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• 
  @megansedillo867114 күн бұрын

  I love this video so much 😊❤ I think I watched it at least 5 times and it is just so uplifting to me 🎉 thank you for such a beautiful message ❤❤❤😊😊

• 
  @TheOnAirAdvocate12 күн бұрын

  You’re so welcome 🫶🏼 Thank you for watching & your kind words. Truly appreciated 🤍

• 
  @aleksandrakettner905Ай бұрын

  💕

• 
  @TheOnAirAdvocate28 күн бұрын

  Thanks for watching 🫶🏼

• 
  @user-ob6ml4is2lАй бұрын

  I LOVE WHAT YOU ARE SAYING

• 
  @user-ob6ml4is2lАй бұрын

  I'm not doing well . I've failed due to my illness not getting diagnosed ,took me 15 years to diagnose it and then get Rare Gentic Disorder confirmed by Genetics.

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  @user-ob6ml4is2lАй бұрын

  Complex medical conditions, what does that mean exactly? My son is Autistic and now I believe he might be having symptoms of my Rare genetic disorder of Ehlers Danlos Syndrome. 😢 Problem is I over extended myself for over 20 years now and completely can't function now. Struggling and afraid

• 
  @TheOnAirAdvocateАй бұрын

  Thank you for reaching out and sharing your concerns. Complex medical conditions refer to health issues that require specialized, multifaceted, and often long-term care due to their intricate nature. Examples include conditions like Ehlers-Danlos syndrome (EDS), which can involve various body systems and require coordinated care from multiple healthcare providers. Given your concerns about your son's symptoms, I strongly recommend discussing this with your primary care physician. They can guide you on the next steps and, if necessary, refer you to a specialist, such as a genetics doctor, who can provide more specific insights and potential diagnostic tests for EDS. For more information and support, you may find these resources helpful: - **The Ehlers-Danlos Society:** [Ehlers-Danlos Society](www.ehlers-danlos.com) - **Genetic and Rare Diseases Information Center (GARD):** [GARD](rarediseases.info.nih.gov) - **National Organization for Rare Disorders (NORD):** [NORD](rarediseases.org) Please note that my advice is based on general information and should not replace professional medical consultation. I wish you and your son the best on this journey, and I hope you find the support and answers you need. 🫶🏼

• 
  @user-ob6ml4is2lАй бұрын

  I hope to find you and follow . I'm having medical difficulties and pray 🙏 I'll find you again.

• 
  @TheOnAirAdvocateАй бұрын

  Thank you for sharing and watching 🫶🏼 You can find me on all platforms at The On-Air Advocate!

• 
  @aleksandrakettner905Ай бұрын

  💌

• 
  @TheOnAirAdvocateАй бұрын

  Thank you for watching 🫶🏼

• 
  @aleksandrakettner905Ай бұрын

  Amen

• 
  @TheOnAirAdvocateАй бұрын

  Thanks for watching 🫶🏼

• 
  @WendyH-im7fzАй бұрын

  👍

• 
  @TheOnAirAdvocateАй бұрын

  🫶🏼

• 
  @WendyH-im7fzАй бұрын

  ❤

• 
  @TheOnAirAdvocateАй бұрын

  Thanks for watching 🫶🏼

• 
  @WendyH-im7fzАй бұрын

  Super important!! I was lucky to find my melanoma at a full body check appointment very early. Get checked!!!

• 
  @TheOnAirAdvocateАй бұрын

  Thanks for watching and sharing your story 🫶🏼

• 
  @WendyH-im7fzАй бұрын

  This is really helpful info!

• 
  @TheOnAirAdvocateАй бұрын

  Glad it was helpful! Thanks for watching 🫶🏼

• 
  @WendyH-im7fzАй бұрын

  Thanks for the step by step process!!

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  @TheOnAirAdvocateАй бұрын

  Glad it was helpful 🫶🏼

• 
  @Pixologie2 ай бұрын

  Go get checked!!!❤

• 
  @TheOnAirAdvocate2 ай бұрын

  YESSSS!!!!

• 
  @mariasalvo89612 ай бұрын

  Thank you so much! Always good to know!

• 
  @TheOnAirAdvocate2 ай бұрын

  Glad it could be helpful 🫶🏼 Thanks for being a part of our community.

• 
  @joyfilledbiscuit2 ай бұрын

  Appreciate this!!! Good to have reference words for it I know a woman who was constantly mistreated when her infant was in the hospital, and she said it like it was a basic inconvenience 😭 literally all of us told her that it was a reportable offence but i didn't know ehat process i could recommend for her

• 
  @TheOnAirAdvocate2 ай бұрын

  So glad this information could be helpful. I also did a few other videos on this topic. I am making a patient advocate playlist to make them all easy and accessible to find. Thank you for sharing and being a part of this community 🫶🏼

• 
  @antoniotiberi15692 ай бұрын

  Exactly

• 
  @empresswb6412 ай бұрын

  What if the problem is the care manager in patient relations?

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  @TheOnAirAdvocate2 ай бұрын

  In a hospital setting, the hierarchy above a Patient Relations Manager typically includes positions such as: 1. Director of Patient Experience or Patient Relations: This individual oversees the patient relations department and may manage multiple patient relations managers. 2. Vice President of Patient Experience or Chief Patient Experience Officer: This is a senior leadership position responsible for developing and implementing strategies to enhance patient satisfaction, engagement, and overall experience across the hospital or healthcare system. 3. Chief Operations Officer (COO) or Chief Executive Officer (CEO): These top-level executives have ultimate responsibility for the hospital's overall operations, including patient relations, and they may provide oversight and guidance to the patient relations department indirectly through other senior leaders. If that is not successful, you can reach out to a Hospital Administrator. Hospital administrators play a crucial role in managing the overall operations and strategic direction of a hospital or healthcare facility. Their responsibilities include overseeing financial management, personnel management, facility operations, regulatory compliance, strategic planning, and ensuring high-quality patient care. They often collaborate with medical staff, department heads, and other healthcare professionals to optimize efficiency and effectiveness in delivering healthcare services. You can typically find out who the hospital administrator is by contacting the hospital directly. You can call the main hospital number and ask to speak with someone in administration or inquire at the hospital's front desk. They should be able to provide you with the name and contact information of the hospital administrator or someone who can assist you further. The same goes for Patient Relations. Additionally, you may be able to find their number and information on the hospital website in the directory. Hope this helps!

• 
  @Johnrider12342 ай бұрын

  We were abused badly at Sudbury hospital

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  @TheOnAirAdvocate2 ай бұрын

  Thank you for sharing and being a part of this community. I so sorry to hear that something like this has happened to you or your loved one. Are there steps you have already taken in reporting the incident?

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  @WendyH-im7fz2 ай бұрын

  This is really helpful! Thank you!

• 
  @TheOnAirAdvocate2 ай бұрын

  You're so welcome! Glad it was helpful 🫶🏼

• 
  @matthewmason12413 ай бұрын

  how does the heat work

• 
  @TheOnAirAdvocate3 ай бұрын

  The heat is just on/off with only one heat setting. It gets warm not hot when on. Hope this helps. :)

• 
  @estanblue19803 ай бұрын

  Unfortunately, I’m both sides my mom side and my stepdad side you’re not allowed to speak of it go near it or it’s a lawsuit no joke, lawyer in the family will take you out in a heartbeat if you even say their name, it’s very unfortunate but I can speak a whole lot about it without saying their name, and they’re mental health and my mental health, and every other person in my family‘s mental healthit’s easy Peezy to get away with but still such a personal issue. It really is hard to talk about mental health when there’s not a lot of understanding when you grow up with people who have that and don’t even know it.

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  @TheOnAirAdvocate3 ай бұрын

  Thank you so much for sharing. That definitely seems like it would be difficult. I truly hope the more open discussions we have about family general health and mental health history over time and generations things will change. Thanks again for sharing and being a part of this community 🫶🏼

• 
  @kimwieczorek18794 ай бұрын

  How big is it? I have 1 too

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  @TheOnAirAdvocate4 ай бұрын

  Hi Kim, Thank you so much for sharing and being a part of this community. My son’s thyroid nodule has been steadily growing over the last year we are just about to 3.5cm. Judging by the growth we have seen over the last year and a half we would estimate that we will be over or reach 4cm in about another year. As I stated in one of the videos, our doctor has shared that if the placement of the thyroid nodule is not obstructing the airway or area around it you have more flexibility on when you actually move forward with any action. How large is your nodule?

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  @Lyca-qn1zf3 ай бұрын

  hello i have .50 thyroid nodule is it dangerous ? and also if you have thyroid nodule is it not ok to eat spicy food? hope you notice my me..thanks​@TheOnAirAdvocate

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  @mariasalvo89614 ай бұрын

  Hi friend! Nice! I might check them out! Thanks 😊

• 
  @TheOnAirAdvocate4 ай бұрын

  Glad you found it helpful 🙂

• 
  @stafftrainingvideos4 ай бұрын

  Fantastic idea for orthotics!

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  @TheOnAirAdvocate4 ай бұрын

  Thank you glad it could be helpful 🫶🏼

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  @mariasalvo89615 ай бұрын

  Hi Friend ❤

• 
  @TheOnAirAdvocate5 ай бұрын

  Goodmorning Friend !!! Thanks for visiting 🫶🏼

• 
  @mariasalvo89615 ай бұрын

  Hi Friend!❤

• 
  @TheOnAirAdvocate5 ай бұрын

  Good morning! ☀️

• 
  @mariasalvo89615 ай бұрын

  I love ❤️ this bag! Great idea!

• 
  @TheOnAirAdvocate5 ай бұрын

  Thank you! 😊

• 
  @mudmodular5 ай бұрын

  Such a great message. So true.

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  @TheOnAirAdvocate5 ай бұрын

  Thanks for watching 🫶🏼

• 
  @isabellediaz53355 ай бұрын

  Hi friend ❤

• 
  @TheOnAirAdvocate5 ай бұрын

  Hey Friend 🥰 Thanks for watching ❤️

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  @mariasalvo89615 ай бұрын

  Hi Friend ❤

• 
  @TheOnAirAdvocate5 ай бұрын

  Hey Friend 🫶🏼 Thanks for watching ❤️

• 
  @mariasalvo89615 ай бұрын

  Hi Friend ❤

• 
  @TheOnAirAdvocate5 ай бұрын

  Hey Friend 🥰 Thanks for being a part of our community 🫶🏼

• 
  @elexiyacloward94286 ай бұрын

  What if its a 4cm calsification ?

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  @TheOnAirAdvocate6 ай бұрын

  I would definitely would reach out to your endocrinologist for guidance. Additionally, I always encourage people to seek out a second opinion if they feel that their concerns are not being heard. Hope you get some answers. 🫶🏼

• 
  @elexiyacloward94286 ай бұрын

  @TheOnAirAdvocate thanks I'll be there next Tuesday.

• 
  @Giftig--Daniel-P7 ай бұрын

  My daughter was just diagnosed with this syndrome a week ago. My wife and I have been scrambling to learn more. The more we know, the harder it is. But we're so thankful for you and what you have here, and for the foundation. We were able to get into a pediatric cardiologist a couple days after diagnosis and he was amazing, spent an hour with us. Did an EKG and an echocardiogram in room with us and showed us everything about our daughter's heart (she is 20 months). Her mitral valve is prolapsing because of the syndrome, but it's mild for now. He will meet with us annually. Our son had eye surgery a couple years ago and his doctor is also familiar with Marfan's, so we will work with her when we can get in to see her. And we're just taking everything else one step at a time. But it is just a ton to take in. Luckily for us she is an extremely chill toddler. She's almost never upset, has never been a screamer. We think God really blessed us with her because He knew she would have this trial and her not being uptight or whatever... just seems like the blood pressure will be less of an issue. It's still so hard to know our baby girl is going through this (she has two older brothers who adore her, ages 4 and 5). Sorry for getting so personal. Really appreciate your podcast right now (we watched the Teen Perspective one first and will watch your others on Marfan's).

• 
  @dmgsoultogetherness66678 ай бұрын

  great interview

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  @Tyshwan9 ай бұрын

  Thank you for sharing this; much appreciated.

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  @Tyshwan10 ай бұрын

  Thank you for this video! 🙏🏼

• 
  @nononouh Жыл бұрын

  12 26 30

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  @ABCDEFGH-qo9st Жыл бұрын

  The words scan me faded and writing on it removed after a while.

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  @lindamckay3878 Жыл бұрын

  If diet isn't important or inconsequential to controlling Type One Diabetes, then why is this mother so insistent on protecting her child from eating too many sweets. Her dtr has to have the correct amount of insulin if sweets are given at school. Obviously diet is a factor. Is the medical profession confusing the word "diet" to indicate obesity vs. the word "diet" to indicate "what you eat"; whether it be healthy or not healthy.

• 
  @TheHuiwen Жыл бұрын

  Is this the pro 5th or 4th generation?

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  @TheOnAirAdvocate Жыл бұрын

  It says G4 on the SKU so I am assuming the 4th generation. We purchased it in July of 2022. :)

• 
  @heatherlovesdeuteronomy Жыл бұрын

  I specifically looked for an organization video for medical supplies, I'm an ex EMT and my husband is an Ex army medic so we have tons of medical emergency supplies. Looks fabulous!

• 
  @TheOnAirAdvocate Жыл бұрын

  Thanks so much! For some of our larger medical items/equipment I found the brightroom plastic stackable bins at Target work pretty well. They fit great in a linen closet (size 12inLx12inWx8inH). Haven't done a video on these yet but just thought I would share incase you have some larger items :)

• 
  @writingself-publishingwith7639 Жыл бұрын

  Thanks everyone for tuning in! If 5 Reasons to Write speaks to you, check out 7 Key Steps to Get You Started!, a workbook that will help you move forward with your writing. Essentially, if you can complete these seven simple steps, you have what it takes to be a writer and author. It can be found on my website at www.cindyfolkauthor.com/7-key-steps

• 
  @honeyhireme-smiler84852 жыл бұрын

  Thank you for this valuable information

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  @TheOnAirAdvocate2 жыл бұрын

  Glad it was helpful! Thanks so much for watching

• 
  @debbier68472 жыл бұрын

  Thank you for promoting education and information on this disease.

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  @TheOnAirAdvocate2 жыл бұрын

  Thanks so much for watching and supporting our educational platform.

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  @andrewmacfie93282 жыл бұрын

  HI. THIS IS FOR ALL FEMALES WITH BIG BABIES!! WE DON'T NEED ADULT DIAPER CHANGING TABLES!! MY MOM/GIRLFRIEND/BABYSITTER ETC. CHANGES ME EVERYPLACE YOU CHANGE A BABY!! DIRTYBABY

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  @andrewmacfie93282 жыл бұрын

  HI. THIS IS FOR ALL FEMALES WITH BIG BABIES!! WE DON'T NEED ADULT DIAPER CHANGING TABLES!! MY MOM/GIRLFRIEND/BABYSITTER ETC. CHANGES ME EVERYPLACE YOU CHANGE A BABY!! DIRTYBABY

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  @MarisolHernandez-lq6mg2 жыл бұрын

  I’m 24 years old and have PCD

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  @lucaswellington29463 жыл бұрын

  Herbal medicine is 100% guarantee of meningitis cure, the reason why most patient are finding it difficult to cure meningitis is because they believe on medical report, drugs and medical treatment which is not helpful to cure meningitis. Natural Roots & herbs are the best remedies which can easily eradicate meningitis so herbal medicine is the best remedies for it. I was once a patient of meningitis now I give thanks to spiritual doctor. Contact Doctor Oje on KZread channel is there for you..

• 
  @projectlightitup3 жыл бұрын

  Josie! Thank you so much for sharing your story, I absolutely love this.

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  @TheOnAirAdvocate2 жыл бұрын

  Glad you enjoyed it!