THERE ARE NOT EASY ANSWERS | MY BLOOD IS A MYSTERY 🏥 (9.20.18)
Sometimes treatment is a quandary...
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Yesterday's Vlog → • NAUSEA & NEEDLE PROBLE...
See what we were up to in years past! ↓↓↓
1 Year Ago → • STORYTIME: OUR FIRST D...
2 Years Ago → • MEETING WITH THE SURGE...
3 Years Ago → • DISGUSTING CYSTIC FIBR...
4 Years Ago • SLEEPING PILLS & HOSPI...
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What is Cystic Fibrosis → • WHAT IS CYSTIC FIBROSIS?
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Service Dog Q&A → • SERVICE DOG Q&A
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Пікірлер: 241
Taking it one day, one hour, one minute at a time. Making the best decisions we can, and fighting as hard as we can. And we are cheering YOU on as well during your fight, whatever that may be.
@trishalane83
5 жыл бұрын
I am so thankful for your strength and joy during this fight!! It gives me hope for my own fight too!! Love you guys 💜
@mikaylapetty6378
5 жыл бұрын
Long comment warning: Seeing how strong you are and how you push to get better every day makes me want to push myself as well. I have Fibromyalgia and work at a job that is very physically demanding yet I just keep pressing on so I can maybe not be in as much pain every day but I'm at the point that I just live in a constant state of pain. You help give me strength to keep going every time I watch your videos. Keep pressing on Mary!!! You are so strong and so inspiring, thank you for sharing your story! ❤️❤️❤️
@eej1983able
5 жыл бұрын
Please pray my colon finally clears out. It's so frustrating
@hannahmariellewellynllewel7128
5 жыл бұрын
Can y'all post new song from video 3 days ago leck It under y'all video
@adjaques78
5 жыл бұрын
As always, thanks for sharing your journey with us ❤ Even on the worst days, I always have your videos to look forward to. PS...I just went back and watched your video on Rachel's transplant... which then lead me to read their blog posts surrounding the transplant. What an amazing journey your family has been on!! You are all so inspirational ❤😇
I totally understand what it’s like for the outside world to feel far away. I spend 80% of my time in bed and only leave the house for doctor appointments. I love watching the trees sway in the wind from my window. I feel like they are dancing. 😆 You guys are major couple goals. Take an extra moment today to appreciate your relationship with each other. It is very special and something that not everyone will have the chance to experience in their lifetime.
@shelleylondry8959
5 жыл бұрын
Jennifer Spoor I too am in bed most of the time unless I have a doctors appointment or when I drive to my house to fists my dogs/cats kids...I'm currently living with my parents, so yea I know all about being in bed....if you ever want to share stories just drop me a message and we can chat on messenger! God Bless ♥️👍🏻🙏🏻
My whole world stops when I get the notification about you guys posting a video! It's such a great break from everyday life!
@mistycgrimm
5 жыл бұрын
Me too!!!!
@wolfsrule100
5 жыл бұрын
Same!
@thefreylife
5 жыл бұрын
I’m so glad to hear that you enjoy being on this journey with us! Thank you!!!
Peter dancing is the best... Hubby loves you so much that he will dance for the entire hospital. The interview was so cute :).
@nikosutamashi6607
5 жыл бұрын
I love watch Peter dancing hehe :p agreed
@bewkiebear84
5 жыл бұрын
That was my favorite part too hehe :)
I know you probably won't see this, but I stumbled upon Peters page and watched a video about Suffering with Joy. It was almost a year ago that was posted. At the end you went up on stage and said that there might not be a medicine you can take or a cure for what your currently going through, but when you have christ you have all you need. I've never went to his page before or watched any of his videos but it was in my suggested videos to watch. For some reason I thought you might need to hear that with everything your going through right now. SUFFERING WITH JOY | 1 Peter 4:12-19
Thinking about candy from my childhood. Has anyone ever had or remember the waxy little bottles that you would bite the top off and there was fruit or soda flavored liquid in them? Strange but memorable! Also button candy that you bite off the paper? I loved those!
also, I was driving by the hospital in town, and I saw the Dartmouth DART helicopter coming in for a landing. I remembered your story, of the helicopter. I thought "Someone is having a bad day... I need to be grateful for my day." So much of YOUR LIFE, (Peter and Mary and Ollie) is now part of my life. And I am the better for it. I deal with my RA and Hashimoto and all the other stuff, so much better now. Thank you, and I love the room view.
So amazing that Peter can stay all the time with you at hospital & Ollie - that wouldn't happen in UK...amazing & so helpful to your recovery.
@eafj90
5 жыл бұрын
Susan Darby it doesn’t happen here in Australia either. 2 years ago I was transferred up to a ward from emergency around 2am. I had a private room due to infection control and yet my mum wasn’t even allowed on to the ward to get me settled in.
Your body is not a mystery to God. He is acutely aware of every atom that makes up each cell. He is our great physician. Sarah laughed at Him when He promised the "impossible". But we know that his promises are nothing to scoff at. He will use these mysteries to show everyone His glory! Hang in there Mary. Leave it at His feet
@RRR-kn6sy
5 жыл бұрын
Erin Arnold amen
@simplydanlrene4276
5 жыл бұрын
@Erin Arnold...I love what you said. I am a big believer in what God does for us and how He tells us not to worry, not to fear for He is there. Bless you for your words. :) Dani
@emmavidal4906
5 жыл бұрын
Erin Arnold Amén.
Hi Mary and Peter, Love when the nurses get pranked. It gives everybody a good laugh. It's amazing how you can be going through so much and yet still upload videos everyday. Do what you think you can't do. That message resonates with me as well. God bless you both.
I sing more since I've been watching you Mary. The good morning song, is a favorite (though I hope you have seen "Singing in the Rain", I think it would make you laugh a lot!) Also aren't nurses angels on Earth? Jess seems like such a nice nurse, and yes THANK YOU JESS from ALL OF US for keeping Mary alive.
Mary- "Current Favorite KZreadr?" Peter-"Mary Frey" LOL SO CUTE! Love you guys!
I always sing that song to my hubby in the morning with made up lyrics 😂 (you and Peter are just too cute together...)! Started to giggle when you pranked the nurse...glad to see you are maintaining your sense of humor. She seemed so incredibly sweet. Sending many thoughts and prayers. I hope that you have a good weekend in the hospital. This is the pits - BUT - you are both masters at finding joy ❤️. Hang in there and know that you have an army of people praying.
It’s so awesome that your kidneys are waking up to themselves and working better!!! Just hoping your blood cells wake up to themselves real soon, and start behaving!! We are cheering for you both!!! Hang in there!!!
Mary, Peter is right when he says your own KZread is one of the best to watch.
So glad your lungs aren't "sick enough" for transplant. From my angle, your lungs do seem to be needing a lot, so I am grateful to know you are doing well enough with all of your treatments, hospital stays, and love from family, friends, and Ollie.
In Sweden, the "Swedish fish" candy fishes are four different colours, and each a different flavour. But they aren't waxy, they're delicious :)
@Jerri1275
5 жыл бұрын
Agnes Gröndahl my kids and I had real Swedish fish. Loved it!!!
I'm so sorry about your nausea Mary. It's not a good feeling. From one prankster to another, I love when you guys do that. Peter, I loved your dancing in the sun. You both have my continued prayers. What a ministry your vlog is. Thank you again for opening your lives up to people. I'm sure you've been an inspiration to so many. Have a happy healthier tomorrow.
Mary paint a penguin! Peter could be like "where's waldo". Where is Peter waving from today?
wish you guys could give stephilee some love, she's also in the hospital for CF currently and going crazy if her vlog is any indication. LOL
Oh my word, it is so true. You are constantly faced with taking medicines that can help but hurt something else. I have been hitting dead ends in my health. I'm so far from my normal but I am ready to get back. At least your team doesn't treat you like you are just sick so deal with it. That view looks like how my weekend ended with bad news which was no news. I hope you feel back to your normal soon!
You are a real fighter! I doubt many would fight like you do every day. God bless.
Hospital prank!!! Next up, you need to open a kinder egg, LOL. Cheers to your nurse for being a good sport about it!
Peter, I typically put the night light setting on (makes the screen more of a warm tone) when working on my computer for a decent amount of time. If your laptop has that option I definitely suggest using that. I get that dizzy feeling when I have to be on my computer for long periods of time. Good luck. Keep fighting Mary!
You two. You are just the sweetest. I had to rewatch the „favorite youtuber“ section multiple times, oh my god
That was the fastest dog walk in the world Peter! Brilliant vlog guys!
I am glad you are feeling more like yourself. It truly is one day at a time. Hugs and prayers!
i'm sooo sooo sooo thankful for you all!
Jess seems so awesome!! Awesome nurses are the best! 💗👩🏻⚕️
It makes me so angry to see how many people take life for granted and this sweet couple is fighting for every breath. My heart and prayers are with these beautiful people. Hugs
i clicked so fast
Hope you Will get better soon Mary💕😘
Thank you guys for showing and mentioning the sky so much!!! Lately I have been really taking the time to look up and it's so awesome how different it is all the time! Tonight while taking my little dog, Spencer out I was taking in the clouds & bright blue sky, also noticing how majestic the trees in the yard ate. I inherited my parents home and it is over 100 YRS old so no telling how old these huge beautiful trees are! g'nite xoxoxoxo
Continuing to pray!! 🙏🏻 Thanks for the inspiration!! ❤️ You inspire me so much! Thank you! Keep fighting and trusting!!! ✝️
I love you guys and your videos so much! You (and they) help me to remember that there is so much in life to keep fighting for when my days get rough. Thank you ❤️
Peter I totally get the second way when I am on the computer or phone for long periods of time. My new phone has a setting for night and it reduces the blue light. It helps so much with the nasty feelings I get from screen. I actually use it most of the time I am on the phone... The prank was great!! I love when you make the hospital fun. I know it helps out a lot and I know that it helps the nurses have fun at work also... Your guys are in my thoughts and prayers... Sending you hugs and love from Oregon
Just came across this channel; you both exude life and happiness irregardless of the health problems. Amazing!
I totally understand, and thank you for explaining it to me, and your feelings about the why's and when of a lung transplant. Goodnight you guy's...Have a healing weekend :) xo
Glad that you are at least feeling more like yourself today. Hopefully you can find a good balance between risk and benefit. I think that is one of the hard things about life is finding balance, especially when you have a chronic illness. My husband and I were talking lately about just how much of a full time job being chronically ill can be especially when you have two people in the house with chronic illness'.
Ollie's like "dad you're embarrassing me!" (Peter dancing)
I have 1 minute at a time days too. When I want to feel sorry for myself I pray for you and others that have to take it one moment at a time too. Thank you for sharing your journey.
Hope you feel better soon
Love you guys so much you always see the good ib every day. You are inspirational and have helped me to appreciate the things i have. Thanks and keep on doing. Hugs and love from NZ
Love that you are feeling more like yourself! 🌻🌻🌻
Proud of you Mary for working so hard, and thankful for Peter who takes such good care of you. Still keeping both of you in my thoughts and prayers. Love you Guys. 👍💞😇🙏✝️
Keep up the good fight, Mary! We are all here with you
Thank you for reminding me to be thankful!! I have Spina Bifida and our conditions are totally different but a lot of the things you talk about with antibiotics and ports and nausea and risks and benefits and hospital life are so familiar to me! You are an encouragement to me!! 💕
I laughed and almost woke my infant up when you said *abismal* like that
You leave that room through your subscribers, who love you lots! And we're all over the world! Even in the Canary Islands!
Mary, you have the best attitude!
Mary you always look beautiful and your positivity is infectious!
Praying you can do neupogen (so?) Or something to help your blood counts! I've been praying for you guys! I know it's rough on everyone involved not to be comfortable at home. I do love how you guys make a home wherever you are. That is great. I have been having lung pains and I have a variant of CF that's attacking my pancreas and that's been particularly difficult lately. And now my lungs are actually having pain and I can go very far without getting winded and having to rest or without coughing up junk. I am praying for y'all daily and I am the cheerful beaver thing is cute haha. I want a man who will go up to a rooftop to wave at me in my hospital room! You guys cheered me up (= thanks so much for doing this daily. Y'all rock.
Sending prayers that you are able to get home soon! Wonderful news about your kidney numbers😍
I wish you all the very best and hope you get better soon. You truly are inspirational. ♥️🌻
I love seeing you guys every day
I wore the tank top version of that yesterday Mary!! It was a good day to wear it because I really needed it’s reminder for the things that were going on
Feel better soon!
Just love y’all forever and ever!! 💙💙💙
You guys are sooo cute as always. Mary you are looking better and better each day! thumbs up to that!! And Peter as I said before, I love that red plaid shirt, so handsome! and Ollie Boy, cuddly and cute as always. Keep up the good work Mary! My love and hugs to the 3 of you, see you tomorrow!
Keep up your spirits, both of you!
Your view out of the hospital window makes me miss Boston so much. ❤️
It took 3 tries to see the last 4 minutes of this video. First try, 9 month old poodle distracted me. Second try, 9 month old poodle came in from outside with very dirty paws from digging. Third try accomplished. 9 month old poodle asleep after having feet washed because they were too dirty to go the whole night. Prayers for strength and God's mercy.
Y’all are so cute together!
I have prescription glasses with a blue light filter in them and they are great. I am a computer major in college so I spend a lot of time in front of screens and they help with eye strain and migraines a ton. I'm not sure if they will help with motion sickness but they are worth a try! Love you guys! I'm glad you're feeling better today Mary!
I watch your vlogs every day you are a part of my life. I love you and i hope mary feel better soon💗💗
& keep praying!!!! Love you both :)
Sorry ur blood work is so crazy praying for you God bless
Omg the look on that nurses face when you pranked her 😂🤣😂🤣😂🤣 Glad to hear your kidneys are starting to recover I love those Swedish fish,I order them from Amazon Xxxxxx
Current favorite KZreadr? Mary Frey! I can’t lie... Awwwwwww ☺️
Beautiful team. You inspire us all :)
New sub here. I am binge watching and educating myself about this . Huge and stay strong love
Mary has the most beautiful smile!
You are so upbeat about your CF and your stay in hospital. God is in control
My kids and I love you guys. We are praying for you both.
Oh, and my dad’s favorite movie theater candy was jujyfruits, so they hold a very special place in my heart.
I had to let you know I was watching a quiz show that had a question about which organ filters white cells, and I knew the answer because of Mary's spleen.
I have blue light glasses and I swear by them!! They don’t prevent my migraines like I thought they would but they make computer work and fluorescent office light WAY more comfortable. I didn’t even realize how uncomfortable I was until I started wearing them.
You guys are great You make a great team love Peter how he'll do anything to make You happy he really loves You. Keep on fighting Mary You got this love Your attitude about all You're going through You're amazing God Bless You guys
Mary, you look and sound better today! xoxoxoxo
I pray you get to go home soon, you are a brave women, God will see through this, you know he is always there for you,take care both of you,
I really believe that you are ambassadors of God’s message and I thank you from the bottom of my heart.
Ollie at the end of the vlogs I can picture him saying, “here they come with that camera 📷 thing that they talk to “, lol. Love you guys praying for you your blood counts, your kidneys and your lungs.
So glad you' re look so good and happy, XOXO
I'm continuing to pray for you
Love you guys 💜
Jess has a good attitude and a great sport. 🤗
Still in the hospital. Gotta get this figured out. Time to start prankin nurses. Hi Jess. Keep taking care of Mary. That darn medicine. Happy to hear you are keeping up with the gym. Get those counts up. Timing Peter and Ollie. At least you found something to do. Love the interview. Oh, I have to find the off brand sweedish fish. I refuse to try the Oreo Swedish Fish flavor. Penguins are awesome. Keep fighting.
Hope you feél better. ☺
Is there a way to know if you are a transplant candidate before your lungs decline? and what are the odds that CF patient's face with qualifying for a transplant?
I am the same.. like some other followers of you.. as soon my notification tells me there is a new vlog of you guys.. i let everything be and watch you two.. its the most thing i love to see every evening.😍
Mary looks better in this video than she has been looking. TBTG!
🙏 you get better hugs
Mary when you closed the vlog I thought of. See you tomorrow same time same channel. Kidneys keep up the good work!
It looks like you have a good team there in Boston. CF is hard. That port does not seem ideal. Placement wise. You guys bring a lot of hope to many folks because of your vlogs you help many people
I have a UV absorber film on my prescription glasses and it helps so much! Especially with the computer
Hi Pete and Mary. Mary I'm glad you're feeling a little better today. l have a question have you guys ever considered naturopathic treatment and maybe diet change? Naturopathic treatment is not as harsh as the conventional treatment. Mary get well soon.💕
Your hubby love you he Will go to the hospital and stay the whole time with you in hospital . how nice
Fun times guys amazing nurses you have keep swimming
I am a graphic designer and I wear blue light glasses, I recommend them VERY highly.
still sending all the best from ireland