The Importance of SMA Newborn Screening

www.curesma.org

Пікірлер: 6

  • @awaitingaugust1681
    @awaitingaugust16815 жыл бұрын

    This is amazing. Why is this not a Superbowl commercial?!

  • @ngolwenanyangwe9314
    @ngolwenanyangwe93143 жыл бұрын

    Please help me my baby is 9 months has sma 1 he is using feeding tube now . There’s no treatment in our country.

  • @jeannieves6275
    @jeannieves627510 ай бұрын

    🙏🏽

  • @janmac218
    @janmac218 Жыл бұрын

    What happens to children born with SMA whose parents are poor and have no health coverage. The drug for this costs two million $$$$. What do they do?

  • @petergriffiinbirdistheword

    @petergriffiinbirdistheword

    7 ай бұрын

    Probably depends on where you live but in my state they'd be cared for.

  • @petergriffiinbirdistheword

    @petergriffiinbirdistheword

    7 ай бұрын

    Also, parents who cannot afford much are usually on Medicaid - which would cover care. As long as the parents are proactive and take advantage of these things, it wouldn't be an issue. If not, they'd just get a huge bill in the mail every month.

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