Myasthenia Gravis-KC

Myasthenia Gravis-KC

Prednisone and other steroids

Prednisone and other steroids

Other treatments for MG

Other treatments for MG

Myasthenia Gravis

Myasthenia Gravis

Mestinon  & Pyridostigmine

Mestinon & Pyridostigmine

Imuran & Azathioprine

Imuran & Azathioprine

Cyclosporine

Cyclosporine

Cellcept

Cellcept

Пікірлер

  • @adeelrahman
    @adeelrahman Жыл бұрын

    Plz upload your feet

  • @keelybaby17
    @keelybaby17 Жыл бұрын

    Have you had any patients that ended up having MG but tested negative for the ACTH RECEPTOR & MUSK- if so what other tests did you order? Were their nerve conduction and EMG normal? I hear they usually are

  • @murvetgunal4272
    @murvetgunal42722 жыл бұрын

    Türkçesinin anlatın

  • @tolga5230
    @tolga52302 жыл бұрын

    Anlamıyorum ki amk

  • @adnanbey06
    @adnanbey066 ай бұрын

    bizim için cok onemli bir sey demedi prednison ile iliskisini anlatti. Yan etkilerinden bahsetti.

  • @rajarafiq4979
    @rajarafiq49792 жыл бұрын

    Ourdo

  • @shahzoralitebani212
    @shahzoralitebani2122 жыл бұрын

    pl upload your latest lecture on MG

  • @shahzoralitebani212
    @shahzoralitebani2122 жыл бұрын

    Sir me suffering from mysthenia gravis since 2017 my doctor kept me on imuran 5mg and amygra after continuous treatment for a year enabled to live with normal life. Again due to chamical reaction by using zegap tablet by 5 months ago suffering badly from same desease. also had back problem with liver problem. my doctor have now prescribed cellcept 500mg in place of imuran 5 mg. pl guide me how much cellcept would be affective in MG treatment.

  • @ItsMeKelso
    @ItsMeKelso3 жыл бұрын

    I take pyridostigmine bromide aka mestinon, because I have pots syndrome, I have not found much research on this medication other than originally it was intended in World War II for people who were exposed to nerve agents such as SOMAN and other things like anthrax it prevents your body from shutting down. This video kind of helps explain it a bit better. , I know mestinon is also called pyridostigmine bromide. I’m confused , there is also Pyridostigmine . Does one contain bromide in comparison to the other, or are those different names for the same medication?

  • @nancycarlos5695
    @nancycarlos56953 жыл бұрын

    There is a great herbal man call Dr okougbo who can cure herpes virus problem and other deadly diseases with the use of natural herbal to cure Herpes virus problem. He is from Africa and he is a great doctor and he can also cure you as well if you are the problem And other deadly disease and here is is email address [email protected] or Whatsapp +2349032690878 HEPATITIS BCURE, HIV/AIDS CURE,CANCER CURE ,HIGH BLOOD PRESSURE CURE,BAD BREATH CURE,HPV CURE, ALS CURE

  • @drimonitiehome421
    @drimonitiehome4213 жыл бұрын

    Life is always beautiful when you be with the true person you love. For almost a year my lover had broke up with me and I was lonely and sad luckily I was directed to a very kind and Great spell caster Dr imonitie who helped me to bring back my lover to me and today I am with him now and happy together and very grateful for what you have done for me Dr imonitie via doctor imonitie OR what app on +2348141751132 Him email [email protected]

  • @estherbabbu5084
    @estherbabbu50845 жыл бұрын

    pregnant women can use this or not

  • @minghei2010
    @minghei20105 жыл бұрын

    為什麼會肌肉無力嗎? 為什麼會青光眼嗎? 為什麼會牙齒蛀嗎? why will the muscle be weak? and why will the eye be blind? and why will the teeth be fatigued?

  • @trafficjon400
    @trafficjon4005 жыл бұрын

    Steroid phsycosis adreanals 1 injection over a year ago and still suffering bone healing depresion trouble with any understanding from any one. just lost in your own horrible battle from this steroid

  • @traceyrychewhite6374
    @traceyrychewhite63745 жыл бұрын

    I damn near killed me. I tell them I'm allergic and have auditory hallucinations, massive weight gain and they don't care. This time they put me on methyl prednisone which was even worse.

  • @christineclarevilgos-mitch1955
    @christineclarevilgos-mitch19556 жыл бұрын

    Is cellcept more effective for lupus patients? How can cellcept harm a fetus especially early on? I know it has something to do with cell division in pregnancy but I want to know exactly what that means instead of me just assuming what it means. I have Lupus. I recently had test results showing that my lupus started to attack my body again after going off of it for over a year so I could try and have a baby. I want to have a baby but can't on cellcept and I want to know exactly what it does in pregnancy. I'd never try to get pregnant on it but I want to know just in case an accidental pregnancy happens. I am on the pill but you can never be too careful. I am also being treated with plaquinil for my lupus but that wasn't enough to keep the lupus controlled without the cellcept. Do I have any other options? I was made And meant to be a mom; but I'd never risk harming my child even if the medicine doing the harm is saving me. Please can someone help. Since lupus is not what cellcept is made for even though it treats it so well I have not been able to find a full, clear, and straight forward answer. And I really do need one. It's important in general but it's also just important for me. I need to know. Can someone help me, please. Much love to all of the universe and God bless you all each and every moment of each and everyday. 🌸💜😺🦋💞

  • @khanhthien2095
    @khanhthien20953 жыл бұрын

    @jessica powers how could you be away from.lupus sis?

  • @user-px1qg6ww2c
    @user-px1qg6ww2c2 жыл бұрын

    @jessica powers please can youl help me?

  • @miarivel
    @miarivel7 жыл бұрын

    How come you dont tell your patients about natural remidies which are so much better for you and more effective than these pharmaceducial drugs ... ive had MG for 17 years. Natural remidies cured me instead of these drugs

  • @dasigirl8416
    @dasigirl84167 жыл бұрын

    Mia Rivel what natural remadis u use i'm also MG for 6 years plz ans thank u

  • @GOLDENWINCH
    @GOLDENWINCH6 жыл бұрын

    please tell more

  • @godsahasprooffree.fire100l6
    @godsahasprooffree.fire100l66 жыл бұрын

    Please share ur natural remedies

  • @ameersaied894
    @ameersaied8945 жыл бұрын

    Natural remedies include the active ingradient of the drugs. Many times. Natural is not always safe. So many toxic plants are well known to us. Don't believe her. You should say what is your remidy instead of making sick people more disappointed.

  • @veravero5715
    @veravero57152 жыл бұрын

    Mia I hope you are well Why did not you share the secret and help us with that condition?

  • @justwatching2491
    @justwatching24918 жыл бұрын

    It will slowly kill you and you doctors know that.

  • @justwatching2491
    @justwatching24918 жыл бұрын

    another confession from a legalized murderer

  • @glendadona2558
    @glendadona25588 жыл бұрын

    en español

  • @Ksalruwili
    @Ksalruwili8 жыл бұрын

    Hi Doctor I have red blood cells in urine (hemoaturia) 20:30 and I am renal transportation patient from 4 years ago I take medicine cellcept I don't know if these is from side effects of medicine or I have problem please sir help me

  • @hrhhggjgh8065
    @hrhhggjgh80658 жыл бұрын

    My name Rabab from Morocco I'm taking this medicine cellcept 500mg one pill in the morning and two in the evening I am infected with cirrhosis of the liver or liver cirrhosis. And my doctor told me that I am in better because of him And he said to me possible that taking it for a longer period Who has information about this medicine I hope that you continue to be with me in Alwatsab Digital 212632181745+

  • @calmvig1
    @calmvig112 жыл бұрын

    It's important to discuss medication issues with your neurologist or physician who treats you for your MG. There a form of liquid Mestanon, but the dosage and it's administered would be up to your doctor. Chris Almvig, Executive Director of the MGA of Kansas & Missouri

  • @ecobra169
    @ecobra16913 жыл бұрын

    I urge everyone with mg to take a look at this woman blog and then you will have an understanding of what you are up agains Google her name and see for yourself. Freya ross .

  • @mgakc
    @mgakc13 жыл бұрын

    @TheMarkNessMonster I hope that doctor comes back or one who is knowledgeable about MG becomes available. If you can't transfer him to another hospital, can the doctors there can consult with a specialist elsewhere? How many plasmapheresis or IVIG treatments were they doing? Most people I've seen get at least 5 treatments, one every other day. In addition to the resources I gave above, you might also go to our website - mgakc (dot) org - or our Facebook page - search for mgakc.

  • @TheMarkNessMonster
    @TheMarkNessMonster13 жыл бұрын

    @TheMarkNessMonster Trouble is, he's been passed around like a shop rag from doctor to doctor in that hospital and none of them communicate with one another. He's seen over 12 doctors in 3 months, with...you guessed it, 12 different medical staffs, none of which communicate with one another. It's all just a 'job' to them, but to me, it's my dad's life, and we are getting nowhere, while he's dying in a bed. When we went in in July, he weighed 190 lbs. Now he weighs rougly 120.

  • @TheMarkNessMonster
    @TheMarkNessMonster13 жыл бұрын

    @TheMarkNessMonster Our biggest problem isn't finding doctors who know about MG, they all do, we are in need of competent medical staff who knows how to do their jobs and are able to think past a chart. These people don't realize that when you mess up with an MG patient, you won't know it for a week. If they see him suffering for symptoms, they treat for whatever is happening at that time, not for what they did wrong a week ago. I've told them that over and over, and it falls on deaf ears.

  • @TheMarkNessMonster
    @TheMarkNessMonster13 жыл бұрын

    @mgakc Yes and they seemed to work, but he's relapsed so many times and the doctor tending to him that knew what he was doing has disappeared, and nobody knows where he went. Right now, he has almost no colon, because of 1 polyp, a colostomy bag, they are about to do a tracheal bypass because of the amount of intibations we've already been through, and he's almost crashed just about every time he starts physical therapy. He has no more leg muscles left because he's 2 months behind on PT.

  • @mgakc
    @mgakc13 жыл бұрын

    @TheMarkNessMonster - So sorry your father is going through all of this! Have they tried giving him plasmapheresis or IVIG? Those are the two most commonly used treatments for a MG crisis and are usually very effective. Search for the Myasthenia Gravis Foundation of America and look under Patient Education for more info on these and other treatments; maybe the doctors could also look at this website The MGFA also has a manual for medical professionals that can be ordered or downloaded free.

  • @TheMarkNessMonster
    @TheMarkNessMonster13 жыл бұрын

    My father is currently in the hospital being treated for what started out as an MG breathing crisis 3 months ago. He's been in the hospital since, making frequent trips to ICU, coded twice, and has been intebated 3 times. He's in ICU right now(10-18-10)for a week, and isn't a victim of his MG, but is a victim of crappy doctors. We are trapped at Lourdes Hospital and we cannot afford to send him to somewhere competent like Ochsner in NOLA. The doctors tending to him now are killing him. Help.

  • @tropicanasiempre
    @tropicanasiempre15 жыл бұрын

    Thank you so much, of course I want to search, and yes it is a lot help, thank you again.

  • @mgakc
    @mgakc15 жыл бұрын

    Actually, there are several MG associations in Canada. Search online for Canada MG Associations, or, search for the Myasthenia Gravis Foundation of America - under their Patient Education button, you can view a list of international organizations, including several in Canada. Hope this helps!

  • @tropicanasiempre
    @tropicanasiempre15 жыл бұрын

    Hi there, good job!!, I would like to be in one of this association but sadlely here in canada I don't here nothing about it, and I have MG since 2000.