I’ve had CES since suffering a traumatic accident in 1982. This dude is spot on with everything he has to say about CES. I was also diagnosed with arachnoiditis in 2014. Both are very rare diseases/conditions so I guess I won the medical diagnosis lottery for rare issues. Lucky me! Despite it all, I’ve managed to have a well lived life, though it’s getting tougher now that I’m in my 60’s.

@greg9069

4 ай бұрын

How do you deal with the pain? I had total nerve compression at L4-5 and doc said it’s permanent nerve damage, sciatica in the legs. The burning becomes unbearable at times. I have morphine, oxycodone and adderall to try to help my quality of life but sometimes it’s just not enough.

@splovelace

4 ай бұрын

@@greg9069 it’s a daily battle. I’ve been in daily pain since I was 20, I’m now 61! I’ve had nearly every pill under the sun and none of them help my pain. Though my pain is constant, it’s an ebb and flow with severity. I have weekly flair ups, like today, where I didn’t sleep at all and I’m going in pure adrenaline. What I’ve come to realize, is that when I was on the medication my pain was worse, because I would go through micro withdrawals between doses. The withdrawals were causing me more pain than my disease. I exercise, as much as I can, ride my bike, lift weights, and walk with my forearm crutches. The endorphins are the best medicine I’ve discovered and it’s all natural. When I’m in my worst pain is when I beat down and just take it! I know from years of experience that my worst pain won’t be at its worst forever. I just have to grin and bear it for as long as it lasts. My method isn’t for everybody, because pain is such a personal subject. The 1-10 pain scale doesn’t apply for one and all. I’m happy to help in anyway I can. Look me up on Instagram @splovelace. I’ve been posting more motivational stuff lately. Would welcome the chance to help you find some relief.

As a person who had surgery for Cauda Equina Syndrome in 2017 I am finding this fascinating (and I’m only about 15min in)

This is great!!! 👌 Such simple explanations. Thank you

Wonderful to learn the language. Thank you! We have worked to create models to help professionals communicate the language of these terms.

thank u

I had CES surgery September 2022. I've gotten all the feeling back in my right foot and leg and my left foot has gotten a lot better but still have some numb spots. The back of my left leg is still numb but I'm getting feeling back in certain areas. My saddle area has gotten all its feeling back but my butt area is still has no feeling. Still pretty numb in the genital area but it's coming back. When my Dr. Said it could be a few years, I see that he's correct.

Can sciatica turn into cauda equina? Or they affect different parts of the disk?

@Footballwithbikku

Ай бұрын

more like bladder part

Hi, great video, I'm from the northeast of England too! I had Cauda equina June 2022, I was left after a positive MRI revealed it, they failed to send me anywhere and my positive results left on a pile. I eventually had to call an ambulance as I became incontinent. I had the surgery urgently, then 2 weeks later it happened again. It was my S1 L5 but my discs L4 and L3 have prolapsed too. The second surgery was much worse. The nerve pain for me now is especially in my hips, knees and I have awful burning thighs. Buzzing in my left foot constantly, numbness in my right foot and still have numbness in my saddle area. I only had two physio sessions then they discharged me 😢 What I want to ask and what is the most annoying symptom currently is the muscle fasciculations that started march last year and haven't left me, they are 24/7, much worse in my right leg (the leg that has been most effected from cauda equina) I'm getting them all over my body and only started after the surgery. I also get bigger body jerks too along with severe cramps. I've had no doctor explain to me why I'm getting these fasciculations and what is causing it. It definitely feels nerve related. I don't get any break from it now, as I'm typing this my muscles are twitching 😞

@abhinavheya6289

2 ай бұрын

I hope God heals your pain, can I ask you if you are able to walk and have a normal bladder function post op?