"We've had some scary moments with the trach." • SMA Type 1, Trach, med...
The mom of a 12-year old boy with SMA1 explains why they have a DNR for him and also shares some of her more extreme moments (and her coping) with her son's trach. If your child has SMA 1 or another pediatric life threatening illness, this mom shares her perspective which may help you find your way. Visit www.courageousparentsnetwork.org for more videos.