Anna's Motor Neurone Disease (MND) Story
Produced by Exponline Official
Directed by Tomas Gonzalez
Editorial by Natalia Lizama
Social: / exponlineofficial
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MND SA in South Australia, Australia
Laurel Hospice at the Flinders Medical Centre in South Australia, Australia
In the simplest terms, MND attacks and kills the motor nerve cells within the brain and spinal cord, essentially destroying the means by which messages from the brain and spine are sent to control all the body’s voluntary muscles. When they are gone, the muscles waste away and die, taking with them the ability to move forever.
The disease marches on, trapping the sufferer within his or her own body, until the muscles that control breathing die, leading to a gradual suffocation and ultimately respiratory failure and death.
MND is uncommon but not rare. Recent statistics estimate there are approximately 2,200 people in Australia currently diagnosed with MND. 400 new cases are diagnosed each year and the average age of onset is 50 years old.
Пікірлер: 170
In sickness and in health... in the face of such a cruel disease, he personifies a real man.
@lafaynecallahan7189
4 ай бұрын
Yes very much!!❤❤❤
This husband is an inspiration to every human being. A man of character and integrity.
You can tell he loves this woman unconditionally. What a cruel disease!
Rest In Peace Anna, no longer suffering, whole again, Anna's sunset was on December 16, 2020, what a beautiful family!
@GEC416
7 ай бұрын
so sad she is gone but so happy she is in heaven, healthy and happy where one day her whole family will be reunited. I cried and cried during this video to see how much love and care he husband gave her. Wow he had so many responsibilities to take do each day. Amazing man for sure!
Rest In Peace Anna… She left this earth December 16, 2020… Fly High beautiful lady… 🤍 🕊
What a lovely, caring husband.
The love shared between this husband and wife is like no other. They way he tenderly touches her and cares for her is beyond any words can express. Thank you for sharing your journey.
The poor woman. Her husband is amazing. An angel who walks amongst us all. Motor Neurone is such a cruel disease, one of the worst. I just hope and pray a cure is found soon. 🙏❤️🙏
@judithwerner5301
Жыл бұрын
Yes, her husband really loves her. Motor Neurone Disease is beyond awful. I pray for a successful treatment.
@muggz73
Жыл бұрын
He is definitely an angel. Please God find a cure for this disease 😢
What dedication this man is to his wife. Unbelievable support and love for his wife. An awesome husband and father.
I'm so sorry for your loss. You treated Anna with dignity, patience, kindness and above all else, love.
What a wonderful husband and s wonderful family ⭐☘💔❤
His dedication is incredible to see.
What happens to people who don't have a loving family supporting them? Blessings to this family. 🙏
Anna's husband's care and love he gave to his beautiful wife brought tears to my eyes. Caring for a loved one is a tough role but he is awesome. Sorry to read through the comments that Anna passed away from this cruel disease but better care she could not have wished for. This was a couple that took their vows seriously and stuck to them.
My mum had MND progressive bulbar palsy she also enjoyed a drink, she would have a glass of port in her ‘peg’ when we had our ‘happy hour’ at 5. I bought some prawns for her to taste in her mouth. She to would not let this disease get her down. We would chat on my kids doodle’ board. We would laugh when she forgot how to spell some words. I had to guess what she wanted to say one day and I got it all wrong and she laughed so hard. 💕
Seeing this small film of Anna and her family made me happy, seeing the love in this family. My own problems seemed futile. Best wishes from Sweden 🇸🇪
@mauramcferran2612
10 ай бұрын
I didn't feel like that . I wudent want to Live like that I'd want my life ended . No quality of life .most humane thing is to help loved one die peaceful with dignity . To me was so cruel to watch her suffering 💔😥 xo thankfully she is at peace now 🙏
No one should have to live that way. That said the power of family is never to be underestimated.
This family is truly extraordinary. What a truly touching love story, not just between the husband and wife but also their kids. This is the real thing!! The way he cares for his wife is just so tender and gentle, and the kids support for their mother is wonderful to see. This is an awful disease, and they are handling it so incredibly. I don't know where they get their strength from, but thank you for sharing this story and touching my heart.
In sickness and in health. I salute you both for honouring your beautiful commitment to one another. Much 💕 and hugs
Such a strong woman and a very strong husband! They truly show what unconditional love is! Stay strong!!
What a Amazing husband he is ! He truly loves his wife which is all you can ask for . His full dedication to caring for her is beyond amazing . He is a Angel .
Hubby is a very competent allround nurse
Very touching. You should be very proud of yourself. Your love and care for your wife and is nothing short of admirable.
What a wonderful man. My sister in-law has ALS . My brother her husband takes care of her. They have been together for 34 years. They have so much love for each other. My brother will always be by her side. She is on ventilator 24/7. Thank you for your story. God bless you
@flowergirlabc123
Жыл бұрын
He's an absolute treasure. Not many husbands would do this for their wives. ❤️
I have been watching your story for several times and each time, I can not hold back my tears 😭 . What a beautiful family and an inspirational story. Thank you for sharing and showing to the world that love and care is the best medicine ever 💖💖💖
What an amazing husband an family you our. I’m currently going through this with my mum and it’s the same type of MND, your video has helped me in many ways. You have given me insight into ways I can make her more comfortable thank you.
Really pulls at your heart strings. The care for her is amazing.
She's got a great family, I wish her well.
Ah bless the husband that is what you called for better or for worse.
Anna's husband is amazing. So lovable, so caring.
Anna is so beautiful and the husband is like an angel on earth. The kids are amazing...my kids hate anything that remotely looks like a sickness....if I were to become ill, they would barely visit. I love this family!
@jeffnagata416
3 жыл бұрын
I'm healthy and we never argue and they still don't visit.
@RAINYDAYS00505
3 жыл бұрын
@@jeffnagata416 :(
@lynnewayne6898
Жыл бұрын
You have to say you never know. When really faced with serious illness it can change an awful lot of attitudes. If it comes to the point where children (however old they may be) realise they really could lose you, their mother, you could be surprised. But let's hope you never have to find out!
What a great husband and beautiful family god bless them 🙏🙏🙏🙏🙏🙏🙏
How beautiful is all the support Anna is receiving 💖. Her husband is a gem. You can tell that they’re a very loving family. Love to you all from USA💖💖💖💖💖
I found out she just passed away recently. Rip anna no more pain your an angel now. Condolances to her family. 🌹 🌹 🌹
This man is an absolute inspiration. I’m so sorry what your family has had to go through. Xxxx
What a good man!! She’s so lucky to have him. ❤️😘
simply beautiful
This is beautiful. May she rest in peace 🤍🤍🤍🤍
What a hero of a man, it scares me me as I have my own autoimmune issue. This guy is tops and that’s coming from a guy
What an amazing family…God bless you all ❤️
Dear Anna and Scott, our heartfelt thoughts are with you and family and your 3 beautiful children. Thank you for sharing this inspiring and touching video. May you be well and keep up the fighting spirits. Love from The Yeos. 💞
@annapenhall8340
3 жыл бұрын
Thank you for taking the time to watch and your kind words and generosity to the causes. Much appreciated. XX
I am so saddened that this has happened to Anna at such a young age, my age. My mum had bulbar mnd and passed away within 6 months of diagnosis. I feel for you all ☹️
@mariamonteleone255
Жыл бұрын
I'm so sorry for your loss
You both have a beautiful relationship with family and friends, beautiful couple. I love her smile. 👏🏻💜
Thank you Anna’s family for sharing exactly how and what you had to do daily to care for your beautiful Anna. Again, thank you.❤
My brother has been diagnosed having it..I begin caring for him..looking at how this man doing so manythings so amazingly, truly touch my heart deeply. I've got to be strong so I can do my best..
What a beautiful family, so full of love. I am so lucky in having that also, I don’t know what I would ever do without them. Sending you all peace and so much love.
Good on ya. I'm suffering w this type of challenge as well, also 49. Thank you both for sharing your courage!
@scottpenhall9034
3 жыл бұрын
Thank you Trevor. Stay positive.
@leleharrington-perkins7276
2 жыл бұрын
God bless u Trevor. 🙏❤️🤗
An epitome and true to the statement " -,,in sickness and health "😔😪
A perfect portrait of a very strong loving man . Worth his weight in gold. God bless Anna.
Dear Scott, what an inspiration you are as a caregiver for your beautiful wife! My husband and I are beginning this journey together and my hope is that I can be the best caregiver possible for him! Thanks for sharing your story! Praying for you and your family!
@scottpenhall9034
2 жыл бұрын
Hi Linda, thank you for your message. Trust you and your husband are going okay and getting all the help you need. I wish you both the best, stay positive and keep smiling no matter how hard it gets.
I wouldn't want to live like that! My sister had Lewy Bodies Dementia. She had round the clock caregivers in her house in Ridgefield, CT. Her last 3,were in the assisted living facility, The Residence, in Darien, CT. Thks to the medical staff, including care givers and Hospice, who took such great care of my sister. She died peacefully in her sleep on Jan 27, 2021.
What a beautiful reminder in making a video, and the bravery you showed throughout such heartbreak. It really is a shocking illness I pray there be a cure and more is done to investigate why this happens. Sending love, light and healing love.
You sir are a wonderful person! It is such a hard job to do! I know my husband would do the same. Know she is perfect now!
Much respect for this man, and for his wife 😢
What an absolutely beautiful family. Sending love to them.
Thanks for sharing. Your wife is beautiful and you are a great man!
You’re amazing, Anna! What a beautiful life!
My heart breaks watching this, so much love here and so deeply sad. ❤😢xxx sending prayers and love to your family from the UK.
Fibromyalia also, we put through so many tests before final diagnosis. Can take couple of yrs. N I eventually was in denial when I found out especially being so fit n healthy then next have a disease that cripples n changes your life overnight. The meds itself messes us up. The pain n muscle spasms daily especially in winter gets so bad. I can only imagine what MND patience go through. Worst is people don't believe that we have a condition n treat it like a mental problem which can easily be erased. Thank God for Annas husband support
@mzgg9826
3 жыл бұрын
MND has a life expectancy of about 27 months from the time of diagnosis. I empathize with you having fibromyalgia, but fibromyalgia is not a terminal disease. Still, I hope you can find comfort.
@reidchambers2521
3 жыл бұрын
I have fibromyalgia. Comparing the two is insane. The fact that you are able to type this comment shows how much less serious fibro is.This isn't about you. Pathetic.
@AafiasNaani22
Жыл бұрын
Why are you comparing fibromyalgia and mnd in the same breath the video is about Anna and her family not about you seriously get a gripand stop being so selfish.
I supported a lovely lady with MND so have a good understanding of Anna and her families struggles. I'm glad to hear she has passed to the next life. Big love to her family and friends, please don't forget there are no goodbyes in this life, it's just cheerio until we meet in the next 💝
Brilliant man! It is sad story but positive and brave! Rest in peace anna
What a man!
Such a moving and inspiring video - thank you to everyone involved in making it. I am so impressed by Anna's positive attitude and Scott's capable and loving care. What a wonderful family.
This is real love!
Such a great love 💕 story!
thanks for sharing your story here. My wife was just diagnosed with PBP and we begin at the early stages with speech and swallow problems.
@annapenhall8340
2 жыл бұрын
Hi Craig, thank you for the message. I wish you and your wife all the best in the challenge ahead. As hard as it is stay positive and keep living life to the max no matter how hard it might get. Happy to chat anytime, please message with an email and I will send you my number. Thanks Scott
this is a beautiful story and all of us have compassion except for the VIOLA person below who is clearly void of any humanity. Boston MIT is close to a cure...
What a lovely family!
What an amazing man!!
New Subscriber here from Amman Jordan Middle East Nice to meet you Anna and Scot I had a friend pass from Motor Neuron Disease It was a relatively slow progressive journey Wishing you all the best
@scottpenhall9034
3 жыл бұрын
Thank you Elizabeth for watching.
This was an awesome video I wasn’t aware of a lot of these things & it shows the everyday life happenings, it’s so great & loving to keep your loved one connected with the family. 🤗🥰.
What a BEAUTIFUL HUSBAND taking charge in helping his ill wife……Most men just can’t or I should say DO not want that responsibility and to see this man doing all and everything for his WIFE…….
The cruelest disease I’ve witnessed in my family.
It makes me super sad families with a sick relative around the world also needs to be ruined when caring for their loved ones.
What a beautiful short film, such a lovely family. May your beautiful Mother and wife be forever remembered in your hearts. Thank you for sharing, sending love, strength and prayers always ❤🙏
Thank you for sharing xx ❤❤
Dear Anna and scott...Scott you have a greatheart...for supporting Anna in that sutation 👍🏻 My family also facing this MND disease from 3-genaration..in my family all are effected..
@harryakki2439
3 жыл бұрын
Am from India please share your contact number....
So sad...so brave her husband
God bless you all. You all showed such strength and love for one another ❤
what an amazing man and children. So much love and devotion
What an amazing gentleman. Such a horrific disease. Xx
This man is amazing!!! As she is also ,beautiful family 🌟
What a man! How he takes care of his beautiful wife. Excellent video
god bless you and your family... this is a devastating disease, and you are one amazing hubby taken care of her so preciously...Cant even understand and hope i never do... but if i do i pray my hubby will take care of me like you did your sweet wife!..
Such a cruel illness and such a caring family
This man is awesome. Ma y others would have run away. God Bless him. This women is very lucky.
I have lost 2 young cousins to this horrible disease it's really heart breaking
That smile is enough for me 🥰🙏🌺
God bless Anna. And what an incredible husband and family xxx
What a beautiful touching, moving, insightful video about Anna and her MND story
@annapenhall8340
3 жыл бұрын
Thank you Helen. XX
Her husband is a top bloke who has faced this with her and as much as he is able to - battled it beside her. Though when she is gone he will experience sadness and perhaps even survivor guilt sometimes. I hope there are people there to remind him what a great job he did.
This husband is living those vows in sickness and in health
The family is inspirational
Wow what. Devoted family💓
I think this is the worst disease ever. Wish they could find a cure or something to really slow it down.
MND and Huntingdon disease are the worst diseases in my view.
Un buen esposo que cuida de su esposa ❤bendiciones
People shud be allowed to get end ther suffering. No animal is left to suffer its heartbreaking that peopke are denied this option xo 😢💔
Oh Anna😢
God bless you all 🥰