thank you for this, I'm learning about stroke at the moment for my access to healthcare course, and seeing this from a stroke warriors point of view makes the world of difference. Beautiful narrative
@deborah_attorney5 жыл бұрын
Thank you very much for doing this video. I too have PBA and your narrative is very clear so I think that is extremely helpful. :)
@asunameow8221
4 жыл бұрын
Deborah O'Brien I have it too
@SERABIINFO5 жыл бұрын
I hope you very healthy
@coiledironyfilms-denniseva6346 жыл бұрын
Thank you very much for discussing this. I've had this issue with me for several months but thought it was a hyperemotional state due to age. I have possibly had a stroke or mini-strokes without knowing it. I won't get into it much here, but this gives me a clue to some health problems. Again, thank you.
@strokewarrior5762
6 жыл бұрын
Your welcome. I agree, it can be very hard to understand, and it really makes me socially uncomfortable. I'm working on some things that seem to be helping. I'll update when I know more.
@msinthe11thpercentile83
5 жыл бұрын
@@strokewarrior5762 I take Nuedexta, and it has changed my life totally and helped alleviate the humiliation factor. I hope you can give it a try (or have by now). Thanks for making this. My video about my experience is called "What the heck is Pseudobulbar Affect?" You and I know... it's no fun at all.
@drfix20204 жыл бұрын
Thank you for posting! I too have it too, Tho for me my PBA happens when I talk about something that's very emotional like the death of my mom, dad or my 2 brothers. I had my stroke 6 months ago & had 2 episodes of it, one about 8 days after my stroke and one five and a half months after I had a stroke. I'm glad I'm not the only one! My therapist suggested using dextromethorphan that's like nuedexta but without quinidine, so I heard... I'll update my results if anyone's interested.
@realfixesrealfast
4 жыл бұрын
I'm now at 2.7 years post stroke. For me it is still triggered by anything emotional. I did not want to do the medication. I was afraid it would only mask the issue and not help my recovery. What I have found that helps is deep breathing when I feel it coming on. It does n to eliminate it, but it sure helps me keep in under control. If you want more info, let me know.
@drfix2020
4 жыл бұрын
@@realfixesrealfast Thank you for your reply & tips! I found it informative. I'll keep you updated on my progress & anything I hear that might be of use to you.
@drfix20204 жыл бұрын
Hi, I thought of reaching out to you again after taking a cough suppressant (Dextromethorphan polistirex) - extended release oral suppressant) my symptoms have seem to have diminished 95% sure! For me I'm almost 9 months into my recovery. Try it hope it works for you!
@realfixesrealfast
4 жыл бұрын
Thanks for the info, I'll look into it
@drfix2020
4 жыл бұрын
@@realfixesrealfast My Dr. suggested it to me. Nuedexta has the same ingredient but with quinidine added to it but cost $700 for a months supply because the company that makes it has the patent on it. Didn't want to spend that much so I tried a small bottle of cough syrup, mind you it wasn't fully effective immediately but took about a month or so...? As with any medication though there are interactions with other medications as you know, good luck and let me know.
@wysetech20006 жыл бұрын
I hope you experience the joy from laughing at least.
@fzybny12
5 жыл бұрын
no, he didnt explain that there is no joy involved...sometimes it turns into crying with no sadness involved
@msinthe11thpercentile83
5 жыл бұрын
The laughter is very distressing, actually. Completely the opposite of joyful laughing. It causes huge disruption and makes others extremely uncomfortable. I have PBA due to MS. His explanation of what it's like is spot on. It might cause laughing, but not a bit of joy.
Пікірлер: 16
thank you for this, I'm learning about stroke at the moment for my access to healthcare course, and seeing this from a stroke warriors point of view makes the world of difference. Beautiful narrative
Thank you very much for doing this video. I too have PBA and your narrative is very clear so I think that is extremely helpful. :)
@asunameow8221
4 жыл бұрын
Deborah O'Brien I have it too
I hope you very healthy
Thank you very much for discussing this. I've had this issue with me for several months but thought it was a hyperemotional state due to age. I have possibly had a stroke or mini-strokes without knowing it. I won't get into it much here, but this gives me a clue to some health problems. Again, thank you.
@strokewarrior5762
6 жыл бұрын
Your welcome. I agree, it can be very hard to understand, and it really makes me socially uncomfortable. I'm working on some things that seem to be helping. I'll update when I know more.
@msinthe11thpercentile83
5 жыл бұрын
@@strokewarrior5762 I take Nuedexta, and it has changed my life totally and helped alleviate the humiliation factor. I hope you can give it a try (or have by now). Thanks for making this. My video about my experience is called "What the heck is Pseudobulbar Affect?" You and I know... it's no fun at all.
Thank you for posting! I too have it too, Tho for me my PBA happens when I talk about something that's very emotional like the death of my mom, dad or my 2 brothers. I had my stroke 6 months ago & had 2 episodes of it, one about 8 days after my stroke and one five and a half months after I had a stroke. I'm glad I'm not the only one! My therapist suggested using dextromethorphan that's like nuedexta but without quinidine, so I heard... I'll update my results if anyone's interested.
@realfixesrealfast
4 жыл бұрын
I'm now at 2.7 years post stroke. For me it is still triggered by anything emotional. I did not want to do the medication. I was afraid it would only mask the issue and not help my recovery. What I have found that helps is deep breathing when I feel it coming on. It does n to eliminate it, but it sure helps me keep in under control. If you want more info, let me know.
@drfix2020
4 жыл бұрын
@@realfixesrealfast Thank you for your reply & tips! I found it informative. I'll keep you updated on my progress & anything I hear that might be of use to you.
Hi, I thought of reaching out to you again after taking a cough suppressant (Dextromethorphan polistirex) - extended release oral suppressant) my symptoms have seem to have diminished 95% sure! For me I'm almost 9 months into my recovery. Try it hope it works for you!
@realfixesrealfast
4 жыл бұрын
Thanks for the info, I'll look into it
@drfix2020
4 жыл бұрын
@@realfixesrealfast My Dr. suggested it to me. Nuedexta has the same ingredient but with quinidine added to it but cost $700 for a months supply because the company that makes it has the patent on it. Didn't want to spend that much so I tried a small bottle of cough syrup, mind you it wasn't fully effective immediately but took about a month or so...? As with any medication though there are interactions with other medications as you know, good luck and let me know.
I hope you experience the joy from laughing at least.
@fzybny12
5 жыл бұрын
no, he didnt explain that there is no joy involved...sometimes it turns into crying with no sadness involved
@msinthe11thpercentile83
5 жыл бұрын
The laughter is very distressing, actually. Completely the opposite of joyful laughing. It causes huge disruption and makes others extremely uncomfortable. I have PBA due to MS. His explanation of what it's like is spot on. It might cause laughing, but not a bit of joy.