I exercise for fun and health. Here you’ll see me share full workouts with talk throughs, cooking delicious and healthy meals, talking about what it’s like to live with Multiple Sclerosis, and lots of vlogging 🎥
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@malak.msfit
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Is there a reason why there's no update?
I have the same experiment with a bad doctor 😢😢
Thank God for that doctor. He possibly saved your eyesight, as well as got infront of a debilitating, crippling disease.
She sounds a little extra. God bless you. Your video is not very informative or helpful
What is the role of CCSVI Venous Hypertension and proper/improved Cerebrospinal Blood flow?? #CCSVI #BloodFlowMatters CCSVI is definitely one of the causes of MS. The novelty for some years is that we are certain that, after studying at the La Sapienza University of Rome, there are 3 types of CCSVI: * a 1 type with patients suffering from an obstacle to the endovacular venous discharge, i.e. due to congenital or acquired anomalies that restrict and block the drainage of the investigated veins (jugular, vertebral, azygos) * a 2nd type with patients suffering from an extra-vascular venous obstruction, i.e. due to external compression of the vessel * a 3 type with patients suffering from endo-vacular and extra-vascular venous obstruction So to simplify we can say that there is a CCSVI of the "hydraulic" type (1 type), a CCSVI of the "mechanical" type (2 type) and a "mixed" CCSVI of the two previous types (3 type), the 2 and the 3 type represent about 85% of cases. A patient with type 1 CCSVI will have a greater indication for angioplasty treatment, a patient with type 2 CCSVI will have a specific indication for specific physiotherapy decompressive treatment (RIMA Method), a patient with type 3 CCSVI it will have an indication for both an endo-vascular dilatation treatment and an extra-vascular decompression treatment. The RIMA Method devised by Dr. Domenico Ricci of Bari is able to release compressed veins throughout their course, as shown by a publication of June 2015 after a one-year study (Internal jugular Venous Compressione Syndrome: hemodynamic outcomes after cervical vertebral decompression manipulations-Pubmed). For information: Dr. Domenico Ricci cell.3393828399 MRI IN MS VASCULAR PATHOLOGY www.dropbox.com/s/m0yvgmufgfcys1v/MRI%20IN%20MS%20-%20VASCULAR%20PATHOLOGY%20.pdf?dl=0 This quantification of the disease pathology will help! #CCSVI Venous Hypertension >microbleedings >iron >inflammation >free radicals >neurodegeneration #multiplesclerosis M.S. - Mystery Solved Mysterious Autoimmunity = CCSVI Neurodegeneration M.S. - Mystery Solved Mysterious Autoimmunity = CCSVI Neurodegeneration Keep in mind! Also venous hypertension ➡️ impaired CSF absorption ➡️ reduced G Lymphatic drainage ➡️ interstitial peptides accumulation ➡️ NEURO INFLAMMATION #CCSVI Eliminating cause of the Symptoms of so called Multiple Sclerosis will End MS. Apparently it is unquantifiable the length of time Symptom$ can be treated! If you hadn't noticed Who Knew?? #BloodFlowMatters What is the role of proper/improved Blood flow? #CCSVI Apparently #BloodFlowMatters Stroke common occurrence in Individuals diagnosed with Diabetes, unproven autoimmune THEORY so called MS Supplying Oxygen and Nutrients to Cell in a Body. Blood Circulation through and including activity/exercise. Building Blocks of life, having made yourself what you are functioning today! #CCSVI #Healthcare game changer when the cause The doctor of the future will give no medicine, but will interest his patient in the care of the human frame, in diet and in the cause and prevention of disease. -THOMAS EDISON Best possiblity easing/eliminating cause of SymptoMS! You can relate! If your veins are blocked they should be opened if you have SymptoMS or not! MRI IN MS VASCULAR PATHOLOGY www.dropbox.com/s/m0yvgmufgfcys1v/MRI%20IN%20MS%20-%20VASCULAR%20PATHOLOGY%20.pdf?dl=0 Who Knew?? #BloodFlowMatters What is the role of proper/improved Blood flow? #CCSVI Apparently #BloodFlowMatters Stroke is a common occurrence in Individuals diagnosed with Diabetes Neurovascular Disease Multiple Sclerosis is being referred 'slow Stroke'. What is the role of proper/improved Blood flow in both conditions as much CCSVI has been Scientifically confirmed a causative factor in Symptoms of so called MS! Supplying Oxygen and Nutrients to every Cell in a Body. Blood Circulation through and including activity/exercise. Building Blocks of life, having made yourself what you are functioning today! #CCSVI #Healthcare game changer when the cause of the Symptoms of Medical conditions are eliminated! The doctor of the future will give no medicine, but will interest his patient in the care of the human frame, in diet and in the cause and prevention of disease. -THOMAS EDISON Best possiblity easing/eliminating cause of SymptoMS! You can relate! If your veins are blocked they should be opened if you have SymptoMS or not! A Vascular problem led to the crippling nightmare of Multiple Sclerosis The real Multiple Sclerosis nightmare started at the point of NeuroDx The disaster of diagnosis being made by general physical observation over time,. Especially when Time is something you can’t afford #CCSVI Multiple Sclerosis is strong and you often need help. Make you be worthy of this help, don't stand in a corner complaining, do your part! 💪 #Symptoms often ease/DISAPPEAR Facilitate Collaboration Neurovascular Disease Research! #CCSVI FB Group: MSS facebook.com/groups/4939355…! - Silent Ischemia ( Myocardial Ischemia Without Angina ) .. 🫀📚🔍 --------------------------------------------------------------- # The medical definition of silent myocardial ischemia is verified myocardial ischemia without angina. Ischemia is a reduction of oxygen-rich blood supply to the heart muscle. Silent ischemia occurs when the heart temporarily doesn’t receive enough blood (and thus oxygen), but the person with the oxygen-deprivation doesn’t notice any effects. Silent ischemia is related to angina, which is a reduction of oxygen-rich blood in the heart that causes chest pain and other related symptoms ... # Most silent ischemia occurs when one or more coronary arteries are narrowed by plaque. It can also occur when the heart is forced to work harder than normal. People who have diabetes or who have had a heart attack are most likely to develop silent ischemia .. ---------------------------------------------- # Risk factors : - People who are at risk for heart disease and angina are also at risk for silent ischemia. Risk factors include : use 1- Diabetes 2- High blood cholesterol 3- High blood pressure 4- A family history of heart disease 5- Age (after age 45 for men and age 55 for women, risk increases) 6- A sedentary lifestyle 7- Obesity 8- Unmanaged stress -------------------------------------------- # To reduce your risk for silent ischemia, you should reduce your risk for heart disease in general. Here are some things you can do : 1- Stop using tobacco of all kinds - including chewing and smoking tobacco and inhaling significant secondhand smoke . 2- Prevent diabetes or manage it if you have it . 3- Prevent or manage high blood pressure . 4- Prevent or treat high blood cholesterol and triglyceride levels . 5- Exercise regularly (talk to your doctor about what type of exercise is right for you) . 6- If you’re overweight, lose weight; maintain a healthy weight . 7- Eat a heart-healthy diet . 8- Take steps to reduce stress in your life, and learn how to manage stress . 9- See your doctor regularly, have recommended heart screenings, and follow your doctor’s instructions . ------------------------------------------------------ By : Kareem Blinder Reference : www.beaumont.org/conditions/silent-ischemia --------------------------------------------------------------- #coachblinder #blinderpathology #anatomyandphysiology #diabetes #ischemia #سبحانك_لا_علم_لنا_الا_ما_علمتنا
So happens when CCSVI causative factor in the SymptoMS of so called Multiple Sclerosis is treated with Venoplasty Angioplasty. Symptoms of the unproven Autoimmune THEORY MS often Ease/Disappear including Bladder and Bowel issues! #CCSVI Facilitate collaboration in Neurovascular Disease Research!!!
The thousands of people that wish they had a quick diagnosis and you had it and are bratty about SMH.
I am so envious you were able to get an MRI so soon. I have been fighting for an MRI for what feels like forever. I've only just been referred to a neurologist, and god knows how long it will take after reading my referral letter 😞
Salaam Alaikum sister … I’m in the process of figuring out if I have MS and Ramadan is coming … my doctor and I are kinda worried about fasting this year and if it will make symptoms worse but I don’t have a diagnosis yet … do you have advice for Ramadan and possibly having MS ?
Thank you. Very helpful. Not yet diagnosed. I have a lot of symptoms. Had a MRI yesterday. Waiting for the results. Good luck
Great video. For me my vision would get blurry/bright after a shower. As I cooled down my vision would come back. Over year this would happen and off. One morning I woke up and my vision was already blurry so I knew something was wrong. I something was wrong. I spent four days in the hospital. After steroids through IV my vision came back. After MRI and lumbar puncture I was diagnosed with MS. I start Briumvi infusions next week.
Well said. One of the reasons I decided to stay away from social media while going through my major health issues. I have popped back on since but I give myself a time limit and don’t stay on long, or I tend to feel a bit lousy in the end. I would rather meditate, read, go outside or sleep. Self care.
Hello Malak, I’d like to thank you so much for sharing your diagnosis story. It’s really unfortunate that you had the experience you did. I’ve been struggling with a number of health issues over the years and can relate. While there are many fantastic Drs out there with great bedside mannerisms, there are also many whom are just the opposite. It makes you wonder why they got into that line of work and have they always been this way? Or did they somehow become desensitized and grumpy over the years and forget the reason they decided to “help” people. Nonetheless, while I’m not glad how you were initially diagnosed and what you were diagnosed with, I am glad you did get a diagnosis and fairly early on. For me it took a number of Drs, tests and quite some time before I was diagnosed w/ Crohn’s (I also have a side of fibromyalgia, osteoarthritis and a couple other issues) which was rather frustrating to say the least. And throughout this experience I met many a cold hearted Dr. As crap as it was to get the news, I was also relieved, yet after all of that I went into a bit of a denial process. I’m happy to say after a few painful years including an emergency bowel resection, almost dying from a massive pulmonary embolism @ 15cm across into both lungs, and yet another resection for a fistula that popped out through my gut, I’m thankful to say I’m still alive and in remission from Crohn’s! While looking through your posts, I noticed you haven’t posted in about a year and I’m hoping that it’s only because life just got too busy for you and not because you’re too unwell to continue with your channel. You have a wonderful way of sharing your experiences and telling your story-I think if you are able to and still interested and willing, you should pick things up where you left off and continue to share your story with us. By now you may have married and if so, congratulations! ❤🎉 I wish you all the best with your health and endeavours. May God continue to bless you in your life. 🙏🏻🫶🏻💖💫
well said! didn't know about Apple health to track gait issues. that's very useful data
ty for your story ..... its so crazy how apathetic docs can be when it comes to multiple sclerosis as they dont get the satisfaction of saying your better now ..... i like you also dont stand for minimal info .... i need to know i will be fine but i wont if I'm left in the dark it sill make me snap ....... i hope your doing better agebn ty for your story .... me my mom and both my older sisters have ms its a hard road
Xx
My numbness description is the lomb will feel like it's hollow lol I can feel a sensation but it's not the same but not toching it feels hollow and I have tk move it or rub it to try (in vaine) to try and stop it from feeling that way lol
Been looking for you videos for the longest time! I hope you and your family lol.
Ms also causes me to wear a stupid scarf on my head
Are you driving? I'm newly diagnosed and I have many of the same issues as you. I have a slight sensory issue, but I'm wor😂king on it. I wish people understood how every step is planned
Thank you for sharing! We’re all here with you. 🧡
Thank you for sharing this ❤..btw you are so gorgeous!
I am waiting for doctors to do MRI with contrast. It's taking so long. I hope you are well. You haven't upload videos in a while. Blessings dear one 🤍
Wow prayers
early stages of ms, im 61 and alot worse
What type do you have? Symptoms? If you don’t mind?
Amazing story... a story of determination and faith in God to fighy back Please share the Neurologist name and contact number to help others God bless you
👍😍
Not sure if you still check this or not, but there are cooling caps that people with migraines use. It goes over your head and pulls down over your eyes. Makes you look like batman without the eye holes. It's magic. If i spend time outside for a bit and get DUMB hot, I come in, pull one out of the freezer, and it immediately cools me down. My dear brother is going thru chemo for bladder cancer and he swears by them to help cool off during treatment. Hopes this helps. And bright blessings to you and yours.
Wow such a brave and moving story! My heart definitely goes out to you for those inconsiderate doctors who really shouldn't be doctors acting like that to patients, along with the stress you were dealing with. I am in the process of being diagnosed. I'm waiting to see a neurologist on May 18. I have a slew of symptoms (too many to list along with a previous attack in 2016 that a neurologist didn't take seriously) and currently having an attack since March with no break of symptoms. I'm convinced in my heart that I do have MS. I don't know anyone in my family who has it so I'm a bit confused of the cause. I'm a bit scared for the MRI and I have really bad anxiety ( have been hospitalized more than once). My prayers go to you for being a brave warrior and finding the right treatment for you🙏😄
Thank you 🥰
How’d the mavenclad work for you so far?
video coming very soon!
What I would give to be able to get answers in one day. Idc if I have to do 10 MRI’s in a day. Instead people who don’t have connections are getting pushed aside for the doctors relatives. Waiting literal months or years
which is why im extremely grateful however you should also consider different countries have different healthcare systems. there’s little to no waiting time here (even without connections or going through the ER) because it’s a government mandate that people with chronic conditions or disabled people get priority in all aspects. very thankful either way.
You’re not a doctor. Your dad is, you are not. Your expertise is not medicine and it shows. Up until the tirade I was with you. Maybe in a decade your perspective on this scenario will change. ❤
i didn’t say i was a doctor nor do i think i am but thank you for your input
She never said she was a doctor. She’s giving her very VALID personal experience on this. I doubt 10yrs will change anything as it’s others actions not hers. 🤷♀️ If those drs has just given her the time to explain things properly she wouldn’t have gotten upset in the first place.
How rude are you??? Don’t put words in her mouth there mama🤦♀️
Do u have ringing on the ears ?
I hear beach waves in my ears...
@@glorito6253 Do u have MS ?
@@Skybluewindcool Yes, diagnosed 3 years back. I always had this sound in my left ear but didn't knew it was part of MS. So never told my doctor. Now along with the noise having eye pain too.
@@glorito6253 And Plz tell what are your's overall MS symptomps ?
@@Skybluewindcool Have you been diagnosed?
I'm in Bangkok - arghhhh HEAT!
Brrrrr. Cold
Can you talk about your experience with Mavenclad and how it’s working for you?
i have a video on this coming very soon, so sorry it’s taken so long!
Thank you for sharing!
Love your story and personality, my experience is similar I've been diagnosed with the same cold robotic neurologists. I'm still on the fence with any drugs and such. Didn't like the big pharma drug pushers much. Suffering this is so stressful. 😔
thank you! it definitely is so stressful but i hope you get some relief soon. Have you given any more thought to treatment?
Its strange sooo good habits n still we get these conditions No alcohol, no drugs, no excessive eating N YET THOSE WHO R DOING THESE THINGS R FREE OF ANY DIEAESE.....
That’s gotta tell you something huh
I was in the ER 2 weeks ago for this stuff. I did a 90 minute MRI for brain and entire spine. I did the spinal tap and a ton of blood tests the next day. The neurologist wanted me to stay for another 5 days to see how I reacted to taking 5 doses of steroids. I had the same reaction and thought it was ridiculous to stay that long but they let me go that night. They said I had dormant demyelination in the brain but active demyelination in the spine. I didn't even know about the o-bands and proteins from the spinal tap until watching this. I'm curious to hear what treatments worked for you. My symptoms are weak legs, numbness on left side, and horrible balance.
Hello, How do differentiate MS& Long covid neurological symptoms? I am having tingling in my both hands, feet, and in my face along with tremors. Also the bug crawling sensations in both arms.I had covid in July of this year and this all happened couple months later. Also this vibrating sensations. My doctors are telling me it could be post covid symptoms. But I am not so sure abt it.
See a neurologist and get an MRI
I don't think that doctor said anything wrong and he was right about losing ur eyesight seems like u were mad at him because u had to miss work ms isn't a joke u have to be properly treated for it
if you paid any attention to what I was saying, you would see that 1) i wasn’t at risk of losing my eyesight because there was nothing wrong with my vision, it was muscular 2) missing work was something irrational i was worried about because im a normal person 3) if i thought MS was a fucking joke i wouldn’t be here making these videos. I am the one with this diagnosis, I am the one undergoing treatment, and I’m the one that has to live with it for the rest of my life. But thanks, Anna 😊😊
I agree with u Theres nothing wrong with ur eyesight My son left eyeball sort of moved ... N my husband insisted we take him to a ophthalmologist But i insisted we take him to a neurologist ....who diagnosed him with mystenia Gravis( an autoimmune condition)....a muscular condition Lucky he was on holiday (Dec holiday)from university N docs were on holiday Only saw a specialist in jan ...n had to bear with double vision or loss of normal vision for a mnth .... With proper meds he regained his eyesight in 3 days He continued with studying n now is a qualified pharmacist....
Thank you for sharing your story ❤️ it's not an easy thing to go through or go over the experience of everything that comes with it - seriously, thank you. Currently been experiencing the first solid flare-up since my diagnosis and have been nervous of going in. Hearing your experience is helping to give me the courage to go get checked out and see if it's time for DMD's/DMT's. Sending much appreciation and gratitude your way 🤗
thank you for being understanding! been receiving some strange comments recently 👀 im glad it’s been helpful in some way. definitely speak to a doctor! knowledge is power 🙏🏼
The walking asymmetry thing is crazy. I am not diagnosed. Only suspecting and awaiting my pcp appointment to discuss. My walking asymmetry was high, 10-15 percent around the same times I was having unexplained symptoms. It makes me feel more validated that it wasn’t in my head. I plan to bring this up with my doctor. Thank you.
omg YES seeing it laid out like that feels so validating! i hope you get some answers soon 🙏🏼
The doctor was doing his job, you gave that much attitude because of that smh
like i said the delivery was wrong and the whole situation was extremely overwhelming. thank you for the irrelevant comment and judgement 😊
I heard another MS patients story and she did go blind. Even with treatment. I would gladly accept treatment to protect my vision!
Earlier you said you wanted to know exactly what's up. Then you complain when the doctor told you exactly what was up.
I would like to thank you for posting this video and the great way that you explained everything!! I have not been diagnosed with MS but, I will be tested soon. Have a significant amount of medical history from cancer to simple things. However, your explanation is very similar to what I have been experiencing.
I’m so glad it was helpful! I hope you get some answers soon 💜
I have RRMS for 10+ years now and I really struggle with fatigue and slowed cognitive function. Balance is also a major issue but I'm working on it and strengthening my legs with weight training! Kudos to you for spreading awareness ! More power to you!🫶🏻
go you for working towards getting stronger!
Thank you for sharing. I was diagnosed 5 years ago but symptoms go back to my mid 20’s. I’m 48 now. Always, always take the best care of yourself. Stay strong.
it’s a long long road we got this!
I have a friend who got much worse symptoms like very impaired cognitive functions and motor difficultie.. The worst thing about it is that he doesn't trust anyone bc he was used alot by his family members..they took money assigned for him by the government as disability compensation. He is people pleaser which surrounds him with worst of the worst but I don't advise of anything bc I feel he's being controlled for all of his life and he needs to feel in control he deserves it after all of his suffering 💚
That sounds awful. Hope he's doing well now
nice