Thank you for sharing your story. It sounds like your care did leave a lot to be desired at times. Glad you were able to connect with more competent providers later on.

Just found you today. You’re awesome. God bless you. Been under investigation for 28 years. Having another MRI in summer and have CIS confirmed and far more but no scars 10 or so years ago. Thanks for your channel

@_thehappyhomemaker_

3 жыл бұрын

Hey, thank you so much for your comment. It really means the world to me and I hope you continue to enjoy my content. I'm sending you lots of love and hugs and hope that today is a good day for you xx

Thank you. I just found out I have MS. This video was great. You should do more. Hope you in good spirits.

@_thehappyhomemaker_

4 жыл бұрын

Gabby Franks hey Gabby, thank you for your comment, I film weekly videos and post on a Sunday :-) xxx

Primary Progressive multiple sclerosis here did not get diagnosed until I was 41 years old have trouble with eyesight lots of trouble with eyesight and I use the Rollator to walk as well as a wheelchair God bless

Hi sweetheart, I was dx at 17 in 1994 - 30 years ago next year. I had 3 bouts of numbness from 1991 that were put down to trapped nerve, atypical migraine, stress…!? I also had a bout of vertigo that was so bad that I had to crawl on my hands and knees to the bathroom as the whole world span if i lifted my head from horizontal that lasted 9 days. I was finally dx when I had a further bout of right sided numbness including my head and lost joint position sense at the shoulder. There were no treatments back then. And like you the MRI terrified me and I cried all the way through it! I didn’t have a DMT until 8 years later in 2002, 11 years after my sx. I’ve just come out of a relapse after a 7 year remission off DMTs- still all sensory- New lesion at C7/T1 which caused numbness down left side, loss of joint position sense at knee (that’s why you get that dragging leg-it’s still a sensory symptom) Now 95% recovered without steroids after 5 weeks and am starting Kesimpta in July I still get that utter Euphoria when my symptoms remit, and my heart & soul are full of gratitude for everything that my body can still do so well. I feel like every movement and sensation is miraculous ❤️🙏🏼 Back to now. I’m still RRMS and have got my degree, had a family, a great career, my EDSS is only 4 so I’m doing really really well!! When I was dx I wish an older person had gifted me with telling me what things would be like in the future as uncertainty is our burden. Everything will be ok my darling as our prognostic factors are identical Young, female, sensory symptoms at onset You will achieve all your dreams and become more Resilient, Resourceful and Compassionate than you would ever believe You’re going to be ok xxxx

I brought a facecloth and put it over my eyes while in the MRI. Worked like a charm ❤️

I went for years, with what now seems like blatantly obvious MS symptoms, but they got missed by several doctors. Finally in 2005 I was formally diagnosed with MS. I had a very similar experience with the MRI machine as did you, Hannah. I've now had a total of 16 MRIs with/without dye contrast since being diagnosed and been tried on five different medications. It does get better over time and the machines are faster now. The issue of being given devastating health/illness information and being left to cope alone is common and unfortunate. Happens here too (USA). I'm glad you have found support your own age. Although you and I are aren't the same age, I do very much enjoy your support from afar. Wish I still lived in the UK, but alas, it is not to be. I think many people with MS are told "you're depressed" when it isn't 'depression'. I'm glad you raised that issue. Do you have the type of crying that goes on for (seemingly) hours and have trouble 'shutting it off' once you've allowed yourself to cry? I used to see that as a character flaw in myself and now I know it is MS. I received very little understanding when it was happening. I'm glad more is known about MS these days. Hugs, Janet xxxxx

@HannahSmithSWJ

6 жыл бұрын

I really do feel for people who had to go years until they got a diagnosis.. I feel grateful that I only have to wait 6 months bless you sending hugs zxx

@buddyclark1232

4 жыл бұрын

If there was a cure for MS, what would you pay for that? What would your pay for treatment?

@skunkpireas6364

3 жыл бұрын

Why you done so many mris? You didn't had lessions on your brain or spinal on the first ones?

I thought the mri was cosy 😂 I almost fell sleep

@_thehappyhomemaker_

4 жыл бұрын

Haha, well yes I have before too.. my next video is going to be talking about an MRI ☺️ xx

hello girl I'm Lawrence here from Dinsmore Hutterite Colony in Saskatchewan I have MS to for me it started with double vision then I couldn't walk my neurologist gave me Lemtrada a deadly drug have to do blood work for next 4 years but now I'm trying to go the unternative way like trying to heal my MS naturally I hate drugs

I got my diagnosis alone and the doctor acted exactly like yours did. Told me it was likely MS. let’s get your started on steroids. We’ll be back soon and then just left me. This was a few months ago. I have RRMS too. I’m 43.

so glad i found ur channel, been searching for someone speaking about it on the topic but sadly very few do videos on it. I have been having symptoms and worsening for about 4 years but no diagnosis yet. Any idea how small was the lesion?

@_thehappyhomemaker_

4 жыл бұрын

Hey, thank you so much for your comment. I hope you enjoy my videos xxx

New subscriber. Thanks for sharing your story. It sounds like your first attack was very hard but I hope you're doing well now. What medication are you on at the moment?

@_thehappyhomemaker_

5 жыл бұрын

Hey, thank you for your comment. I am on Copaxone at the moment and have done a video about that too ☺️

Thanks for sharing ❤️

If there was a cure for MS, what would you pay for treatment? When was the last time you had an attack or relapse?

@_thehappyhomemaker_

4 жыл бұрын

Well I could really afford it tbh.. but my family would help. My last relapse was minor and it was 2019. In 2018 I was relapse free

Hi I have had lower back pain and very weak legs whilst walking for 13 months now. I have shooting pains in my feet and it feels to me that they are permanently frozen sensation. I started off last year slowly by my legs getting weaker the further I went, then I had to start using crutches I'm now using a rollator for small distances even then I've noticed weakness and heaviness in the top part of my arms and shoulders. I've been to a neurologist and he sent me for an xray and mri but I was told by my gp my MRI was clear, I'm going to see my neurologist next week. I'm that weak I have to lift my legs into car with my hands and I stumble like I'm drunk and have fallen a few times, are any of these symptoms ms

@_thehappyhomemaker_

4 жыл бұрын

Johanna McLeod Hey Johanna, thank you for your message. I completely understand your frustration as I had to go a period of time without knowing what was wrong. I can't say if your symptoms are MS because I'm not a Doctor, however, what I would say is don't give up. Tell them to do further tests to get to the bottom of your problems. My lesions were small at the start so make sure they double check your MRI. People with MS are all different, they call it the snowflake illness because not one snowflake is the same, my symptoms come and go but fatigue is with me everyday and sometimes I have to rest in bed. I hope this has helped you in some way xx

Is anyones ms symptoms there all the time without a break, mines have been with me for 13 months now. I'm just trying to rule out ms as I haven't been diagnosed with anything yet but I hope they do soon

@elangovanr1763

4 жыл бұрын

Go to essential tremor testings

@_thehappyhomemaker_

4 жыл бұрын

Have you seed medical advice? I hope you find an answer x

@johannamcleod6110

4 жыл бұрын

@@_thehappyhomemaker_ I went for a DAT SCAN yesterday as my MRI came back clear

I fell asleep in my mri

Bravo!

I am curious, are you using the MS Hope diet? if yes, is it working for you?

@_thehappyhomemaker_

5 жыл бұрын

Hi, no I'm not I just watch what I eat and stay away from dairy really and I feel quite good and monitor my symptoms ☺️

Hi ❤️😘🙏

But doctors don't know much about it either.

@_thehappyhomemaker_

3 жыл бұрын

Being diagnosed for almost 7 years, I'm now finding that we learn as we go through this condition. A lot of trial and error I find. Thank you for your comment.