I’ve had some really good questions about what it actually FEELS like...so I did my best to describe it. But I need your help! How would you describe your health complications...and if you don’t want to describe your health, or if your body is working pretty good, I challenge you to describe something else...like what it feels like if your foot falls asleep- as if you’re telling someone who has never experienced it- I think this could get pretty funny :)

@crazysauce2

6 жыл бұрын

The Frey Life I have allergies and sometimes my lungs feel very tight and it gets hard to breathe

@noahgreene5058

6 жыл бұрын

For people who don't have amazing life partners or reliable family to help handle day to day life challenges with CF like you do, how do people manage to live as independently as possible? Are there services (like home nurses or something) to help cope?

@davegoodridge8352

6 жыл бұрын

The Frey Life sometimes my lungs feel full, but the air can’t get out. Mary does your O2 levels drop? Would oxygen help sometimes? Don’t like asking but I did, prayers and thanks

@grammaurai6843

6 жыл бұрын

I have chronic costocondritis (Tietze syndrome), when I flare it feels like someone is pressing hard on my chest and back, trying to smoosh my ribcage into my shoulder blades. It hurts to breathe deeply, move, or talk. If I misjudge a breath it's like a ripping pain in my ribcage. Luckily I only flare about once a month, as long as I stay healthy and avoid excessive coughing!

@GainingJenny

6 жыл бұрын

On my bad mornings I just feel my lungs are constricted. And that I'm constricted. It's those days when I feel like I have to draw inward for both my physical and emotional strength. Sometimes I would describe the whole experience as claustrophobic.

The feeling of having CF was once described to me as taking a deep breath and without exhaling, trying to take another breath on top of that first deep breath. My daughter is 5 years old and has CF. We love watching your vlogs together, I think it helps her feel less alone in the fight. Plus she loves everything Ollie lol. Keep up the good work guys!

@siobhanbeith5556

6 жыл бұрын

That sounds like a really good explanation. I have just tried it out and it feels horrendous. And that was just me trying out one breath. To deal with that feeling during all inhalations would be a painful and frightening experience to say the least. Mary, you cope admirably well, you truly are amazing. Big hugs to all CF sufferers out there. I pray one day very soon they find a cure or at least more effective symptom management.

It would be so cool to do a children's book Following Ollie a day at the beach with Mary doing the illustrations I bet it would be such a hit. Everyone loves ollie

@joanpickart2719

6 жыл бұрын

What a GREAT idea!!! You could do that and then one about him being a service dog .... use a combo of your great drawings and the fantastic photos you have .... it could be a series!!! I'm a retired school librarian and would have picked these books to read to my K-2/3 classes!!! DO IT!!! You have such great messages to share that need to be heard. by our children...

I'm getting admitted to the hospital on Tuesday and am not allowed internet access. I'm going to miss your vlogs the most of any youtube channel!!!

@Uniquelyyours1

6 жыл бұрын

Good luck to you:)

@mindyvanhorn3199

6 жыл бұрын

good luck!

@2listening1

6 жыл бұрын

Sorry about the internet timeout! I would hate that too! I hope your time goes well and you get home soon.

@msdelle22

6 жыл бұрын

Praying for you if you dont mind and hope you feel better soon

@SweetPea112

6 жыл бұрын

I've had Pneumonia twice in my life. As a teen, I had it and didn't know it. I tried to carry on with life as usual. My brother and I walked to the mall, which was across a busy highway from our house. I remember so vividly, it was winter and below freezing outside. When that cold air hit my lungs, the pain was horrible...like a knife going through my lungs. Also as a young adult I had it, and it hurt so badly to cough (in my ribs) that I needed to cough but did everything in my power to not cough to avoid the pain. As for fever, you know the fever where your sheets hurt to be on your skin? This is what I imagine part of Mary's CF must feel like. God Bless you Mary! You are so much stronger than me!

I have asthma and SLE; when I feel that tight feeling Mary's talking about, it feels like someone is pushing down on your chest or you're wearing a SUPER TIGHT shirt and constricts you and makes it hard to take substantial breathes. That's how I'd describe it 💕

@jacinthepilon9913

6 жыл бұрын

I often feel like theres a brick on my chest! (Asthma)

@miathompson1894

6 жыл бұрын

Molly モリー That’s how I would describe it too.

I love when Peter calls us "the people"...i feel like we should have t-shirts made up that say "I am The Frey life people" lol. Awesome drone footage btw & I hope you're feeling better, Mary! ❤

It is hard to describe, for me and MS, it feels like pain on the inside and numb on the outside. It does get funny when I stumble into a wall and get the nickname Casper!

Hi Mary. I've been diagnosed with asthma a few days ago. I know it's not the same thing at all but I also know how hard it is having lung complications. I also have IBS depression and anxiety as well as juvenile arthritis. Doing "normal" day to day activities is hard and sometimes I spend days on end in bed. Having illnesses sucks so you are not alone. All my love and prayers to you, Peter and Oliver. X

Seeing Ollie just makes my day, he is beautiful.

I have chronic severe asthma with mortal risks. When it's harder to breath I feel like my lungs aren't able to expend like if there wasn't enough place for them to do so. (I know it's not the case) Sometimes It just hurts for me to try to breath deeply. I saw on the comment people wondering if you get light headed. In my case I don't it's not because my breathing is hard that my body don't get the oxygen that is needed. Sometimes the % of oxygen drops, of course, it's part of it. When It's not an asthma attack but just general condition my lungs are doing their job. They tend to be lazy sometimes. But Walking, and going up the stairs, cold, humidity don't always work for me. And since I live in Québec, canada, it can ben really hard for me sometimes. There is some food that make them lazy as well, and breathing get more complicated when I eat that. (Chocolate, ice crea, banana, Peanut butter...) My lungs condition have been stable for a while. I was diagnosed at 5 years old with 28% lungs fonction. I got better, and I learned to live with it. 3 differents inhalers per day, pills, and nebulizer at home as well. Do what you think you can't do.

loved the drone video. Beautiful! Feel better Mary.

Beautiful beautiful beach. I'm so pleased you were able to put in the work in order to enjoy it Mary. Excellent drone footage Peter. The colours of the trees are amazing. Thank you for sharing it with us.

Thank you Peter for the drone footage, it was so beautiful!!! Love you both!!!

I can't tell you how happy your videos makes me. My mom was just diagnosed with multiple myeloma and I really want her to live her life like you do with happiness and enthusiasm despite the long road ahead us. You're amazing!

Peter, your drone shots at the beach were beautiful!

That drone footage was amazing!! Thank you

That drone footage was BEAUTIFUL. So relaxing.

I don't have lung issues. But I'm very experienced in depression. At the top of my depression (the lowest point) it felt like the dark days before Christmas and on that days it was really raining. So I didn't experience any light in my life back then. Now I'm feeling much better and hoping to have a good winter this year without a relapse of my depression Mary if it's to hard for you to go to the sea, why don't you open your bedroom window. You still breath in the salty air and it's not so existing for you.

Love the drone footage. So pretty. Mary you are fighting a good fight. Take it easy and rest as you need. Ollie boy on the beach and in the ocean is great.

I am 41 with CF and I know exactly what your saying. I feel that on those days I feel exhausted and need to listen to my body and rest. I feel like my lungs are “heavy” and irritated on those rough days! Thank you for sharing your journey!! Much love to ya cyster!!

Your family is so inspiring to people like myself with chronic illness. Thank you both very much!😊

Really enjoyed your drone footage!

You are just the cutest thing. After watching more of this video, and hearing how you motivate yourself to go from your room to the beach, knowing how much it's gonna suck on the way but is gonna be fantastic when you get there...I need that type of motivation and it's inspiring to see someone making something 'relatively simple' sounds so daunting. But then saying how it's just a bit of torture to get to the bliss. That just hit some heart strings with me.

I understand what you are trying to say...I have chronic sinus problems, chronic bronchitis, copd...I have troubles in the morning as well and throughout the day I cough and cough it makes me wore out and winded. I live on inhalers and nebulizers. Some days are worse than others. I pray for you everyday. What a blessing to have such an amazing husband! And let's not forget Ollie!!! You are all such an inspiration. God bless you all !

Ollie is such a good boy. Watching him gives me joy. :)

I am someone without CF. I don’t even “feel” my lungs so it was hard to know what you mean when you said you had a slow morning - so glad you described it in detail. What I can imagine CF to be like is having the worst day of bronchitis all day everyday. Imagining that makes me inspired by your positivity all over again. ❤️ Today I am not going to take breathing for granted.

I want a vlogging of just Mary singing! Your voice is so beautiful! Thank you for sharing your experiences with us I too have always wondered how you feel when you're feeling rough. You two are always the cutest, and so positive. I look forward to your vlogs every night! Enjoy the beach!!! 🍃🍃🍃

I've been steadily falling in love - so to speak - with you guys over the last couple months. I used to watch a lot of daily vloggers but, at the risk of sounding cliche, they really changed over time, getting what I would describe as big heads and I gave them up over time. Please don't ever stop keeping it real, you guys! 💚

1 the Beach has magic properties! (And what.a beach.you're on!!) 2 the small or low breathing I'ld describe as breathing in wet paper bag, very careful so as not to rip the.bag.

Awesome leggings Mary! They're so cool! Sending love and hugs from the UK to all of you xxx

For me after I have an asthma attack all the coughing makes my lungs feel sore and tired and heavy. You inspire me don't ever give up you are so beautiful and strong!

Hi Mary, Peter and Ollie my name is Ryan and I am 15. I just want to say I am so glad I found your channel, I also have cystic fibrosis and I just want to say that you guys are a massive part of my support system. I look up you guys and you make me want to my best to keep breathing. Thank you so much for your positivity and I hope we can meet someday.

I appreciate you trying to articulate the feeling of CF. I can't imagine what it must feel like. I can empthazie with you! ❤ I love seeing you guys and Ollie at the beach! 😄

Ollie reminds me of how I use to feel after a day at the beach as a kid. You only have energy at the end of the day to think about how much fun you had.

how lovely to see Ollie is also just a dog.... playing on the beach he has time off just like the rest of us.

That drone footage, though! 😍😍😍

Love opening KZread and seeing that you posted a video!!!!!

I love seeing your videos everyday!!!!❤️❤️

My mom has been suffering from chronic illnesses, specifically pancreatitis, since I was born. I also have asthma so I kinda get it and am a medical need too. I love watching your videos because they make me feel more normal in my crazy life

If only, I had time to sit at the beach all day but nope per my job. Which I love & am extremely greatful for! I've yet to have a patient w/ CF, the comments are insightful. Can't imagine life like this. Praying your health improves soon. Ollie's a happy pup!

I was so thankful to hear you say sometimes your lungs feel tired. I said that to my doctor once and he told me lungs don't get tired. I have the same feeling about my lungs feeling stiff sometimes and I feel like there are bands around my lungs to keep them from expanding enough to take deep breaths. I am praying for you.

I’m early!! 😝 Hope y’all are having a great trip!!! Thanks for always bringing so much joy to all of y’alls viewers. Y’all are a major blessing!

@hannahs3121

6 жыл бұрын

Laura Barthel I don't want to be weird but it just makes me laugh to see you say 'y'all' three times in one sentence! It's completely normal I know but I'm English so I never see it! And yes thank you Mary, Peter and Ollie for always bringing a smile to your veiwers faces! 😀

@laurabarthel1995

6 жыл бұрын

Oh my gosh! I was thinking about that when I was typing !😂 It’s funny cuz that’s the only southern thing I say and for some reason it was very apparent in that comment. 🤣 It’s so funny that someone noticed!!

@hannahs3121

6 жыл бұрын

Laura Barthel 😂😂😂

When my lungs are tight I normally have a dry cough; it's like a desert in my chest. I much prefer a productive cough because coughing for so long and not being able to get any mucus up is frustrating!

Peter's comment about Boston in the Fall reminded me of a line from a Veggie Tales' song "The Pirates Who Don't Do Anything"..."and I've never been to Boston in the Fall"....hee hee

Being in the medical field I understand when she doesn't feel good. Being around chronic sick people you understand what feeling good and feeling bad means through their body language.

Mary, I am with you. "Something about the ocean Makes me rise up and praise Something about the heavens Makes me stand in awe again Something about the sunrise Reminds me of Your faithfulness"

@TassieM12

6 жыл бұрын

Sally Croft beautiful! Is is from a song? I'd love to listen to it!

I have chronic asthma, depending on the season, or the day, or the illness it always feels different. I have been beyond blessed and for almost a year I have not had an asthmatic episode. EVERY winter growing up I used to get pneumonia, so every winter I was on nebulizer treatments (albuterol). I remember waking up at night coughing so much that I would throw up, and it was uncontrollable. Then as I got older I wasn't getting pneumonia as frequently, that's when I started getting sick in the summers, I began corticosteroids and allergy meds. Now as an adult I feel like it's mellowed out slightly, except last year in December, I had to make a trip to the ER because I literally could not breathe, and it was EXHAUSTING. I was uncontrollably coughing, wheezing, and neither my nebulizer or rescue inhaler helped. It was terrifying, and I had to try sooo hard to keep myself calm and not be scared because it would make it worse. Long story short I got a steroid shot in in my bum during that ER visit and I haven't had an episode since. But to answer your question of "how it feels" these are a few of the adjectives I have come up with for each situation following: shallow, tight, full, stiff, tired, stubborn

I miss seeing the trees change. I'm originally from Western New York and grew up in the country so seeing the trees change was always one of my favorite memories. Living in Missouri stinks because everything just turns brown. 😕 Thank you Peter for showing us. Makes my heart happy. 🙃

Extra Worth It! Video is just the best! My lungs. Inflamed. Sore. Tight. Very hard to get up mucous plugs that can kind of panic you. Invasive Aspergillosis. I’m an extreme shallow breather too Mary. I suspect much of it is out of habit from consistent coughing. I’ve in fact often catch myself forgetting to take a breath at all... it quite perplexing and surprising when it happens. 💕 thank you for welcoming us to share. You are very loved 💕 and appreciated 💜💙🙏🏼

I know service dogs do important work (I actually have one), but it's nice to see people who understand, like everyone, service dogs need breaks and fun! 😊 🐶 😇

Whoever CC'ed this video... THANK YOU!!!!

Ollie warms my heart

❤️❤️ Mary and Peter, you guys are the best! Your vlogs remind me to continue to choose joy despite the struggles of chronic illness. You remind me so much of my boyfriend and myself, and hopefully one day our future service animal 😊 sending love, healing vibes, and gratitude to both of you. Ps- I always catch myself singing "better together" and it makes me smile!

You explaining how it feels to have CF is a lot like me trying to explain to people what having PA feels like. It's when your blood cells are enlarged and misshapen so that it's actually painful when your blood circulates. You can kinda guess but you never really know. PA is just one of my illnesses that I have to deal with. I appreciate the vlogs bc it helps to know that I'm not the only one who has issues during certain parts of the day. Enjoy your time at the beach Mary and Peter. We love y'all.

I don't have problems with my lungs, but with my digestive system. My chronic illness is still undiagnosed, and can probably better be seen as chronic pain. The pain varies a lot, but it often feels like my stomach has a big stone in it, and is trying to process that stone. Also, how I sometimes tend to describe the pain in my bowel is as if someone stabs me (not that that has every actually happend haha) and often the object differs (like a fork, or a screwdriver). Oh, and I can also fully relate to the emotions fading away when the pain increases. And, I wanted to thank you, because your positive input in life has given me new energy to deal with mine!

@rpierce7004

6 жыл бұрын

Eeheve You have probably already looked in to this but....have you been tested for a gluten intolerance, blood work for foods that cause inflammation in your whole body, and tried the GAPS diet? A naturopathic doctor can help you eliminate some things that a allopath will never even consider.

Hi! Thinking about you guys. I staying with my daughter on the Cape. Tonight we are at Beth Israel, for delivery of her second baby ❤️❤️😃. I hope you are having a great time on your mini vacation!

I have never been to Boston in the fall (I've only gone in the summer) but I really enjoyed the beautiful drone views! You should come visit Delaware sometime, I think you'd like it :)

I was in Boston in the fall of the 9-11 disaster. We were in New York too but we spent more time in Boston. We thought it was so beautiful and history filled. We went to Plymouth and that was so interesting. We went to Salem and saw all the history there and it happened to be Halloween. I thought we'd see a lot of weird things but we didn't, which was fine with me. Mary when you try to describe your lungs it makes me think that when I am ill, and I have asthma, that my lungs just are inflexible. They can't do what they know want to do and therefore you aren't getting enough oxygen and it makes you tired really easy and really fast. If I don't be still and rest it's just that much worse. It was even worse when I was little, I hated not being able to breathe. You're pretty good at listening to your body and that's all you can do some days. Lord, let those antibiotics work like they never have before on Mary. Take away the resistance that her body has built up, let it be sensitive and accepting of medication that can really keep the infections at bay. You are the God of miracles and I believe with all my heart that you have a very special plan for this sweet child of yours. Please let the miracles begin. In your most sweet and precious name, Amen.

I have severe asthma and if I get pneumonia or bronchitis I have to use the vest too. I'm on multiple nebulizer medications

I've never really wheezed. I have COPD, bronchial obstruction, and severe presistant asthma. The COPD and bronichial obstruction affect me the most regularly. Usually in the morning my lungs feel like they're "not awake" like they don't want to work. When I get chronic sinus infections, my lungs feel tight but they also feel "stiff" like you said

Love you guys so much.. you make me love life and just take one day at a time! Live a full life and be happy with what I have

Catching up as we are behind on episodes. You took us to Boston in the fall! Anybody remember that from Veggie Tales Pirate Who Don't Do Anything?

I loved that we can hear the birds from the drone footage of the trees

Hi Mary and Peter. Love it when Peter and Ollie play. Mary, you did a very good job describing how you feel. God bless you Mary. God is with you and will never leave your side. :)

Pink cheeks, insufficient or poor gas exchange in the lungs.

@learningtofly7780

6 жыл бұрын

Krista Wineburner you are correct. I am very surprised that her team or at least her pulmonologist would not be monitoring often and closely. yes, the RTs always say that about red cheeks, only small children get red checks with fevers. Or so I'm told. And, I must admit they and the RNs are always right!! So, is my GP. More so than my pulmonologist. Lol Hope your enjoying the beautiful weather.

My asthma presents differently depending on the trigger (viral, weather, allergens, laughter, crying, etc.) Your 'breathing low' is what I call shallow breathing which is a typical asthmatic breathing pattern. When I have pneumonia or influenza, if I can manage sleep, my lungs feel non-elastic when I wake up and I'm loathe to take that first deeper breath because of the inevitable coughing fit which hurts my head, tastes yucky, makes me vomit, and hurts my lungs because when I'm sick it feels like a sore throat but in my chest (inflammation causes that feeling). I'm thankful for the advancements in medications and for my home nebulizer treatments which I used to have to go to the E.D. for. I will never get used to an asthma attack. If anyone wants to approximate the feeling, plug your nose and try breathing through a coffee stirring straw. This being said, my asthma is medically classified as mild. I agree but I promise you that not being able to take a good clean breath never feels mild. It does, however, feel AMAZING. I hope this helps!

Hi! I have a suggestion for your shop. I would loooooove a "do what you think you can't do" small sticker for my laptop! That phrase is so inspiring to me as a student and it would really motivate me I think and I would 100% buy it!! Maybe look into multiple sizes for your decals instead of having some only be large wall ones or only small ones? Idk it was just a thought I had! Mary and Peter, you always bring a smile to my face. It's so reassuring to see you overcoming and being positive while going through such difficult things everyday. It really makes me feel like I can face the difficult things in my life too! Love you both lots, so glad I found this channel!!

Mary, I appreciate you so much. I don'r have CF but I do have Lupus and ITP. There are days my body says no can't do it. , but I don;t listen. I live with my daughter and my 8 year old grandaughter and 2 year old special needs grandson. When them come and knock on my door I have to " DO what I think I can't do " and snuggle those babies. even though my body is screamng at me telling me I have pushed it to the limit. Love and our heavwnly father grants me to little strenght I need to push through. You are an inspiration to me. My prayers are with you each day.

Oh Mary and Peter sometimes when I watch you guys I think about how magical your relationship is and cant imagine one of you without the other, Yours is a beautiful marriage!!

Mary, as an RT, I think I can understand your describing your lungs as tight. Just because there isn't wheezing, you still feel difficulty getting the air in and out. Do you nebulize a bronchodilator in the Mornings? maybe that would help slightly, but I understand about your lungs being asleep. And I've noticed in the vlogs, you definitely do breathe more shallowly in the mornings. Understandably so, you spend quite a bit of time coughing throughout the day, and your body tries to give you a break when it can. Keep up the great work. You and your positivity are really inspirational to me, especially on sad days.

That is the prettiest drone footage thus far so pretty and Mary I have COPD and find it hard to explain what it feels like when people ask and I want to let you guys know I had to get WE ARE BETTER TOGETHER song because every time I watch your videos I just love it and want to hear more so I finally broke down and got it thank you

Mary, you my dear have an amazing voice, additude and personality. Sending love and prayers from Montana.

I have developed a chronic cough because of my fibromyalgia (itch!) and when I cough it's me coughing up my lungs or throwing up what ever I've eaten or drunk. Also I will wheeze and feel like there is sand in my lungs. Caffeine is a Godsend.

I have asthma and when I have an attack, my airways feel constricted. It feels like I'm breathing through a straw (and I'm not talking about a bubble tea straw). 🙂I have problems exhaling. If I can't empty my lungs, I don't have much room to take in air. Also, every muscle in my body is very tense. When I feel a cough attack coming on, I try to breath very shallow bc I don't want to cough. It takes too much energy to cough and sets off an asthma attack and gives me a headache. I also can't lay down. That makes it harder to breath. That being said, I'm thankful that my asthma is somewhat under control and I don't have too many major attacks. Anyway, that's the best way I can describe not being able to breathe. Love you three!

@threesisters47

6 жыл бұрын

servantofmyking q

Its hard for me to take deep breaths bc I all have a coughing attack for several minutes. So I like how you described it as your lungs feeling 'tight' bc I can relate to that. I love y'all and you are always in my prayers. xoxox.

Thanks for sharing the beauty of Boston with us! I especially loved the beach! I’m in California and I have been to Rhode Island, DC and Maryland, as far the North East goes. but love to see the US. I especially love the older buildings, CA doesn’t have a lot of years on it. Thanks for sharing everyday! I have COPD, I found out the kind I have was inherited, there is a gene for it, I never smoked. I also have Ehlers Danlos Hypermobility, which is a connective tissue disorder, my collagen is defective. I’m like a living Gumby, all my joints are loose. If my lungs aren’t getting enough air, then I’m exhausted, my lungs fill tight, like I can’t get enough air. Praying that your blood work improves and these antibiotics will work for you. God bless all of you!

When Peter said "Boston in the Fall is just beautiful" the Veggie Tales song "The Pirates who don't do anything" immediately came to mind "...And I've never been to Boston in the Fall." 😄🍁

The beach is my happy place. Looks beautiful where you are. Enjoy ❤️

I have asthma, heart ❣ disease, thyroid disease, osteoarthritis and severe PTSD. I don’t know how to describe how I feel most days. I am always in pain. I have had both knees replaced and they still hurt. My back aches from all the disease in my spine. I have some trouble breathing and my chest gets tight, my throat gets tight so I have to have my inhaler. I get really frustrated with myself because I can’t move too good. You always inspire me by the way you stay o strong and positive. I try really hard to be positive but when the pain is so bad I just feel miserable.

The scenery is beautiful. Mary, you are such a Godly wife and Peter, you are the most selfless, devoted husband I have ever seen. You all bless my heart.

Wow, that view of the water was gorgeous! I hope you wake up breathing easier tomorrow :)

Hi Mary I have severe brittle asthma and am on maximum treatment and then some.My chest feels tight wheezy painful and restrictive.I use alot of drugs for cf as my mucus is very thick and in huge quantities.Like you its 24hrs a day everyday, but I join you in celebrating life,love and happiness.

I would love still photos of your scenic drone footages

I was recently diagnosed with asthma. I guess I e had it a while and didn’t realize it. I thought I was “out of shape”. I became less and less active because some days even showering was EXHAUSTING. I’d feel short of breath and tired and my heart would race with exertion. One day while on vacation I was walking up hill and just felt like I couldn’t get any air into my lungs. It was so scary. I just stood and cried. I felt like it was all in my head. I soon had a PFT done and it showed severe obstruction. Terrified me. I’ve never smoked a single cigarette and they were telling me I had severe COPD!!!! Seen a Pulmonologist and he said I’ve had asthma a long time undiagnosed to get this bad. It’s yet to be determined whether I have permanent lung damage. Since starting treatment I feel 75% better but there are still days I feel like I’m struggling to breathe but I’m better. I still have days when just breathing seems to wear me out and I just want to sit all day so I don’t exert myself to breathe because it makes me physically tired. Some days I can laugh and some days if I laugh it makes me cough and feel short of breath. Some days I can’t yawn very adequately because I can’t deep breathe. Then, some days I feel like a million dollars. Life is still good and I’m thankful for good doctors and good medicine! Mainly I’m thankful for God’s grace and that people like you, Mary, share your struggles. I pray for you all the time! ❤️

Mary and peter and Ollie boy I really enjoy and your KZread channel it’s truly inspiring and I always look forward to your next adventure with Ollie he soo cute. Have a good rest of your weekend

I'm a asthmatic so I wake up with lung constriction and through out the day I cough...coughing is hard work for your body and lungs..it letteraly wares you out and sucks your energy. enjoy u 3.!

I have Cystic Fibrosis too and I can relate completely it's just awesome finding someone else who can relate

Love to hear the sea, i open my window every night to listen to the sea,we live 400 yards from it,in a tiny village in the uk.xx

@iloilee

6 жыл бұрын

That sounds lovely! My house is 1,000+ miles away from the nearest ocean (1,600+ km) :/ lol

Omg, I just found this channel. I’m pretty sure I have late diagnosis of cf. I love your videos and Ollie.

I have COPD. And Asthma. I understand breathing low. My smart air sacks have collapsed. Tight or constricted are good words. Coughing can cause stiff necks and sore shoulders. Never give up!!

Mary! Love your sunhat! Stylin'!

Big hugs to you all! 😆💖💙💜

I'm new here. I'm a born again Christian and I want you to know that I am praying for you daily. I can't imagine what you're going through daily. oh, your husband is amazing with his awesome supportive love for you. and your your sweet service dog is adorable? what kind of breed is he? God bless you💓💓💓💓💓💓💓

@TassieM12

6 жыл бұрын

kims love for reborns Ollie is a standard poodle ☺️

@kimsloveforreborns6458

6 жыл бұрын

thank you

My asthma is under control most of the time, but when the airway closes up... I can get air in, air struggles to get out. Last time this happened, I was at a concert at the local university and my boyfriend (a music professor there) was on stage at the recital hall playing with a group of other music professors when the asthma attack occurred. I somehow forgot my albuterol inhaler that night. So I got up got a drink of water thinking it would settle it. The third time, I still was choking for air... I looked at the stage and suddenly my boyfriend looked up from his instrument (still playing, not missing a beat) directly at me in the audience with a surprised look on his face and then immediately looked back down. About ten seconds later he looked up again at me only this time he looked panicked and then looked back down. At that moment, I remembered the doctor saying that if I forgot or ran out of my albuterol, to drink a carbonated drink with caffeine. So I left, and got a bottle of Coke and sipped that and a few minutes later my airway finally opened up. I told him what happened after the concert and asked if he remembered doing that and he said no. All I know, is I made no sound, so no one heard anything. So how he knows I was struggling to breathe from 50 feet away baffles me to this day, a year later! 😮

Its so pretty!! 🍁🍂🍁

As an asthmatic when my lungs get tight that’s usually a sign that I’m starting to have an attack. I don’t like that feeling it scares me a lot and sometimes I end up getting so upset because I’m scared I end up making it worse. So I have to teach myself to stay calm and just to remember to take my medication. I took one of your suggestions and started setting alarms to remind myself. However I do get bronchitis at least twice a year which increases the amount I’m coughing and i do sometimes have that feeling that I’m drowning in mucus. It’s worse when I wake up. Granted what I’m going through is no where near what you are going through but that’s just my experience. Sometimes I think an airway clearance device will help but I don’t know how to get one considering that I don’t have COPD or CF. Mary you are so strong keep fighting I’m fighting right along with you! Lots of hugs and love. Lots of love to Ollie and Peter too. ❤️

@Tee84

6 жыл бұрын

you need to stay calm during attacks, and remember the air can go in, but it's harder to make it go out, relax a push it a bit more out, then you will be able to breath a bit more in. That's why we all have the felling of them getting tight. I have severe chronic asthma, I know what you're dealing with, and in some case the airway clearance device can be good for asthmatic as well. but Just remember to stay calm. I've been living with that condition for over 25 years, we learn to adapt but it's not always easy. Stay strong! :)

I totally get your "breathing low" feeling. I have throughout my lungs and I get the same way. My doctors and I always referred that as "shallow breathing" Plus, I'm sure you are also tired from coughing like that.

Glad You guys are having a great time on Your trip love cute Ollie

I love how the after party turned into Ollie close up time :D

I agree it’s so hard to describe how lung issues feel! I have asthma, restrictive lung disease and I cough all the time - tons of mucus, and i couldn’t put one word on what it’s like either!