Thank you for sharing your story. I was having shortness of breath after removing my appendix in 2017 but could never find the issue. I went to a pulmonologist, cardiologist and GI. Finally 5 years later and my pulmonologist look at my x ray again and doing the SNIFF test, I finally was diagnosed with a paralyzed diaphragm. My right side is the one not working properly. I came here looking for other people experiencing the same issues as me. Your video gives me hope to go ahead and get the surgery done!

I had surgery for my phrenic nerve in July 2022. Right phrenic nerve decompression and reconstruction. I'm a 63 year old retired RN. I feel that Dr. Kaufman saved my life.

Thank you for your information

Did you or do you have any numbness or loss of function from the removal of the nerve from your leg?

Liana, thank you so much for your story. Our paths have many similarities. My right phrenic nerve stopped working after someone rear-ended me in 2016. In 2019 I went to New Jersey for Dr. K's surgery. Early this year (2021) I had the sniff test and nerve study (I call it the cattle prod study) done and we learned that the nerve is conducting, so the surgery worked, but that the diaphragm is still frozen. Next week I have another consult with Dr. Kaufman where I think we will be talking about a diaphragmatic pacemaker. Was that a painful process for you? Was the reactivation of the diaphragm in the months after painful? Thanks for your story, you give me hope

Hello Liana, Thank you for sharing your experience. I was wondering if i can reach out to you. I am having symptoms but don't know if they are associated with my paralyzed diaphragm and since you are living this experience, my hopes are I can cross reference my symptoms with yours or vica versa. I am so happy to hear that you are making progress and doing better. Thank you for reading.

Tomorrow is my surgery with Dr. Matthew Kaufman, God bless him!

@Ismimical

3 жыл бұрын

How did it go?

@jaffarhassan1765

3 жыл бұрын

Are you alive now

@edvega3191

2 жыл бұрын

I noticed improvement at the moment I wake up in recovery room and feel much better, but have some difficulties if I go over the limits, like running. After one year of my surgery Dr. Kaufman prescribed the same test prior of my surgery and the results shows a delay of movement of the diaphragm. When compare one side of the diaphragm to the other side. My personal opinion is that even with this problem still much better than before the surgery. I still remember when was unable the sleep at nights in any positions and many time tray to sleep on a recliner chair. I highly recommend the surgery with Dr. Kaufman and God bless everybody experience this condition.

I just recently been told I possibly have a paralyzed diaphragm. I need to do more tests to see exactly what’s going on. Of course I am heck of nervous. I’m pretty active and this has definitely slowed me down.

Did you have this heaviness and pressure in chest down midline to abdomen. Mine feels so deep and like soenthing is gripping me with heavy weightnwhich is also felt into the back. Feels like body in constsnt flight or fight so cant relax and underweight as no appetite

How much does the phrenic nerve replacement surgery cost? What payment options are there?

Seems like I have that issue, does it bother your sleep?

Did you experience clenching your stomach trying to breath standing up?

I might have a diaphragm paralysis, its hard for me to breathe even when I lay down and try to sleep its the worst. I can barely sleep cause of my breathing issue. When you had diaphragm paralysis did it cause you not to sleep because you couldn't breathe properly?

@edvega3191

3 жыл бұрын

John, please let me know if you want my advise, I will have the surgery tomorrow and I know that is the only solution to our condition. Ed

@tristandangelo9073

3 жыл бұрын

You definitely need to get this checked. There are other conditions which can cause the symptoms you are describing. I urge you to speak with your primary care doctor. Please dont dismiss this. I am sorry you are faced with this health concern. Wishing you the best.

@John-eg9bq

3 жыл бұрын

Ed Vega good luck on your surgery, please keep me updated

@edvega3191

3 жыл бұрын

@@John-eg9bq Thanks to God my surgery when we'll. I wake up feeling much better and able to use my other long. I highly recommended to check with your primary care doctor or pulmonologist to be sure of your condition prior of moving forward with the procedure.

@shaxxie5237

3 жыл бұрын

I had a phrenic nerve paralysis. Just happened out the blue. It took a year to diagnose and met a spectacular surgeon. He did a robotic plication. After the operation I felt my breathing went worse. But now it's a lot better! I wasn't in the same position as you as it seemed like my whole nerve stopped working. I'm a lot better now.

How r u doing now