Cassie Smith, a Kentucky native, is a registered nurse and mom to three young children. She was first diagnosed with Alport syndrome in late childhood. Two of her three children were diagnosed in early 2019. Both her professional and personal experiences make her passionate about patient advocacy. Cassie recently accepted the opportunity to Co-Chair the newly established Emerging Leadership Council for Alport Syndrome Foundation. In this role, she is volunteering with others to better address the unique needs of Alport patients in the 25-35-year-old age range.
Listen in as Cassie shares her journey of rare disease from the perspective of a patient, parent, and nurse.
Best Ways to Connect with The On-Air Advocate:
Free Resources: www.onairadvocate.com/resourc...
Send me a message: www.onairadvocate.com/contact
Instagram: / theonairadv. .
KZread: / theonairadvocate
Join the OAA Facebook community: bit.ly/oaacommunity
Check out our books:
Transitioning from a Pediatrician to an Adult Physician: amzn.to/3OFtJM0 &
The Essential Travel Guide for Parents of Children with Special Needs: bit.ly/3YY35nz
#alport #alportsyndromefoundation