My Vestibular migraine story

Тәжірибелік нұсқаулар және стиль

So you’re probably watching this because you are on a migraine journey. It’s a horrible path but I’m hoping my story will make you realise you are not alone. You will think that ‘this is life now’…it’s not.
Here are those that helped me along the way:
‪@TheDizzyCook‬
And Viking her Facebook: vikingwanderer.com/recovered-...
It’s a never ending journey but together it will be easier.
I filmed this on my iPhone so apologies it’s not the greatest quality
Xx

Пікірлер: 75

  • @dorisisarmy5748
    @dorisisarmy57489 ай бұрын

    Oh my god, you took the words out of my mouth with the “dizziness causes depression, I wasn’t depressed and then got dizzy. Depression DID NOT cause the depression!” I feel like we all have similar origins and trajectories with VM.

  • @gaylanlee6447
    @gaylanlee64476 ай бұрын

    Identify with you. My road started over 3 years (almost 4 years) ago. Understand the depression. My identified triggers: stress, uncontrolled pain, bright light's (indoor lights direct in my field of vision), not enough fluid intake, atmospheric pressure changes. These triggers tend to have a cumulative aspect to them. Once triggered I am in for the ride, ugh😢. I had a rear end car accident that sent me down the rabbit hole. I was debilitated with extreme dizziness, nausea, vomiting, complete sensory overload until I had a neck surgery with C5-C6 fusion. After this medication and identifying triggers has stopped the migraines for the mist part. Where I was before was not conducive to being able to continue living, I was that sick. Thought I was alone, there was no help or end in sight.

  • @vestibularmigrainesupport
    @vestibularmigrainesupport Жыл бұрын

    YES! Suffered for 7 years and too dizzy to sleep so you stare at the ceiling I can relate to 100% And yep time was the biggest healer with me. Ahhhhh hun just saw you listed me so sweet and yes being in groups all the time is not healthy x

  • @kimsanghothi6418

    @kimsanghothi6418

    Жыл бұрын

    Do you have sinus infection inner ear vertigo dizzy

  • @Tad-zh4wr
    @Tad-zh4wr2 ай бұрын

    Vestibular migraines most often torrent come w head pain. Triggers can be weather change, seasonal, hormonal, stress, perimenopause, allergies, foods, etc. some do well w calcium blocker, or sodium blocker etc depending on which ion channels are leaking in your brain.

  • @michelleslifeonrepeat
    @michelleslifeonrepeat2 жыл бұрын

    Six months oh lord girl I am so sorry! What a horrible ride. Mine comes and goes with powerful violence and can not imagine perpetual motion dizziness and bed bound. Did they give you any anti nausea tablets. I dread when I hear those crystals in my ear shift with rolling over, it’s a clue one is coming. I am on multiple meds, Botox treatments and waiting for a nerve ablation in my neck but COvid and lack of hospital beds has cancelled my slot that was this coming week. I hope you are getting on well with meds. Mine last one to two days. Then repeat a few times in a month. You just focus on resting when needed. Our kids remember our love more than our amounts of time we have upright with them. Peace to you.

  • @TalkBoutique

    @TalkBoutique

    2 жыл бұрын

    Thank you for your message. I can’t express how meaningful It is to know I’m not alone and people take the time out to care.I was given anti sickness which was suppose to help with the dizziness but I was told that I couldn’t rely on it as it wouldn’t aid in my recovery. I really want to give Botox a go but it’s not easy unless I go private. It’s deffo something I’m serious about. With regards to covid….agree there. It’s delayed appointments that I’ve needed. Still I have one not to far away and I’ve managed this long haha. Thank you for your kind words xxxx

  • @laurenbaldwin6068

    @laurenbaldwin6068

    2 жыл бұрын

    @@TalkBoutique hey could u help me please

  • @azaadjameel3552
    @azaadjameel3552 Жыл бұрын

    Thanks for this, really useful.

  • @linds-3194
    @linds-31942 жыл бұрын

    This is me currently in the exact same situation, dealing with this for 4 years now with no relief. Everything you have said describes me perfectly. The vertigo has been getting worse, especially since having covid too and I feel like I’m at my wits end. I actually dealt with it better when I first got diagnosed than now, I feel extremely anxious all the time, panic attacks you name it. Im really unsure of what to do. I haven’t tried any beta blockers, anti depressants etc. The only thing I take is migraine medication and I’m still getting headaches. It’s such a debilitating condition to deal with and very isolating 😢 at this point I feel like it’s never going to get better and I’m unsure of what to do next

  • @yendryrojas

    @yendryrojas

    Жыл бұрын

    Hi! How are you ?

  • @traceymcgowan2919
    @traceymcgowan29192 жыл бұрын

    Oh my goodness we are the same person! I've been on the same journey as you and have videos on my channel too! Sending lots of hugs. We have got this x

  • @TalkBoutique

    @TalkBoutique

    2 жыл бұрын

    Hey! I wish I could say I was glad that I’m not going through this alone. I’ll be checking out your videos too. Thanking you for the support! Xxxx

  • @josealmeida2474

    @josealmeida2474

    Жыл бұрын

    I’ve just been diagnosed with vestibular migraine also after suffering For more than 2 years sleep is my biggest struggle, is like everything is wobbly around … how are you feeling now?

  • @hamptidampti9410

    @hamptidampti9410

    Жыл бұрын

    Same story as mine. The only thing that cured the 24/7 Symptoms were the CGRP. Lifesaver definitely

  • @joeyboy2013
    @joeyboy20132 жыл бұрын

    Hi I am in Los Angeles Ca, I was just diagnosed about one week ago it's been a stressful process. mine started july of last year 2022 it came from no where now I find myself having to except my reality everything you said is definitely me on the otherside of the world but your Video has brought inspiration and hope I get on my knees every night asking God for a Miracle this week coming up will be the same journey you took with hearing test and balancing therapy..I v been experiencing iffy Doctors hard to convince them what I'm dealing with..iv come out of the doctor's office crying because I feel know one understand what I'm going through but I'm taking it day by bay..praying for a Miracle that's my story..thank you thank you❤

  • @kimsanghothi6418

    @kimsanghothi6418

    Жыл бұрын

    Do you have sinus infection inner ear vertigo dizzy

  • @sahidortiz2832

    @sahidortiz2832

    4 ай бұрын

    Como sigues?

  • @joeyboy2013

    @joeyboy2013

    4 ай бұрын

    It's February 2024 I'm doing great , wonderful I'm functional. God has answered my prayers 🙏 iv come back to work..iv stop medications ..No more Migraines.. dizziness is very minor nothing like before..iv been able with a lot of my activities..God is good..no more Anxiety.. it's all gone Thank you Jesus..thank you for asking..

  • @sahidortiz2832

    @sahidortiz2832

    4 ай бұрын

    @@joeyboy2013 Oh, that's great. What were you diagnosed with? ppp?

  • @joeyboy2013

    @joeyboy2013

    4 ай бұрын

    I was diagnosed with Vestibular Migraine.. symptoms were Dizziness Chronic Migraine Sensitive to light Brain fog Trimplers in my brain Poor Vision All that went away B12 Vitamins, sweet potato Magnesium.. and Prayer 🙏

  • @rachelfritz8249
    @rachelfritz82492 жыл бұрын

    Thanks for sharing! I hope you do more videos, I have had Vm for a couple years now and man it is tough….although you are so right, it does get better!

  • @TalkBoutique

    @TalkBoutique

    2 жыл бұрын

    I had a slight set back with an ear infection but I’m back on the mend! Something that had me bed bound normally for months this time round I was bed bound for the week but I realise that my recovery from set backs/relapses shortens. I hope that you are doing well and kicking it’s butt!!! X

  • @alicegrant2973

    @alicegrant2973

    2 жыл бұрын

    This gave me some hope! I feel like I am in a nightmare!

  • @christasantoni7121
    @christasantoni7121 Жыл бұрын

    Thanks for sharing your story. You have such an inspiring and courageous way of sharing your story so articulate and generous. It is very uplifting. I hope you continue to do more vlogs on this and other subjects …you’re a natural ! The info and experiences shared on you tube has been the most helpful thing for me in this journey. I’ve had VM for two years now. Started in the first year of Covid. My symptoms are not nearly as debilitating as what you’ve experienced … and tho it’s been very depressing and life limiting to deal with daily spin outs, it’s not constant. I cannot even imagine what you’ve endured…my heart goes out to you. Just a note to people struggling with vertigo symptoms, check out PPPD and Pseudotumor cerebri, (aka IIH). Often, ( as in my case), one of this other causes of vertigo may occur with or after VM Wishing you All every joy and wellness in life…. And the return of symptom free days.

  • @35delois
    @35delois2 жыл бұрын

    I’ve been feeling like this for years I don’t know how I can continue to work like this

  • @TalkBoutique

    @TalkBoutique

    2 жыл бұрын

    I’ve had a good few bouts of time off. It’s so hard to explain to someone who doesn’t understand. I’m hoping you have people around you who could support you? Things will get better!!!!! x

  • @user-eu1ph3cp8j
    @user-eu1ph3cp8j11 ай бұрын

    Thank you for that video I'm exactly the same the dizzy are driving me nuts 🥴

  • @Tad-zh4wr
    @Tad-zh4wr2 ай бұрын

    Vestibular migraines cause motion sensitivities and head sensitivities, so scrolling or reading or watching tv can make one dizzy or get vertigo.

  • @cecilemovilla4656
    @cecilemovilla46562 жыл бұрын

    Hey Girl thank you for the video I am currently suffering from Vestibular Migraine and Vertigo.Its killin me and I feel like its the end of my life.

  • @TalkBoutique

    @TalkBoutique

    Жыл бұрын

    Thank you, I’m hoping that my story helped even if it’s knowing you are not alone. I know it’s probably feeling as if this will be forever but you will find your way. Stay positive and when you feel low…don’t be hard on yourself!

  • @zaibaamirbutt9104

    @zaibaamirbutt9104

    Жыл бұрын

    Don’t feel I was diagnosed this year feb 2022 with having symptoms after a viral upper respiratory infection in July 2021 it was stressful a family meme et was I’ll and died so I was like feeling I was not in this world, not connected but then I started herbal meds and now I can manage my symptoms like I take a seat when it gets too much so don’t worry u will be fine 😊

  • @jerryseinfeld5713
    @jerryseinfeld57132 жыл бұрын

    I have gotten motion sick very easily all my life but it became constant with any movement starting earlier this year. I could not stop dry heaving and feeing awful all day. Over the summer it got a bit better, but now I’m getting extremely dizzy all the time. I feel like I can’t even just lay down in bed comfortably without feeling like I’m dizzy and my head isn’t in the right position. Like you said, I generally love life but this has made me extremely suicidal as quality of life has vanished. UGHHHHHH

  • @TalkBoutique

    @TalkBoutique

    2 жыл бұрын

    Hey, I have also suffered with motion sickness forever, since I was a child. I hope you are feeling better, this condition really does steal your identity and independence. It’s easy for me to say don’t let it win but honestly don’t, I hope you have good doctors working with you! xx

  • @profmj7630
    @profmj7630 Жыл бұрын

    Good video

  • @sophiexo1685
    @sophiexo1685 Жыл бұрын

    Half way through watching this.. I’ve had to pause to write this I’m in a similar situation. I’ve seen numerous doctors, A&e visits & a neurologist. Had a brain MRI scan result was all normal. Doctor done blood test all normal except vitamin D deficient, but I’ve been taking the correct dose since, really not helped a year later. I was told I had chronic migraine aura and was discharged by neurologist. I have been suffering from constant dizziness 247 from December 2021 to present, I have asked If I can see an ENT but the doctor dosent think I need to, it’s so bad the dizziness is really affecting me in every way possible. My doctor thought it was anxiety but now saying BPPV in which I’ve tried every antihistamine possible and done The Epley Manovre so many times. I’m extremely sensitive to light, currently wearing sunglasses indoors on my phone. I’m at my wits end. nothing seems to be shifting this horrible dizzy/faint feeling. Also I get a lot of flashes and floaters in vision, seen optician and they said it’s vitreous gel detaching back of both eyes, which is normal as we age. I believe my symptoms are very similar to you.

  • @vee9133

    @vee9133

    3 ай бұрын

    How are you now?

  • @sophiexo1685

    @sophiexo1685

    3 ай бұрын

    @@vee9133still the same I get pulsatile tinnitus too. Awaiting to see ENT

  • @kimg2022
    @kimg20222 ай бұрын

    Would love to hear how you’re doing now. Any updates?

  • @bkorulu
    @bkorulu2 жыл бұрын

    Did you have any ear symptoms? I have clogged ears and tinnitus and it’s so debilitating 😢

  • @REPORODGE
    @REPORODGE2 жыл бұрын

    Hi can I ask a few questions how old are you and do they give you any benefits for this with my condition they didn’t and I’ve lost so many jobs because of this and tried every med out there many thnx from a male suferer

  • @sowmyab1234
    @sowmyab12342 жыл бұрын

    Hello,glad to hear your story...did you feel off balance when you sit or stand along with dizziness...kindly reply

  • @TalkBoutique

    @TalkBoutique

    2 жыл бұрын

    Hello, I felt off balance all the time!

  • @sowmyab1234

    @sowmyab1234

    2 жыл бұрын

    @@TalkBoutique how did you overcome that please

  • @gvillarreal79
    @gvillarreal79 Жыл бұрын

    Hey it's been a year, how are you doing now with your condition?

  • @sarahcoates8449
    @sarahcoates84492 жыл бұрын

    Hi , I'm nearly 2 years into "dizziness" could I ask you what medications you are on? I'm due into a consultant in October and I will be discussing medications with him. Mine started with a pop in my head or my left ear. I've lost some hearing in my left ear. Some days I'm great, then others I'm sh*t. My anxiety is bad with this whole thing. As when I have episodes I feel faint or weak. Would like to chat with you.

  • @TalkBoutique

    @TalkBoutique

    2 жыл бұрын

    Hi Sarah, thank you for reaching out. I’m on a beta blocker, I was so close to giving up because I thought it wasn’t working but I’m glad I gave it a chance. I’ve had hearing test and I’m told I have some hearing loss to one side ( I do believe this was triggered by ear problems) the anxiety is the worst,it easily makes your symptoms harder to deal with and I’m sure you know that’s the part that really tests us. When I was at my worse I’d cry for days. I’m glad to say that apart from some short periods of dizziness my life is better! Please don’t give up! I’m here always! X

  • @marleelyons625
    @marleelyons6252 жыл бұрын

    How can I get in contact with you. I've had it 3 years

  • @life-mm5do
    @life-mm5do Жыл бұрын

    Vestibular migraine isn't constant symptoms. If you had your ear tested with the vng test then you have vestibular neuritis not vestibular migraine. My doctor misdiagnosed me at first with vestibular migraine until we got the vestibular hypofunction test results back. All of your symptoms are vestibular neuritis symptoms. You need eye stabilization and balance exercises to retrain your brain.

  • @TalkBoutique

    @TalkBoutique

    Жыл бұрын

    Hiya l, thanks for your comment. I have recently had a Eustachian tube op, my doctor believes that this triggered migraines as I had the odd sensation across my forehead. I tried for years the balance training with not much luck however I always kept moving! Every little helps. There are many stories of people suffering with constant symptoms, we’re all different. Hopefully I will be able to share an updated story once time passes. I’ve also had all sorts of tests and they came back normal…frustrating! I often hear this from sufferers being told ‘results are normal’ and it’s in our heads. I guess only time will tell. I’m glad you finally got the correct diagnosis!

  • @life-mm5do

    @life-mm5do

    Жыл бұрын

    @@TalkBoutique The vng test from your ENT doctor would give you your diagnosis. That's how I got mine. He originally said it was vestibular migraine until the ear test showed vestibular hypofunction. Vestibular migraine doesn't show any damage to the inner ear. If you have any damage to the inner ear/ vestibular system, you will have dizziness and balance issues constantly. Many people are misdiagnosed and suffer for years before treated the real problem. Vestibular neuritis is the cause of vestibular hypofunction. Symptoms are vertigo at the beginning, face pressure, ringing, roaring sounds in the ears for hours, balance issues,walk like a drunk, headache, feeling of floating. Most people that have vestibular neuritis have eustachian tube or sinuses issues. Balance training number one exercise is heel to toe walking while turning head and eyes closed without turning head, and walking in a room with eyes closed, marching with eyes open and closed are dynamic exercises. Then you would also need static balance exercises, standing on a foam mat feet together turn head side to side and then up and down,eyes open then closed .Then just stand still eyes closed. Do alot of eyes closed is the key to improve your balance. The eye stabilization exercises/ vor always work as long as you don't go super fast. Just like that video I texted you. If you do the exercises and they help you , then you obviously have the hypofunction if your inner ear/ vestibular system. It doesn't hurt to try,and I hope you get better. Doesn't seem like the medication is helping you.

  • @Tad-zh4wr
    @Tad-zh4wr2 ай бұрын

    Riboflavin 400 mg can take 4 months to work

  • @suryacrush778
    @suryacrush778 Жыл бұрын

    Hi how to contact you?

  • @suzannestevens9696
    @suzannestevens96962 жыл бұрын

    Hi this is me I have been battling this for 3 years I ave been on Amitriptyline and Propanol for the last year I have had every test imaginable and everything is perfect..I am dizzy/boat rocking feeling every day it’s awful..Anxiety is awful..I am on my second round of Botox it’s helping the pain but not the dizziness 🤷‍♀️ any suggestions to help me please? x

  • @TalkBoutique

    @TalkBoutique

    2 жыл бұрын

    I had test too and they all showed normal which is so frustrating. I’m actually having a bout of dizziness currently where I feel rocky. I wonder if looking at your meds may be a solution? Make sure you keep moving around. Please keep fighting it!

  • @Melody-285

    @Melody-285

    Жыл бұрын

    Suzanne - I had one brief bout of vertigo and then about 4 months of varying degrees of dizziness - I was prescribed Xanax and it was like a miracle - in about 20 minutes, I felt normal for the first time in 4 months - I think a lot of mine was due to stress & the Xanax seems to calm everything down - I take a very small amount - only about 1/3 of a mg twice a day - have you tried anything meds like that ?

  • @nooneloveme6119
    @nooneloveme61192 жыл бұрын

    Hi

  • @lakenarneson5925
    @lakenarneson5925 Жыл бұрын

    Please please please let me know!!!! Desperate for help. And I can't message you.

  • @lakenarneson5925
    @lakenarneson5925 Жыл бұрын

    Can you message me? What kind of beta blockers?

  • @rosemarywilliams5389
    @rosemarywilliams5389 Жыл бұрын

    #DrObahistoricalherbs....

  • @laurenbaldwin6068
    @laurenbaldwin60682 жыл бұрын

    Hi could you help me please would that be ok

  • @TalkBoutique

    @TalkBoutique

    2 жыл бұрын

    Hey Lauren I’m here!

  • @TalkBoutique

    @TalkBoutique

    2 жыл бұрын

    Hey, I’m case I’m not reachable here you can message me at kerrytalkboutique@gmail.com Xx

  • @laurenbaldwin6068

    @laurenbaldwin6068

    2 жыл бұрын

    @@TalkBoutique im sooo giving up hun, can i chat with you on Instagram please is that OK

  • @laurenbaldwin6068

    @laurenbaldwin6068

    2 жыл бұрын

    @@TalkBoutique let me no if you got my message please hun im not sure if your getting them, your video wow relates so much could i chat with you on Instagram please im honestly giving up 😢

  • @TalkBoutique

    @TalkBoutique

    2 жыл бұрын

    @@laurenbaldwin6068 hey, so even though I have Instagram I cant log in. You can find me on Twitter? I promise you, it will get better!!! I know it’s words right now and it use to annoy me when people said it BUT it will! Xx

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