The father is so brave many men run away.

What courage these parents have,just young people whose child has a devastating disability,my heart and my respect goes out to them.

My niece Kiera Collins had CDKL5 as well. Stay connected to the groups. They will be a God send. Praying for your family.

I really feel for you, we lost my son Marley to CDKL5 5 years ago. Man what a battle these young kids and families go through. Marley was a blessing to us, in reality it made us stronger as a family, we miss him dearly and would not give up the time we had with him for anything. Stay strong!!!

To this amazing couple you are not alone. To all families with children affected by any type of challenges, look after yourselves emotionally, spiritually and mentally.

Such a brave father and family. Love you Tanner. You are in my prayers from now on.

God bless you and your family love 💕 to you both from Australia

My daughter Skyler will be 2 in August and she has CDKL5

@Amaankhan45200

11 ай бұрын

Hey, my daughter who is 5 months old has also been diagnosed with CDKL5. Any advise or treatment from your side will be helpful

I take care of my little sister who has angelman syndrome. I feel your pain man. It's very stressful. You guys are awesome.

How much has Ovid helped with managing and treating CDKL5? Are their medications alleviating the seizures?

Would a seizure trained service dog, who is trained to alert of an incoming seizure, be helpful for this type of epilepsy.

Очень буду благодарна, если будут русские субтитры!

My daugther has CDKL5. She has 4 years old

@MicalSimpson13

2 жыл бұрын

My daughter also has CDKL5 and she is also 4 as of January 8th

@jerryandme

Жыл бұрын

My daughter has just been diagnosed. Does your daughter speak?

@nadiafarooq3883

Жыл бұрын

@@MicalSimpson13 what is her condition presently

@nadiafarooq3883

Жыл бұрын

@@jerryandme what is her condition right now

@MicalSimpson13

Жыл бұрын

@@nadiafarooq3883 still the same, she’s on oxygen now

what kind of god can cause this?...