Anna's Motor Neurone Disease (MND) Story

Produced by Exponline Official
Directed by Tomas Gonzalez
Editorial by Natalia Lizama
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MND SA in South Australia, Australia
Laurel Hospice at the Flinders Medical Centre in South Australia, Australia
In the simplest terms, MND attacks and kills the motor nerve cells within the brain and spinal cord, essentially destroying the means by which messages from the brain and spine are sent to control all the body’s voluntary muscles. When they are gone, the muscles waste away and die, taking with them the ability to move forever.
The disease marches on, trapping the sufferer within his or her own body, until the muscles that control breathing die, leading to a gradual suffocation and ultimately respiratory failure and death.
MND is uncommon but not rare. Recent statistics estimate there are approximately 2,200 people in Australia currently diagnosed with MND. 400 new cases are diagnosed each year and the average age of onset is 50 years old.

Пікірлер: 170

  • @margepaz
    @margepaz3 жыл бұрын

    In sickness and in health... in the face of such a cruel disease, he personifies a real man.

  • @lafaynecallahan7189

    @lafaynecallahan7189

    4 ай бұрын

    Yes very much!!❤❤❤

  • @gailpool4042
    @gailpool4042 Жыл бұрын

    This husband is an inspiration to every human being. A man of character and integrity.

  • @shelbywilkerson235
    @shelbywilkerson2352 жыл бұрын

    You can tell he loves this woman unconditionally. What a cruel disease!

  • @justelleslife507
    @justelleslife507 Жыл бұрын

    Rest In Peace Anna, no longer suffering, whole again, Anna's sunset was on December 16, 2020, what a beautiful family!

  • @GEC416

    @GEC416

    7 ай бұрын

    so sad she is gone but so happy she is in heaven, healthy and happy where one day her whole family will be reunited. I cried and cried during this video to see how much love and care he husband gave her. Wow he had so many responsibilities to take do each day. Amazing man for sure!

  • @donnahague8983
    @donnahague89832 жыл бұрын

    Rest In Peace Anna… She left this earth December 16, 2020… Fly High beautiful lady… 🤍 🕊

  • @Alskals4133
    @Alskals41333 жыл бұрын

    What a lovely, caring husband.

  • @shernandez2276
    @shernandez22763 жыл бұрын

    The love shared between this husband and wife is like no other. They way he tenderly touches her and cares for her is beyond any words can express. Thank you for sharing your journey.

  • @MegaCaprice123
    @MegaCaprice1233 жыл бұрын

    The poor woman. Her husband is amazing. An angel who walks amongst us all. Motor Neurone is such a cruel disease, one of the worst. I just hope and pray a cure is found soon. 🙏❤️🙏

  • @judithwerner5301

    @judithwerner5301

    Жыл бұрын

    Yes, her husband really loves her. Motor Neurone Disease is beyond awful. I pray for a successful treatment.

  • @muggz73

    @muggz73

    Жыл бұрын

    He is definitely an angel. Please God find a cure for this disease 😢

  • @netehope4162
    @netehope4162 Жыл бұрын

    What dedication this man is to his wife. Unbelievable support and love for his wife. An awesome husband and father.

  • @marilynroberts6644
    @marilynroberts6644 Жыл бұрын

    I'm so sorry for your loss. You treated Anna with dignity, patience, kindness and above all else, love.

  • @dscan5254
    @dscan52543 жыл бұрын

    What a wonderful husband and s wonderful family ⭐☘💔❤

  • @paulinevanderhoff9007
    @paulinevanderhoff90073 жыл бұрын

    His dedication is incredible to see.

  • @rozchristopherson648
    @rozchristopherson6483 жыл бұрын

    What happens to people who don't have a loving family supporting them? Blessings to this family. 🙏

  • @skygazer6898
    @skygazer68982 ай бұрын

    Anna's husband's care and love he gave to his beautiful wife brought tears to my eyes. Caring for a loved one is a tough role but he is awesome. Sorry to read through the comments that Anna passed away from this cruel disease but better care she could not have wished for. This was a couple that took their vows seriously and stuck to them.

  • @joannemccarthy9792
    @joannemccarthy97923 жыл бұрын

    My mum had MND progressive bulbar palsy she also enjoyed a drink, she would have a glass of port in her ‘peg’ when we had our ‘happy hour’ at 5. I bought some prawns for her to taste in her mouth. She to would not let this disease get her down. We would chat on my kids doodle’ board. We would laugh when she forgot how to spell some words. I had to guess what she wanted to say one day and I got it all wrong and she laughed so hard. 💕

  • @martinasikk6162
    @martinasikk6162 Жыл бұрын

    Seeing this small film of Anna and her family made me happy, seeing the love in this family. My own problems seemed futile. Best wishes from Sweden 🇸🇪

  • @mauramcferran2612

    @mauramcferran2612

    10 ай бұрын

    I didn't feel like that . I wudent want to Live like that I'd want my life ended . No quality of life .most humane thing is to help loved one die peaceful with dignity . To me was so cruel to watch her suffering 💔😥 xo thankfully she is at peace now 🙏

  • @starkreactor82
    @starkreactor823 жыл бұрын

    No one should have to live that way. That said the power of family is never to be underestimated.

  • @wendypetersen7529
    @wendypetersen75292 жыл бұрын

    This family is truly extraordinary. What a truly touching love story, not just between the husband and wife but also their kids. This is the real thing!! The way he cares for his wife is just so tender and gentle, and the kids support for their mother is wonderful to see. This is an awful disease, and they are handling it so incredibly. I don't know where they get their strength from, but thank you for sharing this story and touching my heart.

  • @lislenz670
    @lislenz6702 жыл бұрын

    In sickness and in health. I salute you both for honouring your beautiful commitment to one another. Much 💕 and hugs

  • @nataliestaheli51602
    @nataliestaheli516023 жыл бұрын

    Such a strong woman and a very strong husband! They truly show what unconditional love is! Stay strong!!

  • @ajcrum3689
    @ajcrum36893 жыл бұрын

    What a Amazing husband he is ! He truly loves his wife which is all you can ask for . His full dedication to caring for her is beyond amazing . He is a Angel .

  • @cottoncandy4486
    @cottoncandy44863 жыл бұрын

    Hubby is a very competent allround nurse

  • @michellemabell5591
    @michellemabell55913 жыл бұрын

    Very touching. You should be very proud of yourself. Your love and care for your wife and is nothing short of admirable.

  • @jeanalexander4101
    @jeanalexander41013 жыл бұрын

    What a wonderful man. My sister in-law has ALS . My brother her husband takes care of her. They have been together for 34 years. They have so much love for each other. My brother will always be by her side. She is on ventilator 24/7. Thank you for your story. God bless you

  • @flowergirlabc123

    @flowergirlabc123

    Жыл бұрын

    He's an absolute treasure. Not many husbands would do this for their wives. ❤️

  • @amypham3343
    @amypham33432 жыл бұрын

    I have been watching your story for several times and each time, I can not hold back my tears 😭 . What a beautiful family and an inspirational story. Thank you for sharing and showing to the world that love and care is the best medicine ever 💖💖💖

  • @yhkshsjd_plays1569
    @yhkshsjd_plays15697 ай бұрын

    What an amazing husband an family you our. I’m currently going through this with my mum and it’s the same type of MND, your video has helped me in many ways. You have given me insight into ways I can make her more comfortable thank you.

  • @sharonkostiuk3011
    @sharonkostiuk30113 жыл бұрын

    Really pulls at your heart strings. The care for her is amazing.

  • @MegaMusical10
    @MegaMusical103 жыл бұрын

    She's got a great family, I wish her well.

  • @coratheexplorer1824
    @coratheexplorer18243 жыл бұрын

    Ah bless the husband that is what you called for better or for worse.

  • @yossiarias6791
    @yossiarias6791 Жыл бұрын

    Anna's husband is amazing. So lovable, so caring.

  • @RAINYDAYS00505
    @RAINYDAYS005053 жыл бұрын

    Anna is so beautiful and the husband is like an angel on earth. The kids are amazing...my kids hate anything that remotely looks like a sickness....if I were to become ill, they would barely visit. I love this family!

  • @jeffnagata416

    @jeffnagata416

    3 жыл бұрын

    I'm healthy and we never argue and they still don't visit.

  • @RAINYDAYS00505

    @RAINYDAYS00505

    3 жыл бұрын

    @@jeffnagata416 :(

  • @lynnewayne6898

    @lynnewayne6898

    Жыл бұрын

    You have to say you never know. When really faced with serious illness it can change an awful lot of attitudes. If it comes to the point where children (however old they may be) realise they really could lose you, their mother, you could be surprised. But let's hope you never have to find out!

  • @romeomarks8344
    @romeomarks83442 жыл бұрын

    What a great husband and beautiful family god bless them 🙏🙏🙏🙏🙏🙏🙏

  • @dianeellis3925
    @dianeellis39253 жыл бұрын

    How beautiful is all the support Anna is receiving 💖. Her husband is a gem. You can tell that they’re a very loving family. Love to you all from USA💖💖💖💖💖

  • @dianeostertag244
    @dianeostertag2442 жыл бұрын

    I found out she just passed away recently. Rip anna no more pain your an angel now. Condolances to her family. 🌹 🌹 🌹

  • @charlottetaylor590
    @charlottetaylor590 Жыл бұрын

    This man is an absolute inspiration. I’m so sorry what your family has had to go through. Xxxx

  • @natalietaylor9848
    @natalietaylor9848 Жыл бұрын

    What a good man!! She’s so lucky to have him. ❤️😘

  • @sevhall6773
    @sevhall67733 жыл бұрын

    simply beautiful

  • @conniebeauchamp3217
    @conniebeauchamp32172 жыл бұрын

    This is beautiful. May she rest in peace 🤍🤍🤍🤍

  • @raymondswan219
    @raymondswan2192 ай бұрын

    What a hero of a man, it scares me me as I have my own autoimmune issue. This guy is tops and that’s coming from a guy

  • @rhianyddgarrod2113
    @rhianyddgarrod21132 жыл бұрын

    What an amazing family…God bless you all ❤️

  • @meisien88
    @meisien883 жыл бұрын

    Dear Anna and Scott, our heartfelt thoughts are with you and family and your 3 beautiful children. Thank you for sharing this inspiring and touching video. May you be well and keep up the fighting spirits. Love from The Yeos. 💞

  • @annapenhall8340

    @annapenhall8340

    3 жыл бұрын

    Thank you for taking the time to watch and your kind words and generosity to the causes. Much appreciated. XX

  • @kelliedownes6420
    @kelliedownes64203 жыл бұрын

    I am so saddened that this has happened to Anna at such a young age, my age. My mum had bulbar mnd and passed away within 6 months of diagnosis. I feel for you all ☹️

  • @mariamonteleone255

    @mariamonteleone255

    Жыл бұрын

    I'm so sorry for your loss

  • @pennyrose3882
    @pennyrose38823 жыл бұрын

    You both have a beautiful relationship with family and friends, beautiful couple. I love her smile. 👏🏻💜

  • @iloveshaakah
    @iloveshaakah Жыл бұрын

    Thank you Anna’s family for sharing exactly how and what you had to do daily to care for your beautiful Anna. Again, thank you.❤

  • @damayanti3231
    @damayanti3231 Жыл бұрын

    My brother has been diagnosed having it..I begin caring for him..looking at how this man doing so manythings so amazingly, truly touch my heart deeply. I've got to be strong so I can do my best..

  • @karenglenn6707
    @karenglenn67072 жыл бұрын

    What a beautiful family, so full of love. I am so lucky in having that also, I don’t know what I would ever do without them. Sending you all peace and so much love.

  • @thitchin
    @thitchin3 жыл бұрын

    Good on ya. I'm suffering w this type of challenge as well, also 49. Thank you both for sharing your courage!

  • @scottpenhall9034

    @scottpenhall9034

    3 жыл бұрын

    Thank you Trevor. Stay positive.

  • @leleharrington-perkins7276

    @leleharrington-perkins7276

    2 жыл бұрын

    God bless u Trevor. 🙏❤️🤗

  • @Sufisticated4U
    @Sufisticated4U2 жыл бұрын

    An epitome and true to the statement " -,,in sickness and health "😔😪

  • @susanreeder3435
    @susanreeder34354 ай бұрын

    A perfect portrait of a very strong loving man . Worth his weight in gold. God bless Anna.

  • @lindamadden2812
    @lindamadden28122 жыл бұрын

    Dear Scott, what an inspiration you are as a caregiver for your beautiful wife! My husband and I are beginning this journey together and my hope is that I can be the best caregiver possible for him! Thanks for sharing your story! Praying for you and your family!

  • @scottpenhall9034

    @scottpenhall9034

    2 жыл бұрын

    Hi Linda, thank you for your message. Trust you and your husband are going okay and getting all the help you need. I wish you both the best, stay positive and keep smiling no matter how hard it gets.

  • @sallyclay1974
    @sallyclay19743 жыл бұрын

    I wouldn't want to live like that! My sister had Lewy Bodies Dementia. She had round the clock caregivers in her house in Ridgefield, CT. Her last 3,were in the assisted living facility, The Residence, in Darien, CT. Thks to the medical staff, including care givers and Hospice, who took such great care of my sister. She died peacefully in her sleep on Jan 27, 2021.

  • @keliusher-holmes2165
    @keliusher-holmes2165 Жыл бұрын

    What a beautiful reminder in making a video, and the bravery you showed throughout such heartbreak. It really is a shocking illness I pray there be a cure and more is done to investigate why this happens. Sending love, light and healing love.

  • @mechellewinslow65
    @mechellewinslow653 жыл бұрын

    You sir are a wonderful person! It is such a hard job to do! I know my husband would do the same. Know she is perfect now!

  • @Joseph-mu1ng
    @Joseph-mu1ngАй бұрын

    Much respect for this man, and for his wife 😢

  • @salihughes
    @salihughes Жыл бұрын

    What an absolutely beautiful family. Sending love to them.

  • @georgiabelle5176
    @georgiabelle51763 жыл бұрын

    Thanks for sharing. Your wife is beautiful and you are a great man!

  • @kbellmurray
    @kbellmurray3 жыл бұрын

    You’re amazing, Anna! What a beautiful life!

  • @edwardferry8247
    @edwardferry82473 ай бұрын

    My heart breaks watching this, so much love here and so deeply sad. ❤😢xxx sending prayers and love to your family from the UK.

  • @mobalance4736
    @mobalance47363 жыл бұрын

    Fibromyalia also, we put through so many tests before final diagnosis. Can take couple of yrs. N I eventually was in denial when I found out especially being so fit n healthy then next have a disease that cripples n changes your life overnight. The meds itself messes us up. The pain n muscle spasms daily especially in winter gets so bad. I can only imagine what MND patience go through. Worst is people don't believe that we have a condition n treat it like a mental problem which can easily be erased. Thank God for Annas husband support

  • @mzgg9826

    @mzgg9826

    3 жыл бұрын

    MND has a life expectancy of about 27 months from the time of diagnosis. I empathize with you having fibromyalgia, but fibromyalgia is not a terminal disease. Still, I hope you can find comfort.

  • @reidchambers2521

    @reidchambers2521

    3 жыл бұрын

    I have fibromyalgia. Comparing the two is insane. The fact that you are able to type this comment shows how much less serious fibro is.This isn't about you. Pathetic.

  • @AafiasNaani22

    @AafiasNaani22

    Жыл бұрын

    Why are you comparing fibromyalgia and mnd in the same breath the video is about Anna and her family not about you seriously get a gripand stop being so selfish.

  • @racheljones9786
    @racheljones9786 Жыл бұрын

    I supported a lovely lady with MND so have a good understanding of Anna and her families struggles. I'm glad to hear she has passed to the next life. Big love to her family and friends, please don't forget there are no goodbyes in this life, it's just cheerio until we meet in the next 💝

  • @joannaarmstrong2621
    @joannaarmstrong2621 Жыл бұрын

    Brilliant man! It is sad story but positive and brave! Rest in peace anna

  • @simonebarnett1896
    @simonebarnett18963 жыл бұрын

    What a man!

  • @robintreloar2379
    @robintreloar23793 жыл бұрын

    Such a moving and inspiring video - thank you to everyone involved in making it. I am so impressed by Anna's positive attitude and Scott's capable and loving care. What a wonderful family.

  • @annelidupreez3161
    @annelidupreez31613 жыл бұрын

    This is real love!

  • @im2cuteferu
    @im2cuteferu3 жыл бұрын

    Such a great love 💕 story!

  • @craigsmith9103
    @craigsmith91032 жыл бұрын

    thanks for sharing your story here. My wife was just diagnosed with PBP and we begin at the early stages with speech and swallow problems.

  • @annapenhall8340

    @annapenhall8340

    2 жыл бұрын

    Hi Craig, thank you for the message. I wish you and your wife all the best in the challenge ahead. As hard as it is stay positive and keep living life to the max no matter how hard it might get. Happy to chat anytime, please message with an email and I will send you my number. Thanks Scott

  • @annalore5513
    @annalore55133 жыл бұрын

    this is a beautiful story and all of us have compassion except for the VIOLA person below who is clearly void of any humanity. Boston MIT is close to a cure...

  • @clairebear1808
    @clairebear1808 Жыл бұрын

    What a lovely family!

  • @christiehicks11022
    @christiehicks110223 жыл бұрын

    What an amazing man!!

  • @elizabethconroy7665
    @elizabethconroy76653 жыл бұрын

    New Subscriber here from Amman Jordan Middle East Nice to meet you Anna and Scot I had a friend pass from Motor Neuron Disease It was a relatively slow progressive journey Wishing you all the best

  • @scottpenhall9034

    @scottpenhall9034

    3 жыл бұрын

    Thank you Elizabeth for watching.

  • @keithwallace9746
    @keithwallace97462 жыл бұрын

    This was an awesome video I wasn’t aware of a lot of these things & it shows the everyday life happenings, it’s so great & loving to keep your loved one connected with the family. 🤗🥰.

  • @deefitzgerald2906
    @deefitzgerald29062 жыл бұрын

    What a BEAUTIFUL HUSBAND taking charge in helping his ill wife……Most men just can’t or I should say DO not want that responsibility and to see this man doing all and everything for his WIFE…….

  • @user-vy4kh6jk1t
    @user-vy4kh6jk1tАй бұрын

    The cruelest disease I’ve witnessed in my family.

  • @BosisofSweden
    @BosisofSweden9 ай бұрын

    It makes me super sad families with a sick relative around the world also needs to be ruined when caring for their loved ones.

  • @anniewhiley5481
    @anniewhiley5481 Жыл бұрын

    What a beautiful short film, such a lovely family. May your beautiful Mother and wife be forever remembered in your hearts. Thank you for sharing, sending love, strength and prayers always ❤🙏

  • @fudge9262
    @fudge92623 ай бұрын

    Thank you for sharing xx ❤❤

  • @harryakki2439
    @harryakki24393 жыл бұрын

    Dear Anna and scott...Scott you have a greatheart...for supporting Anna in that sutation 👍🏻 My family also facing this MND disease from 3-genaration..in my family all are effected..

  • @harryakki2439

    @harryakki2439

    3 жыл бұрын

    Am from India please share your contact number....

  • @aislingconnolly5823
    @aislingconnolly58233 жыл бұрын

    So sad...so brave her husband

  • @markwall330
    @markwall330 Жыл бұрын

    God bless you all. You all showed such strength and love for one another ❤

  • @jennypalmer331
    @jennypalmer331 Жыл бұрын

    what an amazing man and children. So much love and devotion

  • @ann-mariebaker118
    @ann-mariebaker1182 жыл бұрын

    What an amazing gentleman. Such a horrific disease. Xx

  • @beth6288
    @beth6288 Жыл бұрын

    This man is amazing!!! As she is also ,beautiful family 🌟

  • @dianasmith725
    @dianasmith7252 жыл бұрын

    What a man! How he takes care of his beautiful wife. Excellent video

  • @lyndajones6605
    @lyndajones6605 Жыл бұрын

    god bless you and your family... this is a devastating disease, and you are one amazing hubby taken care of her so preciously...Cant even understand and hope i never do... but if i do i pray my hubby will take care of me like you did your sweet wife!..

  • @juliestevenson9151
    @juliestevenson9151 Жыл бұрын

    Such a cruel illness and such a caring family

  • @angelikabertrand4045
    @angelikabertrand4045 Жыл бұрын

    This man is awesome. Ma y others would have run away. God Bless him. This women is very lucky.

  • @lesley.brennan10
    @lesley.brennan10 Жыл бұрын

    I have lost 2 young cousins to this horrible disease it's really heart breaking

  • @zentafergiefergie7044
    @zentafergiefergie7044 Жыл бұрын

    That smile is enough for me 🥰🙏🌺

  • @maxineholden9761
    @maxineholden9761 Жыл бұрын

    God bless Anna. And what an incredible husband and family xxx

  • @helenricetennisschool9135
    @helenricetennisschool91353 жыл бұрын

    What a beautiful touching, moving, insightful video about Anna and her MND story

  • @annapenhall8340

    @annapenhall8340

    3 жыл бұрын

    Thank you Helen. XX

  • @Parasmunt
    @Parasmunt Жыл бұрын

    Her husband is a top bloke who has faced this with her and as much as he is able to - battled it beside her. Though when she is gone he will experience sadness and perhaps even survivor guilt sometimes. I hope there are people there to remind him what a great job he did.

  • @tictocfunny_videos3547
    @tictocfunny_videos3547 Жыл бұрын

    This husband is living those vows in sickness and in health

  • @annmccluskey7849
    @annmccluskey7849 Жыл бұрын

    The family is inspirational

  • @louiseburt7588
    @louiseburt75882 жыл бұрын

    Wow what. Devoted family💓

  • @pam164
    @pam1643 жыл бұрын

    I think this is the worst disease ever. Wish they could find a cure or something to really slow it down.

  • @vickimarlene4905
    @vickimarlene4905 Жыл бұрын

    MND and Huntingdon disease are the worst diseases in my view.

  • @marthabonilla7673
    @marthabonilla7673 Жыл бұрын

    Un buen esposo que cuida de su esposa ❤bendiciones

  • @mauramcferran2612
    @mauramcferran261210 ай бұрын

    People shud be allowed to get end ther suffering. No animal is left to suffer its heartbreaking that peopke are denied this option xo 😢💔

  • @sallyfoley5242
    @sallyfoley5242 Жыл бұрын

    Oh Anna😢

  • @rogerward3390
    @rogerward33902 жыл бұрын

    God bless you all 🥰