I had a similar experience, Ben. I had ET for at least 7 years before being diagnosed with MF. I had to do a self-referral to receive both diagnoses. Self-advocacy and lots of research have been key for me too. Best wishes to you. My husband and I are farmers, too.

🙏 ❤️ 🙏 For You Always & Forever

“Deal with it!” I would think since he had cancer before they would be more aggressive the next time around.

@Ceerads

24 күн бұрын

I thought that, too.

I am still seeking a diagnosis after more than 3 years. I suddenly, and I mean very suddenly became completely incontinent in 2021 when all of this really took a bad turn. I was 36 at the time and the urologist I saw said "Well you're very young for this. How do you feel about wearing Depends?" I told him I'd prefer to just figure out why and surprise....3 years later I still don't know why and I'm still incontinent among many many many other things. I hate the medical system.

@bethann3016

25 күн бұрын

Do you have back problems?

@lorraineophoff4984

25 күн бұрын

I became incontinent when in my. Late 50’s, no doctor has said a word about it when I told him. Just totally dismissed it…. Have you ever gotten any answer for cause or correction?

@RustyShakleford1

18 күн бұрын

Try purchasing your own antibiotics do a 1 month course see if any changes. You may have a mycobacterial infection almost impossible to diagnose

@user-sp8lf3kq1x

17 күн бұрын

How sad!!! Keep advocating and try other docs. I am so very sorry!! Prayers for you!!!

@nichellehowell

17 күн бұрын

Have you tried d-mannose?

Deal with it, what a disgusting way to treat another human being , Doctor or no Doctor , what right does anyone have to treat someone so horribly. I had a doctor slam her stethescope down on her desk and yell at me to shut up and just accept what she was telling me, wasn't long after that incident she had a Nervous Breakdown and lost her position. Made me think about how rotten she had treated me, she was suffering inside her own self and here she was yelling at me to just accept what she was trying to convince me of regarding my symptoms?

Thank you for your information. I wish you all the best. Beautiful cow!

There are tremendous resources available to the people who have money. I go to the v.a. and they gaslight me. My mom had cervical cancer, i had an abnormal pap in 2013 or 2014 and the v.a. refused to get me a second pap appointment. Now i am tired all the time, I've had a low grade fever since April 5th and when i go to the v.a. (went to community care appointment then to the Denver rocky mountain regional v.a. clinic) both refused to speak to me about the low grade fever and BOTH directed me to the mental health department, one prescribed antidepressants. Still tired, still have a low grade fever. So now if i go to the dr, it's not the v.a. which means $$$$$$$$$$$$$$$$ that we don't have. Good thing I believe The Holy Spirit when He said that to die is gain!💜💚🧡🧡🎉🎉🎉🎉🎉🎉🎉🎉

Thank you great info.. just been diagnosed with ET and have appointments with hematologist next week. My question to you how do I go about finding an MPN specialist? Is there an organization that lists them in each state? Thanks Again Carole

Deal with it, deal with it? WTH.

Mycobacterium bovis......hes literally taking pictures with cows...the medical system has failed us to protect itself from lawsuits

How high were your platelets when you had a bone marrow biopsy the first time?

Don’t worry guys, karma is coming, it never fails! Ben, I wish you the best, you will be in my prayers.

What is ET?

@allieb1621

25 күн бұрын

Essential thrombocythemia