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MY CANCER STORY: Sarcoid Lymphoma Syndrome | Chemo Diaries

Hi everyone!
I'm Tatiana, a 21-year old Pre-Med student just admitted into her dream Med School. Recently, after a year-long battle with treatment-resistant Sarcoidosis, I found out I developed Classic Hodgkin's Lymphoma.
Since then I've decided to document my journey on this channel. If you'd like to go through that journey with me, make sure to subscribe & click the bell icon!
❋ INSTAGRAM: / tatianapaolah
For some reason, the typewriter sound got removed from the intro, sorry about that!

Пікірлер: 65

  • @AnneMarieBibby1966
    @AnneMarieBibby19667 ай бұрын

    Oh my goodness what a journey to get your diagnosis. Such a strong young lady. I'm going to watch your other videos. I hope this finds you well. Sending much luv from a grandma in Massachusetts. 😊❤

  • @crystalfaith6242
    @crystalfaith62424 жыл бұрын

    First off dear, I am so very sorry you have to travel this path!! 2nd any cancer or blood disorder is a huge deal!! Everyone said it wasn't as big of a deal that my daughter's severe aplastic anemia wasn't cancer!! Even her Hematologist didn't take her illness very seriously, because of this doctor's and hospitals NEGLECT of my daughter, she only survived 11 months after diagnosis because her severe aplastic anemia had transitioned to aggressive lymphoma and she passed away 2 years ago...I didn't know she had lymphoma until her biopsy results came back, that I had to pay for out of pocket because I didn't believe that she had died from Sepsis like they said...I know you will be an Amazing Doctor after this!! Take no ones health with a grain of salt, doctors did that to my daughter and now are doing the same to me, because of terrible doctors my daughter is gone and if they continue with me the way they are I will lose this fight too!! Please treat your patients better than the way doctors have treated you, you will save so many!! God Bless You Always!!

  • @TatianaPaolah

    @TatianaPaolah

    4 жыл бұрын

    I am SO sorry you had to go through that. Was there any way to take legal action? I know it is expensive, & won't bring your daughter back, but some doctors need a wake-up call so they can start taking patients more seriously. Please continue to fight for your health. No one knows your body like you do. I'm sending so much love and health your way.

  • @crystalfaith6242

    @crystalfaith6242

    4 жыл бұрын

    @@TatianaPaolah Thank you very much!! I did try to seek legal action, I couldn't afford the lawsuit as the funeral services and autopsy were already so costly, and being my daughter was no longer a minor, the only ones Willing to take her case were only interested if she had left behind a child... I have recently been informed due to the nature of her passing I do have a long time for the statute of limitations. Hopefully I can at least hold them criminally accountable!! God Bless You & thank you for the kind message!!

  • @vibhachauhan7121

    @vibhachauhan7121

    3 жыл бұрын

    Very sorry to hear about your daughter . My mother died of sepsis five years ago. Please stay strong , it's very easy to say but time will eventually make you strong . God bless you.

  • @funniful
    @funniful4 жыл бұрын

    Ugh! I’m so sorry for your frustrations with doctors. I have sarc, too. I know the struggle with finding medical help. Mine was found after heavy dose of chemo for breast cancer. I hope you are doing well. 💜 btw, I’m in USA, can’t afford insurance, so I have zero treatment....medical help for chronic illness is hard to afford because often, we can’t hold regular jobs that would provide insurance. So, I work “some” for myself, but barely make bills, and can’t afford insurance. We only grow through our trials and tribulations.

  • @lonewolfxai9838
    @lonewolfxai98385 жыл бұрын

    Thank you for sharing...On the days that are hard I hope you watch this video and remember how fierce you are. Never stop fighting, rest but keep fighting.

  • @adriananvelezaviles4562
    @adriananvelezaviles45623 жыл бұрын

    soy tu fan #1 me inspiras tanto Tatiana! Serás la mejor doctora, que privilegia ser tu compañera ❤️

  • @mooselightning8391
    @mooselightning83912 жыл бұрын

    God bless you 🙏 Hope your feeling sooo much better. Pains me seeing young ppl or anyone going through so much. You seem strong and your will kick this in the ass!

  • @HiNic-uh6qz
    @HiNic-uh6qz5 жыл бұрын

    I’m Hodgkin’s Lymphoma Survivor 🙏🏼 please stay Strong !! I will keep you in my prayers sending Love and hugs 🤗

  • @amiraali752

    @amiraali752

    4 жыл бұрын

    Was it difficult for you? I am sorry for the question but I need to know

  • @jobyrascon

    @jobyrascon

    4 жыл бұрын

    I am a Survivor as well. finished Chemo in March. Praying for your recovery and emotional health as well. Stay positive and keep your mind clear of doubt. All love! - Job

  • @TatianaPaolah

    @TatianaPaolah

    4 жыл бұрын

    @@amiraali752 It is sadly difficult for everyone.

  • @TatianaPaolah

    @TatianaPaolah

    4 жыл бұрын

    @@jobyrascon That's very kind of you, Job!

  • @monicaeaparza8896

    @monicaeaparza8896

    Жыл бұрын

    I was on AAVD chemo for HL.. did any of you guys have Extreme leg pain?? I’m recovering, I’m learning how to walk now, my Blanca is off! I was just wondering if anyone else felt/going thru this.

  • @harrycontos7955
    @harrycontos79553 жыл бұрын

    YOU ARE SUCH A STRONG PERSON, AND THANK YOU FOR SHARING YOUR STORIES, OF YOUR DISEASES ..

  • @lauradavenport8199
    @lauradavenport81995 жыл бұрын

    You are very brave sweetie. Take care of yourself. Don’t push yourself too much with Med school. You’ll get there. Just be kind to yourself. Wishing you the best outcome

  • @noufm7263
    @noufm72634 жыл бұрын

    You will be fine ❤️ my prayers for you

  • @alikovacs789
    @alikovacs7893 жыл бұрын

    Tatiana I'm so sorry to learn you have cancer I hope you will be ok babe stay strong stay safe take great care sending my love alicat xxxx

  • @sweetbriarcottage
    @sweetbriarcottage4 жыл бұрын

    I am so sorry- you are so young to be going through this! I, too, have Sarcoidosis of the lungs and advanced breast cancer. In my double mastectomy pathology, lymphoma cells were also found. I do not have lymphoma symptoms, though. They saw the “broken glass opacity” and enlarged lymph nodes in one lung- Sarcoidosis. Health problems are hard, and affect all areas of one’s life, not yo mention fear of losing our life. Love & prayers!

  • @TatianaPaolah

    @TatianaPaolah

    4 жыл бұрын

    Hello! I understand how hard it can be and how hopeless one can feel. It is a truly awful thing to have to live through, but just remember you are not alone! I hope you are doing well, sending lots of good thoughts your way.

  • @leahallen1068
    @leahallen10685 жыл бұрын

    Prayers sent my dear!

  • @Dr-Alexx
    @Dr-Alexx5 жыл бұрын

    I am praying for you dear, I admire your strength and courage, and I know that you will get through this by the grace of God. Much love.

  • @janhiryanthonygiannotti3569
    @janhiryanthonygiannotti35695 жыл бұрын

    Todo va a estar bien y vas a alcanzar todas tus metas

  • @maureenpye9252
    @maureenpye92524 жыл бұрын

    I really fe for you I was diagnosed with terminal cancer which include my lungs by mistake they did a lung bi op as I was waking they told me it was sarcoidosis not cancer if I energy I would have thumped him fight with everything you've got I will pray for you I know it sounds corny but You nothing to lose stay strong and god bless THE

  • @mariadelcarmenmuniz406
    @mariadelcarmenmuniz4065 жыл бұрын

    Un cerco de ángeles están contigo! Dios derrama su propósito en tí.

  • @tammy2465
    @tammy2465 Жыл бұрын

    Well I guess we're all on this page cause we have concerns with cancer😢I am a cancer survivor😊but the past 3 years I've been ignoring all my symptoms😢I just lost my father.mother.sister back to back they all too died of cancer so I just feel like going with them too😢I know I now have stage 5 so that's pretty bad it's already spread to my bones I'm tired of feeling tired😢good luck to all of you don't be scared I survived and you can too..❤thank you for sharing😊 love and light to you ALL

  • @ryanbrown1485
    @ryanbrown14853 ай бұрын

    Thank you so much for sharing. You are helping ppl.

  • @susanlockwood2805
    @susanlockwood28055 жыл бұрын

    Praying for you❣️🙏🙏

  • @jenngunning_14
    @jenngunning_14 Жыл бұрын

    Thank you so much for sharing your story. You're very strong 💪❤. I hope you were able to got cured. I been having similar symptoms so thank you I can bring this up to my doctors. Salute to you for advocating for yourself. I feel a lot of doctors don't listen & take people serious. I had learned that I had gotten epstein barr virus that causes Mono but also can cause certain cancers sych as lymphoma and multiple sclerosis from the Pizer vaccine for COVID-19.

  • @junereilygarciamarquez3275
    @junereilygarciamarquez32755 жыл бұрын

    ❤️ NO ESTÁS SOLA EN ESTO, ESTAMOS TODOS CONTIGO ❤️ En el nombre de Dios todo saldrá bien 🙏❤️ ❤️ YOUR STRONG AND BEAUTIFUL ❤️ #NEVERGIVEUP #MUCHOLOVEDEMIPARTE

  • @allisonrae4828
    @allisonrae48284 жыл бұрын

    Praying for you ❤ my husband has stage 3B rectal cancer and developed sarcoidosis as an autoimmune response to chemo and radiation. Prayers for you - keep fighting xxoo

  • @TatianaPaolah

    @TatianaPaolah

    4 жыл бұрын

    Thank you so much. I hope he is doing well!

  • @allisonrae4828

    @allisonrae4828

    4 жыл бұрын

    @@TatianaPaolah Unfortunately it has metasticcized to his spine and thoracic lymph nodes...they have restaged him at a stage 4. We are making the best of everyday. Hope you are doing well xx

  • @Rob.1231
    @Rob.12314 жыл бұрын

    I hope your doing better now

  • @mahroobabaei406
    @mahroobabaei4065 жыл бұрын

    I'm sure you'll get well very soon! Sending you lots of love our talented, charming and beautiful friend!

  • @TatianaPaolah

    @TatianaPaolah

    5 жыл бұрын

    Mah babaei thank you so much!

  • @aslinvazqueznieves2986
    @aslinvazqueznieves29865 жыл бұрын

    WE are gonna give cancer hell. You’re gonna be tough, and I’m gonna get t-shirts. You can do this, I believe in you.

  • @TatianaPaolah

    @TatianaPaolah

    5 жыл бұрын

    Aslin Vazquez Nieves thank you, I love you. ❤️

  • @poireinganbaangom1849
    @poireinganbaangom18492 жыл бұрын

    you are my inspiration.

  • @JGmusicPR
    @JGmusicPR5 жыл бұрын

    Wow! Me has conmovido demasiado, me has hecho llorar mucho. Estoy lejos pero mis oraciones y mejores pensamientos te acompañan. Me ha preocupado mucho el tema de tus gastos médicos. Por favor, déjame saber si necesitas algo porque estoy dispuesta a mover lo que sea para ayudar. Te mando un fuerte abrazo. Y mucho ánimo. No estás sola. Me uno a tu lucha y VAMOS A VENCER ESE CÁNCER. Desde hoy declaro tu sanidad absoluta. -Gabriela Andrea Castro Lamberty

  • @TatianaPaolah

    @TatianaPaolah

    5 жыл бұрын

    Gabriela Andrea muchas gracias por todo ❤️

  • @vishnukasat
    @vishnukasat4 ай бұрын

    I am from india, my mother is going through sevre cough. The xray shows lung infection. Ctscan has shown multiple lymph nods, but the biopsy was negative for lymphoma. One of the doctor says it can be sarcoidosis, we are very confused. We had consulted many doctors but all of them have different opinion, and none of them is able be on the same page. Can u suggest something as you have gone through the same trouble where diagnosis was difficult by doctors

  • @aleataa.veachgrimmettgrimm4830
    @aleataa.veachgrimmettgrimm48309 ай бұрын

    Hi, my name is Aleata. I was diagnosed with sarcoidosis about 26 years ago after the birth of my last child. I had it monitored for a while. My doctor decided not to treat it. Over time my extays cleared up. The best thing g my doctor did for me was to convince me that I was getting well. That I could and would get well. With ever cough I started thinking that's my body getting well. I would say within a year the exrays cleared up. I have continued to have some issues through out my life. The only thing I am taking at this time is montelukast because they suspect I have developed asthma though they are not sure. I do not like inhalers so I don't use them. I do have some type of copd. I personally think that for me aerobic exercise is the best way to offset my breathing problems and continue to live a full life. And of course more of a whole food diet with lots of vegetables and fruit. I am currently well in 60's. If it hasn't yet I hope your illness goes into remission and you continue to live a full life. Best wishes for you and your future. Don't give up. Never quit trying. Believe in your bodies ability to get well.

  • @yvonnedavis7391
    @yvonnedavis7391 Жыл бұрын

    I’m 24 and I was just diagnosed with sarcoidosis and it’s all in my lungs and neck and my body hurt and I was healthy and one day I was having the same thing u had was chest pain for so long and a cough. They told me I’m stage 1 and it’s so hard to hear I had this and they haven’t figure out what’s the good treatment for me. And they look at me crazy when I tell them I’m in so much pain. Can’t hardly use my arms or hardly walk but I have to push thur and it’s so painful.I’m always tired too and all my lymph nodes are swollen from my neck and chest and they found a mass between my heart and my lung

  • @vibhachauhan7121
    @vibhachauhan71213 жыл бұрын

    May I know how many lymph nodes you had ? I know a person who has 10 nodes in neck.

  • @alexandereades1285
    @alexandereades12852 жыл бұрын

    I think I am headed down the same path.

  • @B27397
    @B273974 жыл бұрын

    🙏🙏

  • @juliovegaortiz4987
    @juliovegaortiz49875 жыл бұрын

    Solo Dios tiene el control asi que pon todas esas cargas en las manos del Señor y el obrara de acuerdo a sus propositos en tu vida. Siempre acepta su voluntad el es un Dios de amor bondad y misericordia, creeme. Solo El es el milagro de vida en ti. Entregate en cuerpo y alma a el y el hara su proposito en ti, sea cual sea el lo comenzara y lo terminara con sus manos. Dios te Bendiga estaras en mis oraciones, Se valiente y fuerte como hasta ahora no importa cuando duro sea el camino, pelea con la espada de Cristo. Amen.

  • @Deadtrees15
    @Deadtrees154 жыл бұрын

    I’m going through this long diagnosis journey. It’s so stressful

  • @TatianaPaolah

    @TatianaPaolah

    4 жыл бұрын

    It really is. I'm sending lots of good thoughts your way and if you ever r need someone to talk to, who has gone through it, feel free to message me through Instagram. :)

  • @Deadtrees15

    @Deadtrees15

    4 жыл бұрын

    Tatiana Paolah what’s ur insta?

  • @TatianaPaolah

    @TatianaPaolah

    4 жыл бұрын

    @@Deadtrees15 tatianapaolah :)

  • @abbeynevarez1527
    @abbeynevarez15275 жыл бұрын

    TODO VA A ESTAR BIEN (es una alabanza de Barak escuchala) Tatiana...HAY UN EJERCITO DE ANGELES CUBRIENDOTE EN ORACION Y DIOS NUNCA FALLA, DA DURAS BATALLAS A SUS MEJORES GUERREROS Y TU ERES UNA. AGARRATE DE CADA PROMESA DEL SEÑOR Y HASLAS TUYAS...NO TE SUELTES PQ NOSOTROS TU FAMILIA EXTENDIDA EN CRISTO NO TE SOLTAREMOS UN FUERTE ABRAZO Y AQUI ESTAMOS PARA TI. Te queremos mucho DIOS TE BENDIGA.

  • @jukodebu
    @jukodebu5 жыл бұрын

    Hows everything now?

  • @TatianaPaolah

    @TatianaPaolah

    4 жыл бұрын

    Hi! Thank you for asking. I am currently in remission, will be posting an update very soon.

  • @crystalcoleman8668
    @crystalcoleman86684 ай бұрын

    OMG what is wrong with DRs , it makes you wonder how they pass and get a degree. I Live in FL, and kinda going through the same thing but not as bad . Its been a little more then a yr for me seeing Drs , They are just as bad here ,

  • @navidakbar1880
    @navidakbar1880 Жыл бұрын

    SALAAM SISTER AP KON SI MEDICINE USE KAR RARI HAIN