My journey with Myasthenia Gravis
Two weeks ago I was diagnosed with #myastheniagravis and this is my story.
The videos I’ve watched had been very helpful to me, to learn about myasthenia gravis and not to feel alone in this new journey. I hope this video helps you to learn about it too.
We CAN do this!
(Sorry for slurring some words, I had to stop and rest a few times)
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Thank you for your presentation
Thank you for sharing your story because my son his diagnose mg
Thank you for sharing your story because my son his diagnose mg. Also
Thanks for Sharing your journey .
Love you Pedro. You’re so inspiring. ❤️
So glad you had antibodies show so you didn't get to falling. I am triple sero negative but strong mestinon responder. Took5 yrs of falls, blurred vision, failing breathing, complete exhaustion before i demanded trial of mestinon. Being in US no job security or time off for ilness. Am only about 30%better now but was so bad thought I would die at night even with bipap and oxygen. Keep educating people
You need to have steriods and chemo tabs to take over because thecsteriod regine is very tough on your system. You initially need to have 4 x I hour plasma blood transfusions so your excess anti bodies can be removed and your treatment can start from a fresh slate.
This is a well thought out, detailed and clear video. Thank you so very much.
Hope it works out for you, the most important are the first seven years. If you don't have a crisis during that time, I heard that's a positive. myself now in 6th year of MG.
Thanks for your story. I was diagnosed with MG after 6 years of doctors trying to figure it out.
@pdrohrtdo9756
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I can't even imagine how hard it was waiting for 6 years without any answers, I hope you are so much better now. Thank you for sharing you too
Thanks for sharing this! I have had a very similar story, so this really helped me. Unrelated, where did you get that great lego rainbow figure behind you?
This was helpful. I hope you have found improvement.
❤️ you Pedro; keep getting better.
Thank u dear for ur story... I was diagnosed mg in three months...i got problem in dec and in March i was diagnosed with mg