WE WERE FORCED TO STOP TREATMENT 🏥 (9.21.18)
It was an emotional day as we were forced to stop IV's.
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Sometimes the risks outweigh the possible benefits, and we just have to stop. Yesterday was filled with many tears, but we fight on!
@debbiesanderson9466
5 жыл бұрын
Keep fighting- you have a lot of friends all supporting you 🤗😘
@jackycook64
5 жыл бұрын
Thank you for sharing this. I have just had to stop my chemo infusion for Lupus.. It is benefiting the Lupus but it is causing too much damage to my liver. The only option is to increase the steroids (which can do long term damage to the body). The steroids have been the only other thing the Lupus has responded to. It is hard and frustrating.
@chaney1
5 жыл бұрын
keep on going as everyone here is right behind you two.Sending prayers and irish luck all the way from dublin so onwards and upwards
@Pastelcosplays21
5 жыл бұрын
Please keep fighting
@dorate100
5 жыл бұрын
praying for u i know God will take care of u
To anyone who wants to judge Mary for her tears or disappointed feelings... She is a terminally ill woman who has been courageous enough to put her sadness and tears and struggles on the internet for everyone to see. And your judgement is coming from someone who more than likely has no idea what it's like to live with something like CF and doesn't know all of the ins and outs. Mary has been feeling like crap for months now as well as fighting the side effects and just got told that the IVs that were her hope for feeling better have to be stopped. And as far as this being a life or death situation, I am no expert on CF, but having a lung infection that won't clear up, that is giving you cement-like mucous that is getting harder and harder to expell... It's not good. And even if you think Mary takes things too hard or gets too worked up (which, again, I totally disagree with) Peter is almost always able to take a step back and say "hold on, let's remember this..." Or "don't worry, we can try that..." And even he has been brought to tears twice in the last two weeks. This isn't a joke, it's not some little sinus infection - it's a terminal illness that Mary could very well die from one day and it's pretty gross to judge them for how they react to this news. Have some compassion.
@Kristina-zt2op
5 жыл бұрын
I don't think anyone is judging her..don't really understand who you're targeting with that comment. 🤔
@mimis-girls7935
5 жыл бұрын
loveroforcas I have never seen a comment from anyone judging Mary, everyone loves Peter and Mary!
@pucamisc
5 жыл бұрын
I appreciate your support for her, but it’s a progressive chronic illness, I don’t think they’ve said it’s terminal.
@MusicMatters_SC
5 жыл бұрын
This comment seemed unnecessary 🤔
@amylerman7187
5 жыл бұрын
Harlequin 9 it is terminal! Most people with cf will eventually die and at a young age.
Thank you for sharing your truth and your lives. Thank you for sharing the mess. You have a whole community behind you and we're here with you. I'm so sorry things aren't going the way you hoped. ❤
I don’t even know you and my heart is breaking and I’m bawling for you. I am actually sitting in the hospital, I have a terminal disease. I’ve made the decision to stop treatment. It’s quality vs. quantity, and my qol is zilch. I will pray for you. I’m so glad you guys have each other. Again, I am praying for you, and you keep fighting!
@gayleafcampbell-palmer7039
5 жыл бұрын
Really sorry to hear that SSM. Thinking of you. X
@jenharts5502
5 жыл бұрын
Sweet Sassy Molassy I will be praying so hard for both you and Mary, I pray that as you read these comments you feel the presence of the Lord wash over you and that he gives you the peace in your heart that only he knows how to give ❤️❤️
@sisterspooky
5 жыл бұрын
+Sweet Sassy Molassy : I am so sorry to hear of the health issues you are facing. Do you know Jesus? If so, you’re never alone! Cling to Him and no matter what, you’ll be okay! My father passed away on the 19th of August; before he passed he experienced something...he must have seen Jesus. He raised his hands in the air and said, “Father! You’re so beautiful! You’re taller than I thought.” It freaked the nurse and the nurses aid out, they had just come in to readjust him in his bed when this began. He was looking towards a (seemingly) empty wall. His face lit up with a smile I had never seen before. I told my Mom, I have no doubt he is with the Lord; because of what we witnessed in that room that night. Although the nurses didn’t know what to make of it, we did...we know he’s at peace. That has helped us in our loss; because we know he’s okay. If you don’t know Jesus Christ, I encourage you to get to know Him as your Savior - because He will be there for you come what may. Nothing better than that! I wish you all the best! ❤️
@Zeleiah
5 жыл бұрын
Sister Spooky thank you. I’m sorry to hear about your father, but if he said that, he must be in a better place!! Yes, I know Jesus. Not personally lol but he is my comfort and gives me strength and the faith that my journey has been long and tough, but I’ll be okay 😀
@Zeleiah
5 жыл бұрын
jennifer Hartsfield thank you so much for your prayers. I’m worried about Mary, too. She’s such a sweetheart 😌
Literally just spent 5 minutes trying to figure out why I couldn’t silence my IV pump alarm (your IV pump alarm) 😂
@lenalovegood8212
5 жыл бұрын
You're not alone 😂
@lizzyd5158
5 жыл бұрын
Not alone 😂
@shirleyplumer2276
5 жыл бұрын
Hugs guys. I have walked the walk as a parent. Grateful for everyday we had. Your parents are awesome. And they love both of you so much.
@daedae1123
5 жыл бұрын
Sammmmeeee
@ReineDeLaSeine14
5 жыл бұрын
Hahaha
So sorry, you guys. I can see the pain and exhaustion in both of your eyes. We love you and are praying for you daily. 🌻🌻🌻
It is so so great to rewatch this today, knowing how far you‘ve come and how you‘re life has changed for the better. In every dark time, there is still hope to be found!
Sending prayers!
Always praying for you and your family! Thank you guys from sharing your lived with us!
You are so brave and strong! You seem to handle all these things with such grace. Prayers, hugs and positive healthy vibes to you both! 💜
I thank you so much for your story. Your story of how to keep praying and trusting God in the midst of your pain and suffering. Your testimony helps so many lives. I think it might help my best friend
Thank you for sharing your story and your life!! I pray for you every single day!!
So sorry to hear you had to stop treatment. Such a blow when you have been working so hard. At least you know you've done everything you can in this round of the fight. Really hope blood values, kidney function and lungs bounce back and fever goes down so you can feel better soon!
Just finished your last vlog and this one popped up. Stay strong guys, you are such wonderful people and you are helping to inspire and educate so many people. Sending love and support from California.
Such a sad day, I bet all of us on here want to be there with you to dry your tears, hug you and fill your room with hope. It makes me cry and I’m not going through anything like cf. You and Peter have always fought hard and tried every day to see a glimmer of light to hold onto, to be as positive to be thankful for anything good in the day. That is special and if the world lived with your values, your faith, your spirit then it would be the greatest ho e for all of us. I am hoping the fever goes down, that you can go home and feel well enough to be able to enjoy doing normal things. We are all accompanying you on this journey and I thank you for that and you can believe if there was anything we could do we would. Hugs to you both xxx
Aw... I'm sorry you're having a rough day. Always praying for better days ❤😇
I don't even know what to say. The pain in both of your eyes is so obvious. I am praying for you and just know we are all sending our love and healing vibes your way.
Oh Mary and Peter, I hope you are feeling better today! I am sending peace, love and healing to you! I am also sending peace love and healing to all that are having a hard time right now. Much love ❤❤❤❤
Prayers for finding what is causing this fever! You're a strong lady!
Thank you for showing me what REAL STRENGTH is. Love and positive thoughts heading your way.
Im so sorry Mary for what you are going through and Peter too. Before I found your channel I had heard of CF but didn’t know much about it. I would like to thank you, Peter and Ollie for giving us all an insight in how your CF affects you on a daily basis, also I admire your strength, courage and determination that gets you through each day. Sending you lots of love and respect from Exmouth in the UK ❤️XX
Praying! You are Awesome Mary!
So sorry for this!! Praying for y’all!
You're right...challenges CAN BE difficult. We all face them ( esp those of us who have chronic issues). I love you guys and sending all of my postive, faith filled thoughts your way!
Mary and Peter seem to be the sweetest sweetest people ever.
Praying for answers and healing. Yall are such an inspiration and bring me such joy. I know you got this Mary!!
Prayers coming your way sweet Mary and Peter🙏🏼
Everything is going to be okay just keep your head up Mary and Peter keep being her big support system❤❤❤everything will be okay
Prayers for you both as always! 💕💕
Honored to be cheering you on in this fight!! 💪🏻💗 Keep on keepin’ on!
Mary, you and Peter and Ollie are so good at concentrating on the positives. Sending hugs. 🤗
You are so strong! Keep fighting the good fight!
Another obstacle to overcome.....I am so sorry, Mary. But what a wonderful assurance that God is walking with you, every step of the way. Hugs & continued prayer for you both and sweet Ollie boy. 🙏🏻🙏🏻🤗❤️❤️
Keep fighting!! Praying for you!!!
Praying for you over these next few weeks for increased lung function 🙏💕
I am a doctor and even though i am not fully informed i think your(and your doctor's) decisions seem logic and the best you can do in the situation as you described. I am curious about the hemoculture results... Keep fight Mary, you are one of the toughest people i know!
@oneseeker2
5 жыл бұрын
You are a Doctor, and that means? What?
@poppykok5
5 жыл бұрын
Why are you being such a smart-aleck...It's very unbecoming... "It means "THIS"... That she is thinking beyond the emotional aspects of what Mary & Peter are surely experiencing, & is also considering the scientific/medical aspects of darling Mary's current health situation & complications... K Butler...Being thoughtful & respectful feels so much better than rudeness...Try it...
@brendametube
5 жыл бұрын
K Butler it means you’re a troll. Go find something useful to do.😉👍
@Vee-yc5ht
5 жыл бұрын
@@oneseeker2 jealous much?
@ivyedan7183
5 жыл бұрын
Thank you for your service!! Don't listen to idiots like this person
Sorry you're having a rough time Mary. Sending gentle hugs to you all, all the way from Kent UK x 🙏❤
Mary - You're a fighter! No matter what you do, you are pushing on through. You can do this!
Praying for you constantly 🙏🏼❤️
We lost peewee tom he was a youtuber passed away from cancer yesterday idk if you heard of him he done updates he gave us 1 last video he was so pale an skinny from it his family posted a video telling us he passed
Praying for y’all!! ♥️♥️
God bless! You are in my prayers. Your optimism is amazing.
@thirtyflirtythriving
5 жыл бұрын
her positivity is so amazing
Praying for you! Lots of love.
Sending many many prayers we all love you!!
Love you Three Lots! We are all behind you, flooding you with Prayers, Love, & Strength 🙏🏻♥️💪🏻🐶♥️
Praying and sending healing hugs your way 💗
Praying for y'all, Mary!
Praying for you guys . Hope you feel better and get good news and a good plan to help 💞
I'm so sorry Mary. Praying for you!
Love you SO MUCH, Mary!!! Do what you think you can’t do! 💪🏼🙏🏼💜🌻🕊
You are all so brave. The fact that your weapon against all of this is love and humility when most would have given up you are determined to enjoy life.
So sorry you go through so much :'( Praying for you!!
Bless your hearts - you are such an inspiration to so many . Sending many prayers!🙏💕
You are so strong! Hang in there Mary!!!!
Bless your heart Mar bear..and yes, what Melissa said, you have a whole whole lot of people on your side, and prayers are many. I have faith it’s all going to get better and start going in the right direction. I celebrate too the fact that God is watching over you, keeping you strong when at times you think your not so strong. He will never fail you Mary, he will hold you up and dry your tears. He loves you so. Rest sweet lady, your so very loved by many. xo
We are fighting with you!! Always listen to your body! We are praying for you!!
I am sending so many prayers your way. Words can’t heal the pain and frustration, but I hope the love and light surrounds you and holds you up. Hang in there...
Enjoy your coffee. It is the little things in life. I am certainly keeping you all in my thoughts and prayers. Hugs!
Prayers and many good thoughts being sent your way! You guys are amazing and such a positive inspiration for so many! You'll get through this!
I'm sorry. Praying for you!
Sending up prayers kids!
Praying. You both are loved!!!
Praying for you!🙏🏻❤️
i hope you feel better soon. i have no chronical illness but i felt sick for two days now and i wasnt able to do things like i wanted to. i had to slow down eventhough i didnt want to. i thought of you alot and you helped me focussing on the small things and finding joy in what im still able to do instead of what not. thank you for sharing your story and spreading positivity eventhough things SUCK sometimes. good luck your way!
I'm so sorry to hear these news and I hope for as much peace in your family as possible.
Praying for y’all!! Hope you start feeling better soon Mary!! ♥️
You are both so brave, fighting daily for Mary's life and your life together. You are helping more people than you know. You can never say you didn't do everything possible to keep Mary's lung working. God bless you both.
Thank you for continuing to see the good. I know there were tears and there probably will be more. But I've been struggling too and seeing you smile amidst your pain gives me hope. Good luck girl!
You are so brave!!! I am praying for you!
Feel better! As a cancer patient I felt like I was right there with you! 😷❤️
Sending prayers your direction. Continue to embrace the small victories and fun moments, we all need to work at doing that as well. I’m proud of you both for doing what needs to be done even when it is the last thing you want to do. Keep pushing forward. You have a “tribe” of people praying for you and cheering for you! 👏👍🏼
Man I’m so sorry guys ! I really hope you bounce back from this ! 💜💜
Keep up the fight, Mary! Rooting for you here!
So sorry Mary, many prayers coming your way. 💚💚💚
We all support you, and I’ll be praying for you in hopes you’ll find something that will truly help!! I have to add something, it’s so crazy how much you look like my cousin!
Sending love and light from my heart to y’all’s. Feel better soon Mary. .
I am sending lots of love and prayers!
I have a friend that had low platelets and her nutritionist recommended blended beats with apples celery and carrots daily and in a month the platelet number went up. Good for you you are resting your body o antibiotics for now. I am glad you are paying attention to your body. You are in the right path. Keep praying for you guys.
I'm grateful for your words tonight Mary. I am going through this with you and I think you finally used words to wake up a respiratory therapist/friend. I've been in denial about how sick you feel. I think that makes you family. So strangely marvelous. Gotta love KZread! I pray every day. Lobe you all. Truly!
I’m sending prayers your way and lots of love. I know we’ve never met and I found you guys on here yesterday, but I feel a connection for you in some manner. I love your little family and I’m sending best wishes your way! 🙏🏽
I haven’t watched a blog of you guys in a long time and you both always bring me joy and positivity. Praying for you guys
Mary, Peter and Olli, my thoughts and good energies are with you guys. Hope that the blood culture gives your team useful information and they get the best idea for your treatment. Big hug!
Prayers to you both Peter & Mary♡♡
Oh Mary, it really breaks my heart to see you and Peter so sad. Hope the blood cultures give some results! And I really hope it's not an infection of the port a cath. Praying for you! 🙏🏻 There is a circle of prayers from all over the world around you. God bless ❤
So sorry for the hard day. Hope tomorrow is better💜💜💜
Praying for and loving on you both 🙏🏾. Mary you are in my prayer basket. I'm praying that God Grace heals your body! ❤️
Prayers and much love ❤️
Free falling! I hope you feel as good as you can and just feel free and happy
I’m sorry Mary!! 😞 You’re in my prayers!! Sending love and hugs your way!
So sorry for the set back. You are both such an inspiration!!! Praying real hard for you !! Xoxo
Oh Mary, I so hope you feel better and your health improves 🙏🏻
Prayers! God will keep walking right along with you.
I told my coworker with a service dog about you and your Ollie boy she was smiling a lot about it. So sorry to hear you have to stop medication and yikes about a fever! At least you're safe in the hospital best place to be
@maryjoobrienmoulding6298
5 жыл бұрын
Erin no
Praying for you Mary!
Praying for you and Peter. Stay strong
I have cf and have been watching you since the very beginning. You give me hope. Thanks for the blogs and keep on keeping on I will continue praying for all three of you
Sending you all love and payers. Can we all just appreciate how kind peter is! He is such a supportive and kind husband! I can tell that they love eachother very much ❤️❤️❤️ they are such a beautiful couple
I have so much compassion for you.
Oh sweethearts, big hugs!
Sending so much love and prayers friends!