RENAMING MY DISEASE! (11.10.17)
Sometime I wish Cystic Fibrosis had a different name...
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Пікірлер: 583
MC-7 is my vote! Haha! Ok, but for reals- what word do you say differently than it’s spelled? Peter and I talk about the words we say funny in today’s video :) let me know in the comments!
@littel-nq3no
6 жыл бұрын
The Frey Life I say hoisin wrong
@LateNightGaming40
6 жыл бұрын
The Frey Life something to do with candy floss?? 😁 I hope everything goes well with your hospital stay x
@wolfsrule100
6 жыл бұрын
Caramel is one for me. I say CAR-A-MEL. I also tend to do salmon. Most people I've heard say SAM-AN I say SAL-MAN
@littel-nq3no
6 жыл бұрын
wolfsrule100 I say ca-ra-mel
@Lillyna0704
6 жыл бұрын
The Frey Life ketchup. I pronounce it “catch-up”.
I think you should rename your condition something like George! "Oh my cough? That's just George, he lives in my lungs!"
Naming it something like "jelly lungs" would be cute! 😂😂
So excited for my Oliver bundle! I work in a dog boarding facility and the stuffed Oliver is going in our lobby, all of my coworkers are so inspired by the lives you lead. Thank you Peter and Mary! 😄
CF- “Coughing Fits” Disease Lol
Mary is the most blessed woman on the planet with this man, Peter.
I’m quitting smoking starting today for the Frey life ....prayers needed
@philima
6 жыл бұрын
You can do it! I also stopped because I realized how blessed I am by having healthy lungs and how riddiculous it is to ruin them when others have to fight everday for their health. Every time you feel like smoking think of people with cf or other lung deseases. The second you do, you won't want to smoke anymore. Works 100%. I'm proof of it :)
@greenpeacesign420
6 жыл бұрын
Bless you!!!! You can do it! My son has chronic lung disease and we have family who won't even stop smoking for a day to come see him. :(
@dennisgarrett5981
6 жыл бұрын
I quit smoking when my father passed from lung cancer. I was two packs a day and quit cold turkey. I am glad every day I gave it up.
In German CF is "Mukoviszidose," which is 'mucus' plus the Latin word for 'sticky'...so 'sticky mucus' :).
@purrbugaloo
6 жыл бұрын
Sticky mucus seems like such a perfect description!
@2listening1
6 жыл бұрын
Yes, Mukoviszidose makes a lot more sense!
@NerdsnRoses
6 жыл бұрын
I like that much better! I can't pronounce it, but I'm sure I could learn lol!
Mary laughing about fish sticks fiber optics is the funniest thing I’ve ever seen! I was laughing so hard! It made my day! Love you guys!
@MsRespect247
6 жыл бұрын
Rachel Reddick right!! I love their outlook on the chronic life
@roselloyd19
6 жыл бұрын
Oh my gosh me too!! She made me BUST up with tears! Classic 👏
I noticed Mary using sign language when talking about how she says chromosome. She signed the letter N then the letter M. So cute! Love from Florida, Andie 💜
I watch every second to because of Ollie! 😃 I still think a book about Ollie would be so wonderful.
@RedRubies02
6 жыл бұрын
that would be so cool!
@DottyGale8
6 жыл бұрын
rae1957tn That would make an adorable children’s book!
Hey! Mary should do some Christmas paintings in the hospital to pass time. I’d love to see some more of her art ❤️😇
Okay, the word column, like on a stately manor; my hubby calls it col-yum. Lol. It cracks me up because literally no one else I know calls it that.
Hello Friend! Hope today you are finding some joy!! Xoxo
My husband says "flustrated" instead of frustrated...and it frustrates me. 😂
@michellehasty1038
6 жыл бұрын
Sarah Blanford Hey, I like that one!
@FiMilton
6 жыл бұрын
He’s a mixture of flustered and frustrated!
I had no idea that I pronounced onion like ong-ion. As a kid, I said sheep metal instead of sheet metal, walking wardrobe instead of walk in wardrobe!
Today was one an okay day I was feeling sick and fatigue all day. Then I saw your video and it lifted my spirits. So thank you!! God is working through you guys. I truly love watching your videos!
@lisasophiekaps
6 жыл бұрын
Ashley Hibbard I hope you'll feel better soon! Have an amazing day❤️
@eej1983able
6 жыл бұрын
Ashley Hibbard omg me too! I felt sick and off all day with ibs. Now watching Frey Life makes me happy
In the Netherlands CF is commonly named "Tough Mucus Disease" (literally translated) ( Taai slijm ziekte in Dutch :) ) off course with the explanation that all the body's mucus is messed up, on just the mucus in the lungs.
@lucinde8485
6 жыл бұрын
I was actually thinking about what it's called in Dutch! Didn't know CF and Taai Slijm Ziekte where the same!
@spottedtime
6 жыл бұрын
someonedifferent198 the problem with that word for CF, is that CF effects more then just the lungs, unless CF also gives too much mucus on all parts of your body that has mucus like the lining of your stomach. Fun Fact: your mucus lining your stomach, protects the rest of your body from the stomach acid, due to high acidity.
@kimvangemert8145
6 жыл бұрын
I was about to comment this as well! Haha
We say cara-mel in the UK. I always find it a bit odd when I hear it pronounced carmal haha. I'm not usually a dog person but I'm in love with Ollie! There's something about him that gets me every time 😊🐕
My friend Tom says that he has heard cystic fibrosis named "65 roses" !!!
@purplewillowart
6 жыл бұрын
I have heard something like that as well..I have heard "65 red roses"..
@sonia15702
6 жыл бұрын
Yes in Australia the symbol for.c.f is.the rose as a little boy with c.f couldn't pronounce his disease so he called it 65 roses. There is now a book for kids available to explain their c.f called "Mallory and her 65 roses". Each year there is fundraising here and people do 65.laps of a.pool to raise for c.f or marry and have 65 roses and donate or 65 sausages for fundraising on the grill etc.
I️ flipped out when y’all started singing “It’s almost Christmas” ! Jon and Val are from my church and we watched them preform it live a few years back! One of my favorites!!
“I hope you’re getting through whatever you’re getting through” words I needed to hear just now 🖤
Mary and Peter, I found Christmas leggings at Walmart last night for $3-6! I know how you feel about leggings and just wanted to make sure you knew so you could be ready for the Christmas season, even in the hospital!
@715koolgirl
6 жыл бұрын
Heather Stiles She just got some from Wal-Mart a day or two ago in a previous vlog :)
@heatherstiles5253
6 жыл бұрын
Hannah Renee oh, I’m so glad they saw them! I must have missed that
Mary, Peter and Ollie I came across your vlog a complete of weeks ago and soon became hooked on your posts . I dont have CF but I deal with meds and quiet alot of patients that do , and im finding your posts so informative , its given me more of an understanding into CF then text books could ever do. Ive quickly become a huge fan of you guys. Best of luck in hospital next week Mary thinking of you here in Ireland .
How about cell fluster (confused cells) ?
Fav KZreadr by far❤️🙏🏽
@michelleschafer5417
6 жыл бұрын
Viennah Nothing i know
i'm so grateful seeing you guys work so hard to get the packages out in a timely way! i've preordered an ollie and i hope you two know that i wouldn't mind waiting an extra couple of weeks if it means you two are having a smoother time! i say penguin like pinguin and trouble like troble. and when i was a kid i said 'chimley' for 'chimney'! i'm australian and i think in our accent we do say almond like amen! ollie at the end of the video is just the cherry on top :D
@sonia15702
6 жыл бұрын
We say armen like as in amen I'm Aussie too !
You have such a great spirit, I’m praying for speedy recovery so you can come home.
Prayers for you in the hospital. I hope you feel a little better and get more answers and help.
I always said Stonehedge. but its really Stonehenge.
Today, November 23rd I'm getting my first chance to watch your vlog... and am watching Chicago's Thanksgiving Day Parade. Your vlog made me think of all my Chicago Christmas memories of the Marshall Field's decorated window displays, the beautiful lights up & down State Street & Michigan Avenue. May you all be blessed on this very chilly (32° F) Thanksgiving Day.
I love how u guys talk about Chicago around Christmas... I’m not to far from downtown and my family goes ever yr. to see Macy’s windows/tree in the walnut room, go across the street to old navy, Down a few blocks to kriskringle market, and so much more. Thanks for al the videos
Love your sense of humour and wittiness. Your videos are the highlights of my evening. So thank you. I definitely feel like I've grown to love your wee family pretty quickly & fully. God bless.💋
Continually praying for y’all.🙏🙏🙏
Ahh I've been waiting for this😊 today is just a 'meh' kinda day for me. My headache was worse today than most days so I was mostly just in bed comfy. Now I just had a little speed walk for 30mins on the treadmill and I'm so wiped out. Just when I laid down your video came up and it just makes me happy :) I hope you all have a good day
Youve got this guys!!! I cant wait to order the Ollie bundle . My dog has the same sweater as Ollie with the bones but he is a yorkie so its smaller.
You guys are so cute and in love. Wishing you the best in the next few weeks, and always! ❤️
Thanks for the laughs about Fish Sticks Fiber Optics - you continue to inspire me with the joy in the face of not feeling so hot. MC-7 it is!!
You had the caramel discussion when Mary was in the hospital tis time last year!! I remember that conversation!! LOL
When you both were in the kitchen, and Mary began to sing, I thought she said :on chicken avenue", and I assumed you were making chicken for dinner and she was making a pun. Then it hit me it was "Michigan avenue". Love your vlogs!
It's so funny you smelled your tea bag after you opened it. I was wondering if you would or is that something I only do. LoL
So shocking to rewatch old videos and see the difference in Mary’s health from 2017 to 2021. The constant coughing and sickness vs all she’s been able to do now is crazy.
In Portuguese we say .... fibrose cistica , so I guess my vote would be CISTICA ( sticky lungs ) !! ☺️ My youngest daughter , who just turned 20 , to this day still says FREEGOT , for the word forget !! 😍I love it 😍 Prayers uplifted to our healing Creator , for you Mary , Peter , and Ollie boy in the upcoming week or so in the hospital !! 😘🙏😘
I always say I'm onna instead of I'm gonna. I think it's a Midwestern thing. So many slangs in all parts of the country. I am so excited to get my Ollie package. Waiting for the mail man every day :-) So glad I ordered when you announced it. I got two since one is for me and then one for my sister's birthday. I didn't tell her about this since I wanted to totally surprise her. She found your blog before I did and one day I mentioned you guys and she said that she saw you before. I said why didn't you tell me about them?! I found you two years ago when I had my gall bladder surgery and you helped me during my recovery. Love you guys so much💖👾💃
I really hope this Christmas is better for you then last year and you can embrace the Christmas season! I've been watching for over a year now. Mary, I'm praying for you. Everyday. God's in control, keep strong girl.
Until I saw it spelled out I said "for all intensive purposes" instead of "for all intents and purposes". I love love love Ollie's sweater!!!! Oh the cuteness. It's just so much cuteness!!
I used to say when I was little "I have a stummy ache".
Mary I think everyone who has watched this was laughing along with you. I couldn't stop and loved hearing and seeing the laughter. I say cromazon too. My my m says ancha v''s for anchovies.
Love Ollie's bone jacket- very groovy! Good luck to you all for your hospital stay - gurgley tummy & all! Love from AustraliaXXX
I love MC-7!!! My mis-pronounced word is chiropractor... it comes out like choir-practor! Mary and Peter... you will be in my prayers as you head to the hospital. I'm asking God for wisdom, peace, perseverance and healing! I have loved watching your vlog for almost a year now... and often lift you up in my prayers. The past few months have given me a new appreciation for the challenges you face... and the grace with which you navigate them. Due to a misdiagnosis, I am currently dealing with a dual bacteria/fungal infection in my lungs. On the days when breathing is my super power, I use the challenges to remind me to pray for you both! Peter, on the Sundays that getting out for church just isn't a good choice, I go to my Peter Frey sermon playlist! I pray God's continued blessings and favor on your lives... Oh.. and give Ollie a scruff from me. He brings a smile to my face!
I miss when you guys did grocery hauls and showed you guys cooking!!! Also I can not wait to get my Ollie boy! Love you guys!!!
I`m not an english speaking person originally, so when started studiing the language at school, I used to say like kookoomber instead of cucumber) Also, about pronunciation: some time ago I found somewere in Web an article about meaningfull tatoos, and one girl, who also has CF, made a tattoo with 65 roses, cause she can not say the name of an ilness correctly, while being a kid. So sixty five roses sounds good for CF too)) PS I wish you to feel better tomorrow, Mary!
Omg linoleum! It never ever comes out of my mouth the right way. Never has. Its so frustrating lol. Hope you make it home in time for Christmas Mary!!!
I always watch til the very last second to see Ollie too, and I love to sing along to the music!
Ollie's sweater gives me all the feels!!!! 😊😊😊
I used to say "acrosst". My dad says it the same way. I never even realized I did it until my hubby pointed it out one day when we were discussing regional accents.
I’m in the hospital right now. Was meant to. Be here for five days but that was 25th of October. Ty Mary for being my positive inspiration xx 😘
Also Mary, can your body tolerate dairy because I know that dairy products makes the body produce more mucus for some?
@puppykisses89
6 жыл бұрын
Dairy can make mucus seem thicker, but there really isn't any scientific evidence that it makes you produce MORE or affect lung function. Thank goodness, right?!
Peter, I say "caramel" the same way you do. We don't pronounce things oddly in our family but do intentionally use nouns as verbs. If I tumble over my own words I tell people "Sorry, I can't English well today"
Forgot to say, thank you to all our service members! They make sacrifices I couldn't imagine making.
omg I love how Mary was subtly signing the letters as she was saying them! Literally me! I used to say cousinDD...and I learned it ended with an "n" instead of a "d" when it was a spelling word for me in 3rd grade
You two are the best. And Ollie, he's pretty fantastic! ❤
Y’all are an adorable couple!!
AWWWWW! I just adore Ollie!
So funny... both of my uncles call the toilet either “torlet” or “terlet” and just found out recently that my mom says Chevy as Chivy. That good ol Chivy dealership!
In colorado we don't say the "t" in mountains but no one here notices it because that is just how we say it
My dad and I couldn't get through a store once because I tried to say, "technologically," and I just couldn't get the word out. He tried to say it, and got stuck, too. We sat there, trying to say it, and laughing so hard we were crying. Neither of us had ever really had cause to say the word before then, so we hadn't realized both of us would have trouble saying the first "l" haha. On another note, I'm happy you have your fuel, and your fuel pump. With you heading into the hospital to do some CF battling, it's nice knowing that your body will be getting the energy it needs in a more efficient manner than you've had prior to getting the fuel pump. I've been struggling as we move towards the assistive devices portion of my illness and it's less common "side effects" as it were. People look at me different, and it makes me want to hide away. I'm slowly letting go of that, though, and you guys definitely have helped with that. Instead of being embarrassed or ashamed, I try and talk to people about why I have a walker, or why I have a dog with a special vest on. I still have days where I just can't go out, or I get emotional, but I remember that I'm here, and I'm fighting, and I have a chance to help educate others about what I'm going through. You guys really do help so many people.
You guys are just amazing! Great personality’s
I think of it as a respiratory and digestive system disorder if you had to break it down to its most affected system
Ily guys so much
Down in Australia we all say 'almond' the way peter does. We also say 'caramel' the third way that peter said it.
I'm glad to see that you have a sweater on Ollie. My SD Diva has approx. 25 coats/sweaters and all my other dogs have at least 3 each.Give digestive enzymes to Ollie also as you are feeding kibble and dogs don't digest that very well.
Yes Mary the Christmas El train in Chicago is a real thing!!! I have good memories of that from when Iived there! 💜💜💜
I say specific wrong all the time since I grew up having a lisp. It's funny saying it really fast though. Love you guys so much ♥️ keep up the great videos!
I love you guys so much!!!
I'm asking everyone I know to get me an Ollie for Christmas!!! :)
Praying for You Mary as You go into the hospital praying for You too Peter Ollie looks so cute in his sweater
Your tiny house reminds me of my childhood and watching "The Friendly Giant".
My hubby JT, says comfortable like “comterbull. Love MC7! I of course speak English so eloquently that all words are pronounced as they should be. 😜
Having been born and raised in Ohio and now living in South Carolina, I have learned that the pronunciation and meaning of words is dependant on the area of the country where you are!
Ollie's coat is a delight!
MY OLLIE IS ORDERED HE SHOULD BE HEADED TO CALIFORNIA SOON!
The way Peter says caramel is how we pronounce it in the UK 😊😊
MC-7 is cool. Sounds like your in a spy novel. Haha!
The word I have to think about is open. Growing up my brother would tease me because I put an ‘m’ in it. I say ohmpen. 😂
I'm from Chico, CA where we say Amond. They used to hit the trees to get the nuts down so they would always say "We knock the L out of them." You can always tell who is native to this area by the way they pronounce the word. LOL
I say breftast instead of breakfast, it's just a habit from youth but my husband really cracks me up. He says rallish instead of relish and he always says ever who instead of who ever. The kids have always had so much fun laughing at his words. He also says Whiz Cheese instead of Cheese Whiz. He doesn't purposely say things wrong but he just does and it's a constant source of enjoyment for me and anyone who hears him, all in good humor though. One day he asked me, What is we ship ups? It was, We ship UPS. I could go on forever, but you get the idea.
I’m in a voice and diction class at college right now and we talk about words all the time that we are saying wrong! It’s pretty mind blowing. And according to my professor, caramel is pronounced like car-mule :)
Every time Mary starts coughing, my standard poodle (Tallulah) comes and sits by the me.
I'm renaming your rename... you have Screwy Seven... those in the know will know... ya know?
I've been saying for a couple of years...rename CF!! So many people don't know what it is and as you say, the name is in no way descriptive, memorable or helpful in increasing awareness. It would be the best promotional tool ever if the whole world, at once, relaunched CF under a brand new name. Imagine every news outlet talking about the disease at once and what that would do to aid in people's understanding of the disease and hopefully increase the chances of finding a cure or at least more improvements in treatment. 👍😊
I still catch myself saying "ambleance" instead of "ambulance"
You are an inspiration
I don't know of any particular word I mispronounce. I used to teach, so I got very used to practicing my diction when I spoke to others. I have a friend who CAN'T say elephant, though. She tries, but it always comes out effelump. Funny how our minds can do funny things. I have fallen completely in love with Ollie. I'm not a real dog person, but your precious boy has stolen my heart.
i also watch it right until the last second for Ollie
Oh my gosh, my mother in law says torlet instead of toilet haha. It cracks me up every time.
65 Roses 🌹
My female Ollie (cream standard poodle) is looking forward to getting her Ollie here in here in New Zealand. All the best for hospital Mary.
My husband says "Valentime's Day". Lol
In Australia we say ARMOND & CARAMEL( 3 beats).... so there you go!