Living with SMA: The Next Step Forward
Alexandria has type-1 spinal muscular atrophy (SMA), a rare neuromuscular disease that is often fatal. Last year, as her family prepared to say goodbye, a new life-saving drug gave Alexandria a second chance at life. While the drug stopped the progression of her SMA, she continues to face many challenges. Still unable to breath, swallow or stand on her own, Alexandria’s family is now hoping the next scientific breakthrough will bring them a step closer to a cure. #all4your1
Learn more: www.luriechildrens.org
Пікірлер: 18
Beautiful girl. My Robbie (SMA type 1) just turned 3.
Beautiful girl. You are amazing parents ❤ xx
God... SHE IS GORGEOUS!!!
Aww. she is adorable
This amazing little girl 💛💛💛
ALLAH YAR VE YARDIMCINIZ OLSUN
My youngest granddaughter has SMA
Aww i love her 🌝🌝🎉🎊🎊
God helps to children with SMA
There’s something newer than Spinraza now.
I preyar four u
🙏🙏🙏🙏🙏🙏🙏🙏🙏💖
beautiful girl💞
Gene therapy for sma
Plz help, my cousin's kid is not being offered Spinraza although it's available in their country, 6months old boy diagnosed as SMA 1. He had tracheostomy done 2days back.
Life's not fair!! Poor innocent children getting sick when u got scummy ppl who deal drugs steal who are thugs etc
I am Quran tichar