👏

Mujhe bhi aapki jaise hi nf hai, mai bahut dipration me rahti hun iski vajhan se

@ramnareshjharamya

3 ай бұрын

Dost mujhe bhi ye hai doctor n bola iska koi ilaz nahi h bahut pareshaan aakela hoon

@ariseforneurofibromatosis

3 ай бұрын

Doctor ne sahi kahan hai, isska koi permanent illaj nahi hai. Nf k vajhse kuch problem hoti hai, uska aap treatment karva sakte ho. Par NF ka koi illaj nahi hai.

Thank you for supporting me mem❤❤

I have this problem too

We love you ❤️

How can I reduce the size of neurofibromatosis? Plastic surgery is usually needed. The surgeon cuts the neurofibromas out of the body before resealing the skin. Depending on the size and location of the neurofibromas, they may be able to be treated with laser surgery or an electric current (electrodessication) instead.

Yee problem mere or mere maa hai or mere Nani main bhi thi

Mujhe bhi yeh problam hai

@ariseforneurofibromatosis

Жыл бұрын

We are with you Krishna. Stay blessed

Hello mem iam live in satara my problem is nerofaibro

Please mom have medicine

Yh sabhi ki ek jaisa hota h ya alag

@ariseforneurofibromatosis

Жыл бұрын

Yeh sab ko alag alag hota hai

Mem meri sister ko hi age 20 hi Koi ilaj ho sakta hi Therapi se thik ho sakta hi kiya please ripley

@ariseforneurofibromatosis

Жыл бұрын

Iss disorder ka koi illaj nhi hai, aap cha he to operation karva sakte hai agar koi hissa taklif de raha hai. Plastic, cosmetic yah neurologist surgeon ko dihka sakte hai.

@ariseforneurofibromatosis

Жыл бұрын

Suraj aap hamare whatsapp group join kar sakte ho, agar aapki sister ko baat karna chaiye to humse baat karwa sakte hai .. hum

@imranawan8514

10 ай бұрын

@@ariseforneurofibromatosis ap apna whatsapp nbr dyn mam

@ariseforneurofibromatosis

10 ай бұрын

aapka no. hume Email se bheje

@imranawan8514

10 ай бұрын

@@ariseforneurofibromatosis ni ja rha h ap apna nbr dyn plz

Agr kese ko genetic nhi h fir bhi ho toh kya rigan h

@ariseforneurofibromatosis

Жыл бұрын

Yeh spontaneous mutation ke kaaran hota hai, kisi ek parent me galat (faulty) gene hone se yeh hota hai

Iska ilaaz to nhi h mgr kya or na bade iske liye koi medicine hai

@ariseforneurofibromatosis

Күн бұрын

Aap homeopathy try kar sakte ho, kitna growth kum hoga woh nai bol sakte

Mam please aap mujhe apne whatsApp group me join kijiye. Mere bete ko ye problem hai he is 11years old, mam mai bahut kuchh aapse sher karna chahti hu meri family me kisi ko bhi nahi hai but mere bete ko hai ek bar vellore CMC me surgery ho chuka hai uske lungs, chest n hand me ye grow ho raha hai mujhe bahut dar lagta hai apne bachche k liye ki eska koi medicine nahi hai. Please🙏

@ariseforneurofibromatosis

Жыл бұрын

Aap apna no. hume email par bhejye Ariseforneurofibromatosis@gmail.com

Mujhe bhi he

@imranawan8514

10 ай бұрын

Mujia b h boht zada

@shubhendrabhatnagar8050

10 ай бұрын

Thek ho sakta hai

@imranawan8514

10 ай бұрын

@@shubhendrabhatnagar8050 ksy

Yae problem hae sirf mujhay hae

@ariseforneurofibromatosis

9 ай бұрын

Yeh kisi ko bhi ho sakti hai, isse genetic mutation ke karan hua hai..

@arfanbasharat8454

9 ай бұрын

​@@ariseforneurofibromatosisis ka treat mint h

@arfanbasharat8454

9 ай бұрын

Ap kdr sy hn

Plz medam . medicine

@ariseforneurofibromatosis

Күн бұрын

Abhi tak adults k liye medicine nahi bani hai

😥😥😥😥😥

@sithusithu1701

Жыл бұрын

😥😥😥😥 prayer

@shabsarsal

Жыл бұрын

Sithu

@shubhendrabhatnagar8050

10 ай бұрын

Thek ho sakta hai

@ariseforneurofibromatosis

10 ай бұрын

Nahi iska koi permanent illaj nahi hai

mjhe bi hai par koi ilaj ni h

@ariseforneurofibromatosis

Жыл бұрын

Nahi ji, iska koi illaj nhi hai. Research chal raha hai aur medicine bhi aa sakti hai isko control karne k liye

@poojagautam379

Жыл бұрын

kab thak aa gyi mai abi pregnant hun kiya mere bsche ho bi ho skta hai

@ariseforneurofibromatosis

Жыл бұрын

@@poojagautam379 50-50 chances hai k aapke bacche ko ho sakta hai.

@abhinavyadav555

Жыл бұрын

@@poojagautam379 ha ji 50/

Mem medicine tell me

@ariseforneurofibromatosis

Жыл бұрын

Koi medicine available nahi hai India me

@aroonaasakxena5217

Жыл бұрын

Hi Sithu, there is no medicine for this disorder as of today. The research is going on...

@sithusithu1701

Жыл бұрын

Preyar😭😭

@abhinavyadav555

Жыл бұрын

@@ariseforneurofibromatosis India ki bhar hay kya

@ariseforneurofibromatosis

Жыл бұрын

Yes

Ager humko NF hai to humare bacho ko b ho skta h kya ?

@ariseforneurofibromatosis

2 жыл бұрын

50-50 चांस है आपके बच्चों को हो सकता है

@ariseforneurofibromatosis

2 жыл бұрын

Pregnancy ke pehle aap genetic testing karva sakte ho

@priya20007

2 жыл бұрын

Genetic test se kuch solution mil skta h

@aroonaasakxena5217

2 жыл бұрын

@@priya20007 Genetic Test aapko batayega ki baby ko NF hai kee nahi..Ilaaz kahin nahin hai

@ariseforneurofibromatosis

2 жыл бұрын

@@priya20007 yeh bhi pata chal sakta hai ki aap yeh gene aapke baccho ko paas kar sakte ho k nahi.

😥😥😥 i am nf. Mem please telme malayalam

@aroonaasakxena5217

Жыл бұрын

Ok We will try to add Captions for you. Can we add in English

I want to finish my life can't deal with that

@ariseforneurofibromatosis

3 ай бұрын

why you want to end your life?? Suicide is not a solution to this.... Everyone has some or the other problems or health issues. Than too they still live their life n face all the challenges they come across. Do meditation,, consult a psychologist, take help, find a way where you can divert your mind.

@anitashukla197

3 ай бұрын

@@ariseforneurofibromatosis not only this I also had neurosurgery and many other problem.i wait for few month and after that attempt suicide I can't be a burden on my parents

@ariseforneurofibromatosis

3 ай бұрын

I don't know how critical your NF is nor i do know how is atmosphereat home.... But, have you ever thought what would your parents go through after you attem such act?

@ariseforneurofibromatosis

3 ай бұрын

I have gone through multiple surgeries... and still have few more to go, as you keep getting surgeries done, NF will regrow somewhere else. Unless not required don't go for surgeries try to avoid it. If possible try to work from home, if possible try to keep yourself busy if your health condition permits

@anitashukla197

3 ай бұрын

@@ariseforneurofibromatosis feeling so depressed

Can homeopathy cure lumps? Belladonna not only helps in subsiding the pain but also in dissolving the lump fully. Thuja: This homeopathy medicine of lipoma helps in dissolving any fatty lumps developing anywhere in the body. In case the patient suffers from high cholesterol, then this is the best medicine to be administered.

@ariseforneurofibromatosis

Жыл бұрын

Lipoma n neurofibroma are both different, NF are skin mass that bulges out on top of the skin, ( nerves ending) and lipoma are fatty lumps that are beneath the skin.

@ariseforneurofibromatosis

Жыл бұрын

We donot recommend or endorse any kind of medication or treatment related to Neurofibromatosis.

@rajeshwarsingh9120

2 ай бұрын

Can we do gyming with neurofibroma? I have in my lower abdomen . Please reply

@ariseforneurofibromatosis

2 ай бұрын

@rajeshwarsingh9120 sorry iska jawab humare paas nhi hai, aap chaiye to doctor se consult kare

Maam mujhe bhi hai y bahut pareshan hoon je krta h sucide kr loon

@ariseforneurofibromatosis

3 ай бұрын

Suicide koi hael nahi hai NF ka.... aise kitn saare log hai jinhe NF hai, aur woh kafi hasi khushi reh rahe hai. Kisi ko jyada kisi ko kum taklif hoti hai NF se. NF ko accept kar lo aur normal life jeena seekh lo. Khuda ka shukar karo aapke haat pair salamat hai, aap kaam kar sakte hai, apna guzara kar sakte ho....

Madam please medicne😢

@ariseforneurofibromatosis

10 ай бұрын

No medicine is available in india

Madam iska Koi Ilaaj nahin hai kya.....? Science Mein ki tarkki Kar Li Kuchh To Hoga😢😢

@ariseforneurofibromatosis

Жыл бұрын

Yeh genetic disorder hai, research chal rahi hai, aur medicine chote baccho ke liye mil rahi hai

@nidhishah8414

Жыл бұрын

Ye question ka answer Hume hr din kisina kisi ko denA pdta he. Jo hme bhot pain deta he.

@ariseforneurofibromatosis

Жыл бұрын

Hum samajh sakte hai aapki taklif, par yeh aap par nirbhar karta hai aap us sawal ka jawab kaise de samne wale ko aur unki baat par app kaise react karte hai.

@lakhansaraswat7806

7 ай бұрын

Meri bacchi ko bhi ho gya h

Mem mujhe bhi neurofibromatosis hai iska koi upay batlayi nahi mujhe aap apna samprk number send कीजिए

@ariseforneurofibromatosis

Жыл бұрын

Aap Hume email kar sakte hai

Hello..madam kripya aap apna number de

@ariseforneurofibromatosis

Жыл бұрын

Aap Hume humane email id par contact kare Ariseforneurofibromatosis@gmail.com

@aashikhan5945

Жыл бұрын

@@ariseforneurofibromatosis ok