Thank you very much, I wish more people knew about nf

Somebody with Neurofibromatosis should start a restaurant called cafe Olay

@freespirit_17

4 жыл бұрын

😂 I have NF1 and your comment made me chuckle...

@dhorizinquijada7827

4 жыл бұрын

I have nf too and this was 😂

@samaratuinstra3170

4 жыл бұрын

Yasss let's doit

I have Nf1 but I get ringing in my ears, and have had balance issues, not bad but I do at times.

@wastelandwarriorz665fanacc8

4 жыл бұрын

Latly I get ear ringing

@nomadsaurabh9557

4 жыл бұрын

Charlene Owen how much tumor you have

@Christine-ys5iq

3 жыл бұрын

I have NF1

@MrJamiez

2 жыл бұрын

I randomly get ringing in my ears, not all the time!

I have NF1

That's my doctor I have neurofibromatosis type 1 my family found out when I was like 2 and I'm scared about if them by bumps are going to be on the outside or the inside mainly because I don't want them on the outside

@primitivodominguez4742

4 жыл бұрын

Samara, hope this message finds you well. My Nephiew was just diagnosed with NF1, and I’m trying to find someone who has who can recommend anything that helps as well as answer some questions i have. Starting with the most basic of questions: Have you found a change of diet to be beneficial at all?

@bloodtraitorsrule

3 жыл бұрын

I also have NF 1 and have for 26 years recently I have become worried about the out side neurofibromas.

@Christine-ys5iq

3 жыл бұрын

I have the bumps in the outside

@dark20blade88

2 жыл бұрын

I was born with NF & i got bumps on my back arms & 1 somewhat big one right in the palm of my right hand

@Christine-ys5iq

2 жыл бұрын

I have a few bumps. I've been asked what they are. And tell people I have NF1.

my mum has nf I'm not sure which and I'm worrid cuz I've only recently found out it was serious.

@madislater3430

2 жыл бұрын

did you find out? if not ask her

My Newrofribama problem please madicin name please help me

@madislater3430

2 жыл бұрын

what

Nf1. Mines are primarily on the outside. Shit is not a game. In many cases those whom do not have it choose not to associate themselves with those that do. Chances of being in a relationship with a person without it are quite slim. Albeit there are some that tend to ride with you but indeed fear being chastised when they do. At lest in my experience. However you must carry on and be strong.

I was born with neurofibromatosis.

@madislater3430

2 жыл бұрын

same ,nf1, you?

@dark20blade88

2 жыл бұрын

I have all three