Thank you for sharing your journey with us!

Tyty for sharing your story. Just diagnosed w EOE. I now have hope that this might not be a life long issue once I get it under control. Thx again.

@LKGJO

4 ай бұрын

Best of luck! It gets easier when you get a handle on it.

It's incurable. Just treatable

@LKGJO

Ай бұрын

According to who? Not saying you’re wrong but there seems to be professionals stating both sides

@faithfultheology

29 күн бұрын

It's cause by allergic reactions so yes you can outgrow it. Bodies werid you can never been allergic to anything wake up at 40 and be allergic to the food you always ate or vice versa

@PageandPlant4Life

13 күн бұрын

​@LKGJO according to every single doctor. Lol

@faithfultheology

13 күн бұрын

@@PageandPlant4Life in can go in remission and never have promblem again. Everyone different have heard testimony of ppl going away .. wish mine would lol

@PageandPlant4Life

8 күн бұрын

@faithfultheology mine went away for like 7 years and recently flared up.. while eating the same foods I have this whole time. Could be environmental. I might try parasite cleansing as a next step

I was diagnosed with eoe in 2016 I had eliminated just seafood and I thought I had it under control fast forward 2021 I was dealing with eoe again and I just made the decision to eliminated all 6.... but 2024 I want to see where I am at I'm pretty sure I'm not allergic to all 6 .... but I am scared to feeling food impaction....

@LKGJO

6 ай бұрын

Food impactions definitely suck so it's probably a good idea to figure out what's triggering your EoE. It also may be causing more stomach acid which is typically why people get food stuck (in the lower part). If you're really struggling, I would probably stay away from alcohol, spicy foods and whatever the trigger food is too.

@mrentertainmentjay6321

3 ай бұрын

Please keep us posted

Thx for sharing. I'm in it 3 years now. Doing 6 food elemination diet since 2. But still struggling. Maybe because of the side effects of the ppi + cortisone. Really want to get of medication. Then start reintroducing food. Will be rocky though 😁

@LKGJO

Ай бұрын

It’s definitely a journey!

Glad to hear that you're healed. I have a question, did you ever feel breathing difficulties with EoE? I was diagnosed with Esophagitis few months ago. But I'm still feeling so bad until now. PPI didn't work, caused me side effects even after taking them for few days up to a month.

@LKGJO

2 ай бұрын

Oh that’s crazy, I never experienced that at all! Hopefully you find a solution that works for you.

Been suffering for exactly one year, did an endoscopy recently and discovered I have eoe.. If you were to give the ideal roadmap to success to heal what would it be? Maybe the strict 6 elim diet while on ppi’s for x amount of time? I’m open to your roadmap as someone who made it through it.

@LKGJO

6 ай бұрын

Honestly, just knowing if you have EoE is a way better start than I had. It was many months before I was able to get a scope and confirm anything. I will leave a link to the exact plan I did to get me back to normal. It sucks a bit at the start eliminating everything basically but it gets better once you figure trigger foods out. I did this diet but also took 20mg of PPI at the same time. PPI's really helped me but the diet is #1 out of anything. I'd take PPIs till you have it figured out and no more symptoms. Then you could maybe look at reducing the amount over time but I've been on them for years and still take a really low dose. www.chelcceleste.com/product-page/be-free-from-eoe-ebook-bundle

Hello, I was diagnosed with EOE 2020 and I have been pretty strict in not taking PPIs . I’ve tried that stuff called triad and now athletic greens but every once in a while if flares up, but I wanted to ask you if you experienced very discomforting bloating in you upper stomach, with like a weird pulse up into my neck. Have you felt any of these symptoms? Thanks for your time

@LKGJO

Ай бұрын

Never really felt bloating from EoE but now that I’m introducing more fiber in my diet it’s taking time to adjust. Wanting to heal my gut more

How long did it take for your symptoms to ease once you started the elimination diet? Also is your oesophagus completely healed now? Got diagnosed myself.

@LKGJO

4 ай бұрын

I think it was a couple months before things started to cool down and I didn’t worry about eating solid food. It was a long time before I got “healed” I was on an elimination diet and scoped for over a year easily. Once I found my trigger food and went on PPIs then it was smoother sailing from there. It takes time but for me at least there was a light at the end. Best of luck and be strict on the elimination. Really read the food labels!

39 does indicate EOE. Anything over 15 is EOE. That’s the defined portion of diagnosing it. You don’t just have the issue disappear, you can go into remission, but it can randomly come back overnight after months and years of it being gone. Go look up diagnostic guidelines on it. Over 15 anywhere in the esophagus is EOE.

@LKGJO

5 ай бұрын

I had 39 in my lower part which doesn’t always indicate EoE which is what I was told. My eosinophil counts were high in the upper part which indicates more EoE because people can have eosinophil counts from GERD or a “leaky” valve to the stomach which then is not EoE. But hey this is just what I’ve been told. My EoE was very gradual, never an overnight thing, so the only way I feel symptoms is if I were to eat tons of dairy for months and months.

@salmanalbawardi1592

2 ай бұрын

Hi how did you battle your eoe and find your diet for it

Proton pump inhibitors have been shown to stop inflammation in patients with EoE. You still have EoE but it’s in remission because of PPI. I have it as well but choose not to take PPI long term.

@LKGJO

6 ай бұрын

Interesting, I haven't heard that before. If you don't take PPIs and don't have symptoms of EoE I'd imagine you don't have it anymore but I'm not sure. I definitely don't want to take them long term either as I'd rather not take anything long term that I'm reliant on.

@benjamesv

6 ай бұрын

Do not stop taking PPIs, trust me, it’ll come back. If you really want to stop PPI, ask your gastroenterologist first, and get scoped regularly when coming off the PPI.

@LKGJO

6 ай бұрын

I actually did that test previously and EoE came back. I might try it again now and see as I don’t have the same symptoms as before so that’s why I’m still taking them for now.

@benjamesv

6 ай бұрын

If you stop PPI you will still need to treat the EoE with something else, either an elimination diet (avoiding dairy) or a swallowed steroid. But who knows, maybe yours is completely gone. But I’m just speaking from my experience, I felt better, then I got lazy with my PPI, I was taking it once every 4 days, and then I had another food impaction, and now I’m on PPI morning and night.

@LKGJO

6 ай бұрын

Going to looking out for this too so thanks so much for sharing!

Did coffee, alcohol, pre workout, protein powder affect you at all?

@LKGJO

5 ай бұрын

When I took Whey protein it definitely kept making everything worse. But all these things you mentioned are not great for the gut and stomach acid so they don’t really help your case with EoE. I avoid most of it and don’t drink coffee barely ever, same with alcohol. If I have a protein shake late at night before I go to bed I can get really bad heartburn too.(regardless of the type of protein, even vegan)

Did your esophagus narrow and did you ever get dilated?

@LKGJO

5 ай бұрын

Never got dilated thankfully! Once I went off dairy and went on PPIs then things went to pretty much normal

Are these “symptoms” highly suspicious? very gradually get a lump in the throat feeling with a bit of tightness there come on and linger for a couple hours after I eat something then usually stops, but then will come back on without anything some other time, doesn’t affect my breathing at all though, the tight feeling/ urge to swallow a lump makes it harder to sleep sometimes..

@LKGJO

15 күн бұрын

I think I can kind of relate to that feeling if my memory is correct…maybe not exact but my throat never felt really good. A lump could be an indication of inflammation but not exactly sure obviously

@redredred8408

15 күн бұрын

@@LKGJO would it feel like something is slightly pressing on the front of your neck somewhere?

@redredred8408

15 күн бұрын

@@LKGJO late term “symptom” is that it’s noisier when swallowing as well like a quiet crackle sound

@redredred8408

15 күн бұрын

@@LKGJO the lump feels like it’s only on the left side sometimes I wake up in the morning with the feeling of needing to swallow a ball of mucus that isn’t actually there, and some days when I swallow in the position of lying in bed, there’s a muscle that I could tense that would feel a click back into place no pain on the left

@redredred8408

15 күн бұрын

@@LKGJO my symptoms gradually go away as I get hungry. Some things start it up depending what I’m around like dust a little but

wait this can heal!!!!?

@LKGJO

2 ай бұрын

Well I’ve been told by specialists that it can and you can grow out of it. I had a lot of eosinophil counts, then did the diet and PPIs, and had none sign of EoE. I haven’t had symptoms really in years now. Some say it just goes dormant but I’m thinking if you can really heal your gut then it can go away. There’s many other people who have healed auto immune diseases before

I think i got mine by accidentally inhaling toxic fumes

@LKGJO

2 ай бұрын

Dang that’s crazy! Hopefully you can heal your immune system again so it goes away