My Journey with Stage 4 Cancer

I was diagnosed with stage 4 sarcoma (Alveolar Soft Parts Sarcoma) in 2016 at the age of 30 which is a very rare type of cancer that affects young people. Sarcoma makes up 1% of all cancer and my subtype (ASPS) makes up 0.1% of sarcomas. This video is a summary of my cancer journey so far since my diagnosis.

Пікірлер: 85

  • @rachelbee7921
    @rachelbee7921Ай бұрын

    Praying for you, Dr. Lee!! ❤️❤️❤️✝️🙏🏽🙏🏽🙏🏽

  • @stbaz
    @stbaz3 ай бұрын

    Thank you for discussing your illness in such a calm and frank way. All the best to you whichever way things go.

  • @NhiTranLee

    @NhiTranLee

    3 ай бұрын

    Thank you, I’ve been dealing with it for almost 8 years now and lots of ups and downs. Hopefully things will keep improving.

  • @AmberU
    @AmberU2 ай бұрын

    I work in healthcare and my mother did not survive ca so I'd like to say thank you for your candor and chosing to share your journey. I too am a person first but I also work in healthcare and I feel like it's always important to remember what patients go through and because you have patients to remember that I can be in the patients situation.

  • @NhiTranLee

    @NhiTranLee

    2 ай бұрын

    My dad passed from cancer a few years before I was diagnosed and I was in my first year of residency then. It must’ve been so hard for you with your mom. Yes being on the patient side has opened my eyes and allowed me to be that much more empathetic for my patients. It’s a tough system we have to navigate through and thankfully it’s been easier for me being a healthcare worker.

  • @AmberU

    @AmberU

    2 ай бұрын

    I’ d like to add that you appear to be handling this with such grace and class your make- up is perfect and you look well which does not belie what you must go through in your head everyday…. I was born in the Bay Area but when my mom died the trajectory of my life was changed to bc of ca, I was raised elsewhere and I live with her loss still and the fear that ill get such a dx too. I understand now as a professional that some ppl can live long lives but just have cancer chronically but no one wants it ….But I wish for you all the best and that you keep going even when it’s dark sometimes for all that you bring to the world, your family and your patients.

  • @SujataBehera
    @SujataBeheraАй бұрын

    You are amazing. I’m a PA-C PCP with brain cancer. Your videos are really helping me

  • @NhiTranLee

    @NhiTranLee

    Ай бұрын

    I’m so glad my videos are helping. I’m sorry to hear you have brain cancer. Cancer sucks and I hope you’re doing ok. Will keep you in my prayers.

  • @holliethomson6147
    @holliethomson61472 ай бұрын

    You’re amazing and very calming to listen to you. I’m sending you so much love and positive healing prayers always xxx❤🙏

  • @Delilah_Nguyen
    @Delilah_Nguyen8 ай бұрын

    Thank you for sharing your journey with us❤ You are amazing! Keep fighting 💪 💖 sending so much love and healing energy

  • @yutube1452
    @yutube14524 ай бұрын

    You are so brave to speak about all this. Praying for you. Enjoying your video ❤

  • @NhiTranLee

    @NhiTranLee

    4 ай бұрын

    Thank you for your prayers and for watching! 🙏

  • @billfranek7090
    @billfranek70903 ай бұрын

    Thank you for sharing your video.

  • @NhiTranLee

    @NhiTranLee

    3 ай бұрын

    Thanks for watching!

  • @graciegrace8070
    @graciegrace80702 ай бұрын

    You are in my prayers. Sending you positive thoughts and light. 🙏

  • @NhiTranLee

    @NhiTranLee

    2 ай бұрын

    Thank you!

  • @PrettyinScarlett03
    @PrettyinScarlett032 ай бұрын

    Wow! This is such a refreshing perspective. I'm now a new subscriber. I'm training to be a naturopath here in the UK, planning to specialise in Ayurveda (the corresponding bodywork is yoga and meditation) and I work in the NHS as a medical secretary where I process alot of cancer referrals. This is because I want to understand both fields like you. My ultimate aim is to help patients through cancer which why I follow alot of cancer journeys. It's so positive to see a traditionally educated doctor be open to holistic treatments. Keep going, healing is not linear. From my studies, it will take longer to heal via the natural route and healing can can cause symptoms that were experienced in reverse order (homeopathic perspective). Very important to focus on diet and bodywork as you are doing. Have you tried Castor oil packs? These are very good for detoxifying the liver and as you believe cancer is a metabolic disease, the liver is crucial in healing. I will be following your journey now. I wish you good health ❤

  • @NhiTranLee

    @NhiTranLee

    2 ай бұрын

    Thanks for your comment and that’s great that you are getting training to be a naturopath. We need more practitioners like you! Yes I have heard of castor oil and have used it. Detoxing the liver, boosting the immune system and repairing the mitochondria are all key in healing cancer and chronic diseases. I plan on getting more training in integrative medicine/functional medicine soon, just have to find my path.

  • @PrettyinScarlett03

    @PrettyinScarlett03

    2 ай бұрын

    Your comment has made my day. Firstly, I am certain you will find your path as I have found mine. It takes being open minded which you are. You have an incredible foundation of being a doctor already and going through your journey with cancer you will be able to empathise and empower patients. I hope more doctors will train in both fields but I understand the time, commitment and finance with going into both. I think functional medicine doctors are the future in my humble opinion. It took me a long time to find my path (about 15 years) and I'm still relatively young in my late 30s. Who knows what they want to do at 18? I didn't start out in the medical field but I have since discovered that this my calling. I have an undergraduate degree in Psychology and Criminology and then I trained to become a paralegal. Working on medical negligence cases, I realised I actually want to be in the medical field and so I took the leap in 2020 to leave behind a career in law where I was not happy to re-train. Best decision I ever made. I'm currently over half way through my first diploma. I have a long way to go but never been happier. Next diploma will be in nutrition and then finally I will specialise in Ayurveda, the medical system of native country. I have to do anatomy and physiology and pathology and disease inbetween. I work alongside doctors so I can only imagine the years of study you have undergone. I have carried out alot of my own research into cancer as it has affected my family (like most people) and I want my mother to not fear it so. I have an incredible book about Homotoxicology (developed in the 1950s) that shows me the progression of disease towards cancer. I think the key is prevention absolutely and educating patients how to reverse imbalance before getting to the stages of cell change. I do realise there are genetic factors to consider. It means alot to me that you have said we need more practitioners. I can only be a practitioner in the UK but I did consider studying elsewhere.❤ You are helping alot of people by casting light on holistic medicine with being a doctor as many people will listen and it is about sharing knowledge and empowering people. You are truly embodying what it means to be a doctor. Afterall, doctor comes from the Latin word 'docere' which means teacher. My wish for the future is that we can enpower patients to be able to take control of their own health as you are and also to support holistic medicine alongside traditional medicine so that patients can have access to both when healing and returning to balance. Both have a place in the world.

  • @travelgirl7967
    @travelgirl79672 ай бұрын

    Thank you for sharing. You've been through so much and I hope you'll find something that works for you. I'm into an integrative approach as well and when my cancer returned again after surgery and radiation, I started a repurposed drugs protocol of Mebendazole, Atorvastatin, Metformin and Doxycycline. It's prescribed by the Care Oncology Clinic. I also did chemo and that got me to NED 3 years ago after stage 4 cervical. I believe the integration of these 2 approaches helped me out. I still take the COC protocol to prevent recurrence. I'm sure you've come across this protocol and was curious of what you thought of it or if you'd tried it.

  • @NhiTranLee

    @NhiTranLee

    2 ай бұрын

    Hey thanks for your comment. Yes I found out about the COC from Jane's book and I joined her fb group. I have done more supplements as I was hesitant to take the other drugs due to potential side effects. I took Ivermectin instead of fenben/meben but not consistently. I might consider it in the future if the cancer keeps progressing. Right now it seems to be ok minus the recent growth in the skull. I'm so happy for you that you are in remission. Did you do anything with your diet and other lifestyle changes?

  • @wishingyoupeace
    @wishingyoupeace2 ай бұрын

    You are so beautiful and how do you work full time with all this going on?? Omg. Praying for you on your brave journey. May you be safe. May you be healthy, strong, and physically at ease. 🙏 Sending prayers for comfort and healing. Thank you for sharing your story.

  • @NhiTranLee

    @NhiTranLee

    2 ай бұрын

    Thank you!! I’m so lucky to still be able to work and currently I am doing virtual care and work from home so it’s been very helpful with everything going on the past year. Working in clinic is more gratifying but much more tiring. Thank you for your prayers.

  • @ladawnbrooks5994
    @ladawnbrooks59943 ай бұрын

    Keeping you in my prayers may Jesus cover you with his blood from the crown of your head to the soles of your feet and remove all the cancer out of your body beautiful keeping you in my prayers🙏❤️🙏 I have stage four also keep praying every day all day❤❤❤

  • @NhiTranLee

    @NhiTranLee

    3 ай бұрын

    Amen! I will pray for you also. ❤️❤️

  • @stavroulapsiharis8357

    @stavroulapsiharis8357

    2 ай бұрын

    Praying for you both ..❤❤

  • @Aleksandar_G
    @Aleksandar_G3 ай бұрын

    Thank you so much for sharing your experience! I didn't understand, is your primary tumor on right gluteus (soft tissue sarcoma) ? I sincerely hope you are going to be okay, i can't even imagine what you went through in these 7 years. 2.5 years ago i was diagnosed with testicular cancer, luckily only 1 testicle. After surgery i went to the CT scan and they weren't sure about thickened lymph nodes, was it because of the cancer or do i have naturally slightly thicker lymph nodes so i send me to chemotherapy just to make sure if it is cancer they can annihilate it. My whole cancer treatment lasted less than 4 months and after that I felt very exhausted, currently i have only regular control every 4-6 months and so far everything is stable. And you have so much power and positive vibes after 7 years. My type of cancer responds well to chemotherapy and was in the initial stage so i didn't look much for alternative methods of treatment, but I'm sure there is plenty of methods you can try, i would like to try to help you to find some methods that might help you. Wish you all the best, stay strong and much love from Serbia! ❤🙂

  • @NhiTranLee

    @NhiTranLee

    3 ай бұрын

    Thank you for your comment and I’m so glad you were able to complete the treatment and that everything has been stable. I wish it will stay that way forever for you! Yes it’s been a long 7 years but I’ve learned so much along the way and my cancer seems to be well controlled and going away although with some scares and serious surgeries/treatment along the way. I won’t ever give up finding the right treatment that will work for me both conventionally and holistically.

  • @Aleksandar_G

    @Aleksandar_G

    3 ай бұрын

    @@NhiTranLee Thanks so much. I wish you the best of luck in your recovery and I will follow your videos and condition and pray for you, greetings!

  • @carolinemccabe8297
    @carolinemccabe82972 ай бұрын

    How have you gone through all of this and still work. I think your amazing. You seem so calm and peaceful on this journey and your a mum with twins 😊

  • @NhiTranLee

    @NhiTranLee

    2 ай бұрын

    Thank you so much! Yes my twins are my reason for living and I need to be well so I can be around for them as long as I can.

  • @rubensano4860

    @rubensano4860

    2 ай бұрын

    You're in both instances.

  • @GoodnessEnsemblewithMatlou
    @GoodnessEnsemblewithMatlou5 ай бұрын

    ❤❤❤

  • @chris_losin_it
    @chris_losin_it2 ай бұрын

    Sending lots of positive vibes and many prayers. 🙏🏼 💜 🕊️ Just now finding your journey and videos. Welcome to Ga. (For a year and a half now) I’m in NE Ga. Are you practicing still?

  • @NhiTranLee

    @NhiTranLee

    2 ай бұрын

    Thank you! I love being in GA (I am also NE in Buford) and still practicing yes but doing Virtual Care for Kaiser.

  • @67countrygirl
    @67countrygirl26 күн бұрын

    Prayers for you yoga is very good for relaxing ❤

  • @mikepham2787
    @mikepham27874 ай бұрын

    Thank you for sharing. Have you ever look at Eastern Medicine ? Just curious.

  • @NhiTranLee

    @NhiTranLee

    4 ай бұрын

    Hey, yes I am combining eastern and western medicine and that’s what my channel is all about. Healing from the inside out as a whole person, mind, body and spirit.

  • @patriciaanderson1679
    @patriciaanderson16793 ай бұрын

    Have you looked into fasting clinic in Santa Rosa, Ca.

  • @NhiTranLee

    @NhiTranLee

    3 ай бұрын

    Hey, I have actually done a lot of fasting myself. A 7 day water only fast was the longest but now I’ve lost so much weight from the recent femur surgeries and now brain surgery that I will take a break from fasting for a while. It surely helps with cancer though and yes I am aware of the fasting clinics.

  • @monicadiazrivera3907

    @monicadiazrivera3907

    2 ай бұрын

    @@NhiTranLeehave you had the mrna shots through your cancer journey?

  • @reneet583

    @reneet583

    19 күн бұрын

    Great question! I've seen SO many turbo cancers happening for the past 3 years on KZread, its crazy!!!!!!

  • @NhiTranLee

    @NhiTranLee

    19 күн бұрын

    @@reneet583 I actually have not. I avoided them for that reason and got a religious exemption

  • @lindc1070
    @lindc10702 ай бұрын

    Have you considered gynura procumbens? I dont know if it will help with your type of cancer but I hear it has helped some cancer patients. You can grow it in California

  • @NhiTranLee

    @NhiTranLee

    2 ай бұрын

    No I haven’t heard of that. I no longer live in California but I will look it up.

  • @lindc1070

    @lindc1070

    2 ай бұрын

    @@NhiTranLee pls do , it is a widely used herb in SE Asia, especially Thailand, Malaysia and Indonesia. May I ask if you are Vietnamese in ethnic origin?

  • @NhiTranLee

    @NhiTranLee

    2 ай бұрын

    I see, that’s good to know. Yes I was born in Vietnam and came to the US when I was 8 years old. My husband is Korean (why my last name is Lee)

  • @lindc1070

    @lindc1070

    2 ай бұрын

    @@NhiTranLee we live in Singapore and have travelled to Vietnam. Enjoyed our time there. We love Vietnamese food , especially Pho.

  • @suomynonaanonymous
    @suomynonaanonymous2 ай бұрын

    how much did surrogacy cost?

  • @NhiTranLee

    @NhiTranLee

    2 ай бұрын

    The surrogacy was very expensive and usually ranges widely. For us we had help with the embryo freezing through Livestrong that helped cancer patients at the time and everything worked out for us with one try so it was about 90k.

  • @ATF.California
    @ATF.California3 ай бұрын

    Have you heard of cell squeezing therapy?

  • @NhiTranLee

    @NhiTranLee

    3 ай бұрын

    No, I have not, but I will look it up

  • @Kristen10-22
    @Kristen10-222 ай бұрын

    So when being in Ca you didn’t go to “City of Hope” Thanks so much God bless

  • @NhiTranLee

    @NhiTranLee

    2 ай бұрын

    No, I worked for Kaiser out in Northern California, so I had insurance through them. It wasn’t the best since I have a very rare type of sarcoma and I need to see a sarcoma specialist. Thankfully, things were pretty stable when I was there.

  • @Kristen10-22

    @Kristen10-22

    2 ай бұрын

    @@NhiTranLee I understand. Thank you for sharing your journey. God bless I pray today is a bit better for you ♥️

  • @TheCrankshaftRotator
    @TheCrankshaftRotator20 күн бұрын

    You know, you know, you know? No, I don't know, this is why I'm watching

  • @NhiTranLee

    @NhiTranLee

    20 күн бұрын

    This was my first video posted unedited. I’m not a great speaker and realize there are a lot of “ums, likes, and you knows.” Working on it, speaking and recording takes work when it doesn’t come naturally😆

  • @TheCrankshaftRotator

    @TheCrankshaftRotator

    20 күн бұрын

    @@NhiTranLee Nice 👍

  • @corinadaschievici9002
    @corinadaschievici90023 ай бұрын

    Forget about yoga, pray for a miracle! Our lives are in God’s hands.

  • @NhiTranLee

    @NhiTranLee

    3 ай бұрын

    Yes in the end it is all God’s will and praying for that miracle all the time. Surely though there are things we can do to help ourselves get better and God would want that for us.

  • @corinadaschievici9002

    @corinadaschievici9002

    3 ай бұрын

    @@NhiTranLee I agree! You're so beautiful and seem really kind! I'll pray to God for you to get better to live a better healthy life!

  • @lindc1070

    @lindc1070

    2 ай бұрын

    As a Christian I have found out that I should not practice yoga due to some of the poses. That is all I will say. Look it up if interested.

  • @NhiTranLee

    @NhiTranLee

    2 ай бұрын

    @@lindc1070 yes, this is what I found too. I became Christian less than 2 years ago and since then I haven't gone back to yoga. It really did help me though when I was doing it before that. Now I go to the gym to weight train and walk/use other cardio machines for exercise.

  • @lindc1070

    @lindc1070

    2 ай бұрын

    @@NhiTranLee good for you. Just trust God for your healing. I want to share with you my husband's testimony. He was diagnosed with stage 5 ESRD in Nov 2020, GFR was 9. I asked his nephrologist if it could be AKI as onset was quite sudden. He told me scarring of the kidneys indicated it was not and told me GFR could be raised but not above 15. He didnt need dialysis immediately as his potassium and phosphate levels were normal, no water retention. My whole family prayed, including several doctors. He started improving. A month after discharge stage 4. Now he is stage 3B and still improving. His Nephrologist is very surprised , describes this as a miracle and now says we should aim for 3A. Of course we have been doing dietary intervention too and his hypertension is under control. Just sharing to say God can do the medically impossible.

  • @pokemongirl3479
    @pokemongirl34793 ай бұрын

    if you have cancer then why haven't you lost your hair yet

  • @debbiesclunsen9744

    @debbiesclunsen9744

    3 ай бұрын

    I have brain and lung cancer I am on immunotherapy and haven't lost my hair When I had brain radiation I lost alot but not all my hair

  • @pokemongirl3479

    @pokemongirl3479

    3 ай бұрын

    @@debbiesclunsen9744 Poor thing

  • @debbiesclunsen9744

    @debbiesclunsen9744

    3 ай бұрын

    @@pokemongirl3479 I'm cool with everything ! ❤️

  • @anatolianbites8620

    @anatolianbites8620

    3 ай бұрын

    It depends od the medicine they use. Some medicine don't cause hair loss. I mean side effects.

  • @annak2756

    @annak2756

    3 ай бұрын

    My husband had stage 4 cancer and completed chemo + radiation and he still has his hair. Not all chemo makes you lose all of your hair.

  • @echterrentner8858
    @echterrentner88582 ай бұрын

    ❤❤❤