Vestibular Neuritis - The Struggle and Recovery Story pt. 2

My update and recovery 2 and a half years later after Vestibular Neuritis

Пікірлер: 175

  • @cherieleigh10
    @cherieleigh10 Жыл бұрын

    This is absolutely a hard journey. I pray everyone is healed. Thankyou for these videos

  • @vincentvega3747

    @vincentvega3747

    6 ай бұрын

    It is. Hardest thing I've been they. How are you doing?

  • @happygal70
    @happygal703 жыл бұрын

    Hi, Thank you! This video is so very helpful and encouraging. I am at the same stage in my recovery as you. I started in Oct of 2018. You have covered everything I am feeling and think about with this video amazingly. To anyone reading my comment - you WILL get better. Let go of a timeline. Everyone is different. Just do your rehab exercises. They absolutely help!

  • @seanpangs7131

    @seanpangs7131

    3 жыл бұрын

    Thank you! Glad to hear this has helped and glad to hear you’re doing better!

  • @brendasmith3308

    @brendasmith3308

    3 жыл бұрын

    My dad who is 83 has been going through this for the last 2 years. I was so excited just to find your video that explains sooo much. No one has diagnosed him. I plan to start him on some of the exercises you have explained helped you. Is there a printable checkered exercise sheet like you use? Thank you for sharing your experience with all of us. You have been so helpful! I wish you the best in your full recovery.

  • @tanyaford9886

    @tanyaford9886

    Жыл бұрын

    ​@@seanpangs7131I'm 5 years on and my symptoms to abe for worse again, has anyone else had this?

  • @willc8055
    @willc80553 жыл бұрын

    Thank you so much for doing these videos. They have been incredibly important to me in my recovery.

  • @sarahp8937
    @sarahp89373 жыл бұрын

    Hey fellow VM'er! So relatable and glad for the update. Peace!

  • @toddkrump4520
    @toddkrump45203 жыл бұрын

    Great Presentation this video and others similar are so helpful. Great job 👍🏼

  • @crystalp1880
    @crystalp18803 жыл бұрын

    Love the video. I just was diagnosed with VN. This video gives me hope that I will get better. It's going to be a journey.

  • @candalance1
    @candalance13 жыл бұрын

    My 12 year old son was just diagnosed with this. He has been sick for a month that started with a virus and led to this. Your first video about this was extremely helpful as is this one. He just started today on steroids. Will def be using some of the tools in these vids to help him! Thanks so much!

  • @aimeesukesna7770
    @aimeesukesna77703 жыл бұрын

    I just in my 2 months, started the first sympton in March 2021 and it really gets to me and affects my life. Thanks for the videos opened up my mind and lower my anxiety.

  • @bygrace3113
    @bygrace31133 жыл бұрын

    So encouraging, thank you

  • @Bul1970
    @Bul1970 Жыл бұрын

    Amazing video.great information. I wish I found this 5 years ago. It has been that long. I do live my life but at time it’s very difficult because I have the same issues with my eyes and the swaying. It’s very hard. Can you please make a video with all the exercises you do every day. Or at least few of them. It will be very helpful for me as I am trying so hard to improve and stay there. Sometimes I get better and then all of a sudden back back, so scary. Anyway, you are such an amazing person to take the time and help others. So greatly appreciated. Thank you again and hopefully you do the video with the exercises 🙏🏻💝

  • @winstonty
    @winstonty3 жыл бұрын

    Thank you Sean. I was chasing diagnosis and all testing hasn't led to anything. I'm still having all the symptoms you mention and I had decided no matter what I just had to find a way to fix it myself. VRT helps. It's been 1.5 years and I know that I've made progress. Thanks for your video. It's just what I needed to hear!

  • @seanpangs7131

    @seanpangs7131

    3 жыл бұрын

    winstonty Im glad this helped! I’m a firm believer we can retrain our brains and get our lives back. All the best to you!

  • @berthaemerson9060
    @berthaemerson90603 жыл бұрын

    Thank you Sean!!!👍👍👍👍

  • @berthaemerson9060
    @berthaemerson90603 жыл бұрын

    Thank you for the up date!!! My V.N. started May 2019. It is a long road for most of us.I'm still at 90% most of the time, I have good days& bad.mostly good.The anxiety is the worst!!!But I think back to when this started& how far I've come!!! I can walk now,go places,do everyday things.Not able to go back to work yet!!!Must be 100% for that!!! I'm slowly getting there!!!Again thank you so much for posting!!! This made my day!!!No one can understand unless you have gone through this!!! I knew exactly what you were saying& felt when walking into a darker room/area,the offish feeling ,the eye thing going on!!!Take care Sean👍😎👍😎

  • @seanpangs7131

    @seanpangs7131

    3 жыл бұрын

    Bertha Emerson good to hear from you and hopefully things continue to get better. I went back to work at line 80%. I would even say you wouldn’t have to wait til 100%. It might seem scary but it might help. Just my two sense. All the best

  • @MightyLion36
    @MightyLion362 жыл бұрын

    Your words are very encouraging and inspiring. I have been dealing with this since February with the more intense symptoms as I do believe my symptoms were gradual over the last 7 months. Non spinning vertigo over a month, the anxiety and panic attacks are hard to deal with as mine comes mostly during the evening. The whole thing does require change but like you said that willingness to get our lives in balance. Thank you 🙏🏾

  • @seanpangs7131

    @seanpangs7131

    2 жыл бұрын

    Sorry you're going through this. It's a tough ride and it's a mindset adjustment, but I hope you can find your answers and get better

  • @yourlocalmilkman6118
    @yourlocalmilkman61183 жыл бұрын

    Super glad I found your videos. Now I don’t feel like I’m going nuts anymore. That “I feel practically normal” line 😂, I totally can relate, but I’m at the completely not normal phase

  • @mandyrose5822
    @mandyrose58223 жыл бұрын

    Have your headaches gotten better? I believe you mentioned you had headaches in your last video. You are to correct in saying doctor don't know much about this illness. Thank you so much

  • @malothiseegolam3894
    @malothiseegolam38942 жыл бұрын

    Hope you get well soon this seems a new type of phenomenon I suppose after the mobile 0hone were made this is affecting all the people sorry such young boy with so much of life to live thanks for sharing your problems so others can benifit

  • @1stgencivic
    @1stgencivic Жыл бұрын

    Hi Sean, thanks for sharing your experience with us. Sure sounds like you are on the right track. I found running on the treadmill changed my dizziness by about 30%. After running, if i move in slow motion I fell much ore stable. I went from hanging on for dear life to a very fast running pace. It’s not so easy outside though. Thought I would share this. Best Regards and hope you are doing well now.

  • @davidclark3603
    @davidclark36033 жыл бұрын

    Thanks again. The health service havn't got a clue?! I'm glad you're getting there, healing yourself. I would be willing to do anything, if I just knew what to do? I'm classed as disabled now and written off by society. I will never give up trying. I've given up with doctors, they don't know! It's people like you who are the only hope. Thanks.

  • @seanpangs7131

    @seanpangs7131

    3 жыл бұрын

    For sure.. for me I had to accept that I had to retrain my brain and it’s worked for me. Hope you find your answers!

  • @seanpangs7131

    @seanpangs7131

    Жыл бұрын

    @@Ackermann634 hey yeah I had that, I just had to keep walking (or try walking properly) and it eventually got better

  • @Southernchick95
    @Southernchick952 жыл бұрын

    Thank you soooo much for all this. I have every symptoms you had still yet to be diagnosed with anytning 😭😭😭 my ent said vestibular migraine but without pain. But I feel more as if it's vestibular neuritis. My pcp blames anxiety. Er blames anxiety... like you said feeling these symptoms makes your anxiety go up Bc who wouldnt?! Especially worrying what ppl think of you. It's so hard to stand in stores without swaying left and right... and the lights kills me soo much... and it seems like the room is shimmering... and I lose balance. It's so tough with this. And I still have any answers. But this video helps me So much thank you.

  • @seanpangs7131

    @seanpangs7131

    2 жыл бұрын

    Yeah I definitely went through all of that. It definitely took time, patient.. and for me a lot of exercises like practicing balancing. But all of that, pretty much has gone away. Also, I would say not to focus so much on what the particular diagnosis is.. they're all so similar, but focus on the recovery, cuz again, it also is similar

  • @AintNothinButaZthanG
    @AintNothinButaZthanG2 жыл бұрын

    Hello! Can you please provide a link to the exercise list that you used to recover? My wife is recently diagnosed with vestibular neuritis and I want to help her. Love your videos btw they are very inspiring!

  • @aileencoombs8579
    @aileencoombs85792 жыл бұрын

    Hi Sean, thank you so much for your videos. For the first time I feel like I’m not going crazy. I wanted to ask you about going to the gym. I’m still having ocasional moments of dizziness but it comes in waves. Been dealing with this for 9 weeks. I want to ask you about resuming exercise, were you able to strength train or did you have to modify what you would normally do? I’m itching to get back to some routine and i feel like exercise will help my mental state but I’m also scared. Thanks again

  • @sarahp8937
    @sarahp89373 жыл бұрын

    The black and white pattern is kind of similar to the Dai theory! I was signed up to fly to another state for a trial of this (a chamber created with the black and white lines, spinning in the chamber) and EMS therapy too, but it was cancelled due to covid, so I'm excited to try this at home!

  • @seanpangs7131

    @seanpangs7131

    3 жыл бұрын

    Sarah Pont that’s really interesting.. give an update if you ever try it. All the best to you :)

  • @despet5821
    @despet58213 жыл бұрын

    Thanks for the motivation. I'm 4 months in and feel better but have good and bad days too. I felt 90% better just a few weeks ago and had a setback. The problem was that I felt great for 3 weeks straight stopped VRT and then the weather trigerred me and I had a set back. I'm back doing it again. I also dont have a diagnosis but went right to a physio therapist from the start who assessed me with VN. I had my first phone ENT consult 2 weeks ago ( 3 mins in total) and he discounted VN without ever seeing me or hearing my symptoms and the PT report. Anyways I am booked for VNG testing on Sept 10 and then audiology testing and from there will see what is going on. Did you have an MRI /CT scan? I haven't had any yet.

  • @marioavila9021

    @marioavila9021

    3 жыл бұрын

    Des pet what did u get back

  • @savant416
    @savant416 Жыл бұрын

    That floaty feeling walking outside drove me insane.. did you ever get dizzy getting off of a treadmill? Thanks for this

  • @natashablack4359
    @natashablack43593 жыл бұрын

    Great video thank you for the update

  • @seanpangs7131

    @seanpangs7131

    3 жыл бұрын

    Natasha Black no problem. All the best to you

  • @natashablack4359

    @natashablack4359

    3 жыл бұрын

    @@seanpangs7131 are you sticking to a diet?

  • @seanpangs7131

    @seanpangs7131

    3 жыл бұрын

    Natasha Black nothing crazy.. smoothie morning, as much greens throughout the day + chicken. And then whatever else. In my acute stages (first few months) I was pretty strict with just healthy food

  • @natashablack4359

    @natashablack4359

    3 жыл бұрын

    @@seanpangs7131 when did you start to feel like it was finally getting better rather then the up and down Rollercoaster of better then worse? Also did you get headaches with your symptoms?

  • @seanpangs7131

    @seanpangs7131

    3 жыл бұрын

    Natasha Black Umm probably 5-6 months after onset did the recovery start versus feeling like shit all the time. I did get headaches yes, probably over a year and a half

  • @jxde._.7
    @jxde._.73 жыл бұрын

    Thank you for your videos! I’ve actually been waiting for an update I’m so glad to hear you are doing better. It gives the rest of us hope. I’ve been dealing with this for almost 2 yrs now. & I just want my life back! All my doctors have said something different as well. My anxiety has been through the roof. & this illness can take you to a dark place & it’s scary sometimes with little answers. I’m glad your you & the fb groups that’s such a big help. I get migraines so some days are just horrible. I’m currently doing VRT. But I’m definitely going to focus & be more consistent with that. I know you said you didn’t take meds but do you take any supplements?

  • @seanpangs7131

    @seanpangs7131

    3 жыл бұрын

    Fav Ooo I think VRT helped me so much to where I am today. I take tumeric, fish oil, magnesium, l Lysiene, co q10. I’ve experimented with many throughout the journey but these are the ones I’ve stuck with

  • @jxde._.7

    @jxde._.7

    3 жыл бұрын

    Sean Pangs would you get headaches/migraines also?

  • @seanpangs7131

    @seanpangs7131

    3 жыл бұрын

    Fav Ooo I used to, really bad, but not so much now a days.. it just kinda went away

  • @jxde._.7

    @jxde._.7

    3 жыл бұрын

    That’s great! I feel like that’s still one of my worst symptoms. & the brain fog/derealization. Besides all the other symptoms.

  • @r.r8314

    @r.r8314

    3 жыл бұрын

    @@jxde._.7 ah i get them too.. 😒 and the worst part is that people dobt realise how hard is this, they think you look normal but inside its just a mess... well hopefully we vestibular warriors will feel better soon x

  • @MrMrLeechill
    @MrMrLeechill2 жыл бұрын

    Inspiring

  • @SalmanAhmed-si4ly
    @SalmanAhmed-si4ly3 жыл бұрын

    Hi there I’ve been Diagnosed VN three weeks now, believe me it’s so hard, it’s only when I put head on the pillow I feel ok, but as so I get up my head feels so feels so heavy, Maybe I suffer from migraines, form before, and this makes it worse. Of course the dizziness is there. Just can’t take this pain and my anxiety goes top of the roof.

  • @BB-or8gi

    @BB-or8gi

    3 жыл бұрын

    I feel you man. My anxiety is tremendous. I’m a 33 year old man. I’ve never felt like this before. Such a feeling of terror. We will get through this. You will get through this. ❤️

  • @AdriZidare
    @AdriZidare3 жыл бұрын

    Love your updates!! Very inspiring! I was diagnosed w/ VN (first they diagnosed me with bppv vertigo- which i did not have) last December 4th and was back to 85-90% about 2 months later. Physical therapy is definitely what helped me ,.. soo many exercises & my therapist was the one that discovered I had VN & not bppv. My only issues nowadays are anxiety (like u said)... I panic if I have any signs of symptoms,..right away I'm like "omgggg its coming back". ..., but it hasn't., thank God 🙏🏻. From time to time I get that floating notion when rolling from side to side in my bed or in the dark., but i can't even complain about that, because I never thought I would even be back to "this normal again".

  • @seanpangs7131

    @seanpangs7131

    3 жыл бұрын

    AJ_Zidare that’s good to hear you recovered-ish so quickly. Yup I totally feel that anxiety part.. but again that gets better with confidence. Honestly, try walking in the dark more to get rid of that feeling. I walked with my eyes closed for a while and the dark doesn’t bother me anymore

  • @AdriZidare

    @AdriZidare

    3 жыл бұрын

    @@seanpangs7131 I'm gonna try that 🙂. Even when I was first diagnosed, my hardest exercises were with eyes closed, ..right away i was falling. I was a trained ballerina for 20 + years & to have no balance was the most bizzare feeling for me.

  • @seanpangs7131

    @seanpangs7131

    3 жыл бұрын

    AJ_Zidare oh wow. Best of luck.. for me it seemed like I had to start from scratch with balance and everything. Hopefully it won’t be long for you!

  • @Kalcandesign79

    @Kalcandesign79

    2 жыл бұрын

    @@seanpangs7131 hey Sean Hope all is well brother!! Do you know how long the floating /trampoline feeling lasted for you ? I remember you said in your video the floating type feeling went away ?

  • @Kalcandesign79

    @Kalcandesign79

    2 жыл бұрын

    @@AdriZidare hey AJ! Hope all is well!! Any advise on getting rid of the floating feeling ? I get that when walking and also like trampoline feeling . I asked Sean also so let’s see

  • @jessicaanggiansah8093
    @jessicaanggiansah80933 жыл бұрын

    Thanks Sean! Can you possibly help share all your VRT? Thanks so much

  • @lineaagreen
    @lineaagreen4 ай бұрын

    Had it for almost 4-5 month, still struggle a little. Archupuncture and exercises helped a lot

  • @aimeesukesna7770
    @aimeesukesna77703 жыл бұрын

    Btw I was diagnose early as I went to Ear Throat Nose Doctor specialist in Vestibular issue. She helped me a lot with understanding the VN.

  • @seanpangs7131

    @seanpangs7131

    3 жыл бұрын

    Sorry this is happening to you but on the brightside, glad the ENT was able to identity it early. All the best to you

  • @ariannefew
    @ariannefew Жыл бұрын

    Hi Sean I saw you comment in Vestibular Hope saying you would take a low dose of klonopin for a time during your recovery. I am currently 18 months and I still have debilitating 24/7 symptoms. I do VRT 3 times a day. I'm wondering how often you took klonopin?

  • @amnamasood435
    @amnamasood4353 жыл бұрын

    Can you please make a video of your VRT...I mean all that you did or suggest some videos that you followed

  • @seanpangs7131

    @seanpangs7131

    3 жыл бұрын

    Amna Masood I can, but honestly, over time, I followed the basic vestibular rehabilitation videos that you find on KZread. Once I had a solid foundation, I started to just create my own that I struggled with. If I struggled with walking diagonally, I’d walk diagonally etc.

  • @sbmcart5455
    @sbmcart54553 жыл бұрын

    Hey! Your videos have helped me so much so thank you. Quick question. I’m 11 months into VN improving but my lingering symptom is really bad head pressure, did you have this also? I’m worried that this is a symptom of vestibular migraine and not neuritis and with that you shouldn’t do VRT as it could make it worse (I do VRT) everyday, basically just wanted to see if you or anyone else had head presssure with VN and eventually got rid of it so that I know I’m on the right track to recovery and not hindering myself with the exercises. Long message sorry! But thanks for reading. Have a great day

  • @seanpangs7131

    @seanpangs7131

    3 жыл бұрын

    Hey there.. I definitely had head pressure as well. I do get asked that quite a bit, but I’m not sure how I would’ve got rid of it, I feel it just kinda went away with time (no longer have it).

  • @sherryrenaud2954

    @sherryrenaud2954

    2 жыл бұрын

    I'm in month 10 post acute phase of vestibular neuritis. I too have head pressure. The head pressure was intense and constant for about 6 months. It does lesson as time goes on. My understanding is that the head pressure is a stress response. I also ended up with a very tight neck. I am currently receiving neck mobilization therapy from a physiotherapist along with neck exercises. This has helped immensely with the neck tightness and head pressure. I also recently saw a neuro optometrist. She advised me that I have a weakness in my vestibular ocular reflex in my left eye. She gave me additional eye exercises as well as advised me to wear my glasses all of the time. This eye issue is common with vestibular neuritis. The good news is that the eye can be strengthened which should reduce or eliminate remaining symptoms. I also complete VRT exercises daily. I hope this helps answer your question. I have been told many times that recovery takes time, patience and perseverance.

  • @ThePaurp

    @ThePaurp

    Жыл бұрын

    Yo tomo theorato de magnesio me ayudo a mi niebla mental y presión en ma cabeza

  • @sarahlucas2557
    @sarahlucas25572 ай бұрын

    Hi Sean. Did you ever decompensate since your recovery?

  • @hrishisathe008
    @hrishisathe00811 ай бұрын

    Hi. So were you able to drive a car? I have this and 4 months into it, I can drive but I feel a little woozy when I get out of the car...like the car was moving. Also, I can ride motorcycles.

  • @nathandawson7558
    @nathandawson75583 жыл бұрын

    GUYS it does get better but it takes time and work. I’m close to 2 years and I can tell you that when I flare up a little or have a bad few days it’s because of ANXIETY. It’s hard to tell yourself it is just you being anxious and I don’t have all the answers but my anxiety medication has helped. Keep fighting

  • @seanpangs7131

    @seanpangs7131

    3 жыл бұрын

    Thanks for sharing Nathan! Glad you’re on the right path and getting well

  • @laurenbaldwin6068

    @laurenbaldwin6068

    3 жыл бұрын

    Hi could you help me please i have VN and VM doctor isn't helping me, what should I do for this please i have intense depersonalization and deralization with it 24/7 for last 3 months does the depersonalization always go away or is it not gaurenteed taking over my life

  • @skaxman99

    @skaxman99

    3 жыл бұрын

    Hi there Nathan I’m not a doctor or anything but finding out about PPPD helped me. Good luck

  • @laurenbaldwin6068

    @laurenbaldwin6068

    3 жыл бұрын

    @@seanpangs7131 hi Sean what's the best way to fully getting rid of DPDR t feel completely normal again

  • @seanpangs7131

    @seanpangs7131

    3 жыл бұрын

    @@laurenbaldwin6068 sorry I don’t have a confirmed answer for this that will work for everyone, but just getting out, going for walks and always challenging my brain to become normal again, is what helped me

  • @diannegiles5876
    @diannegiles58769 ай бұрын

    Where do you get the checkered paper?

  • @VernonRhem
    @VernonRhemАй бұрын

    I had a stroke, and that is what is stopping me

  • @JOEYEMANUEL1717
    @JOEYEMANUEL17173 жыл бұрын

    I get you nothing stops me the computer doesnt affect me any more

  • @seanpangs7131

    @seanpangs7131

    3 жыл бұрын

    Joey Emanuel yeah that’s really good to hear. How have you been feeling?

  • @janiceince6221
    @janiceince62213 жыл бұрын

    Sean how did you control the anxiety? I find that it's a big part of the recovery.. I feel like anxiety stress caused this disorder.. Taxing the central nervous system.. Can't take meds..

  • @seanpangs7131

    @seanpangs7131

    3 жыл бұрын

    Janice Ince I think just getting better and gaining more confidence helped with the anxiety. Again, just going out and challenging myself. It’s hard but it can be controlled. Breathing techniques..

  • @aliciaschreader1981
    @aliciaschreader19813 жыл бұрын

    I get dizzy when I try to sleep on my right side. In the video you say lean into it - or do the things that cause the symptoms. I feel scared to even try to sleep on my right side now. How did you get the courage to try that?

  • @seanpangs7131

    @seanpangs7131

    3 жыл бұрын

    I’m not sure how I managed the courage to do it.. I couldn’t sleep in my left side, I’d get weird head sensations and feel dizzy. I just did it in progression. I mean, I’ve always eluded to like a figure skater spinning around and around and not getting dizzy. Took practice. So whatever made me dizzy, I just did more of hah. I can sleep on my left side now with no issues really

  • @aliciaschreader1981

    @aliciaschreader1981

    3 жыл бұрын

    @@seanpangs7131 that’s good to hear. I’m just scared, I think. I like the figure skater analogy. It’s such a terrible feeling that I tend to avoid it. The symptoms sound similar. I appreciate the responses & video updates.

  • @supajooce
    @supajooce2 жыл бұрын

    Are you still on the Serc? Or did you stop? When did you stop it if you ever did? Thanks!

  • @seanpangs7131

    @seanpangs7131

    2 жыл бұрын

    Hey there, I stopped maybe a month and a half in.. it's effectiveness wore off and it gave me stomach aches. it's been a journey but I'm pretty much back to normal now

  • @jaspalrama4041
    @jaspalrama40413 жыл бұрын

    Hlo sir I am suffering from same problem is there any need to decrease the quantity of salt and sugar intake or can I continue with 2 cup of tea daily

  • @hxhxhxx7886
    @hxhxhxx7886 Жыл бұрын

    Hey im sad because no one knows what im talking about or dont believe me but did you ever see words moving bouncing or shaking on a computer screen im suffering from vestibular neuritis as well and if you can reply i will be so happy thank tou for making this video.

  • @seanpangs7131

    @seanpangs7131

    Жыл бұрын

    Hey I experienced that, look up eye gaze stabilization exercises to help with that. All the best

  • @mandyrose5822
    @mandyrose58223 жыл бұрын

    Hi Sean. Did you have neck stiffness at any point during your journey?

  • @seanpangs7131

    @seanpangs7131

    3 жыл бұрын

    Germana Guarnaccia yes I did

  • @YeseniaCervantes-nz9to
    @YeseniaCervantes-nz9toАй бұрын

    any tips with nystagmus? Like Vision Exercises?

  • @karlinhahf
    @karlinhahf3 жыл бұрын

    Thank you Sean! Im on my 4th month. Quick question: Did you ever got your ears clogged/ fullness feeling?

  • @seanpangs7131

    @seanpangs7131

    3 жыл бұрын

    karlinhahf hmmm if I did it wasn’t very long. I do recall slight earfullness

  • @karlinhahf

    @karlinhahf

    3 жыл бұрын

    Sean Pangs thank you! I do have it, and its been like that for 4 months now 🙈 it’s awful and bothers me a lot! I don’t think its Menieres because I have no hearing loss. Most likely VM.

  • @krypt1c211

    @krypt1c211

    3 жыл бұрын

    @@karlinhahf do your ears ever itch? I've been going through this for 5 1/2 months now. Only been to ER and they told me I have labrynthitis. I have all these symptoms but my ears constantly itch like crazy!

  • @laurenfieman9869

    @laurenfieman9869

    2 жыл бұрын

    @karlabarr - I am on month 7 of VN and I still have ear fullness and clogging, especially with changes in elevation. As a female, I've noticed these symptoms flare up more when approaching and at the beginning of my menstrual cycle.

  • @karlinhahf

    @karlinhahf

    2 жыл бұрын

    @@laurenfieman9869 have you been tested for intracranial pressure?

  • @mandyrose5822
    @mandyrose58223 жыл бұрын

    Hi, you mentioned shimmers on the side of your eyes. Are they flashes of lights that last a few seconds? I have been getting these light flickers mostly when I go into a darker place. Luckily they last seconds. Not sure what they are. Thank you

  • @seanpangs7131

    @seanpangs7131

    3 жыл бұрын

    Germana Guarnaccia yeah that’s kinda it, more like shakes. I’m not sure why, I think it’s almost like my brain is using my eyes a lot for balance and when it gets dark it almost seems like it panics. It’s definitely better tho

  • @mandyrose5822

    @mandyrose5822

    3 жыл бұрын

    I got my eyes checked out today because of the side eye shimmer. Doctor said its not a retina tear which I was happy about.

  • @r.r8314

    @r.r8314

    3 жыл бұрын

    @@seanpangs7131 yes, exactly me. I have these weird eye shimmers. Specially in the dark room. But i applied warm teabag and actually really relaxing for your eyes.

  • @r.r8314
    @r.r83143 жыл бұрын

    Hi. Omg you made me feel so much better. I developed vestibular neuritis symptoms a week before Haloween. It was so sudden and for few days was so so severe. Its nearly 4 weeks with this illness. I been admitted twice to the hospital. All my tests were good, ct scan were fine.. all my symptoms, like you mentioned bouncy vision and floating sensation. And horrible anxiety 😔😔😔 so with my own research i definitely know its vestibular neuritis. Because there is no other logical explanation. So yes its nearly back to normal, but yes once my eyes closed i have zero balance and when i am in the bed and roll over feels so weird. Its like sleeping on the cloud.. my eyes feels still jumpy when the room is dark.. so i am waiting for my physiotherapy here in Ireland. Yes and i keep leaning towards my weak side too! Doctors here seems don't really care about vestibular neuritis at all, they prescribed cerc medication and thats all. But many thanks 😊 🙏 but yes mindfulness and positive thinking makes keep me going and appreciate my body and my soul! its amazing what our brain can learn!! But people like you makes our world better!! Yes it can be worst! Life is never easy! So i am so thankful for this illness!! I learned so much about myself! Thanks for sharing it 😊

  • @seanpangs7131

    @seanpangs7131

    3 жыл бұрын

    I’m glad you’re doing much better and I’m glad you’ve narrowed down (with your research) what it could be. I felt the same way. Definitely listen to what your physio recommends but feel free to reach out if you’re not seeing improvement. All the best!

  • @r.r8314

    @r.r8314

    3 жыл бұрын

    @@seanpangs7131 thanks 😊 i am going this Friday to a private clinic, so please God they will be able tk help!

  • @r.r8314

    @r.r8314

    3 жыл бұрын

    So my updates are, i went to the private clinic, so one month later i am feeling a lot better. My physio therapist made a huge difference, got my balance back !! The best feeling to feel the ground again. But yet my vision is still shaky sometimes, however i am doing these eye tracking exercises too. They are brilliant! Again many thanks!!! Looking forward for your new video!

  • @seanpangs7131

    @seanpangs7131

    3 жыл бұрын

    @@r.r8314 hey that’s awesome that you’re feeling better! Stay the course and keep up with the exercises, it’s what helped me. I’ll probably make a new video soon!

  • @berthaemerson9060
    @berthaemerson90603 жыл бұрын

    Why this posted 2 times? I don't know! Sorry!

  • @sathyavijay6828
    @sathyavijay68284 ай бұрын

    Pls help me am suffering vestibular disorder my inner ear got week so often vertigo and imbalance and leading very hard lifestyle and always at home can’t walk almost I reach out all doctors and they keep on send me eply maneuver but not helping much

  • @MindyParker
    @MindyParker Жыл бұрын

    Did you ever experience a falling feeling in your head? Like a quick drop

  • @seanpangs7131

    @seanpangs7131

    Жыл бұрын

    Yes I did, maybe throughout when it was bad.. not anymore tho

  • @anupriyarajak6550
    @anupriyarajak65503 жыл бұрын

    How are uhh now

  • @eanean3831
    @eanean38313 жыл бұрын

    Anxiety and panic attact is the main problem to me im struggle to face it properly that cause my body become weak and increase my heart rate and feel dizzy.

  • @seanpangs7131

    @seanpangs7131

    3 жыл бұрын

    ean ean yeah I battled that for a long time and I feel it makes it worse. Build your confidence and it helps. It’s all a big cycle

  • @naga_says

    @naga_says

    3 жыл бұрын

    Yes. Deep down I believe this is a nervous system disorder and yes anxiety/panic can cause this. I recommend you start praying a lot. God is the only true healer of the mind. Getting over anxiety should be on of the main goals during the battle. I'm planning to make a video about this after I fully recover..

  • @fatmasharky5659
    @fatmasharky56593 жыл бұрын

    Hi Sean, Im a month and a half into this and my head feels heavy specially when i move it up and down or tilt it and then i feel fainty. Did you suffer from that too?

  • @seanpangs7131

    @seanpangs7131

    3 жыл бұрын

    hmm, if it did, it was for a very short stint. It wasn't that stood out to me too big, sorry

  • @fatmasharky5659

    @fatmasharky5659

    2 жыл бұрын

    @@seanpangs7131 thanks Sean, no problem..it has eased off a little this week

  • @annam5057

    @annam5057

    2 жыл бұрын

    Hi Fatima. I had this too. It eased when i stress less and get some sleep. Also the head pressure lessened over time

  • @fatmasharky5659

    @fatmasharky5659

    2 жыл бұрын

    @@annam5057 thank you so much for replying. It does get better yes.

  • @hawaiidispenser
    @hawaiidispenser Жыл бұрын

    Hi Sean, can you gives us another update now in late 2022?

  • @seanpangs7131

    @seanpangs7131

    Жыл бұрын

    Hey, I'm doing very good, just been busy doing normal stuff. Keep staying active, I hope to make a video in 2023.. but overall things are good and Normal on my end

  • @Monicablackard

    @Monicablackard

    Жыл бұрын

    @@seanpangs7131 would love to see an updated video in 2023

  • @sevn8757

    @sevn8757

    Жыл бұрын

    Yeah I'd love to see an update also you were an inspiration to me during the dark days. I'm living normal also now seems like the better I get the longer it takes for the smaller symptoms to go away

  • @robmitc7
    @robmitc73 жыл бұрын

    Do you feel like you are living your life or do you feel like your life is on hold while you recover?

  • @seanpangs7131

    @seanpangs7131

    3 жыл бұрын

    robmitc7 id day the first year my life is on hold.. living life now

  • @seanpangs7131

    @seanpangs7131

    3 жыл бұрын

    Sorry.. id day the first year of my life was on hold for sure, but I’m living my life now

  • @malikfaraz8642
    @malikfaraz86422 жыл бұрын

    Hi sean really would like to know that dis your nystagmus go away by itself?

  • @seanpangs7131

    @seanpangs7131

    2 жыл бұрын

    No I had to do eye exercises, mainly gaze stabilization

  • @malikfaraz8642

    @malikfaraz8642

    2 жыл бұрын

    @@seanpangs7131 ok will do them too. Thanks for the reply.

  • @bharatdixit8883
    @bharatdixit88833 жыл бұрын

    Bro can you share your date of birth time of birth and place. I found few people with same planetary position including me dealing with this. This is actually to search for out of body experiences in birth charts.

  • @marioavila9021

    @marioavila9021

    3 жыл бұрын

    Biharat how so

  • @ariannefew

    @ariannefew

    Жыл бұрын

    Would love to know more about this

  • @MeganRoseanne
    @MeganRoseanne3 жыл бұрын

    Did you have the symptoms of being on a rocking boat

  • @Nawel86

    @Nawel86

    3 жыл бұрын

    I do and its a stuggle especially the lonely feeling with your symptoms that no one seem to understanding not even Dr

  • @marioavila9021

    @marioavila9021

    3 жыл бұрын

    @@Nawel86 are u taking meds

  • @marioavila9021

    @marioavila9021

    3 жыл бұрын

    Megan rosseanne do u still have that

  • @smca7271
    @smca72713 ай бұрын

    Think you are so right,getting a "specialist" to categorise, or locate the exact condition, doesn't really help, working on the symptoms does.