I had brutal long Covid and beat it . The thing that beat the chronic fatigue, insomnia, anxiety attacks, headaches was i gave up coffee and sugar. Within two weeks my 7 month Long Covid was 95% clear.

@donttakethemark65

3 жыл бұрын

Could that indicate a possible diabetic/pancreatic autoimmune connection? I too notice that sugar makes symptoms worse.

@AnnaD25

3 жыл бұрын

Thanks for sharing. I am going to cut both out and see if my symptoms improve👍

@jimmydavis7587

3 жыл бұрын

I don't drink any caffeine and don't eat sugar. My long covid has been there for 7 months

@notsogreen

3 жыл бұрын

Coffee should be avoided during the infection days, as it depletes Glutathione levels. Probably would help to stop or lower coffee intake if one is a long hauler and support Glutathione levels, with NAC and Glutathione and Vit C, preferably on an empty stomach. Maybe worth a try.

@jimmydavis7587

3 жыл бұрын

@BlackPill Jesus Thanks man you too. I have hay fever a little, or I did. It weirdly dissapeared when I got covid. But my long covid was weird. I had tinnitus for 3 months and nothing else then the fatigue and dizzyness etc kicked off after catching a none covid bug

my post Covid symptoms where severe depression and feeling suicidal it was the hardest fight I ever had . it lasted 5 months . i felt like my old self had died .

@Penel62824

3 жыл бұрын

I feel like that now

@Good.Idea.Zlovakia

3 жыл бұрын

I have the exact same feeling now. I had covid 2 months ago and still have some symptoms and i don want to live anymore like this. And i feel like another person, totaly different... are you Ok now?

@MrDanno180

3 жыл бұрын

And you say that's from covid? Wow they really have you brainwashed

@stbam1965

3 жыл бұрын

@@Good.Idea.Zlovakia pray. And believe in prayer. Up to you. It cant hurt.

@amerigoves5099

3 жыл бұрын

Me too

I suffer with an autoimmune disease & the thought of catching Covid fills me with dread, that my symptoms would be made 10 x worse than I already have to deal with! 😬😷

@ellyw7201

3 жыл бұрын

Well, epidemiologists are saying the SARS CoV-2 virus is endemic now, so you're likely to encounter it sooner or later. But you aren't helpless against it. There are several different highly effective treatment protocols for COVID-19 (most of which can be done as outpatient treatment; no hospitalization required) , using drugs with a long history of use and excellent safety records, plus there are very effective "alternative" treatment protocols. (Don't believe the "There's no known treatment for COVID-19" nonsense -- in many countries effective treatments are being used; and a small number of U.S. doctors are doing effective treatments...) The basic principles are (1) limit the amount of virus you are exposed to (for example, don't hang out with symptomatic people, and get together with friends/family outdoors, not indoors); (2) use a prophylaxis protocol; (3) start vigorous treatment as soon as the first symptoms appear, using substances that block the virus's ability to attach to your cells, and substances that interfere with the virus's ability to replicate if it does get into any of your cells -- with the goal of keeping your "viral load" as low as possible; (4) do things to keep your immune system calm and comfortable (for example, good Vitamin D levels, high-dose Vitamin C, and confidence that you can beat this thing!). The best "one-stop source" for treatment and prophylaxis info that I've seen is Dr. Mobeen Syed's youtube channel. Look for the videos of his interviews with doctors. My immune system is dysregulated, frequently goes into autoimmunity...but I followed the principles I've listed and when I got COVID-19 in March, I was done with it 7 or 8 days after my first symptoms started -- vigorous treatment of the right kind just wiped it out.

@annelbeab8124

3 жыл бұрын

Checked your vitamin D levels? Enough Zinc, Vitamin C. Dreading diseases is dis-easing. There are so many risks in life we often don't know. Crossing a street for instance. Take good care of yourself on all levels:)

@newbeginning5686

3 жыл бұрын

high alkaline diet + wim hof method + meditation/exercise + zinc/vitamin d + fresh air Wearing a mask 24/7 means breathing back in toxins and co2, not good for your health or immune system. Avoid wearing masks for a long time and de-stress. Worry destroys your health.

@DulceN

3 жыл бұрын

@Fiona Brown - I’m with you. I suffer from several autoimmune diseases and I fear I’d end up in the ICU if I ever caught the virus. I’m not confident that my immune system would fight it, it’d rather join forces and attack my body even more viciously than it does every day. Please follow the rules and stay as safe as possible. Good luck.

@annelbeab8124

3 жыл бұрын

@@DulceN fingers crossed. And do all to feed yourself healthily and joyfully with food and positive encounters. It helps us to balance ourselves and the immune system needs a balanced information from our intake of foods and thoughts.

I've had this for twenty years, it's called CFS so I'm a bit pissed off that suddenly its interesting when it's been a file 13 condition for years where you get treated like a nutter hypochondriac whilst feeling like crap living a half life. Perhaps somebody will come up with a cure now .

@Tamar-sz8ox

3 жыл бұрын

Take care , I hear you 💗

@kirstywilson4289

3 жыл бұрын

And hopefully stop pushing freaky ppe obsessions on you x

@grannysweet

3 жыл бұрын

Me too. 1989. Life over.

@nialltracey2599

3 жыл бұрын

On the bright side, this may well mean that they finally get to the bottom of it and start developing therapies.

@fembot521

3 жыл бұрын

Have you tried seeing a naturopathic DR and changing your diet? I can say 100% that your issues are due to food sensitivities and inflammation caused by that...also known as autoimmune disease.

Long haulers illness seems so much like CFS. Many Drs have dismissed CFS/ME but the same dismissive behaviour of long haulers will not work.

@kaleidoscope8743

3 жыл бұрын

Drs. don't dismiss it, but some don'tlike dealing with it. They come across as patronizing because they realize thevpatient is so uninformed/misinformed (literally). CFS/ME is not a disease per se. It's a real physical condition (physical symptoms) of an underlying condition, which could be caused by one or both reasons ... (1) one or more pathogenic infections are present (like viral, bacterial, fungal, paracytical - which includes protozoa and other water bourne types. ) If the body's immune system cannot totally clear the pathogen(s) because it(they) go to the intracellular phase. ... I forget how they number the phases, meaning phase-1 is contact & the initial trigger of your immune systems "acute response phase", which will show its present in the blood. But the advanced stage/phase is chronic inter-cellular phase where the pathogen has established a chronic presence in the body. If the body clears it in stage 1, fine. But if not, then it can move to host cells in the body. And immediately begin to spawn, just like fish, they need hospitable locations to colonize and spawn. They secrete substances that are similar, protein-wise, to the body healthy proteins that trick the body into missing its presence. You may have heard of biofilm? Anyway obviously it will invade and colonize the tissue that is feeds on. I'm the case of Muscular Sclerosis the paracytical infection infects a certain enzyme (protein) that is found in the collagen rich layers of the spinal cord! With MS The gradual crippling of the body and organ functions is the symptomatic clue of its presence. Lyme is a similar story. Doctors are not telling patients that a 1 or 2 or 3 ... 4 is in fact positive result, because certain organizations tell them to tell patients their tests are negative. It's not. In fact a 0.9 is not negative. Even a negative result, may not mean you are negative. It just means your test was negative. Blood tests can be negative while tissue samples are specifically positive. Envita in Arizona treats Lyme. FYI Lyme is not just the Borrelia b. bacteria, that a pepper-flake sized tick carries. In fact a Lyme tick will absolutely carry multiple pathogens ( such as Powassan v. Bartonella, Babesia, Erlichia, HHV6, mycoplasma, cytoplasm a, AND others!!). The tick will carry a cocktail of these pathogens. Doxycycline is what drs are told to treat all that with. When in fact that is simply not enough! And naturopathic medicine can assist in killing some of this. But most drs wont be able to tell you what safe doses are or drug/herb interactions that could cancel each other out. They face legal challenges for trying to help. CFS/ME could also come from environmental exposures to pesticide and herbicide, but again don't expect drs to tell you this. All these chemical air deodorizers like glade, fabreeze, Etc. are bad for your endocrine system. Other possibly factors are nutritional deficiencies. Don't expect your doctor to tell you about nutritional deficits either. Body attacking itself is more likely a nutritional deficit and the body is liberating collagen from its own tissues literally. Otherwise it is simply collateral damage from the low-level infections when they "bloom". This causes a Flare. When the body has an intercellular-level infection in its collagen-rich connective tissues (fascia, sheathings, tendons cartilage, ligaments and tendonous tissues) it is both painful and crippling litterally. The inflammation is literally the evidence of that, and the body's war is legitimate, CFS/ME is legit! Fibromyalgia is legit! But the side effect of your body battling the infection is doing collateral damage to the surrounding tissues. Some of that the body can repair unless it's just constantly busy fighting tons of these low-grade infections. Also biolicials (classification) do not protect you at all. They shut down or suppress your body's ability to mount an immune response. This could have deadly consequences and will prevent your body from fighting cancer (TNF/TNFa etc). NSAIDS & DMARDS COX2 inhibitors etc. Do organ damage while masking symptoms partially. Not all pathogenic cellular infections are curable. They are considered treatable with these dangerous drugs. Now you are armed with new knowledge!!! Find a good reputable Infectious disease dr to help.

@donaldviszneki8251

3 жыл бұрын

Twiv recently covered this

@karlhawkes3820

3 жыл бұрын

My interpretation of your point is coronavirus a common cold and it's no more than standard respiratory virus.

@bluefairyuk

3 жыл бұрын

I think you are wrong. Feeling exhausted is only one of the huge number of symptoms that we long haulers have been experiencing, including chest pains, chest tightness, shortness of breath, pains all over, burning veins etc etc etc on top of high fever, cough, sore throat, dizziness etc...

@danyellerobinson5940

3 жыл бұрын

Many with CFS are patients with implant devices and inherent implant-associated biofilm.

These videos are so interesting! Thank you for doing all these studies while formal research is only in its beginning stages. You're saving all us long haulers' lives and sanity

@RUNDMC1

2 жыл бұрын

Thanks Rachel!

Thank you so much Gez for your usual standard of high quality research, so eloquently presented, that both layman and medical practitioners can easily access this and understand the implications for future research and treatments, all undertaken while struggling with Long Covid, yourself. We greatly appreciate your efforts. ( You're looking better. Nice shirt! ) Cx.

@RUNDMC1

3 жыл бұрын

Thank you!

Thank you again for this excellent and limpidly clear video. I’m a 4 and a half months long covid sufferer (not on any of the social media groups). Had glandular fever in my first year of uni which I count as having induced serious PVF. Also have strong hay fever allergy. I relapsed with long covid on 3rd July, after 2 and a half months of ‘apparent’ recovery. Initial illness felt strange but very mild overall, lasted one week, and resumed running and weight training the very day I felt better,. A couple of mammoth zoom sessions the next couple of days sent me straight back to bed for a long week, more tired and more ill than the first week. I decided to take it easy when i began to feel better, and I ‘apparently’ managed to recover and lead a mostly normal life for 2 and a half months. Thus my bedraggled big long covid relapse actually happened after my hay fever allergic response in June, which was not so strong this year probably because I spent more time indoors around then. In the 2 and a half months leading to my relapse, strange warning signs were there throughout such as a very disrupted sleep, occasional day of excessive tiredness, couple episodes of painful lymph nodes under the tongue, which i managed to clear once with Oligosol (look it up if you want!) but it happened again and I relapsed 4/5 days into this strange second lymph nodes episode. I’m extremely sporty and always felt strange after exercise - both good, and bad! I relapsed after a particularly strenuous week of training/physical activity/bad sleep. I was sitting on the sofa around 7pm and it felt like a wave of illness invading my body. Something had given in and opened the doors to serious trouble. Not sure if you have mentioned in your previous videos but the prevalence of women suffering from long covid makes me wonder wether that might be related to the fact that women are generally more prone to autoimmune conditions. « Far more women than men have autoimmune diseases “Hormones play a role and inflammation causes a role. Men have hormones too, but women are still affected more. Estrogen predisposes women to autoimmune diseases » I’d love to get info about the role of cytokines in acute covid, and potentially long covid. Interleukin 6 seems particularly interesting, especially in relation to muscle activity and inflammation. An article published on the royalsocietypublishing.org seemed to point in that direction, as an explanation for persistent inflammation and relapses due to physical effort. And also more about the regulatory role of the pituitary gland, which seems unable to reduce this inflammation. Thank you again. I’m actively reading and trying to understand what’s happening to us. Have a great doctor helping me along. It’s tough, good luck all!

@RUNDMC1

3 жыл бұрын

Thank you Mr Jean!

Hi ran ,u looking good with new hair cut ...I was back to my normal life at 4th month ..hope every one will see the tunnel at some point of time ...hope you back soon 👋

@RUNDMC1

3 жыл бұрын

Thank you Ravi!

The symptoms described sound so much like CFS/ME. I have spent over 10 years recovering from CFS, still a way to go. My only advice to long haulers is don't try to beat this, accept it ( yes, that is very hard), don't fight it, give yourself the time to rest and give your body time to heal. I sincerely hope all the long haulers recover soon. Good luck and best wishes to you all

@jennyeyles9596

3 жыл бұрын

I agree.

@jennyeyles9596

3 жыл бұрын

You could also take a look at the other autoimmune disorders like Lupus, MS and (APS)Antiphosphlipid syndrome (I have APS)

@apienootiemiesie9852

3 жыл бұрын

You should learn about Robert Naviaux's work on the concept of Cell Danger Response

@paulgee4336

3 жыл бұрын

This will most likely help people with pre-COVID-19, COVID-19, and post-COVID-19 health issues. It helped me and two other people I know personally. Join the Grassroots Health Revolution Movement. You DO NOT have to be unhealthy, sick, ill, dying, or near death! (almost everyone, almost all of the time) BE Healthy and Well via CHP -- The Clean Health Protocol. SEE: @t .

@globalbridges8570

3 жыл бұрын

Viruses do not exist, those 80-120nm spiky outer membrane vesicles are exosomes. The word virus comes from the Latin word poison, all respiratory diseases are caused by toxic chemical pollution. Lookup WW1 chemical weapons, then lookup their symptoms on the CDC website and you’ll see they match all the supposed ‘virus’ outbreaks.

It sounds like the chronic fatigue some people get after an illness it's probably the same thing but as there is so much focus on it now it's actually being recognised

Excellent research, must have taken you hours and then some!

Thank you for posting well-researched videos.

@RUNDMC1

3 жыл бұрын

Thanks Kathy!

This makes a lot of sense. Thanks for explaining it so clearly,

@RUNDMC1

3 жыл бұрын

It’s a pleasure, Jo :)

Thank You for Your Excellent Work Here! Your hard work is very helpful and very much appreciated.

Thank you so much for your continued efforts. Your video is hugely insightful and thought provoking as always.

@RUNDMC1

3 жыл бұрын

Thank you Joanna!

Thank you again for all the work you put into your studies and these videos. This one in particular is really helpful!

@RUNDMC1

3 жыл бұрын

Pleasure Nat!

@verasimpson9223

3 жыл бұрын

Very interesting I will need to investigate

I suffered from ME/ CFS for over a decade until I got very ill at the beginning of this year. I had solid, unrelenting fatigue that lasted months, breathlessness, problems digesting food and when recovering from that, seemed to get hit by everything else that was going around. I knew I was deficient in key vitamins and found myself craving a mostly raw plant based diet which slowly helped me regain vitality. Six months on and I feel stronger and fitter than ever due to the changes in diet and lifestyle but still get tired from time to time.

@paulgee4336

3 жыл бұрын

This will most likely help people with pre-COVID-19, COVID-19, and post-COVID-19 health issues. It helped me and two other people I know personally. Join the Grassroots Health Revolution Movement. You DO NOT have to be unhealthy, sick, ill, dying, or near death! (almost everyone, almost all of the time) BE Healthy and Well via CHP -- The Clean Health Protocol. SEE: @t .

I wanted to say thank you so much for your videos. They made me cry in a good way. I have got all the supplements you recommended. Just started yesterday. Almost completed 3 months of terrible long hauler symptoms like crushing fatigue, brain fog and muscle pain. You give us hope. The 3 doctors I have seen act like I am crazy.

@RUNDMC1

3 жыл бұрын

So sorry to hear about this Amy - take it easy, rest as much as you can and best of luck with your recovery.

Thank you for this rundown.

I quit coming down with more than a tiny sniffle by 2001 as a school teacher for decades. I started taking a lot of natural D3 and added animal protein back into my diet. I had my first rhinovirus free year. My success continued but I still had some chronic issues. Ultimately I got a genetic profile that showed me my severe issues with D3 deficiency, magnesium deficiency, and all the mystery foods that were triggering my migraines/inflammation. I lost 75 lbs while getting better! From 2001 on I continued teaching and being exposed to young people from all over the world, but as sick as they would get and still come to class, I never caught anything from them. Whenever I feel a bit sniffly and tired, I soak in a very hot bath to get my temp up to about 101 to 102 for at least 20 minutes. My dad learned this trick in the Navy. This method has been 100% successful for me for over a dozen years now. I come from a family of people except my dad who get bedridden for a week with simple colds. Now I know why we do. We have terrible D3 levels unless we supplement. We also have chronic INFLAMMATION partly from genetic causes. BTW, boron fixed my joint and back pain.

Thank you for your hard work !

Thank you for another fantastic video. I'm a long hauler (8 months) who previously had CFS/ME. As many of my NHS colleagues start to shield as we move into another lockdown the staff who have had PVFS in the past have NOT been told to shield. I will be sharing your video with them in the hope that they can avoid the nightmare that has been long COVID.

@RUNDMC1

3 жыл бұрын

Thanks Ghislaine!

@MrEdkirby

3 жыл бұрын

Hey Ghislane, Hows your recovery going? How does it compare to recovering from CFS? Thanks!

@ghislaineswinburn1939

3 жыл бұрын

@@MrEdkirby Hi. Thanks for asking. Long COVID is very different from CFS/ME as fatigue is only one part of it. For me the cardiac, lung, neurological and gut complications have been complicating factors on top of the fatigue which have hospitalised me on numerous occasions. The fatigue with CFS/ME was more severe initially as i was bedbound completely for 6 months, unable to use my hands to feed myself. The long COVID swings in energy fatigue have been more severe and quicker. e.g. 1 day of too much energy resulting in 2-3 days in bed instead of weeks & months in CFS/ME. I'm starting to improve after 8 months whereas the CFS/ ME lasted 25 years. I'm 1990 I was diagnosed with yuppie flu/attention seeking so the medical establishment haven't changed much- my GP suggested the palpitations and shortness of breath post COVID were anxiety related. The difference now is that we're better connected with social media so the journey is not quite so lonely! Hope you are well!!!

@MrEdkirby

3 жыл бұрын

@@ghislaineswinburn1939 thanks very much for this informative response. I am around the same point in my recovery. My only remaining symptoms are quite bad fatigue and some neuro/brain fog issues (headaches, light sensitivity and difficulty concentrating). I am worried about it becoming really long term but think all I can do is wait it out! Thanks again

@ghislaineswinburn1939

3 жыл бұрын

@@MrEdkirby I also have neurological issues. Problems with word finding and irritability developed into dementia like confusion. I was signed off work at this point and 4 weeks resting resolved the worst confusion symptoms. I have high hopes for recovery but need to remember to pace. 🤞for your recovery

Oh my heaven, 79 years old, hay fever, asthma, thyroid problems leading to chronic hives, diabetes. How am I still alive?

@loveinautumn3978

3 жыл бұрын

Do you have covid-19?

@helengarrett6378

3 жыл бұрын

@@loveinautumn3978 I don't know if I had it in June I had a runny nose, stuffy. But I'm allergic. I had diarrhea one day with cramping but my intestines get wonky sometimes. I had a 99.8 temp for one day. Normal is 97.8 most of the time. Then after that I felt like I inhaled a sock and had a pain vertically under my breast bone. No strength for a week and so fatigued I could hardly get from the sofa to the kitchen, a very short walk. But I'm asthmatic so I upped my asthma preventer meds and used my Ventalinin for a week. Then I improved a little but not enough to change my sheets for 3 weeks. Just barely could take care of myself. Very fatigued and breathless walking around my small apartment. A shower was very tiring. Did no housework except dishes. Then I felt better after 3 weeks and regained my strength enough to slowly catch up on laundry, vacuuming and changing bed. So I am not sure if I had Covid ir something else. Could have been worst asthma ever but not much coughing.

There is a high level of oxidative stress in people who are extremely active.

@michaelherlihy2090

3 жыл бұрын

Only running 90km a week like Mr DMC isn't that active. It's probably less than an hour of exercise a day. I have run over 200km a week and that is probably what could be categorised as extreme.

@rosiej9231

3 жыл бұрын

@@michaelherlihy2090 it’s very individual. What’s fine for one is way too much for another body.

@robertolsen9721

3 жыл бұрын

What is oxidative stress?

@robertolsen9721

3 жыл бұрын

Just read about it, maybe I'm not extreme but bicycling 38 km a day + gym 3-4 times a week. I don't have oxidative stress. I'm 52 years old.

@cavelleardiel

3 жыл бұрын

@@robertolsen9721 is an imbalance of free radicals and antioxidants in the body, which can lead to cell and tissue damage. occurs naturally and plays a role in the aging process.

Thank you for your research. I'm not an expert, but your research is sound and makes complete sense. I believe I contracted COVID in late February (before they were testing), and have been experiencing significant fatigue since. I have asthma and allergies, so I would fit with your findings. It's nice to have a potential explanation for the hell if I've experienced for so long!

I appreciate the time you put into this information, this made sense. Your work, along side Dr. Tina has helped me understand how to take charge of what has been happening to me. Appreciate you 😊

@RUNDMC1

3 жыл бұрын

It’s a pleasure - I’m glad it’s helped!

Your formulas are showing! :-) Thank you for another excellent, informative and very clearly conveyed set of findings. I really hope some grad students find their way here - lots of great areas of potential research.

@RUNDMC1

3 жыл бұрын

Thank you Catherine! And yes, I meant to flash my formulas 🤣

I have long covid and I've been wiped out for over 7 months now and still fighting everyday. I can be absolutely fine for 3 hours and then all of a sudden just completely wiped out for the rest of the day.

@RUNDMC1

3 жыл бұрын

That’s exactly how it works for so many of us.

@AnnaD25

3 жыл бұрын

I can relate😢

@getsideways7257

3 жыл бұрын

Do you also have to sleep a lot during the day whenever possible?

@vidateksolutions956

3 жыл бұрын

@@getsideways7257 I also have to sleep during the day, drives me crazy considering, use to be a super active person

@getsideways7257

3 жыл бұрын

@@vidateksolutions956 I can't really call myself that, but with all this fatigue and insane amounts of daytime sleep I feel like I'm not really living anymore, barely managing to do ANYTHING while I'm still awake and feeling more or less fresh.

You might definately be onto something here! I used to be allergic with light asthma too. Have been medicine free for 10 years until Covid decided to stop by. Apparantly my trigger-happy body and Covid had a shoot-out. I imagine this Western now where there is a gun fight inside a saloon, where everybody ducks behind counters and tables and the two shooters cause an immense chaos. After the fight is done, you know how that saloon looks, good luck with cleaning up the mess ;)

@RUNDMC1

3 жыл бұрын

Haha, exactly this!

@nasimgillani1161

3 жыл бұрын

Good talk creating Health MANIA

@mysticswalk3086

3 жыл бұрын

@@nasimgillani1161 Your mindset seems very negative and rude. Some of us need to know these things since we are already compromised by other illnesses. Since you are not immune compromised then you're all good so move on. Leave the rest of us alone in our "mania".

@nikkij4873

3 жыл бұрын

@@mysticswalk3086 thank you for saying this. One person's "mania" is another person's "survival". As an asthmatic if I walk into a dust cloud, I'm dead.

@sandrag8656

3 жыл бұрын

Love your sense of humor, Charlotte.😆 Get rid of the shoot-out-mess soon!

Wonderful, totally makes sense! Thanks ever so much. I believe many of us in this category have figured out and believe the connection, but it's really an enormous relief having somebody work it out. Because I had pre-covid fatigue from hard exercise - on some days that is -, due to auto-immune inflammatory thingies, I sort of doubted my own sense that it is connected. ☀️🙏🏾

@RUNDMC1

3 жыл бұрын

Thanks Lina! Best of luck with your recovery :)

Thank you so much for your tireless research! Been a fan since day one.

@RUNDMC1

3 жыл бұрын

Thank you Lisa! I hope the films have made some small difference :)

@lisamelnychuk8674

3 жыл бұрын

@@RUNDMC1 they certainly have! I am struck by your devotion. I'm an exposed healthcare worker near New York City. Got sick March 4th, tested negative for COVID19, no antibodies. Been unwell since. Left my job. You have been so great exposing research, evidence, etc. Sending healthy vibes!!!

@RUNDMC1

3 жыл бұрын

Lisa Melnychuk wow - I’m sorry to hear that Lisa. Best of luck with your recovery :)

@lisamelnychuk8674

3 жыл бұрын

Same to you!!!

Hey, I just stumbled on these videos from the LH Covid reddit page, I think I've had a "mild" case of long covid since March. I would categorize myself as a fast clearer -- I thought I just had a cold in February, but then started having weird symptoms in March. The first thing I had were 3 months of allergies. about 4 years ago now, I had one week of watery eyes as an allergic response to something in October, and otherwise have never experienced allergies. From March through June, I was on constant eye drops, and even that wasn't enough to keep my eyes working normally. Additionally, I was feeling skin discomfort almost constantly, with periods of fatigue and insomnia hitting me at what felt like random times. I've since been able to almost entirely eliminate the buzzing and sunburn, which happen directly before fatigue, insomnia, and other symptoms by eliminating exercise, alcohol, and dairy (which, if I have enough dairy, can trigger an episode, as I have extreme lactose intolerance. I think I had lactose intolerance to a lesser degree developing as much as a year ago), and by limiting coffee. Outside of the occasional flare up (2 in the last couple months), I have constant skin irritation, like someone is just sandpapering my skin all day long, and I can feel rough fabrics through two very soft layers. I'm a 36 year old, previously very healthy male. I'd be happy to join any future surveys you are doing.

@RUNDMC1

3 жыл бұрын

Thanks Tracy! Best of luck with your recovery.

Very interesting. Thank you for posting this

@RUNDMC1

3 жыл бұрын

Pleasure PJ

Thanks for sharing your findings. Best explanation I came across so far. I caught Covid in March and still suffer from several "Long Covid" symptoms. I had an autoimmune disease already prior to the infection (Psoriasis, Inflamation, Asthma in childhood). Much thanks.

@RUNDMC1

3 жыл бұрын

Best of luck with your recovery!

Thanks for the video, there aren't many on this topic that I have seen

Hi, Gez! Another great video and illuminating research - thanks! As I reported back in August, my energy levels made a dramatic improvement after 4.5 months w/ long Covid. I've now been back to my usual exercise and activity routines, with no relapses, for about 3 months; however, I had a mystery eczema-type rash (hand & leg) that took weeks to clear, and a few weeks ago I developed some mild joint pain/stiffness in my hands and feet (no history of RA, but I do have Type 1 diabetes and a wonky thyroid). Going with the theory that my immune system was/is still in a revved-up state (to which it is clearly prone!), I upped my anti-inflammatory strategies (diet, supplements, intermittent fasting, further stress reduction practices, sleep management) and have noticed significant improvements. Very best wishes to you, as ever, as you battle this beast ... and thanks again for being a beacon of reason in all of this hoo-ha!

@RUNDMC1

3 жыл бұрын

Thank you Freddie!

@Tamar-sz8ox

3 жыл бұрын

Thank you . I’m glad you’re doing better

@loveinautumn3978

3 жыл бұрын

Were you ever anxious and were you ever afraid of going to sleep 😅

@FreddieonFilm

3 жыл бұрын

@@loveinautumn3978 My health-related anxieties predate COVID - but stress reduction has definitely been part of my long-haul recovery program. Re. sleep, it was more the opposite: I had trouble sleeping at the height of my illness and was worried about the effects of poor sleep on my health.

Beautiful work here! I was able to follow along well & it was presented in a way that kept my interest unconsciously. Just subscribed.

Very clear and helpful - thank you!

@RUNDMC1

3 жыл бұрын

No worries SL!

Great research Gez. Confirms what I always suspected. My major Long Covid symptoms have always felt like a really bad RA flareup with whole body inflammation and fatigue. When I mentioned this to my Rheumatologist he just dismissed my theory

@RUNDMC1

3 жыл бұрын

Thanks Elspeth. Have you seen any improvement over time?

@ElspethMackenzieEdinburgh

3 жыл бұрын

@@RUNDMC1 Yes, I have! All my symptoms have gradually subsided. Especially in the last week when my fatigue disappeared. If I am careful, I only have tinnitus and a cough. My fitness levels are awful though! Following an MRI 3 weeks ago my rheumatologist upped my normal NSAID dosage and I had a steroid shot. This might have helped? I have also been very carefully pacing. I am going back to work next week so fingers crossed. I hope you are continuing to make progress.

@notsogreen

3 жыл бұрын

@@ElspethMackenzieEdinburgh How could your Rheumatologist dismiss what you said regarding your symptoms feeling like a R A flare? Do not let a doctor DISMISS any symptoms. Rheumatologists can often be very overbooked, too busy, have also teaching positions, and often lack the time to really follow-up on NEW/Old patients, or do the research needed to keep them up to date. The C19 survivors especially long haulers who are symptomatic will need an autoimmune/ autoantibody screen because this virus like many viruses before it, can send many people genetically prone to A I diseases on the path to getting them, Psoriasis / Psoriasis Arthritis, Sarcoidosis, Chron's, Ankylosing Spondylitis, Type 1 Di abetes,Thyroid Diseases, or the "heavier" ones: RA, SLE, LUPUS MS, SJORGRENS, etc. There are genetic tests for the GENE groups that have susceptibility to inflammatory diseases. . Or the Autoantibody tests, ANA and the 60 plus antibody lab screen. Do not take the B Vitamin BIOTIN for at least 5 days before blood drew as many labs use BIOTIN in their testing, causing false tests results, having people taking medications that are SO WRONG for their real condition. Biotin is also used in many hormonal lab tests: as in THYROID, ESTROGEN, etc. Rheumatologists have to start stepping up to the plate with COVID19 patients, along with cardiologists, liver and kidney specialists, GI doctors, Vascular Specialists, hematologists, Neurologists, Pulmonary Specialists. Chest X-rays and or Scans need to be done. Cardiac workups for all who were ever infected, Asymptomatics, too as not feeling symptoms due to the virus blocking certain pain receptors, doesn't mean no sequelae from the infection. It can hide in G I system still repliclating even if swabs showed negative.

@ElspethMackenzieEdinburgh

3 жыл бұрын

@@notsogreen "Rheumatologists have to start stepping up to the plate with COVID19 patients" - couldn't agree more! He has never been the best at helping me with my RA but I was shocked he knew nothing about Long Covid. I refused to leave his office until he at least tried to help me. Later I saw a letter he wrote to my GP saying I had "unrealistic expectations" of him.

Thank you! Very informative video again.

@RUNDMC1

3 жыл бұрын

No worries, thank you Els :)

Awesome! You are doing a great service bypassing the politicization tainting public understanding of the pandemic and presenting very important information. The MSM has failed us in this but you hold high the chalice of knowledge. I subscribed and will be pointing others to your channel to get the insight needed to best handle the pandemic

@RUNDMC1

3 жыл бұрын

Thank you Doug!

I am a long hauler who did not have any of those pré-existing conditions, at least not that I know of (I was diagnosed with slight asthma since covid infection, I don’t know if I had asthma before or not). However, I did a mycotoxins testing which showed high levels of Ochratoxin and Mycophenolic acid (coming from mold in our house due to water damage). Both of those mycotoxins are known to lower T and B cells, in fact, Mycophenolic acid is used in anti transplant rejection medecine. My doctors believe this prior mycotoxin intoxication led to my immune system reacting poorly to COVID-19. I wonder how many other long haulers have environmental toxins which compromised their immune system, and nobody knows about it because we aren’t tested for that. Could there be a link between your findings and this theory ? I would be interested in understanding the mechanisms of the long haul covid immune response.

@RUNDMC1

3 жыл бұрын

I’d need to do some more reading before commenting on this!

@stepujacybudowlaniec

3 жыл бұрын

@@RUNDMC1 can you take a look at the impact of mold (spores, toxins) on autoimmune diseases?

@DragonHeartTree

3 жыл бұрын

Thank you for posting these comments

@LindaGailLamb.0808

3 жыл бұрын

I had serious eczema as a child, and I still ave occasional flaeups; and I have some seasonal allergies, including snow mold in the spring. I've also had recurring episodes of ITP - an autoimmune disorder, where my immune system atacks my platelets. Some of those occurrences came shortly after I had infections and antibiotics - obviously, some of those infections were triggers. At this point, I'm REALLY hoping I never get covid - it might trigger my ITP as well as long covid symptoms.

@PBrofaith

3 жыл бұрын

When you were tested for covid did they inform you regarding the number of cycles they did ?

Well done! Mast cell dysfunction before COVID. ( Allergic march) Yes, mast cell activation syndrome is likely occurring in our long haulers. In fact, autopsy have shown mast cell degranuation in patients that passed away.

Thank you for setting the record straight. A famous study got it dangerously wrong recently. How about other autoimmune conditions like psoriasis?

@RUNDMC1

3 жыл бұрын

I would expect it to be similar to eczema here but will have to investigate in another study!

@theeggtimertictic1136

3 жыл бұрын

My cousin developed psoriasis from Covid along with other life changing symptoms .

@rohoff6723

3 жыл бұрын

I wonder how the use of biologics such as Humira effect the chance of developing long COVID.

I have an anecdotal case study: a friend of mine (female, age 50+, overweight) with type 1 diabetes was only tested for covid as a routine percaution before surgery. She was discovered to have covid but had no symptoms, just a massive imune response that showed up in scans as swolen lymp nodes. The doctors actually thought she may have lymphoma and took a number of biopsies which all came out clean.

@malak2858

3 жыл бұрын

Were the swollen lymph nodes around the neck area? Just curious because my mom started complaining from a feeling of something swollen and hard just below her jaw after she got c19

At last! Thank you for this. I’m atopic and now have POTS and MCAS following Covid.

@ShandaMichelle1

3 жыл бұрын

Those are often associated with toxic mold exposure, perhaps the CV was the straw that broke the camels back so to speak.

My husband tested positive for Covid right before Thanksgiving. I have Rheumatoid Arthritis and other autoimmune issues - I also have RH NEGATIVE BLOOD TYPE. I tested Negative - TWICE for Covid and was with my husband throughout his entire illness and before he even showed symptoms. I took care of him while he was sick - I wore no mask, ect. and still have not contracted Covid. My husband however, is still experiencing extreme fatigue and weakness.

Exactly you are on the mark, I am allergic and recovered 2 month before from covid but still suffering from long covid.

@MrDanno180

3 жыл бұрын

You had the flu

Wealth of info! Thank you!

@RUNDMC1

3 жыл бұрын

Thanks Julie!

Evening Run-DMC, Glad u recovered. Thanks for your informative and analytical video. Stay Safe...

Thank you so much and I wish you complete recovery

Thank you for the work you do, and importantly for caveating the limitations of it. As someone who is chronically fatigued due to untreated sleep apnea (and struggling much worse due to long covid) I'd be interested to see any correlation with it. Im aware of a study that suggested you were around 3-4x more likely to get severe symptoms but it is hard to disentangle from heart disease, obesity and diabetes in a lot of cases (personally i am young and healthy otherwise). - and also whether people are treating there apnea or not.

@nazzahan6543

2 жыл бұрын

Hi Tommangan7, I also have untreated sleep apnea, undiagnosed too. Young healthy female here. I do not have long covid, but have wondered about whether sleep apnea could predispose me to more severe infection/long covid moving forward. Would be helpful for us to keep in touch, you’re the only person I’ve come across who is in a similar position.

Thank you, I found this interesting. I have hay-fever, asthma and eczema. I also have an autoimmune disease - MS which involves major fatigue for me. I take a disease modifying injection for the MS (glatiramer acetate) and have done for about 15 years. But I find all this interesting as I like the biology of disease and enjoy all studies. I got a degree in Biology in 1994 so all the research is fascinating. Best wishes

@jennyeyles9596

3 жыл бұрын

I find the study of virology fascinating too :)

Thank you for these facts. I'm one of the long haulers after a very very bad flu like illness with constant dry cough for over 2wks in Sept 2020. Yet my test came back negative, it did take me 4 days to grab a test online. Non available over weekend from Friday to Monday pm!! It was my GP that could hear my cough, raspy fatigued vocals and weariness. She told me to self isolate another week. I did but suddenly a host of other odd symptoms appeared. My GP said a lot of her patients were reporting the same. Nil energy, exhaustion, aches and pains, palpitations, chest pains, body pains, so after 3wks I was signed off work due to probable long Covid. Still trying to recover now. I lost my job due to sick pay ending. Retired now! Much better now but energy levels are still very low. I'm a long term asthmatic, have eczema and chronic hay fever (for many many years). Also long term Osteo Arthritis, CKD and had I Chronic Fatigue in the late 90s! I tend to be iller if I get flu, and working in an academic library meant I was picking up more virus than most. Thanks for this info Dr.

@RUNDMC1

2 жыл бұрын

Sorry to hear about this story :( Best of luck with your recovery!

I'm a long hauler, I'm 36, and I have both asthma, atopic exema and hay-fever, although the latter have been pretty inactive for the past ten years. Suffice to say, it's less inactive now, but the most difference was with my asthma that went from manageable to severe.

If you need a long hauler for a study, I’m willing to volunteer.

@nikkie1189

3 жыл бұрын

Same

@MsBelinda1958

3 жыл бұрын

Me too

@hackedstalked6371

3 жыл бұрын

Me too!

@ROBLOX-jq4qo

3 жыл бұрын

me too

@beeboops6845

3 жыл бұрын

Same

I have long covid. Have not had a normal body temperature in months now. I have chronic boop. I've struggled with yeast for years. Getting covid has pushed my immune system to clear the yeast. My lungs are clearing a little bit too. Having had covid is actually improving my overall health even though I'm still running daily low grade fevers. Edited to add: My vitamin D level at the time was 54ng/dl and I think that made all the difference.

@paulscottfilms

3 жыл бұрын

you have imbecility. Corona viruses are respiratory in nature

@franny5295

3 жыл бұрын

@@paulscottfilms If you can't keep up with the totality of the conversation perhaps it's best not to respond. Having contracted this virus has provoked my immune system in a way it hasn't been provoked before. Something about fighting this particular virus also provoked my immune system to recognize that the degree of yeast I had in my body was harmful and start killing it. My immune system going after the yeast has resulted in ongoing low grade fevers but killing the yeast also makes me feel much better so there's a net benefit.

@ingridschmid1709

3 жыл бұрын

@@franny5295 Had to check out the information you put out cause it did come off as a bit weird , had no idea what boop was about and the name well is funnier than the symptom obviously , and that might just be a cultural specificity but I never heard people refer to a fungal infection as having trouble with yeast .A quick search told me Boop was a real thing but that Cop might look like it . However the idea that covid could be in some very lucky cases be beneficial isn't that strange to me, I sort of prayed it could be the case as a hail Mary it didn't work out for me though.

@margaretneanover3385

3 жыл бұрын

That's so odd to think that it effects so many ways.

@anybodyoutthere3208

3 жыл бұрын

Franchesca ONeal I think your vit D level is also key Thank god it’s up in the 50 range. Hope it can push up a bit higher still Best to you~

Thanks for this work

I admire your passion for what you are doing. You are giving a huge amount of information and data in a short span of time.. I do find it funny watching your eyes blink in tandome with you pronouncing words. The longer words are the best. You are a great filter of information. I appreciate your work.

Hats off to you for opening a really important avenue of research. As a largely recovered ME/CFS sufferer with two inflammatory autoimmune conditions (Crohns and Ankylosing Spondylitis) I am doing my best not to meet this virus. I'm also on immune suppressing drugs.

@RUNDMC1

3 жыл бұрын

Thanks Peter. Can I ask how long you were battling ME/CFS for?

@ellyw7201

3 жыл бұрын

Epidemiologists are saying the SARS CoV-2 virus is endemic now, so you'll probably meet it sometime; best to be prepared. There are ways to block the virus from attaching to your cells, and ways to block the virus from replicating if it does get into some of your cells. If you want more info on these treatment options, scroll down and look for my reply to Fiona Brown.

@petersaunders5308

3 жыл бұрын

@@RUNDMC1 You'll not like the answer but at least there was light at the end of the tunnel. My ME/CFS had its origins in flu. It reduced my walking to 25 steps for 17 years! Now the controversial bit. I improved overnight by doing a three day course called The Lightning Process. ME organisations will tell you this can't possibly work and if it does you didn't have ME/CFS. Hundreds of vastly improved sufferers would refute this. Whilst graded exercise made me relapse, this course understands the link between anxiety, adrenaline production and your physical symptoms. By calming and reassuring the mind you can quickly prove you are capable of more than you think. I am not an expert but I would be surprised if such techniques would be effective early in chronic fatigue. However once you have been living with it for months or years half the problem might be fear of exercise, unfitness etc. I still have a few mental issues such as short term memory, concentration and a little brain fog but not so much that other people would notice.

@petersaunders5308

3 жыл бұрын

@@ellyw7201 Thanks Elly. I have been a fan of the Peak Prosperity KZread channel on Covid and I have been supplementing with Vitamin D, Vitamin C, Zinc and Quercetin for months now. I am fully aware I am vulnerable to aerosolised virus so I only share airspace with one other isolated person.

@ellyw7201

3 жыл бұрын

​@@petersaunders5308 Glad to hear you're already on a good prophylaxis program! When I got my first COVID-19 symptom (a sore throat), I used elderberry to block viruses from attaching to cells; also took lots of Vitamin C. I was already taking several protective nutrients like Vit. D and selenium. But what knocked the virus out for me was a magnesium chloride protocol; after about 14 doses over about 3.5 days, my symptoms were completely cleared and they never came back. (I'm embarrassed to admit that a few months later, I realized I had miscalculated and had taken only half the mag. chlor. recommended mg per dose. But it worked, regardless.) The truth is, there are many ways to fight this virus. If I had your pre-existing conditions and hadn't had COVID-19 yet, I would want to have additional treatment options on hand. I'd look for a cooperative doctor to prescribe Ivermectin, and a nebulizer for nebulizing (highly diluted food grade) hydrogen peroxide. On the strictly DIY side, I've heard that inositol is helpful for shortness of breath. Also, from my point of view, a pulse oximeter is a must-have so you can monitor O2 saturation to make sure you're staying in the safe zone of 94+. Best wishes to you -- I hope that if you encounter COVID-19, you have no trouble rapidly getting through it and out the other side in good shape!

That’s good information right there.

Thanks that’s a really well put together argument. I hope it gets some more clinical support and scaled up

@RUNDMC1

3 жыл бұрын

Thanks Matthew!

My business partner, never catches colds, was hit hard at Christmas. All the symptoms, took around 10 days to clear. Even now she feels her chest is very slightly effected. I had one of my two annual colds in February. In March caught mild covid, no fever just slight cough, muscle ache in bed, (both treated cough mixture and aspirin), fatigue, loss of smell, very dry sinus. Took 5 days to clear, slight cough lasted two weeks. Loads of energy. Smell came back after two months. I can suffer hayfever and allergy to works cat. Customer collapsed in the street with covid. Major hayfever suffer and asthma. ICU admitted. Now on 12 month steroid spray. Seems to hit folks in different ways.

@k8eekatt

3 жыл бұрын

I am shocked your workplace endangers your health risking an asthma attack with a cat in the office!

@flybobbie1449

3 жыл бұрын

@@k8eekatt My choice, cat owns me. It's not that bad that i would get asthma. Just makes me sneeze or eyes run.

I just want to say that videos like this have helped me tremendously! Since Javi my “long haul” symptoms I researched like crazy and added lots of supplements and probiotics to my diet and included hot yoga. I always met my body where it was at but I think just allowing it to “sweat it out” has helped me tremendously! After every class I feel better and better, possibly more emphasis can be placed on sweating and moving. The virus wants to live that’s why it makes us fatigued. 🤔

@king51009

3 жыл бұрын

Having not Javi lol

@RUNDMC1

3 жыл бұрын

Glad to hear you’ve found a way of managing the condition!

V interesting! Would love to hear on hypothyroidism along with other auto-immune conditions? Still can’t find much on it

@C2yourself

3 жыл бұрын

I did an internet search on interactions between vaccines and prescription drugs. Conclusions that auto immune disorders, Hashimotos disease (thyroid), Ruematoid arthritis are high risk factors along with severe allergic reactions to substances. My 88 year old dad has Hashimotos, alcohol allergy with anaphylaxis shock and Ruematoid condition. He takes 5000 in Vitamin D3 daily to help his immune system. So far so good

Excellent, & much needed research. It is certainly groundbreaking for a new avenue of research, especially in keeping the long-haul debilitating character of this infectious viral-disease in the forefront over time. And that is just it.... what kind of "time" is really in question, here???

Thank you for taking the time to research the condition. It explains why I am likely to have developed long Covid.

@RUNDMC1

2 жыл бұрын

My pleasure. Best of luck with your recovery.

LOVE your videos. One of my symptoms was sudden Arthritis that lasted a month. I have seborrhea, so I guess that falls into eczema and psoriasis category. Otherwise, no allergies. I am in month 10.

@laurenosborne1512

3 жыл бұрын

I also had sudden arthritis. Im in month 6 of arthritis. I dont eat gluten, sugar, meat, eggs, corn, or dairy. Ive completely cut out caffeine. Everyone says “oh stop eating this or that and it’ll clear up” but i already dont eat those things. Im beginning to come to terms with the idea that this may be permanent -_-

Thanks for this, just listening in really interesting, this fits with many parents and children in our group.

It took us (hubby and I) 3 months to get over COVID...both of us have Chronic Lyme disease and have been detoxing for years to regain our strength and health. We are type A blood and of European descent. Arthritis is helped by niacinamide taken daily...Just found this site and am loving the information. Thanks.

This is such great information...thank you for your detailed research to compile it! At age 70, my doctor STILL does very little to address my constant complaints of breathing issues...plus a youthful exposure to TB doesn’t seem to raise any red flags?? Time to find a pulmonologist on my own, I guess.....need to protect myself from COVID as much as is humanly possible!

@RUNDMC1

3 жыл бұрын

Yes be careful out there Claudia!

Some friends and I just yesterday were discussing our observation of a very high correlation of severe Covid and runners.

@RUNDMC1

3 жыл бұрын

It’s strange isn’t it?

@rubiesrred7042

3 жыл бұрын

Perhaps it’s coincidental... perhaps they are all coffee drinkers.

@celticphoenix2579

3 жыл бұрын

Just runners? Have there not been disproportionate increases of instances in other sports too?

@BlueChrome

3 жыл бұрын

Covid encourages micro blood clots doesn't it?, more blood flow with increased pressure for an extended period of time would seem to be the perfect recipe for a lot more ruptured blood vessels would it not?

@whitphotography

3 жыл бұрын

@@rubiesrred7042 I don't think it's coffee, since basically 99% of everyone I know drinks it daily.

Great study

Excellent research!!

Great video. Thanks so much.

One theory is that some people have more mast cells than others and when these get triggered the hyperinflammatory state begins. And that theory seems to imply that it will be difficult to get the system to settle down because there are just too many of these cells. I'm not sure but I think they call this mastocytosis. Another theory is that sufferers have the same amount of mast cells but that they get triggered to release their inflammatory cells and thus you see this immune over-reactivity. As I understand it, it may be possible to get the mast cells to stop degranulating by trying to reduce their triggers.

Some of us just don't get sick, EVER.

@globalcaregivertv8994

3 жыл бұрын

Lol Great !

@HalfB

3 жыл бұрын

That’s great to hear! Can I assume you’re under 30 years old? The guy in the video is a marathon runner who was in the best shape of his life.... that’s notable and part of the point of learning about this virus and it’s effects. People who are Young, healthy and with no co -morbidities are getting ill and have long haul health issues. All my best to ya✌️

@No-nl8jn

3 жыл бұрын

I ONLY have about 2 days a year being sick. I am female, 45 year, non smoking, traning 2 times a week, not eating suger or white bread, eat Greens, eegs and meat, I have blod type 0 and do a lot of meditation and praying, THINK POSITIV AND CLEAN, is my Best service.

@continuouslylearning6152

3 жыл бұрын

I said that. A week before getting violently sick with covid.

@daviddiehl197

3 жыл бұрын

@@continuouslylearning6152 Haven't been sick in 40 years. Tested twice, my immune system attacked the tests. I heal quick also, ran my thumb threw the table saw. It was sealed before the ER could look at it. Also don't feel pain when bones break. Unfortunately now it is burning out my body.

Thank you so much Sir 💜

Very enlightening...thank you

Another thought... I have long suspected that I have an MTHFR gene mutation due to, along with all my other allergies and intollerances, my extreme reaction to folic acid supplementation during pregnancy. I wonder if the mutation could be the missing link between which asthma, hay fever, reumatoid arthritis or other auto-immune disease sufferers have long term covid symptoms.

This guy is amazing.

Great seeing more people sharing information about long covid

Prior to being in healthcare, I was a massage therapist. After doing that for 5 years, I developed a type of eczema that my dr says was a reaction to my hands being damp. I discovered using a different soap that cut through the lotion better. Once I stopped doing massage, my hands never broke out again. I don’t classify myself as an eczema sufferer. My blood sugar was fine. No asthma. No RA. Never knew post viral fatigue was a thing as I rarely get sick. I assumed I got a bigger dose of virus since I’m a healthcare worker now being around covid patients 50 hours a week.

I’m hypothyroid and have wondered if this was a factor. Also prone to stress eczema and mild hay fever though 🤔 Another great film 👍

@lwaters3100

3 жыл бұрын

NO. I'm hypothryoid, over 65 AND on disability. But I eat organic, do HOLISTIC therapies & exercise every day, refuse to wear a mask, shake hands with everyone who will for the last YEAR & am healthier than most people in the US

ME/CFS is a disease that also is predominantly in 2/3rds of women (due to endocrines and cytokines interrupting each other). ME/CFS has links to autoimmunity, especially if it runs in families. My elderly family have had several different autoimmune diseases, eczema and asthma. and I have ME/CFS. Anyway, I think there’s a large subgroup of long haulers who are starting to develop ME/CFS. Especially those getting well into 6, 7, and 8 months (most importantly those who aren’t improving. Those who are improving may still have just Post Viral Fatigue Syndrome which can take up to 2 years to recover from) Clinical signs for ME/CFS to look for include: Post exertional malaise Persistent reported fatigue that substantially reduces activity levels Unrefreshing sleep Muscle and/or joint pain Cognitive disturbances (memory, attention, information processing) Sensory disturbances (photophobia, sound sensitivity) Orthostatic intolerances (inability to tolerate anti-gravity positions) Ongoing flu-like symptoms, sore throat/lymph node swelling -------- It’s not a new phenomenon either, it’s just been largely ignored because patients weren’t believed. However the outbreaks of ME/CFS (which itself is not contagious) happened after viral hits throughout history here’s a report from 1934-1990 of similar outbreaks with similar symptoms ammes.org/outbreaks/

@RUNDMC1

3 жыл бұрын

I’m minded to agree with you.

@getsideways7257

3 жыл бұрын

By "orthostatic intolerances" do you mean difficulties with keeping it horizontal (especially with trying to fall and staying asleep)?

@brobinson8614

3 жыл бұрын

Get Sideways (and @RUN-DMC ) That symptom you mention is more a generally unwell symptom caused by the autonomic nervous system in disarray. That feels awful especially with the heart pumping away. However Orthostatic Intolerance (OI) is a condition that seems to exist in some post viral and more so in ME/CFS sufferers. ‘OI’ is basically the inability to stand or sit upright for long periods. I myself will struggle after about 30 minutes of standing. I become lightheaded and very weak and a sickly sensation. With an overwhelming physiological driven desire to lie down. Often most symptoms reduce after lying down. You still feel sick but nowhere near as bad as standing. It’s not to be confused with POTS (postural orthostatic tachycardia syndrome) although that is very prevalent in a ME/CFS and Long haulers as well. You can have OI without having POTS. There was a recent study found blood flow to the brain was reduced and also both CO2 and oxygen were greatly reduced in ME/CFS patients who were observed in testing www.ncbi.nlm.nih.gov/pmc/articles/PMC7044650/ The Bateman Horne Centre who specialise in post viral illnesses including a ME/CFS recommend wearing compression garments of at least medical grade 3 (don’t sleep with them though), And 10 mg of propranolol which does sounds counterintuitive however if you squeeze the lower part of the body and open up the blood vessels the rest of the body will get better bloodflow. I myself take sildenafil (viagra) 50mg three times a day (helps with brain fog). And wear compression grade 3 stockings and drink Oral Rehydration Salts (The formula that the WHO recommend). www.healthrising.org/blog/2020/09/15/saline-ors-oral-rehydration-pots-chronic-fatigue-syndrome/ I get less brain fog from that combination and can stand much longer, up to 2 hours at a time. Unfortunately doing too much physically and mental exertion still triggers the ‘Post Exertional Malaise’ (PEM) relapses. Which I believe is an autoimmune response to something being released during the metabolic process in order to exercise or exert. Maybe a metabolite that the immune system has mistakenly found an antigen (shape) on it that may resemble an antigen (shape) on COVID-19 (called ‘molecular mimicry’ also called ‘co-reactivity’) Although I see in a subgroup of ME/CFS patients they have found autoantibodies to the beta-adrenergic and muscarinic cholinergic receptors in ME/CFS patients. The last thing we need is anything attacking those receptors because they are fundamental in bodily function ‪www.sciencedirect.com/science/article/pii/S2666354620300727‬ it’s important to understand the possible worst outcomes of what PEM does to the body. It’s not just a few days of feeling bad. More is actually going on. Dr Nancy Klimas from the Neroimmune Institute discovered very high levels of gene expression from the immune system, sensory system, metabolic pathways and the adrenergic system pathways etc in ME/CFS patients compared to controls after exercise. kzread.info/dash/bejne/qHmnsrmufrGzpbg.html (Cued to play video of lecture at gene expression from exercise) So my advice is if you have long haul Covid and suffer from ‘Post Exertional Malaise’ is to do very little to avoid activating the immune system. As that’s constantly reminding it that something produced by exercise / exertion is mistakenly seen as a pathogenic threat. The less that’s activated the less it ‘remembers’. And hopefully switches off and your health returns. It’s important to point out that during any infection people’s bodies do have a slight autoimmune attack going on at the same time. Usually when the virus is cleared the immune system settles down and that autoimmune attack also settles down. In powerful pathogenic attacks however, in a small percentage of people, the autoimmune attack continues. So constantly waking it up by exercise or exertion will be a never-ending loop of ill-health. Eventually locking a person into the disease ME/CFS. Something I was never taught about so is unfortunately too late for me. However all that said it’s important to point out that you shouldn’t ‘medically decondition’ either. So very short amounts of light exercise in the form of gentle movements, Some yoga positions are helpful, but not the ones you have to strain or use strength in. Once you’ve established your baseline maximum exertion level that stops triggering the worsening of symptoms (PEM) you’ll know what the maximum you can do is and to keep below it. However do be aware that it’s a ‘fluctuating baseline’ and some days you may not be able to do as much as others. So it’s a constant monitoring game, and remember that immune gene expression is triggered after exercise/ exertion. So best not to exercise daily either. The key is to give the immune system a chance to not keep getting reminded and reactivating from exertion. Even when feeling good you still have to keep below that baseline (very challenging that!!) Due to that ‘fluctuating baseline’ avoid the bogus ‘Graded Exercise Therapy’ as treatment as is a fraudulent design by a bunch of lying psychiatrists. As they took no regard for the immune response. The problem for many people though is that daily living (washing, getting dressed, cooking, etc) is actually still too much exertion so adding exercise to that will take them over their baseline. It’s all catch 22 stuff. My advice is read all you can on ‘Post Exertional Malaise’ Moral of the story ‘Less is more’ Best of luck 😎👍

Must be so hard for you all.great information.

@RUNDMC1

2 жыл бұрын

Thanks Sue!

I already had moderate ME/CFS and became severe after getting Covid even though I did not have major respiratory symptoms only SOB. Almost a year later I am still using a wheelchair and entirely dependent on others to be able to go out a couple of times a week. The focus was all on acute Covid back in March 2020 and the ME/CFS community was not included in shielding - I sheilded anyway but likely caught from step son who had been at senior school. This information REaLLY needs to be in the mainstream press.

@RUNDMC1

3 жыл бұрын

It really does. Sorry to hear you’re struggling so badly.

Hi, my name is Paula and I am a psychology student. I am currently studying depression and the connection between the increased cytokines and inflammation and its relation to depression. I found a study that used aspirin regulates the production of inflammatory cytokines. I did some research regarding COVID and I found that once the virus is safely inside the cells, it causes them to start making lots of inflammatory cytokines - generalized inflammatory response. Maybe I don't connect the dots well however it could make sense to treat coronavirus with low-dose aspirin or baby aspirin?

@RUNDMC1

3 жыл бұрын

Yes any NSAIDs will help with the inflammatory symptoms of covid.

@FRANKMANGIAPANE

3 жыл бұрын

I was thinking the exact same thing.

I wonder if the amount of virus you get exposed to in the first place has anything to do with severity

@captainwalter

3 жыл бұрын

Also exercise during initial stage. I was doing hot yoga between exposure and diagnosis, I imagine pulling it deep into tissue. Also was running a lot. I talk to a lot of long haulers who were exercising during that period

@hebejeebee

3 жыл бұрын

@@captainwalter I reintroduced exercise after about 6 weeks, thinking I was well clear of the worse effects. Oh how wrong I was! The advice I now have from a good ME physio is rest, rest, and the rest some more. Two naps a day!

@ellyw7201

3 жыл бұрын

The amount of virus you are exposed to has a great impact on severity. This is one reason why health care workers who get COVID-19 have often gotten severe cases -- they have been exposed to the virus via many different patients; especially if PPE was in short supply and they didn't have N95 masks. So they have started right out with a high viral load. The good news is that there are a variety of ways to beat back the virus, reducing your viral load...plus ways to block viruses from attaching to your cells...plus ways to interfere with the virus's ability to replicate if they do get into your cells.

@BodyRocker9

3 жыл бұрын

@@ellyw7201 I guess that explains why I had such a bad case, my dad (pre existing conditions)who got exposed by someone at a restaurant in February got over it in 2 weeks. He was spreading it all around the house while I thought it was just a cold so no mask and even ate at the same dinner table while he was coughing everywhere. I ended up getting it way worse (no pre existing health conditions)and now I’m a long hauler.

@rasmasyean

3 жыл бұрын

A study in Spain said this: "Smaller viral inoculi as a result of wide social distancing would contribute to the lower pathogenicity of recent SARS-CoV-2 infections." Though they are clear at this point it's not proven, but just a guess based on their survey. www.sciencedirect.com/science/article/pii/S1201971220304707 But how would you explain Sweden who does practically nothing and has a much bigger "second wave", but much less death rate. Unless perhaps those are mostly reinfection of asymptomatics with quick anti-body expiration, and most of the high chance severe ppl already died? I wonder. www.worldometers.info/coronavirus/country/sweden/

This is so interesting. And worrying for those who get Covid. I am 68. I have had chronic bronchitis since age 2 or 3 or earlier [early 1950s] with chest infections regularly each year. Childhood and adulthood a daily struggle, chronic fevers, rheumatism, weakness. Suddenly diagnosed with severe M.E. CFS fibro some 10 plus years ago! But had a lifetime of symptoms!

Shocking to hear mast cells. I have mast cell disease and rarely hear anyone talking about it Thank you for bringing awareness.

@susans1283

3 жыл бұрын

Earlier in the year I was asking about any relationship between mast cell activation and cytokine storms. Not a peep. Seemed very similar to me. I started having mast cell activation in 2016. I keep looking for any connection. I did see some discussion of this by @jenbrea. I’m following here since he mentioned mast cells. Take care.

I'm a covid long hauler. I also have asthma, excema & rheumatoid arthritis.

@theeggtimertictic1136

3 жыл бұрын

Before you got Covid?

@theeggtimertictic1136

3 жыл бұрын

@Martin toutcourte My cousin got Covid in April and went from being very fit and healthy to having uncontrollable heart palpations, breathlessness (just walking to the shower), psoriasis and arthritis ... so yes you can get these in 6 months .

@theeggtimertictic1136

3 жыл бұрын

@Martin toutcourte I'd be skeptical too only I know 2 people with long Covid. I'm so fed up of saying this but here goes ... My cousin is a 45 year old nurse, a very fit and healthy woman who could run a half marathon no problem . She was working on a Covid ward looking after Covid patients in a small rural hospital. All 6 nurses got Covid in April ... only 4 have been able to return to work ... my cousin and another nurse have life changing symptoms for the past 6 months. She got a 'mild' dose for the 2 weeks and managed at home ... she came out of isolation and felt ok for 2 days but then she ended up in hospital for a couple of days with an uncontrollable racing heart (she had to go to hospital again 3 months later with the same thing). She has had the weirdest symptoms for the 6 months and so has her co worker. About 1 in 8 people experience 'Long Covid' to varying degrees of severity. That's why there's a shortage on nurses ... many of them are still not well. This is not all about death and not all about being old. Some of her patients actually got better even though they were old. It's a very weird virus.

@theeggtimertictic1136

3 жыл бұрын

@Martin toutcourte It causes other conditions ... you can even get Type 1 diabetics from Covid ... If you never had it before !

@MJR1117

3 жыл бұрын

@@theeggtimertictic1136 yeah, I had them all pre-covid. It was probably inevitable I would have had some issues by the sounds of it.

I haven't heard you discuss low dose naltrexone yet. It sounds like you'd be the perfect candidate for it too. My doctor just started me on it for continuing inflammation post-Covid. Apparently it is prescribed for autoimmune and chronic fatigue issues as well. I've been researching it non-stop for about a week now. It is a complex and nuanced drug that has paradoxical effects at low doses. One of the things that concerns me about naltrexone is that is inhibits certain cytokines such as IL-6. Inhibiting cytokines may be helpful for Covid but in other cases your body may require a strong cytokine response to certain pathogens. If you google IL-6 inhibition you'll find studies that cite vulnerability to Tuberculosis infection when IL-6 is suppressed. I'm not a doctor, so most of this research is way over my head. I'd love to hear your take on it. Cheers from the U.S.

@teddybearroosevelt1847

Жыл бұрын

I agree. This would be a good new topic. As well as methylene blue and pycnogenol

Glad I found this. I spent 6 weeks in bed barely able to even go to the toilet without collapsing from exhaustion from the middle of March. I'm mostly back to normal now, I just get super tired very easily now. I've been working on it bit by bit. So it's getting easier. But I also have a crap ton of comorbidities, one of which is asthma, and lucky me, It was made so much worse afterwards, I was told it's now turned into COPD. Where pre virus I barely touched my inhalers! Yeah... thanks for that... this year kinda sucks... I'm almost thankful the UK has spent so much time in lockdown as its given me the much needed time i needed to rest and recover. Otherwise i think i would have been in a much worse state than I'm in now. Not to mention, I think I'm used to working my way around illness by now with everything that's wrong with me. TBH I'm just glad I survived it! It was scary for a little bit breathing wise.

@shaft657

Жыл бұрын

How are things these days? Hope u are back to pre-covid state or better

This presentation is unusually clever in the way it teases out potentially useful information.

This sounds like exactly what happened to me. I have asthma and am prone to hay fever. I got Covid in the middle of March and I’m still not entirely well. I was out of commission completely for five months.

@continuouslylearning6152

3 жыл бұрын

Same. Never had any known issues. Got violently ill in March. Jan now and STILL HAVING massive issues. Night time breathing issues, random sudden involuntary breaths, reddish eyes with pressure.. I mean it just wont end. Cardiovascular issues now. Lung damage clearly. Im only 35. This thing is so strange. But I WILL see wellness again.

@BartokAndras

3 жыл бұрын

@@continuouslylearning6152 Keep it up, you will come back strong

@continuouslylearning6152

3 жыл бұрын

@@BartokAndras thank you man

Hello, I found your videos yesterday on ‘long Covid’ and they’re really interesting. Great that you’re leading some citizen science! My PhD (in the 90s) touched on exercise and immunology and there is a body of literature highlighting the risks of hard training while asymptomatic and incubating a viral illness, as well as during a viral illness. Have you investigated this with your cohort of ‘long haulers’?

@janybekorozaliev9052

Жыл бұрын

Cathy that research regarding hard training and being asymptomatic with a viral illness is really interesting and valuable for us long haulers. Would you be able to link any research for us?

Very helpful.

The only one of those things I experienced was hay fever as a kid 30 years ago. My long haul experience didn't seem to be as bad as a lot of people's. I wonder if it is because I had mostly gotten past that problem? These are very interesting connections you are finding.