I am so envious you were able to get an MRI so soon. I have been fighting for an MRI for what feels like forever. I've only just been referred to a neurologist, and god knows how long it will take after reading my referral letter 😞

Thank you for sharing! We’re all here with you. 🧡

Thanks for this video, I was diagnosed 10 years ago and I remember this stuff too! Learning you have MS is terrible and I think you've handled it very well. I've been a self-help group leader back in my city, I was diagnosed while working in Dallas. I love your accent and your attitude towards it all. Congratulations on your engagement, sorry you lost your kitty!

@malakmahrann

Жыл бұрын

thank you so much! definitely takes a lot of mental and physical work lol. hope you’re doing well!

Thank God for that doctor. He possibly saved your eyesight, as well as got infront of a debilitating, crippling disease.

Thank you so much for sharing your diagnosis story! It helps even though I've had MS for over 10 years now. Wishing you all the best & keep going strong, you're amazing!

@malakmahrann

2 жыл бұрын

thank you so much, dominique! your constant support means so much!

I admire and love you Malak, you are so freakin strong for everything you’ve overcome. I can’t imagine going through such a stressful experience, honestly so proud of you and you sharing this is going to help so many people ❤️

@malakmahrann

2 жыл бұрын

Thank you my love 🥺 i appreciate you so much you're the best ❤️ LOVE YOU

Thank you for sharing your story, you are brave young lady to deal with everything you've been dealing with, my hat's off to you. God bless you.

@malakmahrann

Жыл бұрын

thank you so much i really appreciate that!

I can’t even begin to imagine the horror of dealing with that doctor.. it must have been even more overwhelming than you described. You’re really strong for sharing this, I hope it helps people; I know that’s why you’re posting this in the first place ❤️

@malakmahrann

2 жыл бұрын

thanks bro❤️❤️❤️❤️❤️

Been looking for you videos for the longest time! I hope you and your family lol.

Thank you for sharing your story ❤️ it's not an easy thing to go through or go over the experience of everything that comes with it - seriously, thank you. Currently been experiencing the first solid flare-up since my diagnosis and have been nervous of going in. Hearing your experience is helping to give me the courage to go get checked out and see if it's time for DMD's/DMT's. Sending much appreciation and gratitude your way 🤗

@malakmahrann

Жыл бұрын

thank you for being understanding! been receiving some strange comments recently 👀 im glad it’s been helpful in some way. definitely speak to a doctor! knowledge is power 🙏🏼

Thank you for sharing. I was diagnosed 5 years ago but symptoms go back to my mid 20’s. I’m 48 now. Always, always take the best care of yourself. Stay strong.

@malakmahrann

Жыл бұрын

it’s a long long road we got this!

Thank you for sharing this ❤..btw you are so gorgeous!

Wow such a brave and moving story! My heart definitely goes out to you for those inconsiderate doctors who really shouldn't be doctors acting like that to patients, along with the stress you were dealing with. I am in the process of being diagnosed. I'm waiting to see a neurologist on May 18. I have a slew of symptoms (too many to list along with a previous attack in 2016 that a neurologist didn't take seriously) and currently having an attack since March with no break of symptoms. I'm convinced in my heart that I do have MS. I don't know anyone in my family who has it so I'm a bit confused of the cause. I'm a bit scared for the MRI and I have really bad anxiety ( have been hospitalized more than once). My prayers go to you for being a brave warrior and finding the right treatment for you🙏😄

I'm happy to have found your channel ... and great to hear the textures of your story. Crazy disease for sure! Be well

@malakmahrann

Жыл бұрын

thank you so much!!

Thank you for sharing!

Love your attitude!

@malakmahrann

Жыл бұрын

thank you!

Hello Malak, I’d like to thank you so much for sharing your diagnosis story. It’s really unfortunate that you had the experience you did. I’ve been struggling with a number of health issues over the years and can relate. While there are many fantastic Drs out there with great bedside mannerisms, there are also many whom are just the opposite. It makes you wonder why they got into that line of work and have they always been this way? Or did they somehow become desensitized and grumpy over the years and forget the reason they decided to “help” people. Nonetheless, while I’m not glad how you were initially diagnosed and what you were diagnosed with, I am glad you did get a diagnosis and fairly early on. For me it took a number of Drs, tests and quite some time before I was diagnosed w/ Crohn’s (I also have a side of fibromyalgia, osteoarthritis and a couple other issues) which was rather frustrating to say the least. And throughout this experience I met many a cold hearted Dr. As crap as it was to get the news, I was also relieved, yet after all of that I went into a bit of a denial process. I’m happy to say after a few painful years including an emergency bowel resection, almost dying from a massive pulmonary embolism @ 15cm across into both lungs, and yet another resection for a fistula that popped out through my gut, I’m thankful to say I’m still alive and in remission from Crohn’s! While looking through your posts, I noticed you haven’t posted in about a year and I’m hoping that it’s only because life just got too busy for you and not because you’re too unwell to continue with your channel. You have a wonderful way of sharing your experiences and telling your story-I think if you are able to and still interested and willing, you should pick things up where you left off and continue to share your story with us. By now you may have married and if so, congratulations! ❤🎉 I wish you all the best with your health and endeavours. May God continue to bless you in your life. 🙏🏻🫶🏻💖💫

ty for your story ..... its so crazy how apathetic docs can be when it comes to multiple sclerosis as they dont get the satisfaction of saying your better now ..... i like you also dont stand for minimal info .... i need to know i will be fine but i wont if I'm left in the dark it sill make me snap ....... i hope your doing better agebn ty for your story .... me my mom and both my older sisters have ms its a hard road

I was in the ER 2 weeks ago for this stuff. I did a 90 minute MRI for brain and entire spine. I did the spinal tap and a ton of blood tests the next day. The neurologist wanted me to stay for another 5 days to see how I reacted to taking 5 doses of steroids. I had the same reaction and thought it was ridiculous to stay that long but they let me go that night. They said I had dormant demyelination in the brain but active demyelination in the spine. I didn't even know about the o-bands and proteins from the spinal tap until watching this. I'm curious to hear what treatments worked for you. My symptoms are weak legs, numbness on left side, and horrible balance.

Thank you for sharing! I felt the same way . I have NMO & my dad is a doctor too :) Trying to find your medication video & also if you can share how you managed yourself ? like did you seek therapy or any other things to accept this, please do share . Thanks again !

@malakmahrann

Жыл бұрын

I’m in the process of editing my medication video it’ll be up really soon so keep an eye out! I’ll definitely share more on self management as well thank you so much!

Salaam Alaikum sister … I’m in the process of figuring out if I have MS and Ramadan is coming … my doctor and I are kinda worried about fasting this year and if it will make symptoms worse but I don’t have a diagnosis yet … do you have advice for Ramadan and possibly having MS ?

Love your story and personality, my experience is similar I've been diagnosed with the same cold robotic neurologists. I'm still on the fence with any drugs and such. Didn't like the big pharma drug pushers much. Suffering this is so stressful. 😔

@malakmahrann

Жыл бұрын

thank you! it definitely is so stressful but i hope you get some relief soon. Have you given any more thought to treatment?

Sister I had the same experience, I just found out in August that I have this crazy condition too.

Dearest granddaughter I am soooooo proud of you So brave and confident

@malakmahrann

2 жыл бұрын

thank you nani💕 love and miss you

What I would give to be able to get answers in one day. Idc if I have to do 10 MRI’s in a day. Instead people who don’t have connections are getting pushed aside for the doctors relatives. Waiting literal months or years

@malakmahrann

Жыл бұрын

which is why im extremely grateful however you should also consider different countries have different healthcare systems. there’s little to no waiting time here (even without connections or going through the ER) because it’s a government mandate that people with chronic conditions or disabled people get priority in all aspects. very thankful either way.

Wow prayers

I don't think that doctor said anything wrong and he was right about losing ur eyesight seems like u were mad at him because u had to miss work ms isn't a joke u have to be properly treated for it

@malakmahrann

Жыл бұрын

if you paid any attention to what I was saying, you would see that 1) i wasn’t at risk of losing my eyesight because there was nothing wrong with my vision, it was muscular 2) missing work was something irrational i was worried about because im a normal person 3) if i thought MS was a fucking joke i wouldn’t be here making these videos. I am the one with this diagnosis, I am the one undergoing treatment, and I’m the one that has to live with it for the rest of my life. But thanks, Anna 😊😊

@shireenramnarain4005

Жыл бұрын

I agree with u Theres nothing wrong with ur eyesight My son left eyeball sort of moved ... N my husband insisted we take him to a ophthalmologist But i insisted we take him to a neurologist ....who diagnosed him with mystenia Gravis( an autoimmune condition)....a muscular condition Lucky he was on holiday (Dec holiday)from university N docs were on holiday Only saw a specialist in jan ...n had to bear with double vision or loss of normal vision for a mnth .... With proper meds he regained his eyesight in 3 days He continued with studying n now is a qualified pharmacist....

I am waiting for doctors to do MRI with contrast. It's taking so long. I hope you are well. You haven't upload videos in a while. Blessings dear one 🤍

Sameeeee story with MRI!!! Omg i freaked out lol i was given Xanax but didnt take it. I was drained😢

@malakmahrann

Жыл бұрын

that’s exactly it! SO draining 💀

I have the same experiment with a bad doctor 😢😢

are you on a DMT if so what's it called thank you for sharing your story ❤️

@malakmahrann

Жыл бұрын

thank you!! yes im on a DMT called Cladribine I’ll be doing a talk through video on that as well 🥰

@oscarvasquez7408

Жыл бұрын

@@malakmahrann ok thank you god bless you 🙏❤️

MS isn't always a big deal, I've got it and manage quite well without medication. Don't panic if diagnosed please..

@malakmahrann

Жыл бұрын

Totally understand. I’m managing quite well and have put in a lot of work to get here. I think it’s very normal for someone to panic when they get diagnosed with something 😂 and not everyone’s experience is the same!

@JD-jz8vl

Жыл бұрын

Yes that's fair enough, just seems the media put terrible unwarranted fear in people minds about MS

The thousands of people that wish they had a quick diagnosis and you had it and are bratty about SMH.

Its strange sooo good habits n still we get these conditions No alcohol, no drugs, no excessive eating N YET THOSE WHO R DOING THESE THINGS R FREE OF ANY DIEAESE.....

@roleyondawrist3077

Жыл бұрын

That’s gotta tell you something huh

Xx

The doctor was doing his job, you gave that much attitude because of that smh

@malakmahrann

Жыл бұрын

like i said the delivery was wrong and the whole situation was extremely overwhelming. thank you for the irrelevant comment and judgement 😊

@jodiegatz4191

Жыл бұрын

I heard another MS patients story and she did go blind. Even with treatment. I would gladly accept treatment to protect my vision!

@jillbert40

5 ай бұрын

Earlier you said you wanted to know exactly what's up. Then you complain when the doctor told you exactly what was up.

You’re not a doctor. Your dad is, you are not. Your expertise is not medicine and it shows. Up until the tirade I was with you. Maybe in a decade your perspective on this scenario will change. ❤

@malakmahrann

Жыл бұрын

i didn’t say i was a doctor nor do i think i am but thank you for your input

@plex4718

9 ай бұрын

She never said she was a doctor. She’s giving her very VALID personal experience on this. I doubt 10yrs will change anything as it’s others actions not hers. 🤷‍♀️ If those drs has just given her the time to explain things properly she wouldn’t have gotten upset in the first place.

@candicebell8790

9 ай бұрын

How rude are you??? Don’t put words in her mouth there mama🤦‍♀️

early stages of ms, im 61 and alot worse

@pattischmitz2680

8 ай бұрын

What type do you have? Symptoms? If you don’t mind?

She sounds a little extra. God bless you. Your video is not very informative or helpful

Amazing story... a story of determination and faith in God to fighy back Please share the Neurologist name and contact number to help others God bless you