Quick Tip for Medical and Special Needs Parents: Navigating Emotions in the Doctor's Office
Hey My Fellow Medical & Special Needs Parents, I want to share a tip that I have used for years with you all. We know that being in the medical space can bring a whirlwind of emotions our way, especially during those doctor appointments where new diagnoses or health concerns arise.
It's crucial to acknowledge that decisions made in the heat of emotion may not always be the most effective or informed. That's why I'm here to suggest a simple yet powerful approach: After receiving new information from the doctor, take a moment to pause and process it all.
Let the doctor know that you'd appreciate some time to digest the information, seek out additional knowledge, and compile a list of questions. Then, schedule a follow-up appointment in a few days to revisit the discussion when emotions are not as high.
By allowing ourselves the space to process and gather information, we empower ourselves to advocate more effectively for our loved ones. It's about finding the balance between our emotions and factual understanding to make the best decisions possible.
So, give it a try and see if it resonates with you. Remember, this tip may not be suitable for emergencies, but for all other situations, it could make a world of difference in navigating the complexities of medical and special needs parenting.
*Important:* These strategies are not intended for use in emergency or 911 situations where immediate decisions are required. In such cases, please follow emergency protocols and seek urgent medical attention
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Disclaimer:
The information provided in this content is for educational and informational purposes only. It is not intended as, nor should it be construed as, medical advice or a substitute for professional consultation with healthcare providers. Always seek the advice of your physician or other qualified healthcare provider with any questions you may have regarding a medical condition. The tips and strategies mentioned are meant as starting points and may not be applicable to every individual situation. Your reliance on any of information provided here is solely at your own risk.
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Complex medical conditions, what does that mean exactly? My son is Autistic and now I believe he might be having symptoms of my Rare genetic disorder of Ehlers Danlos Syndrome. 😢 Problem is I over extended myself for over 20 years now and completely can't function now. Struggling and afraid
@TheOnAirAdvocate
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Thank you for reaching out and sharing your concerns. Complex medical conditions refer to health issues that require specialized, multifaceted, and often long-term care due to their intricate nature. Examples include conditions like Ehlers-Danlos syndrome (EDS), which can involve various body systems and require coordinated care from multiple healthcare providers. Given your concerns about your son's symptoms, I strongly recommend discussing this with your primary care physician. They can guide you on the next steps and, if necessary, refer you to a specialist, such as a genetics doctor, who can provide more specific insights and potential diagnostic tests for EDS. For more information and support, you may find these resources helpful: - **The Ehlers-Danlos Society:** [Ehlers-Danlos Society](www.ehlers-danlos.com) - **Genetic and Rare Diseases Information Center (GARD):** [GARD](rarediseases.info.nih.gov) - **National Organization for Rare Disorders (NORD):** [NORD](rarediseases.org) Please note that my advice is based on general information and should not replace professional medical consultation. I wish you and your son the best on this journey, and I hope you find the support and answers you need. 🫶🏼