My Story #3
This channel is created and managed by a group of people who are affected with Neurofibromatosis (NF) for the people who are affected with NF. Our mission n motto is to create awareness regarding this genetic conditions among all the individuals races, cast, community.
If you want say something or share your story on NeuroFibromatosis, write to us on below mail ID:
Ariseforneurofibromatosis@gmail.com
will post it on your behalf.
#Neurofibromatosis #NeurofibromatosisIndia #NF1 NF#2 #Schwannomatosis #NFawarenessday #Worldneurofibromatosisawarenessday #Neurofibromatosisawarenessday #Neurofibromatosisawarenessdayindia #Plexiforma #scoliosis #arisesforneurofibromatosis #mystory
Пікірлер: 36
Well said my girl. Acceptance is always so important. It is the strength and beauty of your soul , that takes you through the journey. It takes a lot of positivity and courage .
@Marzuqah1
2 жыл бұрын
Thank You dearest one ..Stay Blessed
Thank you for sharing your story. You're beautiful and an inspiration. Stay blessed Zahra❤hugs
@Marzuqah1
2 жыл бұрын
God bless You dearest..✨🤍
Thank you for sharing. God bless
@Marzuqah1
2 жыл бұрын
God bless You too⚡🌟
I also have nf, I am the only one among my siblings who has this. Sometimes I feel like I am different. Thanks for this. It did inspire me greatly. Love you ma
@ariseforneurofibromatosis
Жыл бұрын
Hi, We are glad to hear, our story has inspired you in someway 🙂. Be strong be positive.
Yrr sadi biwah me bahot diktt hoti hai 😭 asa lgta h duniya me hmlog kiyu aaye h pta ni 😭😭
@ariseforneurofibromatosis
Жыл бұрын
Hum samajh sakte hai aapki taklif. Aaj kal normal logo ko bhi partner milne me dikat hoti hai, Hum to special hai.... sabr rakho sab accha hoga
@ashishnarwarya3444
Жыл бұрын
eska elj nhi he ky bhaii
@ariseforneurofibromatosis
Жыл бұрын
@@ashishnarwarya3444 there is no permanent treatment
@sharmilathapa4937
Жыл бұрын
😭😭😭😭kohi bat nahie vai
@softygirl6266
Жыл бұрын
Hamare sat b ya masla ha sub bahn Bhai q k Mari mama ko ha ya iska koi elaj koi treatment
I am nf 😥😥😥
Muje bhi bhut bhut jiyada he ben
@ariseforneurofibromatosis
Жыл бұрын
Kisi ko kum ya kisi ko jyada hota hai
@amitvyas114
Жыл бұрын
I am also suffering from same .& Isuffring 1 big tumer on my back is 12 to15 kg
@ariseforneurofibromatosis
Жыл бұрын
@@amitvyas114 can't you get it operated??
@amitvyas114
Жыл бұрын
@@ariseforneurofibromatosis i operated 2 time in last 2 year 1 in 2006 it again expand 2 in 2016 & this time is very critical condition naw again it's expand again
@imranawan8514
9 ай бұрын
O ho sam
Please malayalam tel me
@ariseforneurofibromatosis
Жыл бұрын
Sorry, we don't know malyalam. What help you need
@sithusithu1701
Жыл бұрын
Medicine tell me mem
@sithusithu1701
Жыл бұрын
Medicine
@ariseforneurofibromatosis
Жыл бұрын
@@sithusithu1701 please consult the nearby doctor for medication.
Maam mujhe bhi hai y bahut pareshan hoon je krta h sucide kr loon
@ariseforneurofibromatosis
3 ай бұрын
Suicide kisi bhi baat ka hael nahi hai....