Life with Angelman Syndrome: Maintaining Hope | Ovid
Ғылым және технология
Between managing sleep deprivation at night and overstimulation during the day, Angelman syndrome takes toll on those with the condition and their families.
Watch to hear from one family committed to creating a better future for their daughter, who lives with Angelman syndrome.
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Пікірлер: 37
Sydney looks just like her mother. Her features aren't out of the ordinary.
I am a therapeutic horseback riding instructor and I have worked with a few children with Angelman syndrome. While they may have impaired communication, I have noticed that they really love to share their happiness with others. A boy I teach had recently learned how to do zippers. It made him so excited that he spent much of his lesson unzipping and then rezipping his vest. It kind of derailed my plan for that lesson, but he was so clearly just trying to share his happiness with me. He was very excited with what he could do and he just couldn't keep his excitement to himself. The only time he ever acts sad is if something is physically wrong.
@homeopathiconlineclinic8164
2 жыл бұрын
Kate Hickcox R u from?
I have a son with Angel man syndrome and he is now 31 yrs old .. and he was genetically tested when he was two years old. That’s when I found out what he had. We all love him so very much. I hope you have lots of support ❤
I can't imagine the pain that the parents felt knowing that the child and they have to deal with. These and all other parents who have kids with special needs are to be commended for their patience, encouragement and perseverance in raising them, especially during this pandemic!
@justanotherbum007
Жыл бұрын
Don't get vaxxxed...
Hello, very nice video)) thank you for sharing. My son is 5 years old and also has Angelman's syndrome. And I know how special our children are ❤️ blessed be 🙏
These Angels have so much potential and love that even 10 percent improvement would make a world of difference..
Hi my Girl got ANGELMAN'S SYNDROME, she's 12 years old. For sleep she's loves bubble wrap, and her favorite story ALL night long, try Alvin and Chipmunks, or Talking tom and Friends!!!!!!GOOD LUCK
@thejudderman8265
2 жыл бұрын
I work with a young boy who has AS and he is a beautiful child, he has an obsession with water and it is the only thing that calms him down but he is very very special!
@KyuubiSam
2 жыл бұрын
@@thejudderman8265 I have read that many individuals with AS have an affinity to water. While special, he also shares traits with other humans in the world :)
Beautiful family, touching truly
Baby. God bless you. Amen
Sydney is beautiful ❤ hope there will be treatment soon
She’s absolutely gorgeous.. my baby has angelman syndrome and she’s smashing every obstacle xx
@lesliholt3004
2 жыл бұрын
My grand daughter was just diagnosed. We have so much hope and so many questions. Where are you located? I would love some first hand answers if you don’t mind me reaching out.
@HaruUraHH20
Жыл бұрын
What is agnelmani I’m confused (I zon speak English well 🇯🇵)
They're angels on earth ❤❤❤
Who the heck dislikes this video? Weird people, what’s to dislike? Thank you for sharing your life story c
@CaptainSiCo
Жыл бұрын
Perhaps it’s meant as empathy. I “dislike” the fact you’re going through this.
She's just an angel sent from above
@ethanc1719
2 жыл бұрын
Nothing to do with religion
I could never have the patience to deal with this at home. All the credit in the world to you.
Many people with autism have problems falling asleep, gastrointestinal problems, behaviour problems, some have intellectual disabilities and other comorbidities. I wonder if there is a gen there that hasn't been discovered yet.
@teijaflink2226
2 жыл бұрын
There are some genetic conditions that can cause or cause autism but autism doesn't seem to come from just one genetic condion so there probably are genes that haven't been discovered and maybe sometimes it isn't even genetic. Makes me wonder if autism comes from some part of the brain that isn't working properly.
Sydney is so beautiful. As a parent of 2 special needs children i kno hope is good to hang onto and the little steps are huge. So celebrate and be happy for any step forward.
Lindo♡
2 of my friends it I have a microcephaly
Beauty💗💖💖
Dont be so sad there is lo at therets of hope
Well.. Hope is all gone now. OVID failed phase 3
@KyuubiSam
2 жыл бұрын
Don't give up so quickly. There are many possibilities, and each trial informs future ones. Besides, where OV101 was unsuccessful, OV882 looks promising.
The mom is bangin though…
Is she vaccinated? 😒
@serverelfrogue9597
7 ай бұрын
No it’s a genetic condition both parents have to carry it it’s not from a vaccine 🤦♀️
@GPC712
Ай бұрын
Educate yourself before asking an ignorant question. Angelman Syndrome is a genetic condition and is present at the moment of conception. It isn't caused by a vaccine of any kind🤦♀️.