бұрын

😔😢

Please say where it came from!! And how to find comfortable solution. NOT a LONG STORY!!! The shaving situation!!! OR Cholesterol Medicine?? 🙏🙏😊

@katieirish5765

4 ай бұрын

Possible origins come from hormonal imbalances, Leaky gut, or autoimmune issues.

I have noticed Gluten has a big effect....leaky gut

My gynecologist instructed me not to use anything other than water to wash with water and steroid cream

I have it terribly. Lume' cream also helps.

@rosedraves337

2 ай бұрын

I have the feeling that most women treating this have not gone through the pull hell lichen sclerosus does to you and just when flare up ends, another one can start a day or two later. You can't sit nor stand. Wear pants? No!!!! Every one I have gone for treatment has never had it and many physicians who take down my medical conditions, have NO IDEA how much of a painful this is. I'm truly disgraced that more medical professionals have no idea much less an impact thar it has in their lives much life a ZERO sex life. I want to hear from people who actually have it and be treated by someone who knows firsthand the extreme severity of pain it causes.

I want some hope please share stories of patients which recovered from LSA .. my 8 years daughter is suffering from it

@marieholmes6480

2 жыл бұрын

Am permanently cured with Dr iyaremoses herbal medicine on youtube thank you doc #driyaremoses channel

Hi! Thank you for this! I know I have a yeast issue, so I'll be trying the boric acid suppositories. I just had a hysterectomy at 49 due to endometrial cancer, so I can't do estrogen anything. I'm wondering if the julva is a no for me. I know it doesn't have estrogen, but maybe it's a no go because it sounds like it would stimulate my body's production of estrogen.... any thoughts? Thank you!

@jenfugo

3 жыл бұрын

I really can't say. I'd recommend contacting Julva and asking them directly and then running the ingredients past your physician.

@Jesus-is-the-only-WaytoHeaven

Жыл бұрын

Don’t try boric acid!!! I tried it and I had bleeding from it (before I had the hysterectomy). I don’t know what the best solution is yet but I will not do boric acid ever again!!!

@TB-yx5of

Жыл бұрын

@@Jesus-is-the-only-WaytoHeaven I use boric acid regularly and find it fantastic.

@Jesus-is-the-only-WaytoHeaven

Жыл бұрын

@@TB-yx5of glad it works for you! It made me bleed!! I don’t find it safe for myself but we all have our own ways to discover. I seek guidance from the Holy Spirit to show/confirm what solutions are right for me. If I start on something that’s not right-if I forgot to pray to Him about it first!-He shows/confirms to stop or not. When I have peace about something, that is sometimes a confirmation sign. But I read the Bible (Proverbs has a lot of advice), praise God (listen and sing to Christian music with lyrics on KZread) and with thanksgiving, pray to God for direction. He NEVER fails to answer in various ways! 1 Corinthians 1:24 24 but to those whom God has called, both Jews and Greeks, Christ the power of God and the wisdom of God. Commit to the Lord whatever you do, and he will establish your plans. Proverbs 16:3 I Google different verses and questions on all kinds of topics. This one was also helpful about wisdom in general! www.gotquestions.org/fear-Lord-beginning-wisdom.html God loves us and cares about our lives and health here and whether we go to heaven or hell once we leave! ““For God so loved the world, that He gave His only begotten Son, that whoever believes in Him shall not perish, but have eternal life. For God did not send the Son into the world to judge the world, but that the world might be saved through Him. He who believes in Him is not judged; he who does not believe has been judged already, because he has not believed in the name of the only begotten Son of God. This is the judgment, that the Light has come into the world, and men loved the darkness rather than the Light, for their deeds were evil. For everyone who does evil hates the Light, and does not come to the Light for fear that his deeds will be exposed. But he who practices the truth comes to the Light, so that his deeds may be manifested as having been wrought in God.”” ‭‭John‬ ‭3‬:‭16‬-‭21‬ ‭NASB1995‬‬ bible.com/bible/100/jhn.3.16-21.NASB1995 God bless you and your family and merry Christmas!! ✝️❤️🙏🏻

There’s one solution and it’s coconut oil. Yes you can absolutely put it down there! It works instant!

@jenfugo

9 ай бұрын

I appreciate that this works for you, but there are others who have tried this and do not find it helpful. So it's always important to try different things and see what actually is helpful for the individual

@carlel121

7 ай бұрын

It works instant but it does not fix the problem, I’m putting coconut oil everyday

@sallychad77

5 ай бұрын

My gyno said use vaseline at night instead of coconut oil.

@MaritzaOrtiz-ib1qd

3 ай бұрын

Coconut oil makes mine worse

I did not know what l had until l heard this!! Had nothing to help it. It’s soooo painful once it gets going. All l could do is wear loose clothes and ice it. I want to buy the cream, where can l get it??!!!!!!!!!

@jenfugo

Жыл бұрын

Check out the video description! The cream is linked up in there 👍

Several ingredients in Julva have alcohol. Wouldn’t that burn already irritated skin? Anyone on here used it?

I have a red light machine. Does red light or infa red have any potential at healing this?

@jenfugo

3 жыл бұрын

Yes, we actually discuss that here: www.skinterrupt.com/red-light-therapy-skin-rash/

I had been diagnosed with licchen sclerosis in 2019, biopsy was done by removing all the discoloration of white patches. Its back and it is frustration. Need a clarification, can this disease cause cancer in long term? Clob does not work at all.

@yanasosnovskaya864

2 жыл бұрын

it can in 5% cases....=(

@meerapatel8007

2 жыл бұрын

@@yanasosnovskaya864 Thank you Yana

As a result I've also developed another issue on top of that called Labial adhesion!!! Part of my labia is closed shut revealing only a small area where my vaginal opening is it's very frightening how this happened.. also amazing I'm able to still urinate . That area has not closed off thank god!! ... happened so quickly I don't even really know the timeline but it must have been in a short span of time I want to say sometine inbetween 2 years roughly when I stopped taking my HRT abruptly. I felt something unusual and looked with a mirror and could not believe the horror to see the skin fused shut I have no idea how to fix this problem I went to 2 gyns .. all they recommended was aquaphor ointment.. the other said I should put estrogen on which I did for an entire year daily with know benefit at all ...😭😭😭😭😭 I don't know where to turn with this issue I would like to have it surgically opened but I don't know where to go the skin on my vulva is practically white in color 😯 it's the worst nightmare!!

@lisa8960

4 ай бұрын

Zoey...I had the exact same horror as you. Seeing how small my vaginal opening is crushed me. I tried the creams and now I am going to consider surgery. I am 61 and feel I am doomed to being single. Only positive is I haven't been real itchy like before. How are you making out now?

Everyone in this chat should be looking into their liver. DDT settles below the waste in the lymphatic system. Which can show up as ls

@RainBow-uf7hb

Жыл бұрын

can you recommend specific tests to find out?

@Magickfae

Жыл бұрын

@@RainBow-uf7hb only research studies.. but best to just assume your grandmother was exposed to ddt and we are exposed to Pfas, bpa, mercury and copper all which wreak havoc below the waste

@pjchapman9419

6 ай бұрын

What is DDT?

Burning during urination, and after is one of the symptoms for all??

@ccheek91

4 ай бұрын

Yes urine is acidic and burns our sensitive skin. Best to rinse after a bathroom visit.

I have a male friend who has Lichen sclerosis and I was wondering if he can use the same product as women?

@jenfugo

14 күн бұрын

I really don't know as it was specifically formulated for women. My guess would be no since hormonal issues are different in women vs men but you could always contact them and ask

@trishie0

14 күн бұрын

@@jenfugo Ok thanks I'll do that! :)

What foods can you eat or not eat

@kathyharmon2093

3 ай бұрын

Eliminate gluten, sugar, dairy

Is a biopsy of the vulva painful? I’ve had lichen sclerosis for about 1 yr. & it’s very troublesome.

@acampomft

Жыл бұрын

The biopsy only hurt when the shot me up with numbing agent. And then when it was healing.

@lindacaldwell6251

8 ай бұрын

Why do you want a biopsy if you know you have it??

@christinascibetta1043

8 ай бұрын

​@@lindacaldwell6251so she can rule out cancer

@christinascibetta1043

8 ай бұрын

Biopsy felt like a pinch..not bad...good luck !!❤❤

@christinascibetta1043

8 ай бұрын

Estrogen inserts for naturalpath really help... I mean, most women get it in old age

consider eliminating sugar & gluten...Iam going gluten free from now on. diabetes seems to be a comorbid condition

How young can you be when you get this.

@jenfugo

3 ай бұрын

Unfortunately this can occur even in children. It's best to see a doctor and get a diagnosis

I guess I'm doomed. I have Ls, thyroid disease, shingles, and diverticulitis...😮

@jenfugo

6 ай бұрын

I'm sorry to hear that you're dealing with all of that, Deborah. Maybe just starting to work on one area to improve health overall could be helpful because sometimes too many things can feel overwhelming. It sounds like you've got several gut related things so maybe start there 💛

@crystalknight8968

3 ай бұрын

I understand how you feel...Investigate auto immune improvement.

Emu oil works fine for this condition, but beware of fake emu products

I have it too… had it for 30 years. Nightmare.

@jenfugo

3 ай бұрын

😢😢😢

Dr. Nathan Newman has treated over 200 LS patients with 100% using stem cell PRP therapy. He’s a dermatologist in Beverly Hills California. He has a website, KZread channel and check out his yelp

I'll just use vit D3 topical/oral, and homeopathy

@jobenson736

2 жыл бұрын

What homeopathy do you use? I am visiting a homeopath and it is trial and error at the moment.

@MedullarisConus

2 жыл бұрын

@@jobenson736 the best way is dowsing for your remedy/potency/doses

@robertmccabe8632

Жыл бұрын

By dowsing " you mean witchcraft".

@MedullarisConus

Жыл бұрын

@@robertmccabe8632 homeopaths use dowsing. Idk the concept of witchcraft that you have, but dowsing works with ideomotor response just like kinesiology.

@user-cg3br9xo8p

8 ай бұрын

did u heal by homeopathy

Where can I find juva???

@cognossance

3 жыл бұрын

Have you tried searching the internet?

@lauraknight7258

2 жыл бұрын

@@cognossance Julva is on the doctor's website, but it costs about $70

@Silva007ish

Жыл бұрын

What makes me furious is that insurance won’t pay for laser treatments becuz it’s considered cosmetic. I am just disgusted..I’m trying hormonal cream now and insurance won’t pay for that either..😊

@jeanluby4636

10 ай бұрын

@@Silva007ish YEA WE HEAR YOU!!!!

My doctor prescribed a steroid cream. But after reading the harm they cause I don't want to it.

@Bshipbuilder

3 жыл бұрын

I've found that topical vitamin D3, which psoriasis sufferers advocate, and prescription tacrolimus, help a lot. As per studies topical D3 help prevent a lot of the angiogenesis caused by the topical steroids. There are people that have a bad reaction to the D3 too, but it seems rare from all that I've read. PRP injections resulted in a 2 year remission for me.

@Bshipbuilder

3 жыл бұрын

The brand of D3 i used is called Maxasorb. Its on a mazon.

@jenfugo

3 жыл бұрын

@@Bshipbuilder did you see that I did a podcast episode all about Topical vitamin D? www.skinterrupt.com/vitamin-d-supplement-skin-rash/

@Bshipbuilder

3 жыл бұрын

@@jenfugo I'll check it out.

@qb9674

2 жыл бұрын

@@Bshipbuilder qwwwwwwwwqqwqqqqqq