It's gets better, alot of therapy ,and speech therapy.... I'm 30, and i have angelman syndrome, I'm from Panama city Florida....

@Joseph-ko2go

2 жыл бұрын

@wolfboy202

Жыл бұрын

My niece have Angelman syndrome I hope the best for her, she’s 1yrs old

@bzimmet9599

10 ай бұрын

Wow, you shouldbe proud of yourself!

@xiaoxili406

7 ай бұрын

You can talk and use mobile phone! Amazing

To all the parents, families that have children that have certain challenges, you are not alone. There are times you feel too overwhelmed, but also there are times of laughter. Remember to also not lose yourself and you so need to live and to take care of your self physically, mentally, emotionally and spiritually.

What I have come to accept over the last three years: 1. My daughter, Elena, will always be happy because she is surrounded by people that love her. 2. Elena will not share the same worries, the same fear that neurotypical people do. 3. All Elena wants to do is enjoy each and every day. Angelmans is a very difficult diagnosis. But one thing is for sure, Angels are so special. There are no children on this earth that smile like they do. The way my daughter touches my face as I lay next to her at night is what I live for.

Thank you Ovid for helping us

@salomeguguchia1828

5 жыл бұрын

Is olived in paris?

Merry Christmas 🎄🎁

I just got the news my daughter has this disease I'm so lost right now

@curvyblue2843

3 жыл бұрын

I'm so sorry. My daughter is too. Prayers for you and yours.

@demonicar

2 жыл бұрын

You made this comment three years ago, about the same time we received our diagnosis. I’d love to know how you are doing?

Is this the same woman from the Gala? I heard she left the foundation. We attended the Chicago gala the last year before Covid and now it seems that it is over. What a shame. It really helped us.

I identify with this video. I hope you guys can do something similar in different languages

My son is 30 years old a has Angelman Syndrome I can relate to everything said in the videos

God will take care of her hope our there

How can they always be right "Next week is always better"? There are weeks that are worse, much worse than previous week.

@dhhawalnandrajog

4 жыл бұрын

I think what they mean is that mentally they are at a much better place to cope, its easy to give into despair, much harder to be strong and keep hope alive because thats the only way to move forward..!

Speech and language has been the best genetics are looking into angelmans syndrome hence why I'm looking at this today. All the fears they had as parents I had but my child is signing and speaking I felt their pain and lived it too I'm on my own and it's tough, but it does get easier with therapies x

Yes I am alone. Nobody cares about my daughter or me enough to help. Watch her for an hour even...can't even pay anyone. No things don't get better they get worse. One medical thing gets taken care two more pop up. Im losing my mind!

@Beastmd

2 жыл бұрын

Praying for you, krista.

@homeopathiconlineclinic8164

2 жыл бұрын

R u from?

Hi my Girl got ANGELMAN'S SYNDROME, she's 12 years old. For sleep she's loves bubble wrap, and her favorite story ALL night long, try Alvin and Chipmunks, or Talking tom and Friends!!!!!!GOOD LUCK

@homeopathiconlineclinic8164

2 жыл бұрын

R u from?

Well Ovid failed 😞 sorry angel man people