Thank you so much for this! I was diagnosed with LS last year after 10 years of misdiagnosis! Sending love ❤

@lifewithlichen

Жыл бұрын

Thank you for watching! This must have been very hard for you to not know what was going on, but I sincerely hope that now you can manage your symptoms and live a better quality life 🌹🌹🌹

@AlexReadsTarot

Жыл бұрын

@@lifewithlichen Thank you, I really appreciate that! Sending you love, and hope that you have better days ahead too with this condition! x

@lifewithlichen

Жыл бұрын

@@AlexReadsTarot Thank you so much, Alex, you're so sweet! ❤🌹

I find avoiding stress and sugar helps to keep LS at bay💕🌺💕

@lifewithlichen

Жыл бұрын

Yes! Your lifestyle can play a crucial role in this battle. Thank you for your comment! ❤❤❤

Keep making some videos they make me keep going

@lifewithlichen

Жыл бұрын

Thank you so much for your support, it means a lot to me because that is what makes me keep going ❤️ Please take care of yourself and stay safe 🌹🌹🌹

I use Emuaid! The best for Lichen sclerosis and it’s homeopathic! It has completely changed my life

@lifewithlichen

Жыл бұрын

Thank you for sharing!

@lolivaughan

Жыл бұрын

@@lifewithlichen you’re welcome!

@dr.d.m.shrivastava2442

11 ай бұрын

Emuaid what is this

@chellebelle1970

10 ай бұрын

do you use it on the outter labia only? or outter and inner labia?

@lolivaughan

10 ай бұрын

@@chellebelle1970 both!!! You can also use it on any other lichen sclerosis you may have! I also have it on my inner thigh and it has reduced it significantly and it’s almost disappeared! It takes sometime to disappear but I put it on three times a day and consistently! Hope this helps

Protopic is a game changer!!! worked better than steroids

@lifewithlichen

Жыл бұрын

Absolutely! And with fewer (or none) side effects, which is amazing

@christinasmucker1740

Жыл бұрын

What is Protopic? Is it over the counter?

@lifewithlichen

Жыл бұрын

@@christinasmucker1740 Protopic is an ointment based on Tacrolimus. In most of the countries, it's being prescribed by gynaecologists or dermatologists, but in Eastern European countries you sometimes can find it over the counter.

Thanks for your help I just found out I’ve got this am waiting till Oct to see a dermatologist,,I’ve seen a a doctor already and been to women’s clinic they said I didn’t have it now it’s spread under my breast and elbows and behind 1 knee I had a biopsy done on the breast and came back as lichen so iam assuming every where else I have it ,will be the same

@lifewithlichen

Жыл бұрын

I'm sorry that you have to deal with it. But it's really good that you finally got the diagnosis. I heard that in cases like yours they can change topical steroids or Tacrolimus for oral (because of the spread). Also steroids sometimes are being injected inside a lesion. Intravenous steroids give positive results in clearing the lesions on the body (if the link is working, here's an article: casereports.bmj.com/content/14/4/e241900 ). Also phototherapy and PRP can help 🙏🏻 Hope you'll get the right cure very soon

I invested in period panties. Game changer for period moments!

@lifewithlichen

Жыл бұрын

Thank you so much for sharing! Which brand do you find the most comfortable?

@Lessareve

Жыл бұрын

@@lifewithlichen it's a local brand at my pharmacy called "Saforelle", not sure it retails outside of France.

@lifewithlichen

Жыл бұрын

@@Lessareve It is on Amazon :) Thank you once again!

@Lessareve

Жыл бұрын

@@lifewithlichen For the record it is the only brand I tried, so not sure they are the most comfy available on the market! I have nice feedback from friends about the French brand Etam as well. there is a boom for that product in my country (including ecofriendly, bio products from brands like Loulou, Elia, So cup) so lot to explore!

Hi Maria. How do you use the regrowth factor? Do you use it after a flare, or do you wait until it's calmed down? And, do you put it on the labia majora only, or where the minora is disappearing? Thanks.

@lifewithlichen

Жыл бұрын

Hi🙌🏻 The growth factor serums, as my doctor recommended, should be used every day after the shower, always the same time of day. I usually don't wait for flare-ups to use it. But if you have any side-effects after using it, you better immediately stop and try something else. Usually I put it everywhere where I have signs of LS. But here's one thing: if you have labia thickening, you maybe better see a doctor first before applying the growth factor 🙏🏻🌹

Мария здравствуйте! Слышали вы что нибудь о таких китайских кремах как иранский шафран, чудо мазь ? Ваше мнение? Вроде помогает людям, но страшно, вдруг там гормон , хоть в составе его не указывают

@lifewithlichen

9 ай бұрын

Здравствуйте, Юлия! Да, я слышала об этих препаратах от знакомых, но никому из тех, кого я знаю с диагнозом склероатрофический лихен, они не помогли. Более того, те, кто брал "Чудо мазь" от псориаза, тоже говорили, что препарат - пустышка. Меня еще настораживает тот факт, что отзывов текстовых очень много, а фото "до-после" - 1-2 пары на весь интернет. Будьте предельно аккуратны с шафраном и подобными травами: они могут вызывать аллергическую реакцию и усиливать жжение. Если решитесь попробовать, но почувствуете ухудшение, рекомендую сразу же прекратить применение, чтобы не запустить ситуацию

@user-of7lx1wv7t

9 ай бұрын

@@lifewithlichen Мария, спасибо за ответ... Отзывы я читала девочек из нашей группе вк, которые пользуются. Некоторым очень хорошо помогает, улучшает цвет, губы увлажняются, пропадает зуд и др. симптомы, есть кому вообще не помогает, но таких меньше.Сама боюсь, были мысли сдать на экспертизу. Но это недешево.

@lifewithlichen

9 ай бұрын

@@user-of7lx1wv7t Вопрос такой: девушек, которые пишут хорошие отзывы, Вы знаете? Общались с ними? Если да, и если Вы уверены, что их словам можно верить, то, думаю, аккуратно можно попробовать

❤❤❤

V magic cream on Amazon saved my life!! Vulva balm

@lifewithlichen

6 ай бұрын

Thank you for your recommendation! ❤

I wonder if Boric Acid would help and lanolin cream?

@lifewithlichen

8 ай бұрын

There's no scientific data about effective using of Boric Acid with LS, only a few opinions at forums. I highly recommend you to be extremely careful with this one because Boric Acid can cause severe irritation, so if you decide to try, start with very diluted solution. And preferably not if your skin is atrophic (only with skin thickening). E45 cream, for example, contains lanolin, and at Staff That Works a few people noted that it helped them a little. Doctor Filippo Murina says that steroids and lanolin is a standard therapy. But NHS thinks that it's best to avoid it: "It is best to avoid hydrous wool fats (e.g. Lanolin) or ointments containing antiseptics, antibiotics or perfumes, as long-term use can sensitise the skin." So, I think, it's worth trying (lanolin) if you have itch and thickening

@elapaszczynski495

8 ай бұрын

Thank you for the info,very helpfull

Мария,добрый день! У тебя есть видео о красном плоском лишаи ?

@lifewithlichen

Жыл бұрын

Добрый день, kzread.info/dash/bejne/hYN1qpabdMqfhbg.html

Ty

Always irritates my skin I find stayfree to be the most comfortable for anyone else looking.

@lifewithlichen

Жыл бұрын

Classical Always with this polyethylene grid are really bad for skin, can't agree more with you. They make the skin sweaty and irritate it a lot. Although, the cotton lining works well. Thank you for your kind and useful advice! 🌹

Мария ,добрый день ! Где можно заказать эти эмоленты в России на каких сайтах ?

@lifewithlichen

Жыл бұрын

Добрый день, именно насчет данного growth factor не могу подсказать. Боюсь, что в настоящей обстановке это крайне сложно, если только через перекупщиков

@user-re2qq8zz3b

Жыл бұрын

@@lifewithlichen спасибо❤️

Are you on tacrolimus because clobetasol didn't work? I am currently on clobetasol ointment but it just makes me red and raw so far.

@lifewithlichen

Жыл бұрын

Yes, I've been through Clobetasol and Hydrocortisone, and had the same issue. After that, I switched to Tacrolimus, and this is the only thing so far that really helps in my case

@stephaniemaillet1037

Жыл бұрын

How long were you on clobetasol before switching to tacrolimus??

@lifewithlichen

Жыл бұрын

@@stephaniemaillet1037 No longer than 4-5 days because it burned so bad I couldn't proceed

I never new I had this till I went into an obgyn due to getting bv after sex an the burning stayed after the infection was gone. I never knew I had it an I guess doing the naughty deed flared it up or the infection did

@lifewithlichen

Жыл бұрын

Oh, totally understand you. There's a theory that infection or other skin damage can cause LS or speed up its coming if a person was prone to it

@mamabear9380

Жыл бұрын

@@lifewithlichen my question is how quickly can this spread to other parts of the vulva I made the mistake of not staying consistent and I'm noticing it in areas it was not in before, it looks like red patches with white an my whole vulva from the clitoris to the open is red etc. I'm now seeing a whole bunch of really tiny red dots that I've never noticed before too

@lifewithlichen

Жыл бұрын

@@mamabear9380 So, if it's the effect of the drug, which is quite possible with steroid creams (and red patches with white sound like the steroid side-effect), then it's not the LS spreading - it's possible the reaction of the skin to the drug and it can go away when you stop using it. Also LS can get worse after using clobetasol. The LS itself doesn't spread very quickly in most of the cases, it can take months, in some even years. My guess about tiny red dots (I'm not a doctor) that it could be allergic reaction, tiny vessels that popped, or even lichen planus (google it to see if they look like that)

@mamabear9380

Жыл бұрын

I'm thinking steroid an I keep looking. I was told by a Dr today that when there's been sexual abuse an something else in the future happens beating your self up can cause your bottom to not feel good. I start pelvic floor therapy on Tuesday as well.

@lifewithlichen

Жыл бұрын

@@mamabear9380 This looks like inherited to me, because you said your aunt also has lichen (planus, but LS and LP has similar nature). Good luck with your treatment! 🌹