Struggling with fatigue due to axial spondyloarthritis? Learn our top tips to manage
Fatigue is a common symptom of axial spondyloarthritis and it can really impact every aspect of your life. There are some techniques that can help you manage your energy levels and cope with the emotional impact of chronic fatigue.
We're interested to know, do naps help your axial SpA fatigue or make you feel more groggy? Let us know in the comments 👇
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00:00 Introduction
01:28 What is fatigue and what can cause it?
03:09 When should you speak to your rheumatologist, GP or pharmacist?
05:41 Pacing to help manage fatigue
14:26 Speaking to friends and family about your axial SpA
16:39 The Spoon Theory - explaining fatigue to others
19:55 Top tips for managing your time
23:38 Exercise and nutrition for fatigue
29:19 Q&A
We are the National Axial Spondyloarthritis Society (NASS) and we are here to transform the diagnosis and care of people living with axial SpA.
Axial SpA works silently. We don’t.
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This video was originally recorded live on / nationalaxialspondyloa... on 3 June 2020
#MyASMyLife #LivingWithAxialSpondyloarthritis #AnkylosingSpondylitisExercises #Fatigue #ChronicFatigue
Пікірлер: 6
I feel I don't get enough support from my rheumatology consultant.
@NASSCentral
4 жыл бұрын
Sorry to heat that Lucy. Do call us on the Helpline on 020 8741 1515 is there's something in particular we can help with. And don't forget we have a lot of content on our website to help you manage your condition nass.co.uk/managing-my-as/my-as-my-life/ -Jenny
Hi. I've got my first rheumatology referral coming up in 2 weeks for axial spondyloarthritis. I'm very early on in understanding this condition (in fact I haven't even been formally diagnosed yet!). My GP seems confident that it is AxSpa. I've had the lower back pain around the sacroiliac joints for over a year now, but in recent months I've been having what I'm assuming are flare ups? Insane fatigue, feeling like I'm getting a bad cold, back feels worse than usual, itchy eyes....weird other aches in my knees and feet. Does that sound familiar to anyone?
@NASSCentral
25 күн бұрын
Hi, this does sound similar to axial SpA, so it's good you have a rheumatology appointment to get things assessed. We have some information about what happens at a rheumatology appointment and how to prepare here: www.actonaxialspa.com/category/rheumatology-and-diagnosis/ I hope it's helpful and please do get in touch with our Helpline if you'd like to chat through with anyone: nass.co.uk/contact-us/ ~Zoë
I cannot get through a day without being extremely exhausted
@NASSCentral
2 жыл бұрын
Sorry to hear that. I hope some of the advice shared was helpful. We also have a guide to fatigue: nass.co.uk/resource/nass-guide-to-fatigue/ ~Zoë