It was nice to hear your story Shamsa, thanks for sharing it with us. You certainly do not fit the stereotype which people associate with Parkinson's, and I think that will challenge preconceptions when they hear your story...which is a good thing! Best wishes to you and your family.

I have just watched all your videos Shamsa. What a delight you are! Even with Parkinson's. I was diagnosed 11 years ago at the age of 58. I am 69 in March. Many of the things you said struck a chord with me. Like you I wait for those drugs to kick in and when they do, and I know I can function reasonably well then I like to get on and do things. I don't do many 'passive' things any more like watching TV, or reading but I have posted a few videos on topics I am passionate about - Maths(I used to be a Maths teacher) , I am real 'geek' when it comes to geometrical modelling. I do lots of physical activities and like you I try to be as positive as possible. I also know that there are many difficult periods as well but I try to fend off any 'self-pity' (not always successfully.) It did my heart good to see your lovely smile and your indomitable spirit. I wish you well and thank you for posting these videos. Cheers. Tom Heyes.

@shamsashares6793

4 жыл бұрын

Thank you for your message and kind words Tom.I pray you're in the best of health at the moment.... despite the Parkinson's. Xx

@Robloxeli

Жыл бұрын

They say it effects super smart people the most. My husband for one

It’s so sad to see your partner change and it’s so hard to deal with. I love my husband and I miss who he was. He isn’t able to help with anything much anymore and the load is on me completely. It’s hard and it makes me angry at the disease. I hope you can get the DBS surgery because my husband is going to have it. It can be live changing in a good way.

I thank God for my husband. He deals with my moodiness & slack on things. Been by my side definitely. He gives 90% while i do the 10%. Wish i was like i use to be 20yrs ago. Because im definitely not the wife i want to be with all this Parkinson's stuff

@parkinsonsuk

4 жыл бұрын

Hi Kathryn, sorry to hear you're feeling this way. There is some information on our website that you may find helpful www.parkinsons.org.uk/information-and-support, and also if you're based in the UK you can ring our helpline on 0808 800 0303. Best wishes to you