just watching this after learning of your passing. Justin if wherever you end up eternally resting you read this I'm full of awe, admiration and gratitude for you and for your unflinching resolve to face your genetic enemy. You are Truly one of the most remarkable men i have ever had the heartbreaking pleasure to read about. I hope you rest in peace and that peace finds its way in the heart of your family and those who loved you.

Hope he finds the cure , his pure passion for this is amazing . Amazing man .

@SoloBench

5 ай бұрын

There is hardly a cure for anything so why would there be a cure for this? People need to stop playing into the hands of the medical industry

It will happen one day soon, we're getting closer and closer to getting the cure. Thanks to scientists and people like Justin.

I have survived 43 years with the ugly thing. Diagnosed in 1978. It has destroyed my arms, hands and shoulders. So far, my speech and swallow are not affected. "Yet,". If I am of any help to you. You can get in touch. Andy McGovern. Longest survivor in the world at the moment. (Since Stephen Hawking passed on)

@fourshore502

3 жыл бұрын

sounds like your upper neurons were largely unaffected then for some reason they seem to be the most important ones since they are in the brain and control speech swallow and legs, the lower are in the spine. any theories to why you made it for so long? i think i have pre-als symptoms now, any advice for me?

@kityumcashcokityumcashco5740

3 жыл бұрын

Amazing!

@jimmiehines6563

Жыл бұрын

Curagious .

@jimmiehines6563

Жыл бұрын

Are you on a vent

@narellepipes927

9 ай бұрын

Hi how are you what are you doing that helped

What a wonderful man and family. So heartbreaking 💔

Hello from London, UK. An amazing man.... And I was so impressed by his Professor-Neurologist and his use of 'everyday' language about the progression and severity of the disease! My own brother-in-law is not suffering from Lower MND and the changes have been quick and life-changing. I applaud all the Researchers, Doctors and Micro-Biologists committed to finding a cure.

What a wonderful human being. RIP Julian

@Marc-io8qm

11 ай бұрын

It’s Justin

I lost my nephew recently due to rapid deterioration on MND. It was very sudden because of Cardiac arrest leading to brain damage. Very deadly disease. Justin's story is very inspiring to read more about this deadly disease.

What a brave man he is... Amazing Justin.

Oh dear may the cure be found

Get behind this effort for the cure.We have to find it.We are losing too many people.

Much respect Justin. Cruel disease. I hope you’re resting peacefully.

Justin, I hope you were able to achieve what you had set out to do. MND is an absolute shit-disease, and while you were able to fend it off for quite a while finally it got you. Your courage, your enthusiasm for your research, and your indomitable spirit are your legacy for your team and will inspire them to continue your great work. You were and are a most remarkable man; fly high, and wherever you are please rest easy. Love, peace and hope for you wife, your children, and your extended family.

I knew little about MND. I am aware now, and will contribute what I can to help find a cure. Professor Rowe explained it perfectly. The puppet imagery was visceral so I won't forget.

@fourshore502

3 жыл бұрын

thx. how is it going so far?

@jimmiehines6563

Жыл бұрын

Actually everones mnd is different

Vale Professor Justin Yerbury

A Great man !

An inspirational man!

RIP Justin.😢

You champion Justin - you still have an amazing life x

I didn't want to open the comment section, to read that he have passed away 😢😢😢. I can't afford to know that we lost a good man by this tormenting disease. Lord help Justin save other families please.

Someone said this was the 7th worst disease in the world, but I can't think of a worse one.

@californiadoll6273

2 жыл бұрын

Just because this 1 is bad, doesn't mean it's the worst. There's other's way worst. There's 1 disease in particular that can't be tested for because there's no way to test it but people that suffer from it will get full body burn pain, described as being burned alive. The disease is so bad that everyone that's suffered from it has taken their own life due to there being no way to treat the pain of being boiled alive. (I forgot the disease name but im sure you can easily find it)

@mark-ish

11 ай бұрын

​@@californiadoll6273nope, it's just you who "knows it".

What a brave family people think they have probkems. This family had no choice but face MND head on brave and Amazing .

I’m a chronic pain patient who cried this morning over my constant pain but it’s not lethal. I want to take those tears back. Who the hell am I with my little nerve disease?

What an Amazing Scientist!

...Cu ATSM: what is happening with this drug right now (2020) and how can I get someone on a trial.

What a great human being, please read revelation 21:3,4, as this is a comfort to me that things that we as humans suffer, sickness and death will not always be.💖

RIP

my father identified with MND

@fourshore502

3 жыл бұрын

stay strong, a lot of positive stuff happening right now!

@SanPot123

2 жыл бұрын

My father too :(

@amberlynn8591

Жыл бұрын

@@SanPot123 I am so sorry, how is your father doing?

OMG, horrible disease, if u have a dog or cat or any animal sick like that, u would eutanise it. Why do they let human to suffer that much. It's horrendous even to watch

Is Justin still alive

I am so confused by this I’ve never heard of this in the US is it the same as ALS?

@ramachandransankar750

4 жыл бұрын

Yes,ALS and MND are interchangeably used

@Chad121130

4 жыл бұрын

Ramachandran Sankararaman thank you

@karnemelk66

3 жыл бұрын

ALS is subtype of motor neuron disease.

@jimmiehines6563

Жыл бұрын

We R aye stupid worthless people in the Unized stats

Would AI make a difference in these treatment-elusive illnesses?

@aliciam6725

2 ай бұрын

If that’s a stupid question I apologise. It’s a genuine question - genuinely stupid question?

@DrumsBah

2 ай бұрын

​@aliciam6725 I have expertise in AI but not neuroscience. I lost my father to MND. There is a possibility for AI, more formally Machine Learning and Deep Learning to assist in this space, indeed it already is. The biggest challenge is that these techniques thrive on data and MND, compared to other neurological conditions, is relatively sparse in data. But this is improving over time! Expect drug discovery and gene detection being low hanging fruit for these techniques, as well as using AI for earlier assisted diagnosis (critically important in MND) as well as the numerous ways that AI can assist patients with loss of function (e.g predictive text, speech to text, predictive sensors etc.)

Why on earth would she have the gene when she's not genetically related to him

@DrumsBah

2 ай бұрын

What are you talking about? That's literally his biological sister who was worried.

Maybe someone like Elon Musk could fund something useful like research into treating and perhaps curing diseases rather than shooting rockets into space.

@michaelgann8070

9 ай бұрын

Justin is a legend. I had him in my class in Yr.7 in 1986. I left that school at the end of '86 to go to Newcastle Uni. I never forgot this mature, tallish year 7 kid who spoke to me about basketball. I went to his funeral at Wollongong Uni and bought his book. A fantastic read.

🙏🫶🏻

RIP