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• 
  @KellyWilligar2 күн бұрын

  I woke up during my scope, as well. It wasn't the greatest feeling! I was diagnosed in my early 40s. There was almost no information available regarding eoe.

• 
  @redredred840822 күн бұрын

  My symptoms can be mimicked from anyone by pressing on a part in the front of my neck. Is that suspicious?

• 
  @redredred840822 күн бұрын

  Is it a very suspicious symptom to have a feeling that something is pressing on the front of my neck with a lump there at the same time?

• 
  @redredred840822 күн бұрын

  Are these “symptoms” highly suspicious? very gradually get a lump in the throat feeling with a bit of tightness there come on and linger for a couple hours after I eat something then usually stops, but then will come back on without anything some other time, doesn’t affect my breathing at all though, the tight feeling/ urge to swallow a lump makes it harder to sleep sometimes..

• 
  @LKGJO15 күн бұрын

  I think I can kind of relate to that feeling if my memory is correct…maybe not exact but my throat never felt really good. A lump could be an indication of inflammation but not exactly sure obviously

• 
  @redredred840815 күн бұрын

  @@LKGJO would it feel like something is slightly pressing on the front of your neck somewhere?

• 
  @redredred840815 күн бұрын

  @@LKGJO late term “symptom” is that it’s noisier when swallowing as well like a quiet crackle sound

• 
  @redredred840815 күн бұрын

  @@LKGJO the lump feels like it’s only on the left side sometimes I wake up in the morning with the feeling of needing to swallow a ball of mucus that isn’t actually there, and some days when I swallow in the position of lying in bed, there’s a muscle that I could tense that would feel a click back into place no pain on the left

• 
  @redredred840815 күн бұрын

  @@LKGJO my symptoms gradually go away as I get hungry. Some things start it up depending what I’m around like dust a little but

• 
  @redredred840822 күн бұрын

  And then there’s doctors who gaslight you saying it’s “anxiety”

• 
  @MBeezy40423 күн бұрын

  You’re the hope I needed right now. Never knew anyone who had it until I got it. It’s been at least 2 years now and I’m struggling. I need to get serious about keeping foods that won’t cause so many flare ups

• 
  @LKGJO15 күн бұрын

  Working through an elimination diet really helped me. If you want/can afford it. Check out the guide at Chelsea Celeste nutrition website. That was my exact plan of how I did it. Don’t feel the need if you think you can tackle it solo though!

• 
  @chrissywallaceАй бұрын

  It's incurable. Just treatable

• 
  @LKGJOАй бұрын

  According to who? Not saying you’re wrong but there seems to be professionals stating both sides

• 
  @faithfultheology29 күн бұрын

  It's cause by allergic reactions so yes you can outgrow it. Bodies werid you can never been allergic to anything wake up at 40 and be allergic to the food you always ate or vice versa

• 
  @PageandPlant4Life13 күн бұрын

  ​@LKGJO according to every single doctor. Lol

• 
  @faithfultheology13 күн бұрын

  @@PageandPlant4Life in can go in remission and never have promblem again. Everyone different have heard testimony of ppl going away .. wish mine would lol

• 
  @PageandPlant4Life8 күн бұрын

  @faithfultheology mine went away for like 7 years and recently flared up.. while eating the same foods I have this whole time. Could be environmental. I might try parasite cleansing as a next step

• 
  @manuelz.5471Ай бұрын

  Thx for sharing. I'm in it 3 years now. Doing 6 food elemination diet since 2. But still struggling. Maybe because of the side effects of the ppi + cortisone. Really want to get of medication. Then start reintroducing food. Will be rocky though 😁

• 
  @LKGJOАй бұрын

  It’s definitely a journey!

• 
  @thespiceman11Ай бұрын

  Hello, I was diagnosed with EOE 2020 and I have been pretty strict in not taking PPIs . I’ve tried that stuff called triad and now athletic greens but every once in a while if flares up, but I wanted to ask you if you experienced very discomforting bloating in you upper stomach, with like a weird pulse up into my neck. Have you felt any of these symptoms? Thanks for your time

• 
  @LKGJOАй бұрын

  Never really felt bloating from EoE but now that I’m introducing more fiber in my diet it’s taking time to adjust. Wanting to heal my gut more

• 
  @Sugarifywords2 ай бұрын

  Glad to hear that you're healed. I have a question, did you ever feel breathing difficulties with EoE? I was diagnosed with Esophagitis few months ago. But I'm still feeling so bad until now. PPI didn't work, caused me side effects even after taking them for few days up to a month.

• 
  @LKGJOАй бұрын

  Oh that’s crazy, I never experienced that at all! Hopefully you find a solution that works for you.

• 
  @salmanalbawardi15922 ай бұрын

  Hi how is your symptoms now with eoe. What diet do you follow and medications are you taking. Very interested to know

• 
  @LKGJO2 ай бұрын

  If you watch my last update video I talk more in depth. I’m really good now though, not many symptoms at all and still on PPIs every now and then just not daily.

• 
  @salmanalbawardi15922 ай бұрын

  @@LKGJO Can eoe triggers be from other foods other than the 8 allergens?

• 
  @LKGJO2 ай бұрын

  Oh I would imagine so. Those are just the common ones but people can be allergic to all sorts of foods

• 
  @salmanalbawardi15922 ай бұрын

  @@LKGJO When i remove a certain trigger from my diet, and symptoms still last for a couple of days. Should i wait longer or remove another food trigger from my diet?

• 
  @LKGJO2 ай бұрын

  I would remove all elimination foods then reintroduce (after I had a healthy baseline with no symptoms) then reintroduce goods one at a time. I would take about 1-2months per reintroduction. You could probably only do 1 month but that’s what I did. Couple days is not long enough I don’t think. Your body needs to adjust and figure out what’s happening whether good or bad

• 
  @Jimo2252 ай бұрын

  I think i got mine by accidentally inhaling toxic fumes

• 
  @LKGJO2 ай бұрын

  Dang that’s crazy! Hopefully you can heal your immune system again so it goes away

• 
  @Jimo2252 ай бұрын

  Did you get it after you started firefighting or before. Just wondering because I got this from toxic metalworking fumes. Maybe you got yours from toxic smoke inhallation.

• 
  @LKGJO2 ай бұрын

  It was after I started fire when I was paid on call but took full effect when I got hired on full time. Who knows though, I honestly think it’s all the junk in the food but again, no idea :/

• 
  @Jimo2252 ай бұрын

  @@LKGJO check your nose and throat to see if it feels different. that would be a sign that it was smoke. like if you are having more trouble breathing out your nose. it could be inflamed.

• 
  @LKGJO2 ай бұрын

  Haven’t noticed that before so I doubt it

• 
  @karlarsenalfciswhatitis66362 ай бұрын

  I thought GERD was bad 😞, this is horrible. I struggle with my condition every day but i feel for you guys with this .❤

• 
  @LKGJO2 ай бұрын

  They all suck haha.

• 
  @LaRa-youknowit2 ай бұрын

  It’s not like that in the US. I’ve had about 8 EGD (scopes). They sedate you well, and you never know any of the procedure.

• 
  @LKGJO2 ай бұрын

  All of mine were great except the very first one. After I had a new specialist I never had that issue really. They’ve been a good experience after that

• 
  @LilyFoxxor2 ай бұрын

  wait this can heal!!!!?

• 
  @LKGJO2 ай бұрын

  Well I’ve been told by specialists that it can and you can grow out of it. I had a lot of eosinophil counts, then did the diet and PPIs, and had none sign of EoE. I haven’t had symptoms really in years now. Some say it just goes dormant but I’m thinking if you can really heal your gut then it can go away. There’s many other people who have healed auto immune diseases before

• 
  @LilyFoxxor2 ай бұрын

  I've had eoe for a long while but its never been too bad but like a dumb*** I kept eating like I normally have. I'm only 22 so its hit me pretty hard that I cant really enjoy food the way I did before. to keep it short thanks for this information, I needed something I could use to have more calories in my day.

• 
  @LKGJO2 ай бұрын

  Yeah I tend to add breaks from dairy which is my trigger food and then go back on it. Kinda like a little fast from it once in a while. I’ve been good doing that so far so we will see!

• 
  @faithfultheology27 күн бұрын

  Don't keep eating normal with eoe cause by 40. Your throat will be so scar it won't be worth it

• 
  @meghangarlick81823 ай бұрын

  I have eoe I cut out of dairy out I am now allergic to all nuts and pollen so it stinks and also I eat cream and cheese and pasta I can’t eat so now I’m going for my 3rd endoscopy cause last time I had one they couldn’t get to my stomach so they went to try again and see

• 
  @meghangarlick81823 ай бұрын

  Like I can be around nuts but I can’t eat them my throat closes up so now I’m getting allergy shots now

• 
  @LKGJO3 ай бұрын

  That sounds rough! I hope it works out for you!

• 
  @salmanalbawardi15924 ай бұрын

  Do you eat eggs, since it’s similar to the chemicals found in dairy. and do you find it difficult to swallow. Also do you regularly have soya in your diet

• 
  @LKGJO4 ай бұрын

  I don’t have any problem with eggs. They are in a different category than dairy. It’s more so the protein found in dairy what I react to. Don’t really have much soy

• 
  @YoakD4 ай бұрын

  I can't eat oats, bananas, spinach or strawberries ... wish I could though

• 
  @LKGJO4 ай бұрын

  I hear you, dairy is a no go for me. Try swapping in hemp hearts, flax seed, chia seeds and then different fruit. I haven’t heard of many that can’t have spinach so that sucks! Can you take a green powder?

• 
  @YoakD4 ай бұрын

  @LKGJO I'm on a chemical elimination diet too, I have EoE and another disease that eliminates a ton of other foods. I used to be around 230 lbs lean, and nowadays I'm around 190 and find it nearly impossible to put on weight with this diet.

• 
  @LKGJO4 ай бұрын

  Yeah it’s tough to gain weight without eating a ton of solid foods. I dropped to below 167 being a 215 lean. It was a pretty big change haha.

• 
  @milohartley11204 ай бұрын

  How long did it take for your symptoms to ease once you started the elimination diet? Also is your oesophagus completely healed now? Got diagnosed myself.

• 
  @LKGJO4 ай бұрын

  I think it was a couple months before things started to cool down and I didn’t worry about eating solid food. It was a long time before I got “healed” I was on an elimination diet and scoped for over a year easily. Once I found my trigger food and went on PPIs then it was smoother sailing from there. It takes time but for me at least there was a light at the end. Best of luck and be strict on the elimination. Really read the food labels!

• 
  @ml27444 ай бұрын

  Tyty for sharing your story. Just diagnosed w EOE. I now have hope that this might not be a life long issue once I get it under control. Thx again.

• 
  @LKGJO4 ай бұрын

  Best of luck! It gets easier when you get a handle on it.

• 
  @rudywiebe24994 ай бұрын

  Time is precious. Flexible time beats being controlled by clock or bell.

• 
  @Lindoronyuni5 ай бұрын

  39 does indicate EOE. Anything over 15 is EOE. That’s the defined portion of diagnosing it. You don’t just have the issue disappear, you can go into remission, but it can randomly come back overnight after months and years of it being gone. Go look up diagnostic guidelines on it. Over 15 anywhere in the esophagus is EOE.

• 
  @LKGJO5 ай бұрын

  I had 39 in my lower part which doesn’t always indicate EoE which is what I was told. My eosinophil counts were high in the upper part which indicates more EoE because people can have eosinophil counts from GERD or a “leaky” valve to the stomach which then is not EoE. But hey this is just what I’ve been told. My EoE was very gradual, never an overnight thing, so the only way I feel symptoms is if I were to eat tons of dairy for months and months.

• 
  @salmanalbawardi15922 ай бұрын

  Hi how did you battle your eoe and find your diet for it

• 
  @Lindoronyuni5 ай бұрын

  EOE sucks ass. I just got diagnosed after years of scopes and them telling me the inflammation was GERD. EOE isn’t caused by gerd, it’s an immune response.

• 
  @LKGJO5 ай бұрын

  So true to both!

• 
  @jeremiahallen3485 ай бұрын

  Did coffee, alcohol, pre workout, protein powder affect you at all?

• 
  @LKGJO5 ай бұрын

  When I took Whey protein it definitely kept making everything worse. But all these things you mentioned are not great for the gut and stomach acid so they don’t really help your case with EoE. I avoid most of it and don’t drink coffee barely ever, same with alcohol. If I have a protein shake late at night before I go to bed I can get really bad heartburn too.(regardless of the type of protein, even vegan)

• 
  @TheAutomaticelagence5 ай бұрын

  I was diagnosed this month after a gastroscopy. I wasnt able to be sedated for it as I had to get public transport home! It wasn't a great experience, so the thought of have 6 scopes every 2 months is scary to me. But i dont want to be on the medication anymore then i have to be as it causes low magnesium, which affects the heart. I suffer from ectopic beats so I need magnesium!

• 
  @LKGJO5 ай бұрын

  Yeah my first scope wasn’t fun but every one after that wasn’t bad. Interesting about the ectopic beats!

• 
  @deborahbeltz7185 ай бұрын

  This has helped me greatly, I suffer from autoimmune and now on a special diet and it is getting better. They said it will never go away, but you can manage it. Thank you

• 
  @LKGJO5 ай бұрын

  My doctor has said you can grow out of it but it’s also person to person so not for everyone obviously. Hope yours goes away!

• 
  @deborahbeltz7185 ай бұрын

  @LKGJO you don't grow out of it. It is a disease. It has to be changed by the foods you are eating, sometimes. It runs in your cells, and it can be helped, but it takes time. Does not grow away from you. You need to correct it, not the doctor. He can assist you!but that is it your responsibility, you need not be afraid . But you can get.infornation on it now. Just give your symptoms to your doctor, preferably an immunologist, they are better for this type of problem! Good luck

• 
  @deborahbeltz7185 ай бұрын

  @@LKGJO Thankyou you are very kind.

• 
  @jaredkurimski30105 ай бұрын

  Did your esophagus narrow and did you ever get dilated?

• 
  @LKGJO5 ай бұрын

  Never got dilated thankfully! Once I went off dairy and went on PPIs then things went to pretty much normal

• 
  @nobloodyusername5 ай бұрын

  Does anyone find that reactions occur more often when you are feeling tense or stressed?

• 
  @LKGJO5 ай бұрын

  Stress is a killing and contributed to so many things so I wouldn’t be surprised!

• 
  @nobloodyusername5 ай бұрын

  Jorveza helps a lot but i find that it can cause bloating after prolonged use.

• 
  @LKGJO5 ай бұрын

  Never tried that one!

• 
  @fayepitcher1780Ай бұрын

  Jorveza gave me terrible side affects

• 
  @nobloodyusernameАй бұрын

  @@fayepitcher1780 my consultant was surprised to hear that I suffered from side effects as he claimed that no one other patient of his complained of having any side effects. This treatment has only been available for three or four years in the UK.

• 
  @beyerch5 ай бұрын

  Yeah this cropped up in my ~10 years ago out of nowhere. Food good stuck at a work lunch, bad time all around. I also had some GERD issues which compounded this. I've cut back on dairy and it has helped a ton. Endoscopies still show a high EoE count and rings; however, food swallowing issues are almost entirely gone now. I've also gotten to the point that if food gets stuck, I can actually relax and get it to go down..... (hard to explain, buuuuut) They put me on PPIs to see if EoE count would go down, but it did not help. Currently looking at getting Jorveza (orodispersible budesonide) to see if that actually clears up counts/rings. P.S. Yes, dairy seems to cause me a lot of issues as well, which sucks. LOVE ice cream! :( 100% correct that it isn't lactose, it is an animal protein found in the dairy.

• 
  @LKGJO5 ай бұрын

  Sucks that PPIs aren't working! I hope you figure things out. Cutting dairy was the worst haha. I absolutely love ice cream and cheese. When you really look, almost everything has dairy in it too :'(

• 
  @beyerch5 ай бұрын

  Dairy *IS* everywhere! I cut back as much as I can and it does help, though. I'm not 100% 'cured' but my swallowing issues are 95% better. I can literally go months w/o any issues, though when endoscopy is done, they still see EoE ... @@LKGJO

• 
  @LKGJO5 ай бұрын

  I remember when I was testing and getting scopes. I had to be SUPER strict on my diet. But now I’ve been off it I don’t have EoE anymore according to my eosinophil counts. Hopefully your scope goes well!

• 
  @joelt59946 ай бұрын

  Been suffering for exactly one year, did an endoscopy recently and discovered I have eoe.. If you were to give the ideal roadmap to success to heal what would it be? Maybe the strict 6 elim diet while on ppi’s for x amount of time? I’m open to your roadmap as someone who made it through it.

• 
  @LKGJO6 ай бұрын

  Honestly, just knowing if you have EoE is a way better start than I had. It was many months before I was able to get a scope and confirm anything. I will leave a link to the exact plan I did to get me back to normal. It sucks a bit at the start eliminating everything basically but it gets better once you figure trigger foods out. I did this diet but also took 20mg of PPI at the same time. PPI's really helped me but the diet is #1 out of anything. I'd take PPIs till you have it figured out and no more symptoms. Then you could maybe look at reducing the amount over time but I've been on them for years and still take a really low dose. www.chelcceleste.com/product-page/be-free-from-eoe-ebook-bundle

• 
  @chelseacelestenutrition6 ай бұрын

  This is so inspiring! Thank you for sharing your story with us :)

• 
  @Hedgeflexlfz6 ай бұрын

  Proton pump inhibitors have been shown to stop inflammation in patients with EoE. You still have EoE but it’s in remission because of PPI. I have it as well but choose not to take PPI long term.

• 
  @LKGJO6 ай бұрын

  Interesting, I haven't heard that before. If you don't take PPIs and don't have symptoms of EoE I'd imagine you don't have it anymore but I'm not sure. I definitely don't want to take them long term either as I'd rather not take anything long term that I'm reliant on.

• 
  @benjamesv6 ай бұрын

  Do not stop taking PPIs, trust me, it’ll come back. If you really want to stop PPI, ask your gastroenterologist first, and get scoped regularly when coming off the PPI.

• 
  @LKGJO6 ай бұрын

  I actually did that test previously and EoE came back. I might try it again now and see as I don’t have the same symptoms as before so that’s why I’m still taking them for now.

• 
  @benjamesv6 ай бұрын

  If you stop PPI you will still need to treat the EoE with something else, either an elimination diet (avoiding dairy) or a swallowed steroid. But who knows, maybe yours is completely gone. But I’m just speaking from my experience, I felt better, then I got lazy with my PPI, I was taking it once every 4 days, and then I had another food impaction, and now I’m on PPI morning and night.

• 
  @LKGJO6 ай бұрын

  Going to looking out for this too so thanks so much for sharing!

• 
  @chelseacelestenutrition6 ай бұрын

  Thank you for sharing your journey with us!

• 
  @billiegarcia5456 ай бұрын

  I was diagnosed with eoe in 2016 I had eliminated just seafood and I thought I had it under control fast forward 2021 I was dealing with eoe again and I just made the decision to eliminated all 6.... but 2024 I want to see where I am at I'm pretty sure I'm not allergic to all 6 .... but I am scared to feeling food impaction....

• 
  @LKGJO6 ай бұрын

  Food impactions definitely suck so it's probably a good idea to figure out what's triggering your EoE. It also may be causing more stomach acid which is typically why people get food stuck (in the lower part). If you're really struggling, I would probably stay away from alcohol, spicy foods and whatever the trigger food is too.

• 
  @mrentertainmentjay63213 ай бұрын

  Please keep us posted

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  @reactive86 ай бұрын

  can you give a few more examples of what you would eat during the 6 food elimination diet? I know this video is old... but im currently going through the same things, and im really struggling to find anything at all to eat

• 
  @LKGJO6 ай бұрын

  That's definitely a loaded question because I have no idea what stage you're at and what you're eliminating. Honestly, when I eliminated everything to begin with (when I could finally eat solid food), I was probably eating a lot of rice, chicken/meats and fish, veggies, and oatmeal. I'd also have some soups loaded with nutrients and then lots of smoothies. If you want to know exactly what I ate and did to heal EoE I'll leave this guide here: www.chelcceleste.com/webinar-registration. You can also check out the smoothie video I just posted which shows you what I made all the time. You can add chia seeds, flex seeds, hemp hearts and whatever else you want to it to make it even more loaded with calories and nutrients. Hope this helps!

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  @user-im6fy4qp6m7 ай бұрын

  its funny you said peach because before i was diagnosed with EOE or knew what it was i had an aversion to eating peaches because they would always cause me pain and get stuck in the esophagus. apples too. not sure if it was the acids in them or what.

• 
  @LKGJO6 ай бұрын

  Ha yeah, the crazy thing was I spent hours in emergency from it just waiting and they didn't really do anything. Just slowly went down. Could definitely be caused from stomach acid in the lower part of the esophagus causing eosinophils to be present there. That's mainly why people get food stuck in the lower part.

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  @user-im6fy4qp6m7 ай бұрын

  this disease sucks. be careful, i thought i got over it for a couple years after finding one of my main triggers and cutting it out but now its back. most doctors have no idea wtf this disease is and the non specialists like your primary care doctor dont take it seriously

• 
  @LKGJO6 ай бұрын

  I've been really lucky I have some great doctors and the advice I've heard is that you can outgrow it if you treat it like I did with PPIs and staying away from trigger foods. It seemed to have worked for me but obviously not the case for everyone. I'm still not going to go crazy with dairy in my case but I'll definitely have it on occasion and not feel I can't if I'm out with people.

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  @eamonncox68017 ай бұрын

  Luke are you on instagram? I’d like to get in touch buddy

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  @LKGJO7 ай бұрын

  Yeah I'm on Instagram! I'd love to chat

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  @thebeermaker21028 ай бұрын

  Have this it sucks I cut dairy out at first don't do much for me it comes and goes for I take floticazon nexum and sometimes benadryl for flare ups have had 6 dilations in 15 year so not to bad maybe 10 days in Hospitals all together

• 
  @LKGJO8 ай бұрын

  That's a lot of dilations! Thankfully by doing the elimination diet properly for me helped me figure it all out. It was a long process but worked in the end. Dairy is a crappy thing to not have since it's in everything!

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  @thebeermaker21028 ай бұрын

  @LKGJO glad your feeling better man so much better for you in the long run if you can do it with diet change alone I really appreciate people who post there videos on KZread like this back when I first started getting sick in early 2000s wasn't well know what it was or how to treat it

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  @LKGJO8 ай бұрын

  @@thebeermaker2102 It's crazy the lack of information out there. I felt hopeless when I first found out.

• 
  @markbringolf65878 ай бұрын

  Hey Luke. I laughed at the spot in the video where you said you try to fight the anesthesia...I just had another dilation and biopsy yesterday and I do that every-time. I wont go through my story as its too long, but Im 63 and it all started when I was 24 years old. Had every test known to man kind done. My EOE is not a result of GERD. I have done the food elimination diet, steroid sprays, ampitriptline which is supposed to help, and a murried of other things. I have a GREAT gastroenterologist and he said Im one of the worst EOE patients he's seen. I have chocked on food more times than i can remember. I have been dilated more than a dozen times. I used to fly a lot for my business...i used to purposely sit in an isle seat as it was a disaster when i was next to the window and i had to get up quickly to rush to the bathroom to try and get it to come back up. My Dr is now suggesting I go on Dupixen. It is a once a week, once every 2 week, or once a month injection, but when your on it, its for life...im not sure im ready to go there. Its cool hearing about other peoples struggles with it as if you dont have it, you really have no idea what its like to constantly be worried is the next bite gonna be the one. I'm a gym rat as well, and can appreciate how tough it is to have to stay away from certain foods. I have been an entrepreneur since I was 31, so good luck with your business, wish you much success!

• 
  @LKGJO8 ай бұрын

  Hey Mark! I really appreciate you response and story. I can't imagine going through life for that long with all the uncertainty. Hopefully you feel good about whatever decision you make on the medication. I appreciate the encouragement as well, it's been fun but also a lot of work starting a business! Take care!

• 
  @ShutUpMeg__8 ай бұрын

  Ive just been diagnosed after a year of being stabbed and jabbed by drs and changed onto my 3rd Dr here in Australia. Because they didnt know what was going on.. i was at the stage where i was getting bloods done daily... i lost 63 kilos and.. and they kept telling me it was my anxiety attacks and dysphagia..at this point i literally turned off all foods an lived off ",sustagen & Up&Gos" i turned off food for the whole year no joke.. and when i wqs attempting... i was literally chewing an sucking the flavours out of everything but never swallowed anything bevause the unknown fear Im going in for DILATION ON THE 1ST DECEMBER ❤

• 
  @LKGJO8 ай бұрын

  That's a crazy experience! I'm so sorry it was so difficult. Hopefully you find a solution soon and get back to normal.

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  @ShutUpMeg__8 ай бұрын

  @LKGJO thank you I'm going in for dilation on the 1st December im pretty anxious about the (am I going to die) part though. Any tips ?

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  @LKGJO8 ай бұрын

  @@ShutUpMeg__ I don't think you're going to die! Haha. I've never actually had a dilation so I'm not too sure. I would imagine they will sedate you though, similar to a scope. I would just remember that people do this all the time so I would just try and think about how things will hopefully be better after the procedure :)

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  @At_playsGolf9 ай бұрын

  I’ve had EoE since I was 6months old and now I’m 14 I’m about to get a scope it’s not fun but I’m working through it

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  @LKGJO9 ай бұрын

  That's no fun my friend! Don't worry about the scope, I looked at it a fun time getting put out, but maybe I'm weird because I like the feeling! Haha. Let me know if you ever had any other questions

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  @user-zi8kh4tt2e10 ай бұрын

  Have you trjed Dupixent for it?

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  @LKGJO9 ай бұрын

  Nope I haven't heard of that before. I know they had a steroid puffer for me as well but I never used that

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  @kylemoak374711 ай бұрын

  So you have to get scoped every 2 months? Until you have introduced all 6 foods? I am interested in doing this method but it sounds like a lot of money in hospital bills. My first scope cost over $1k. Oh well :/

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  @LKGJO9 ай бұрын

  Yeah I eliminated everything, then had a baseline without any symptoms etc. Then as I introduce 1 of the 6 foods, I test again with a scope/biopsy every 2 months then introduce another. I live in Canada so luckily I don't have t pay for them directly. But at the time I discovered all my problems, it took a while to get a specialist because I'm also in Canada.

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  @dianabraheem103811 ай бұрын

  Hi , i have EOE to and I have question do you know now which food trigger your esophagus, and did you do endoscopy each 6 weeks after introducing one from these 6 elemental diet to see if this trigger you or not

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  @LKGJO9 ай бұрын

  Dairy was my trigger. I did the 6 food elimination and reintroduced one food every 2 months till I found what was the trigger.

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  @jaredkurimski301011 ай бұрын

  Hi Luke, hope your life is going well. Are you able to swallow pills now that you have your inflammation under control? Also how long were you on liquids and soft foods for? I ask because I haven’t been able to eat solid foods for 6 weeks and was hoping one day I could again. Thanks in advance!

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  @LKGJO9 ай бұрын

  I'm definitely doing so much better. I honestly don't really try to swallow pills at all...I have taken some Advil a few times but that was the biggest pill and didn't have any problems. The PPIs I take are super small so they have never been an issue, even when I was full blown symptoms. As far as liquid diet...I was on liquids before I started firefighting and also throughout all my training and then some...I'd have to really think but I think it was honestly many months on all liquid before I got help and figured to go on the elimination diet.

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  @realprettybasic11 ай бұрын

  How do you afford this many scopes per year? I was just diagnosed with EOE and I've had stomach and food allergy issues for years, so I am already used to eliminating things from my diet, however, I didn't realize how many I would have to eliminate with EOE. There's many people who talk about introducing things back into their diet and then getting scoped every 6 to 8 weeks... Weeks... How is that affordable? I do have health insurance, but a scope cost around 1400$ each time 😒

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  @LKGJO9 ай бұрын

  I'm from Canada so I don't pay for it upfront. If I had to front a big bill, I'd honestly try and do the elimination diet for maybe a bit longer and then really watch for symptoms. On the top of my head, if I was testing dairy, I feel like I'd have more dairy during the testing time and see if I got bad symptoms. Honestly though, now that I've been on PPIs for years and don't have dairy all the time, I can have dairy now and not feel any symptoms but that wasn't the case before. Maybe I can do some research and see if there's a more affordable way other than what I suggested.

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  @user-im6fy4qp6m7 ай бұрын

  is your plan to take PPIs for life? did they ever mention if you had a problem with the stomach valve or something that keeps you getting reflux issues? also, do you ever notice you have chronic stomach bloating? i never get heartburn the way most people think of it with the burning and chest discomfort but what i do get is constant throat clearing and a feeling of my esophagus always being rubbed raw with sandpaper. i notice it sometimes when drinking water, it almost feels like the water is going over an open wound in a particular spot. i hate doing the scopes so ive been trying to monitor my issues mostly with symptoms but i think i have chronic LPR (laryngeal reflux) which is a reflux that you dont always feel happening. im wondering if my esophagus or stomach valve is messed up but the doctors never mentioned anything looked out of place during the scope. i have a hypothesis that the gas and bloating i get is pushing and aerosolizing little bits of acid through the valve and thats what gives me this chronic mild reflux. but i dont know how to stop it because no matter what diet i switch to (even 0 carb keto) i get bloating. @@LKGJO

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  @LKGJO6 ай бұрын

  Definitely not planning on taking PPIs for life. They didn't mention that I specifically have a problem with the valve, more so dairy causing stomach acid. A "leaky valve" can be caused by a few things but more common is overweight people says my doctor. If I had really bad stomach acid, I'd almost feel it in the "air" in my throat. Doesn't happen often at all though. I'm not sure what to tell you, I'd imagine it has to be some diet problem but might have to really focus on healing the gut, which may include adding stuff like inulin and other stuff but also eliminating certain foods.